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Пікірлер
@Rip_luckv4
@Rip_luckv4 17 күн бұрын
I see me and my friends :) time goes by so fast… I wish I could see them again
@dalejamison1627
@dalejamison1627 2 ай бұрын
I lost my son to cf he was 31 so I know what you went through I hope an pray every day they find a cure soon because no child has to go through what my son went through
@heidistieber
@heidistieber 3 ай бұрын
Melissa is a great speaker - and this is an excellent video, good edits and highlights of her story. Thanks!
@Omarfaruque1669
@Omarfaruque1669 4 ай бұрын
Any update about this beautiful sweet girl??
@mavischadwick6445
@mavischadwick6445 9 ай бұрын
All thanks to DR ALAHO OLU on KZbin Channel who finally cured me and my wife from MS and ALS. He cures HPV, HSV, Lungs Disease, Cancer, HIV and many more.🌿🌿
@abdulghani8983
@abdulghani8983 9 ай бұрын
I treal to my baby Fatima witheng systic fibrosis wiry hard time and life with dis dises my good all childring cary all dises
@JordanStaples9
@JordanStaples9 Жыл бұрын
This….is…..AMAZING
@Fsociety046
@Fsociety046 Жыл бұрын
Any new update of this baby girl? 🥺
@saimasaleem8854
@saimasaleem8854 Жыл бұрын
Cystic fibrosis meri bhanji ko bhi h 4 saals ki h pakistan me iska ilaaj nh h better treatment konsi country me h please help me
@MsEager2learn
@MsEager2learn Жыл бұрын
Hello, there. I am so proud of you both. I have wonderful news for you. I am 60 next year. I was diagnosed with CF in 2017 after fighting a near fatal round of a micro bacterial disease I caught during a surgery performed as a life saving measure. That is the ironic thing, I have Sudden Death Syndrome. Because of this they were placing a defibrillator next to my heart (2015) and this can actually save my life should my heart stop suddenly. They gave me an infection while performing my surgery, and close to 2 months later I started coughing and haven’t stopped since. I underwent a total of 3 bronchoscopes in 10 months during 2016 when they told me they could not find this bacterial infection because they hadn’t seen this one ever. After finding a hospital in Denver, Denver Jewish Hospital they taught me how to live with this disease the best they could and while I was there one of the last tests they did was a sweat test, to detect CF. I have CF and have had it all of my life. The best news is my age. No disease is exactly like another. I don’t want you to lose hope. God Bless you.
@sqrdarraheel7356
@sqrdarraheel7356 2 жыл бұрын
thanks 2 god my doughtr is cured from cf
@foxyroxytm
@foxyroxytm 2 жыл бұрын
Old poor thing with the vest on, I feel so bad 😔
@karenenderle532
@karenenderle532 2 жыл бұрын
When people talk about "class" in regards to Coach K, one fine example is when he is leaving the court and he walks over to the other team and says "Sorry for holding you guys up!" It was sincere and not staged as many like to say. It was real, he was still very emotional after surpassing Bobby Knight; that's why he apologized, they took longer on the court to celebrate! Class act!!
@roseswife
@roseswife 2 жыл бұрын
I’m so proud of this mom
@yucibe5663
@yucibe5663 2 жыл бұрын
🙏🙏🙏🥰❤️🌹
@Legittoquit1
@Legittoquit1 2 жыл бұрын
That’s a lie ! Liars
@sharondrake5119
@sharondrake5119 2 жыл бұрын
#Druromi on KZbin has guaranteed working approved herbal treatment for Cancer and speech delay. I have also make use of is herbs and I’m free from my beast cancer .
@Youre_Right
@Youre_Right 2 жыл бұрын
CF is such a wicked disease. It literally robs kids of their childhood. They don’t get to be carefree and reckless. It’s such a terrible disease and people can be against gene modification and things like that, but that’s what it will take. If God isn’t willing to fix it then science is our only hope.
@julialouk9363
@julialouk9363 2 жыл бұрын
Yes terrible I'm 37 years old and I just found out two years ago I had it cf it's no joke I can tell you that from personal experience
@musicaworldwide6043
@musicaworldwide6043 2 жыл бұрын
Life is not fair 😥
@marcellevlog8405
@marcellevlog8405 2 жыл бұрын
God blessed you mom 🥰❤🙏🙏
@anniewall2822
@anniewall2822 3 жыл бұрын
Stay positive your daughter is going to be fine she’ll get through this I got through cellulitis and I’m still strong today
@anniewall2822
@anniewall2822 3 жыл бұрын
Your Daughter has a lot of energy that’s good
@joannkyle6528
@joannkyle6528 3 жыл бұрын
Do you still have the blonde and brown pups?
@hypn0298
@hypn0298 3 жыл бұрын
Great HD video quality, it’s hard to find an HD broadcast of this series.
@RobinPM86
@RobinPM86 3 жыл бұрын
"I want my Mommy"...and your heart melts.
@deansimon4276
@deansimon4276 3 жыл бұрын
Zogo Defused
@christianeakakpo8895
@christianeakakpo8895 3 жыл бұрын
God will always protect you
@charlottebruce979
@charlottebruce979 4 жыл бұрын
Poor little girl hating her noisy vest. I hope and pray that they find a cure. Children with this seem to be living longer and longer now. I'm going to give to a cystic fibrosis charity, hopefully if we all do little girls and boys now can live longer and better lives.
