Usually caused by Liver/Thyroid disease.Being too thin is also a problem.

anyone found treatment yet?

Very serious true and ridiculously intermittent life I live.

A US female forevermore in suffering and no one is truly assisting us medically…. I live amongst some of the most highly educated & trained institutions, including NIH. Yet, if one doesn’t present with a defined symptom such as a brain infection or inflammation, or demyelination of nerves, ME is ruled out. CFS can be considered a diagnosis, yet that doesn’t come close to what Chronic Fatigue Syndrome truly represents… As many state here, we are ghosts…

Doctors aren’t much help with me/cfs.

It’s terrible when you used to be a go getter and a superman. The guilt, the shame, the pressure to keep all the companies going. The pride has lent me big financial losses as couldn’t admit to myself (because doctors couldn’t believe me or find out). Luckily therapist figured it out snd since been diagnosed. Still fighting it, as critical of self won’t let me admit to myself my dreams are over, luckily mild to medium but it’s truly aweful all round. Tried so many things but it takes so much energy to even try things… good luck all, let’s hope they figure out a physical medication or something one day not too distant..

As someone with MS and ME I can tell you first hand my disability is the ME and swallowing just as much if not more than MS itself.

SUFFERERS ... PLEASE FOLLOW ANTHONY WILLIAM, THE MEDICAL MEDIUM!!!! You CAN heal in time.

Thank you for telling this is from brain.

Screaming out for help to everyone around me but lost everyone:( doong so cus they thought they understood, they didn't I was getting worse I have two children one of which has special needs and I been so scared and worried 😢 just sent them this video hoping for understanding and support

Thank you for this video. I believe I have had ME for almost 10 years, but only had to stop working 2.5 years ago. I am still undiagnosed and am now facing homelessness because I haven’t been able to get any financial support. Nobody believes me. Nobody understands. Without the online ME community, I don’t know if I even would have made it this far. 😢

34 years and counting. One day, I will see Jesus! He will be waiting for me! He is my lifeline and my only hope!

Post covid has increased the number of people. Perhaps the pharmaceuticals are interested now it could be lucrative for them. I think they know the cause of the condition, but it's probably a very simple cure, so no corrupt pharmaceutical or NICE/NHS will do anything at all. Otherwise they'd have a trolley load of drugs.

Didn't realise the study was quite this flawed. I was aware of the change in improvement criteria but didn't know about the other things.