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Пікірлер
@tonmonteiro415
@tonmonteiro415 16 күн бұрын
O seu filho ja esta curado?
@brianlhguntercomposer
@brianlhguntercomposer 19 күн бұрын
😂
@theoverlord3839
@theoverlord3839 20 күн бұрын
Someone's salty...
@annicalo87
@annicalo87 Ай бұрын
Thank you for sharing something so personal. My son has the same seizures in the car! He has just been diagnosed with the same syndrome, it took us a year to find someone that could tell what was going on. This is helpful.
@frendo1716
@frendo1716 2 ай бұрын
Is it possible to give an update? How is your son doing, hope he has no episodes anymore? Why I am asking, my son has panayiotopoulos-syndrom just 2 weeks ago he had his first episode and so far the last one and just looking for information online, maybe not the best idea I know. Thank you and all the best
@meadowlarke
@meadowlarke 2 ай бұрын
Lutefisk!
@IsaiHVoyn
@IsaiHVoyn 3 ай бұрын
This is amazing
@pdxjohnson_
@pdxjohnson_ 4 ай бұрын
Wander Refsland I’m your biggest fan
@mamimaydin4993
@mamimaydin4993 8 ай бұрын
Hi so glad to hear he’s seizure free for four years 🎉 that became a hope for me . I have 2.5 year old son and getting through the same thing. He had 5 episode total in 10 months. Doctors advice medication but I don’t wanna give him because of side effects. He is always in front of my eyes and his seizures lasts at most 7 mins and just staring like him and vomiting then sleeping right after seizure then he comes back to normal. So my question is did he use any seizure medication during that time or it just went away. How often he was having the seizures? Sorry too many questions 😞thanks for this video btw this the only one on KZbin that helped me to figure out what my son going through appreciate for sharing 🙏
@AETacts
@AETacts 9 ай бұрын
Such a powerful video ❤ Ashley Tetzlaff
@janicemahan4772
@janicemahan4772 9 ай бұрын
If only it were that simple. I could have unmet my husband.
@Slaci-vl2io
@Slaci-vl2io 9 ай бұрын
Ex-husband, I hope.
@janicemahan4772
@janicemahan4772 9 ай бұрын
@@Slaci-vl2io Deceased.
@bryanrobie4376
@bryanrobie4376 9 ай бұрын
Well done, you just gave me an idea. Keep filming guyz.😊
@corneilshamalcom1591
@corneilshamalcom1591 11 ай бұрын
F
@Malakai_weird0
@Malakai_weird0 Жыл бұрын
I thought you meant human children😂😂💀💀💀😭😭😭😭👁️👅👁️
@juanswanepoel
@juanswanepoel Жыл бұрын
bruh why a sink out of anything you choose a sink
@juanswanepoel
@juanswanepoel Жыл бұрын
why did someone record a vidio of a sink? ITS JUST A SINK?!?
@1Envy_here1
@1Envy_here1 Жыл бұрын
"bro why is there a camera in front of a sink?? "
@Felix_SRT21
@Felix_SRT21 Жыл бұрын
Who tf left their camera on the stand facing the sink 💀
@garethjelley7740
@garethjelley7740 Жыл бұрын
Bro, what is this video of a sink, like who wakes up and decides "today I'm just gonna film a sink"
@YouTubeallowedmynametobestolen
@YouTubeallowedmynametobestolen Жыл бұрын
"I worked hard on that." ... Huh?
@daygarrett5833
@daygarrett5833 Жыл бұрын
The lean in at the end
@daygarrett5833
@daygarrett5833 Жыл бұрын
Both of us are going to see Jesus a lil early best line from a comb over
@horsluva0758
@horsluva0758 Жыл бұрын
Loved it!
@MimiBBBBB
@MimiBBBBB Жыл бұрын
I know this episode last long ,but is it included both jerking and vomiting?May i ask how long is the jerking part last usually?
@lorenzoramirez2538
@lorenzoramirez2538 Жыл бұрын
It was nice
@tranthithanhduong
@tranthithanhduong Жыл бұрын
Em bé nhà bạn đã khỏi chưa? Tôi rất tò mò, vì em bé nhà tôi mới được chuẩn đoán bị hội chứng này cách đây 1 tháng. Bé đang phải dùng thuốc.
@pollyanadossantos120
@pollyanadossantos120 Жыл бұрын
Como foi o diagnóstico do seu filho, o meu tem essas convulsões desde 1 ano e 8 meses,(foi a primeira convulsão dele) agora com 3 anos, ele vai realizar um eletroencefalograma (pela 3 vez,) só que agora com ind:panayiotopoulos... Desda primeira convulsão ele já teve 8 vezes... Já fez uso de respiridona,neleuptil e agora carbamazepina...
@midjelly8837
@midjelly8837 Жыл бұрын
Counts to 0 minutes: Me: (either scrolling on phone or wailing from pain.)
@meadowlarke
@meadowlarke 2 жыл бұрын
I waited years to get an iPhone because I didn’t like how I couldn’t customize the Home Screen like I could on an Android. It’s better now so I took the plunge. More home screen customization would be nice.
