I have had it since I was 7 years old I will be 65 if I’m blessed to see March 2nd. I have been to doctors from Ky, TN now praying Ohio can help me.

My partner was seen at Mayo Clinic and she is on a 200mg dose of Topiramate and has Naproxen and another medication that she takes as needed. We were told to have her take the medication for 3 months to see the effects. The new medications weren't mentioned. Is this something we should speak to the doctor about?

20 years of clusters,when they are on its 3 or 4 a day for 3 months,this bout at the 2 month stage the doc gave me prednisolone and verapamil,i did not get another headache after the first pills,it was all over with 2 pills,i have taken them low dose for 20 days now and still no headache,see neuro in a couple days and should be off the meds,this changed everything,try it,just try it if u got clusters.

Can you please make a video on persistent migraine aura without infarction? There are very few videos online about this and it’s a condition I have. I particularly get afterimages and photophobia. Anything you could do to help educate me would be greatly appreciated.

Hi what is the typical price for the dual savi device monthly?

I've been suffering cluster headaches for 40 years. This year I made a discovery. For some reason, I managed to go for 3 years without a cluster. Then this year, around late September/October they returned with a ferocity that I hadn't experienced before. I'm talking about a cluster headache every two hours, throughout the day and night, with the pain off the scale. So I started to try and work out what was different about those 3 years and, in particular, these past few months. The answer? The weather. Bear with me.... I'm in the UK and 2024 was a particularly poor year for the weather. Our summer didn't really arrive. The main feature of the weather during that time was clouds. It was cloudy for most of the year so we didn't see much of the sun at all. I then began to wonder if, as a result of the lack of sun, that my vitamin D levels were low. So I took a Vitamin D deficiency test (£8 from Boots) and it showed that I was indeed deficient. I began using a Vitamin D supplement (I use a spray which delivers 4000IU) and after a couple of weeks my headaches had reduced to their normal levels of a couple per day/night. After a month of use the headaches have more or less gone. Now, I'm not saying that vitamin D deficiency is the cause to most cluster headache sufferers, but it's no coincidence that most of us suffer more in the autumn, spring and winter, when the sun is low. This means that our body's ability to absorb vitamin D is greatly compromised. In fact, it's quite likely that most people in the UK are vitamin D deficient to some degree without actually knowing it, and this is mostly due to our poor or inconsistent weather. If you think you might be defficient in Vitamin D go and get a test. You've got nothing to lose, especially as it may well help with the frequency of attacks as well as the severity of them. Our bodies need this vitamin for all sorts of reasons, particularly for bone strength, so even if it doesn't reduce your headaches, it will at least provide your body with a much-needed boost during the times of the year when we don't get much sun.

I've been suffering cluster headaches for 40 years. This year I made a discovery. For some reason, I managed to go for 3 years without a cluster. Then this year, around late September/October they returned with a ferocity that I hadn't experienced before. I'm talking about a cluster headache every two hours, throughout the day and night, with the pain off the scale. Oxygen helps but not for breaking the cycle. So I started to try and work out what was different about those 3 years and, in particular, these past few months. The answer? The weather. Bear with me.... I'm in the UK and 2024 was a particularly poor year for the weather. Our summer didn't really arrive. The main feature of the weather during that time was clouds. It was cloudy for most of the year so we didn't see much of the sun at all. I then began to wonder if, as a result of the lack of sun, that my vitamin D levels were low. So I took a Vitamin D deficiency test (£8 from Boots) and it showed that I was indeed deficient. I began using a Vitamin D supplement (I use a spray which delivers 4000IU) and after a couple of weeks my headaches had reduced to their normal levels of a couple per day/night. After a month of use the headaches have more or less gone. Now, I'm not saying that vitamin D deficiency is the cause to most cluster headache sufferers, but it's no coincidence that most of us suffer more in the autumn, spring and winter, when the sun is low. This means that our body's ability to absorb vitamin D is greatly compromised. In fact, it's quite likely that most people in the UK are vitamin D deficient to some degree without actually knowing it, and this is mostly due to our poor or inconsistent weather. If you think you might be defficient in Vitamin D go and get a test. You've got nothing to lose, especially as it may well help with the frequency of attacks as well as the severity of them. Our bodies need this vitamin for all sorts of reasons, particularly for bone strength, so even if it doesn't reduce your headaches, it will at least provide your body with a much-needed boost during the times of the year when we don't get much sun.

