I have smoldering MM. I have had a fracture and have anemia.

What happens if the bottle feels up before 24 hour period ends?

Is there anyone who is under this therapy and can share there experience with it?? I just started and would like to know what to expect. Thanks in advance.

I was diagnosed when I was 32 back in February 2007. I'm 50 now 😎 Had an auto SCT as well as an allo SCT and after that many, many, MANY other treatments. Currently MRD negative since December 2020 (yes more than 3,5 years! 🤯) thanks to this wonderful treatment by J&J called Teclistamab. I'm from The Netherlands, Europe. Being treated at Amsterdam UMC - University Medical Center. Keep the faith, everyone! There are so many new treatments nowadays. And more in the works ✨🙏🏻✨ Shoot me a message if you want, I connect with many patients worldwide 🌎🌍🌏 Hang in there, everybody! You got this! ✊🏻

Absolutely loved this, really well done. Especially at 5:48. Thanks for the video

My husband has MGUS and I am watching him wasting aware he has so much bone pain and other health problems prostrate problems incontinence and heart problems

Crap! Im fu*ked.

Doctors don’t listen, especially the ones at the V.A. hospitals. They think every pain you have is allergies and PTSD related stress.

My neutrophil is 47% and lymphocyte is 45% . Is it good?

I'll try this treatment next month, so this video answered a lot of my questions. It was very helpful, thank you.

When you’re a veteran and go to the V.A. it’s always dismissed as PTSD or allergies

I developed LVH after taking 8 mg for 14 days

Great video! Thank you for filling me in better than google could :)

How do a patient knows when they are getting worse after7e

Drs in Geisinger don't do anything for anyone they are told not too.. I have had MGUS for years well my backs been so bad I had a MRI done and it showed a spot it says on the report Multi maloma they said about doing a biopsy but then said they can't its in a hard place to biopsy so they said wait for 3 months and get another MRI to see if it's spread.. my back hurts very bad if I move the wrong way it takes my breath away .. I dont know if what's in my spine has anything to do with my head jerking now to the right if I sit up to long in my wheelchair. I have to Support my neck when I go to the doctors that's the only place I can go anymore because it gets so bad I end up in the ER because my head twisted so bad my chin ends up on my right shoulder and I can't get it back they put me on meds for Cervical destonia and 2 other destonias my left arm and left leg shake..it sucks you can't get a Dr to help you with anything I'm in a wheelchair because both my hips need to be replaced for the past 20+ Years was in my early 30s when my both hips started with AVN but was told I was to young to have them replaced said I would need it done again in 20 years if I had them replaced my nephew had both his done when he was in his 30s he had cancer when he was 6 ALL and AML .. I was put in a wheelchair because of them I live in very bad pain over most of my body my bones my joints I use to be on pain meds but they didn't help I took myself off them they don't work I won't put it in my body. I have many other health problems I deal with.. I came to the point the drs don't care why should I I stopped all my meds and said what happens happens .. all the drs that do care left the geisinger system

CORRECTION: Timestamp 1:15 should read, "GPRC5D is an antigen (protein) that is overexpressed" rather than "not overexpressed." You can watch the corrected version here: healthtree.org/myeloma/university/courses/ii21MrF2MrpshcFGc5WW

so what is "better" than x-ray/skeletal survey for myeloma?

Thank you, Dr. Chaudhry, for this helpful information. I suddenly developed severe skin rashes after many months of lenalidomide. I discussed changing the drug with my oncologist, but your comments have encouraged me to keep trying lenalidomide. After a break, a little cortisone and a few days of antihystamine, I was able to stop all that ... and the rashes disappeared. My body has developed a positive tolerance. I am very happy with this outcome, thanks again!

What if metanephrine is low

I live in Australia. I had a bone marrow biospy yesterday. I was given anaesthetic and didn't feel a thing - no pain.

Thanks for explanation sir

Why you wanted to isolate T-cells? To GMO production or organs? What is truth reason? Karyopharm and Amgen? Ot looks like very far from treatment. Why you can't treat HIV? Acyklovir does not work?

Vit d grabs calcium from the body via diet, not supplement

Appreciate the excellent response to questions asked.

I have low protein MGUS but slightly elevated Kappa FLC and K/L ratio & B2M, neutrophils, monocytes & WBC. I am a member of the PROMISE study. A brother had MM, a sister had ALL mutated to AML. I am trying to find out when a bone marrow biopsy is indicated, but my general oncologist says not until its become full blown MM according to serum values! I want to know my baseline at least. Should I get a 2nd opinion?

What about vitamin D-Wave?

What sort of testing must be done to have insurance cover the IVIG treatment ,if even just cover it temporarily ?

Great idea thanks for sharing

mi hermana esta hospitalizada y sugieren hacer examen a la medula osea

hola

IgA 597 mg/dl IgG 644 mg/gl IgM 35 mg/dl Total light chain kappa 151mg/dl Total light chain lambda 157 mg/dl Ration = 0.96 Can someone explain this, am i on remission or not?