@christophergrim3rdchannel610
@christophergrim3rdchannel610 4 жыл бұрын
This Video Is Very Calming, I Just Don't Wanna Turn It Off! :)
@ashokmehmi6579
@ashokmehmi6579 4 жыл бұрын
I have it too
@iLOVEpalestineFOREVER
@iLOVEpalestineFOREVER 4 жыл бұрын
Look into the new drug therapy Trikafta it's a medical breakthrough that actually changes and fixes the DNA mutation so the body stops over producing mucus. It may save her life. This isn't just a "oh do this random thing that won't work" comment, Trikafta DOES WORK. Please look into it.
@candicelewis9252
@candicelewis9252 4 жыл бұрын
I'm sad
@heathermace8765
@heathermace8765 4 жыл бұрын
We are now on board with you. We found out about my granddaughter at 10 days old after the baby health screening done after she was born. She is class 2 and now 8 weeks old. Being a retired Respiratory Therapist I am now on the family side living this life along with you. Thank you for your video.
@Mari-xp8qm
@Mari-xp8qm 5 жыл бұрын
My daughter had CF but unfortunately she passed away at Four years old my daughter passed away today she would have been 35 I really miss her so much so when I see kids or see people who have it my heart goes out to them .lives your video was very heart touching.
@carmeny1777
@carmeny1777 5 жыл бұрын
the girl in the teal gap jacket was my little sister
@ashnkksmom2264
@ashnkksmom2264 5 жыл бұрын
I’m a retired respiratory therapist I worked at cedars which has a cf clinic I also did training at CHOC (children hospital of Orange County ) with only three hospital stays you are doing an amazing job keeping her healthy. I can remember seeing the same kids five or six times a year. Keep up the good work mom.
@jillcunningham7277
@jillcunningham7277 5 жыл бұрын
Your daughter is gorgeous! Thank you for sharing your journey!
@EmberHarrington
@EmberHarrington 5 жыл бұрын
It sickens me that people bring kids into the world for......for what? For Themselvesss To satisfy their Own needs and wants. Oh .....I want a little pink or blue "bundle of joy" ......and that will complete MY life.......all the while not giving Any thought to the fact that that ...bundle of joy will have to live out That Life themselves and all the horror that comes with it. Poor kid.
@chrysageorgouli2297
@chrysageorgouli2297 5 жыл бұрын
I have cystic fibrosis and I had a double lung transplant and I am one better than ever. By the way I am 13 and in 2 years I might need a heart transplant but so far so good 😊
@susanmaroney5520
@susanmaroney5520 5 жыл бұрын
He has a granddaughter with c.f. and she's doing amazing. They tell you to give the kids ensure all that is is cream and sugar and dairy products create more mucus who would figure so are they really watching out for our kids. They told me more calories in but they give us all the junk ones to keep our babies sicker. Go more natural more fruits and vegetables stay away from the package junk foods I wish I could turn back time soooooooooo many things would be different
@susanmaroney5520
@susanmaroney5520 5 жыл бұрын
you need to check out the new supplements they have for the kids with cystic fibrosis my daughter started to take them and has kept her out of the hospital they are all natural contact David White. They are affordable also.
@sin5284
@sin5284 5 жыл бұрын
Poor little mite , life's cruel ,I had a scare last month but thank God it was a mistake and he's clear of CF .it's changed my life for the better though I Cherish every moment now
@patricianorton3908
@patricianorton3908 5 жыл бұрын
Have you contacted Mary Frey? She is a married 29yo who lives with C.F. Go to "The Frey Life.com" for a whole lot more info. She has a sister with C.F. who is a wife, lung transplant recipient, and the mother of a healthy baby boy. I’m sure Mary would love to talk to you. Love from N.H., Patricia 👵🏻😉
@shaelinrollman4771
@shaelinrollman4771 5 жыл бұрын
Me and my brother both have CF. It's been pretty crazy but I can honestly say that CF has brought me closer to my family and most importantly to God. In my opinion you kind of have to believe in something to keep you going, and knowing that there's a kind and loving God taking care of you and waiting for you on the other side is so comforting and has brought me out of my darkest times. And CF gives you a deeper appreciation for almost everything that a lot of people overlook. I just went through a sinus surgery where basically my sinuses were completely blocked, and now being able to breathe through my nose after like 5 years, it's crazy. For anyone with CF or a parent of a CF patient, just know that it's gonna be really hard sometimes, but after you get through that you'll have a deeper connection with whoever helped you through, and you'll appreciate and savor life much more.
@rileebingham5242
@rileebingham5242 5 жыл бұрын
When I was her age the vest hadn’t come out yet but if it had I probably would have been terrified lol (I have cf)
@plarkin9544
@plarkin9544 5 жыл бұрын
SHE NEEDS THE MINERAL SELENIUM SEE DR. JOEL WALLACH ON HIS YOU TUBE CHANNEL LORD BLESS YOU
@joshuashane6625
@joshuashane6625 5 жыл бұрын
I was diagnosed with Idiopathic pulmonary Fibrosis (IPF) 3 years ago. I had no idea i will still be alive today because of the stories I have heard about this horrible disease. Initially, the doctor thought I was asthmatic and he gave me many different inhalers to treat my asthma, but none of them worked. I kept going back and saying things weren't right. I couldn't talk without coughing or do normal routine activities without getting out of breath. Later, I was cured for pulmonary when i came across a blog it change my life: curetoidiopathicpulmonaryfibrosis.blogspot.com/ or contact Dr George at [email protected]