All 4 of you are my heroes! This video just helped verify, assist, and provide comfort to helping the long and painful process of applying for these debilitating Migraine symptoms.

psychedelics saved my life...i dont use meds anymore for 5 years now...just psychedelics and oxygen.. DMT kills the pain in seconds no matter how bad it is

My neurologist just gave me EMGALITY 100MG INJECTIONS THAT helped me somewhat, but with the pills in oxygen, super sleepy and tired... But ONLY 4 OR 5 HOURS OF REST, THEN BACK IN PAIN AGAIN HARD TO SLEEP. WAKING UP LOOKING AT THE CLOCK SO MUCH. CUZ I KNOW THE PAIN COMING 6:20 am DAILY

Dr tried me on all kinds of meds, nothing worked...Only thing that stops mine is CBD/THC

😢am presently going through this have been going on for like 4 years now, at a specific period of the year, it hurts, I need a solution 😭😔

Would antihistamines and antiinflammatories make this kind of migraine better temporarily?

I have them but never met anyone else who suffered from them except here

Currently having a migraine, although its mild compared to my previous attacks (which it almost made me think I'm going to die from the extreme pain). The pain goes away if I took a medicine, but it rarely dont. Sometimes I just force myself to sleep because of it.

wrote this nonsense

I’m 32 weeks pregnant I have migraines can I use Tylenol every day next 8 weeks

Leave it to folks like this to always make it about color😂

Shadow boxing cures mine within 10 min every single time. It has to be a hard core, make yourself sweat and breathe hard shadow boxing. Mixed with jumping Jax and jumping squats to get your cardio going. I’m sure it’s just the fact that I get my blood pumping and oxygen flowing heavy that helps, so try it and come back to let me know if it works. I’ve suffered from clusters for 15 years and this is the only thing that has helped demolish the headache fast.

This was really good thank you very helpful. Does age have to do with headaches. Menopause?

I’ve had migraine for over 30 years but two weeks ago started to get a headache every night at midnight. The headache has always been on my left and I try using my sumatriptan and an ice pack but I am starting to dread nighttime. I plan on calling my neurologist in the morning.

My feet! I woke up the next day after a 3 day migraine and my feet!! It hurts to walk! It’s unbearable! I cannot lose my job over this!! 😭😭😭

Please reach out to those you know have Migraines.

Yes, it comes with feeling alone.

If you have Cluster Headaches or Migraine please investigate about Nasal Sprays Medications and Nasal Sprays Antialergics. Also try detoxing your body with Cilantro Tea and Coconut Oil "I add a little bit to my coffee" in the morning. This helped me 1,000% more then any other treatment. Thanks God!!!

I filed with the insurance companies a HIPPA Violation regarding accurate and complete records. These Drs refuse and don't take any accountability, The things said to me are insane. Keep the migraine journal utilize chat gpt.

Male Migrain(M36) & Female (F33) Infertility Issue? No Family History Infertility

he speaks too fast and im getting vertigo just trying to follow along

If you are also skipping your breakfast and other meals, and taking zero nutrition, taking zero amount of nuts, fruits, and greens, like me, then please, please start it now. Just eat three or four soaked almonds in the morning because you have a magnesium deficiency because you are getting headaches in your periods, and also take greens or iron and magnesium supplements you can take also, and be in the sun for some time in the morning for vitamin D. I know you are not taking any kind of sunlight and any kind of vitamin D, and you are doing a very stressful job, so do the techniques of reducing stress and build your mindset like that, so you do not have to stress all day, and do a physical activity in the evening or in the morning, it just can be a walk, or simply 10 minutes stretches, or playing badminton, bicycling, anything, but do it for one month, and your next period will be so calm, and you do not have to cry for a headache, it's not hormonal, it's not for estrogen, whatever, it's about your health. I was suffering from it, like it was extreme pain, but when I did this, I found out that I have magnesium, vitamin D, and iron deficiencies, so I worked on them, and now my periods go really calm, and I do not have any headache, it can be cramps, but headache will not bother you, so please try it, please, I genuinely want to help you. English is my second language so please do not mind the mistakes I made but please I'm here to comment just for you to try it take care of your health as much as you can . and DRINK WATER .