@JasonRefsland
@JasonRefsland 2 жыл бұрын
I couldn't agree more!
@random-demon
@random-demon 2 жыл бұрын
I had Panayiotopoulos syndrome when I was younger and I still take a medication for it. I’m so sorry that your son has this disorder and I hope he’s able to get past it like I am.
@North_Cascade_Railfan
@North_Cascade_Railfan 2 жыл бұрын
Oh how I miss that steam engine, “the chiggen” well at least they got the awesome, bigger 924 now!
@Nenineni2920
@Nenineni2920 2 жыл бұрын
😱😱😖😱😱🥺🥺🥺
@andrewstier
@andrewstier 2 жыл бұрын
Great job!
@JasonRefsland
@JasonRefsland 2 жыл бұрын
Thanks Andrew!
@ginahill503
@ginahill503 2 жыл бұрын
Well done! Loved the ending.
@JasonRefsland
@JasonRefsland 2 жыл бұрын
Thank you Gina!
@ginahill503
@ginahill503 2 жыл бұрын
@@JasonRefsland Most welcome.
@haliareynolds4033
@haliareynolds4033 2 жыл бұрын
such a fun project. love how it turned out!
@JasonRefsland
@JasonRefsland 2 жыл бұрын
You killed it! Excited to see what’s in store for you!
@sterndragoon6246
@sterndragoon6246 2 жыл бұрын
I was diagnosed with this at the age of 3 and the seizures stopped at the age of 9/10 but I remember always waking up in the hospital and just already knowing why I’m here. I’m now 14 and I’m still kinda scared if they would ever come back even though there’s a low chance they will but still it’s scary and to be honest it’s hard to think that I used to have epilepsies like 5 years ago but I’m doing fine now and I hope ur son is doing alright aswell
@JasonRefsland
@JasonRefsland 2 жыл бұрын
Glad to hear you're doing well now!
@sterndragoon6246
@sterndragoon6246 2 жыл бұрын
@@JasonRefsland thank you :)
@LawbeeIndia
@LawbeeIndia 10 ай бұрын
Hi, did u take any med for that and how many years
@monarkiafilms4308
@monarkiafilms4308 2 жыл бұрын
Hi, my son had his first episode right after waking up in the morning, april 2020… He was 3 years old at this time. He was sitting his eyes on one side, totally lost, pale than started stiffness, difficulty breathing. I though he is dying. We took him to the hospital and that’s when I was told its childhood epilepsy. I did my own research since it was so unusual and I came across this video. We put him on oxcarbazepine in October after his second episode which was scary again since it lasted so long. His med has been effective, 300 mg trileptal (oxcarbazepine) day, 450 mg at night. He still has moments of attack but they are very brief. It happens once in every 2 or three months. Im here just for one advice! Whatever you do pls just dont stop the med suddenly, I did just that a week ago and I am now right beside him at the hospital, waiting for him to wake up after his worst episode ever, vomiting, pooping, low oxygen, it lasted for a whole hour and a half! I pray to God and hope he grows out of this. Its a terrible condition and very difficult for the parents! Blessing to you all
@nadiaanwar2701
@nadiaanwar2701 2 жыл бұрын
Wishing your son best recovery 🙏.. My daughter just had this episode during her sleep for the 3rd time.. her first was in oct 2021, april 2022 then now june 2022.. when it started she was a bit conscious, like talking to me, replying to my questions as if she was hypnotised. Doctors are unable to get what it is exactly.. but just came to this video and your comment. she has bever been prescribed any medicine. Today too, she has been referred to another doctor, we will go by evening.. It was painful to watch her vomiting and then jerking followed by crying.. I wish i could make her feel better 😞.. she was born in april 2020..
@h91643
@h91643 Жыл бұрын
​@@nadiaanwar2701 Hi Nadia, Hi, I wish your daughter all the best. how is she now? My daughter was diagnosed when she was 3 but we just started meds (Lamctal) now she is 5 and a half because her episodes are more frequent now. I am so scared of all the negative side effects of antiepileptic meds. I am always looking for a trigger or pattern for her episodes but nothing each time she has a different thing, she had a total of 7 episodes in the span of 3 years. Do you have any answer of any kind regarding the cause or the triggers?
@englishteaching3503
@englishteaching3503 2 жыл бұрын
We need an update if you don't mind
@JasonRefsland
@JasonRefsland 2 жыл бұрын
My son is 10 now and hasn't had an episode since 2017. He's doing very well! We have had some learning disabilities and social behavioral issues that may or may not have been related, but he's quickly growing out of these as well!
@englishteaching3503
@englishteaching3503 2 жыл бұрын
Thanks. So happy for you
@maciejkasprzycki4723
@maciejkasprzycki4723 Жыл бұрын
@@JasonRefsland So glad to hear that :) Also thanks for uploading this video, as it is very helpful in learning about the syndrome
@MaramOtb-i5o
@MaramOtb-i5o 2 ай бұрын
We need an update if you don't mind and are you still taking medication or not? ​@@JasonRefsland
@heavencelestina6038
@heavencelestina6038 2 жыл бұрын
I don’t know much on this. But when you said, should we take him to the hospital. I could see he got emotional. Like he wanted to cry. 🥺😭 Jesus I pray for your healing bloo d Jesus.