IgA 597 mg/dl IgG 644 mg/gl IgM 35 mg/dl Total light chain kappa 151mg/dl Total light chain lambda 157 mg/dl Ration = 0.96 Can someone explain this, am i on remission or not?

Mam plz do a video about LIT therapy

I just recently got diagnosed with multiple-myeloma. I just had my second treatment with chemo and they already are looking to give me radiation soon. I have no idea how long i have been living with this because nobody spoke about it when I would talk about pain in my body. I'm very grateful to the Dr. who figured it out and he has done a great job so far. If anybody has any place or thing that can help me or give me somewhere to talk about it with someone I'd really appreciate it. Thanks.

I don't think this doctor makes enough effort to improve his English pronunciation. I mean for a US audience. In India, I guess he'd have no problem. But I didn't understand a great deal of what he said. I don't mean to be disrespectful. It's just a fact. And I don't think he's being disrespectful to his audience. But I think someone should tell him how difficult it is to understand him. Especially with so many medical terms and technical discussion.

I didn’t think MGUS ever went away naturally????

I cant take tylenol or aspirin or any of these types of meds . I have had bad reactions . migraines with extreme neck pain too and flu like symptoms . I do much better on Privigen. I have been getting it since 1992 when I was in the first study done for Dermatomyositis and Polymyositis . It worked to get my muscles back to about 75 per cent . I could not eat or drink or talk much before the research study . Even when I was on many immune suppressant drugs . IVIG was a miracle for me !

The best explanation.. I looked hard for it.❤

My doctor notice my protein was a little elivated and commented that my protein was slightly elivated and was sure its nothing to worry about but still sent me to an oncologist

Great explanations, very clear. Thank you.

En español

Great video! Love the moon analogy! 😊 I'm getting mine soon! 😮

Do not follow this nonsense. Calcium is not the solution! Vitamin D yes.

Very good video you have published here. Unfortunately, in reality, none of these forefront treatments mentioned are being used in my dad's treatment. He was diagnosed with MM almost two years ago (he is 74 years old now) after being watched for Smoldering Myeloma. Despite his high kappa light chains and PPs, he didn't have any check up CT scan for 3 long years to check if any bone lesions are developing. Then one day in June 2022, he couldn't get out of bed due to terrible back pain and then he was quickly diagnosed with MM. In my opinion, this was a hugely missed opportunity for avoiding bone damage (and in all webinars, videos and awareness campaigns, avoiding bone lesions is one of the top priorities of any doctor as one you get them, you are prone to many complications further down the line) and he does have bad bone damage with many larger lesions in his vertebras. Yet, he is NOT on Zomena nor Pamidronate nor any of the new drugs, he only takes 1 tablet of Ikametin ibandronate which is recommended for prevention and treatment of postmenopausal osteoporosis and he takes only one 150 mg tablet once a month. When I asked his doctor about Zometa when my dad started his treatment back in 2022, his doctor said it has the same effect and I have asked him again two weeks ago, and he said that there is no indication that my dad should be on Zometa. I read so many published & peer reviewed research papers, articles etc. on Myeloma bone lesions (I work for a research publisher) and they all recommend Zometa or Pamidronate or the new Denosumab as standard treatment for Myeloma patient. My question is, how is it possible that in 2024 a patient with many large bone lesions in his spine, with active back pain, and two compressed vertebras is taking 1 tablet per month of ibandronate Ikametin only. How is it possible when asked his doctor he refused to refer him to spinal specialist / orthopedics so they can check his compressed vertebras and how is it possible that he completely dismissed my dad wearing a back brace to support his spine? As mentioned in the video, there are so many bone pain treatment options and my dad is receiving none of it. I wouldn't normally type this publicly but I am desperate for some answers, I am desperate to know why my dad is taking ibandronate which is proven to be worse than any of the drugs mentioned above and he has no kidney issues at all. I would be grateful for your answers. I just want a standard protocol of care for my dad to give him the best chance of some quality life which I know is very hard to sustain in myeloma treament. Thank you so so much!

Can someone get IVIG that is guaranteed free of donors who got the covid mRNA vaccine?

Do a lot of people with myeloma have MGUS first? I’m 58 and have MGUS nearly 20 yrs now and a lot of people with MGUS will go on to get myeloma

thanks very well explained

I have terrible pain along the lines of my bones. I have had diagnosis of psoriatic arthritis because my tendons are tight and sore. I was also diagnosed after 12 years with Cervical Stenosis(had op last year) and i have a Chiari Malformation(hoping to get op this year) I have problems with SI loint and L5 (facet) and they say it not Lumbar Stenosis. It doesnt matter where i press along a bone it hurts especially thighs and calfs and arms ribs , feet arms. I have never had a bone scan etc. I have loads of different symptoms because of many conditions but to me none of them explain the deep derp ache or sore when i press.

I have MGUS, I’m excited that they are looking at treating before it progresses. I believe some types have poor prognosis so it would be nice to start with those.