I need help i suffer from cluster headaches they went away for years and now they have come back full force every day 3-4-5 times a day please help me out…any advice is greatly appreciated

My pain would move around my head. It was intense. Mine would last from morning to evening but go away about 6 or 7pm. Never lasted more than that and I would always wake up with it.

I've been haveing them for alil over 6 years currently coming off a cycle of headaches now they were light not as extreme as the last cluster cycle that hit,my right eye would swell ,water,my nose would run,and my head would go threw excruciating pain, a very hot rag n dark room seems to knock it out in 10 to 15 min for me with the hot towel on my face were pain is...

I have suffered cluster headaches for decades. An occasional break, but mostly every day. My neurologist gave me Sumatriptan (Imetrix) injections and it has saved me...

I brain freeze myself and it helps with Clusters better than any medication. It reduces the time spent suffering and kinda reduces the pain. Sometimes I alternate the ice with a hot rag. I wait till the brain freeze from my ice starts, than immediately replace it with the hottest rag I can stand. Repeat until Cluster headache is gone. This is better than any medication I promise. It’s not immediate, but definitely reduced the pain and time spent suffering. Also, as soon as you feel the slightest pain about to start, go get the ice. That is your Q to get your ice and freeze your brain.

And they just discontinued sumatriptan spray in australia because of 'commercial' reasons.

10 minutes in and I've heard the word medicine/medication/prescription more than i can count. Ive heard nothing about diet, nutrition, mental health, natural management prevention & mitigation methods of the above. I've heard nothing about filing for a disability, or free disability resources. We don't know what resources we have access to, our rights, and to get help with challenges. Ive heard no discussion on hiring and career search and retention. 17:00 ish - 25:00 ish they touch on disability forms and accomodations but we need to know more about our rights. I found this section hopeful about changes though. But not everyone has support systems. I love this chat though. 😅 Thanks for the discussion. It was especially nice hearing from a fellow experiencer. And know other people have similar extended durations of attacks.

what meds you on ? cant just say you found the magic meds and not drop a link !!!!!!!!!!!!!!!!

Everyone suffering from cluster headaches needs to check vitamin d and magnesium levels!!!! It’s very closely linked!

Glad I read all these comments. I'm 70 and have had it for five years, usually in September. After initial struggles I found relief from Prednisolone starting with 40mg and tapering off till ends.

I'm just coming off a cluster now…into the post-cluster phase where I'm all goofed up. Mine strike at 8:30 in the evening. This has been an awful allergy season and my body had enough. O2 helps me as does Zofran since I get severe nausea along with the 10+ pain, and anxiety. Fingers crossed I successfully stopped it, though i live in fear for the next one every time I go through this. I am glad he got help, there are a few head pain specialists in the US and in other countries (I see one in Chicago). I get migraines and clusters. I would not wish this pain on my worst enemy.

Thank you for this information!

wow so beautiful

Whole lot of marketing crap

This is the most informative interview yet.

I never have a headache free period.

I've heard cluster means they go away but mine ne er completely do. They come in two parts the first is a mild headache and the more severe is the cluster that comes several times a day. However, I wake up with a basic headache when I awake and when I go to bed. It's not the worst pain I've ever had by far.

I still have trouble defining cluster headaches but identify with activity helping to tolerate the pain.

I often say the same : the neurologist saved my life by diagnosing me correctly.

What medications do you recommend?

I wouldn’t say the MRI is useless. I had one today because I have sudden onset of migraine auras (everyday for months) & stroke-like symptoms (may be hemiplegic migraine etc). So they can’t just diagnose it as migraines without ruling out possible brain tumors, stroke, etc. That’d be dangerous