@alexindorato
@alexindorato 3 жыл бұрын
We just discovered that our 4 year daughter has the same syndrome, i have not slept in 3 days, I’m afraid she might have a seizure during her sleep. Do they happen often in your case? How are you treating it and what would be your advice? God Bless all babies in this condition ❤️
@JasonRefsland
@JasonRefsland 3 жыл бұрын
We did not have that happen in his sleep. We had a neurological sleep study done to make sure. He grew out of it like most kids do around age 7. But it is scary. Hang in there!
@paulamarie_03
@paulamarie_03 3 жыл бұрын
My daughter had this happen last weekend. Her pupils dilated, drooling, pale, and unresponsive with eyes open. Thank you for sharing because I had no idea what was happening. I did a google search for seizure with eyes open and found this syndrome and found your video. My daughter had just woken from a nap in her carseat.
@JasonRefsland
@JasonRefsland 2 жыл бұрын
I hope you find a specialist to look into it! He has been seizure free for 4 years now. Like most kids with this syndrome it dissipated around 7 years old.
@aminyard
@aminyard 3 жыл бұрын
I just found this video... I had this condition as a child. It started when I was around 2 and lasted until I was almost 6. No episodes after that. Prayers for this little one
@frendo1716
@frendo1716 2 ай бұрын
Can I ask you if you took any medication back then?
@aminyard
@aminyard 2 ай бұрын
@@frendo1716 I did not. I went through this back in the 70s when the condition was first being studied and didn't have an actual name yet. We just managed symptoms with nausea medications, hydration, and I would always sleep a lot after an episode.
@frendo1716
@frendo1716 2 ай бұрын
@@aminyard Thanks for your answer. Your experience, no matter how terrible it may have been, had a happy ending. I hope the same for my son and all other children who suffer from it.
@briar1312
@briar1312 3 жыл бұрын
My son get very violent for weeks after these . They always do a med increase. Anyone else have the same problem. Getting ready to take him off oxcarbomazipne and put him on one that start with a z . Today he said he was gonna have a siezure come to find out his sodium was low from the meds. So they think that caused a focal siezure
@briar1312
@briar1312 3 жыл бұрын
Thank u so much for sharing. For years my son has a siezure like this in the spring . We knew they were in the optical part of the brain but never given a name . This is exactly
@winzaw4897
@winzaw4897 3 жыл бұрын
Wood
@fatimacorral5140
@fatimacorral5140 3 жыл бұрын
Dafne
@chabelita9920
@chabelita9920 3 жыл бұрын
Mi hijo a tenido ese crisis en dos ocasiones por las noches seguido con vomito
@amilcarbol4245
@amilcarbol4245 3 жыл бұрын
yo lo padezco me pasa también , cuando me afecta fuerte he caído y combulsionado y a veces hasta he hablado solo y yo se que dentro de mi corazón no estoy loco😭❤️😓 ahora tengo 23 años y eso me comenzó a los 7 😥
@maribel7931
@maribel7931 3 жыл бұрын
Tu niño a estado En tratamiento? O solo fueron esas 2 crisis y desaparecieron?
@Theyluvtrin__
@Theyluvtrin__ 3 жыл бұрын
10:29 racist cops
@אושרתכרמון-י9מ
@אושרתכרמון-י9מ 3 жыл бұрын
PPS PPS PRO29
@amilcarbol4245
@amilcarbol4245 3 жыл бұрын
Yo padezco de esta enfermedad, me comenzó de niño a los 7 años ,ahora tengo 23 y aún me sigue atormentando 😔
@georginaalvarezbustos5915
@georginaalvarezbustos5915 3 жыл бұрын
Hola mi hijo también lo padece inició a los 4 años. Se siente impotencia no poderlos apoyar más, durante sus crisis. Pero sin duda son unos guerreros. Espero algún día dejen de sufrirlo
@amilcarbol4245
@amilcarbol4245 3 жыл бұрын
@@georginaalvarezbustos5915 entiendo tu intención😓 y si es muy trizte este caso porque me a dado muy duro que hasta e caído y combulsionado , y aveces hasta hablo solo por lo mismo 😭😭😓😥 y yo se que dentro de mi corazón no estoy loco😭😭 y deseo lo mejor para tu hijo ❤️
@maribel7931
@maribel7931 3 жыл бұрын
@Amilcar bol podrias comentar como eran tus crisis? En un início cuanto te daban por favor, o comunicarte conmigo por favor🙏 estoy buscando informacion acerca de este sindrome pero no encuentro mucho, porfavor algo similar ocorre com mi hijo pero ningun dr me habia hablando acerca de este sindrome 🙏🙏🙏
@maribel7931
@maribel7931 3 жыл бұрын
@Amilcar Bol
@georginaalvarezbustos5915
@georginaalvarezbustos5915 2 жыл бұрын
@@maribel7931 Hola Mari mándame msj