It i bought a heart rate monitor what should the reading be for me to rest?

I live in NewZealand and I got ME in 2015, the very next day after I had a flu jab. It destroyed me. After 6 years in bed alone with zero help or support, I got a walking frame and taught my body to walk again. I knew through research that I had to take very good care of my heart. So I taught myself to walk while doing breathing exercise of breath in for four seconds and breath out slowly for four seconds. This helped to stop my heart racing when learning to walk again. Each week I was able to walk more steps.. it will be 10 years in April 2025. I'm a lot better, but still have to pace myself or exhaustion would take over. I still have pain but am so used to it. I very rarely take pain medication anymore. My useless doctor couldn't diagnose me, I got my diagnosis through hours and hours of online research. It lead me to the hummingbird foundation, there I found my diagnosis and took that to my doctor. He agreed but had no idea what to do for me. So I found online ME groups and spent hour talking and messaging with others. They were able to give me info about medications. My doctor gave me so so many drugs that I ended up addicted to them. So then I eventually had to put myself, alone, through withdrawing off them. It was horrific. There's 3 medicationsI just couldn't get off, amitriptyline. I'm still stuck on them for sleeping as well as lorazepam and cannabis. After nearly a decade 😯 n bed, I'm finally able to live a semi normal life. But I'm addicted to my bed too, and end up in bed all the time because that's what I've known for all these years. I'm trying to break free from it, but for some reason I seem to be stuck. I live in a caravan in a caravan park because I lost my rental home because I couldn't look after it. I was taken to tenancy court over it and was ordered to pay thousands to the landlord's. Having no income and living on a government benefit has made life even more difficult. I wouldn't wish this illness on anyone. It's a cruel illness. It robs you of your life, leaves you addicted to meds and your bed.

Hernandez Nancy Young Joseph Lopez Dorothy

Excellent portrayal of the devastating illness which is ME. It makes me wonder if Australia is ahead in the game although the DECODE ME Study is underway in UK.

Thank you for sharing without music ❤

Please please do more research between ME/CFS and mold/ parasite infection. 🎉

I am in Mexico. It's less than what you have done! Thank you!

I'm recovered now, but I was diagnosed with CFS in 2018 and was bedridden. I had a different "kind" of CFS than Ketra or Jennifer Brea, but I can identify with many things. Trying to talk was almost impossible sometimes. One-word answers felt completely brutal. I remember sitting down and not sure if I'd ever be able to stand up again. I couldn't control my body temperature or nervous system. I thought I was dying every day. CFS hit me during a time when I felt my most excited and alive. Life was good and then it hit me like lightning. The worst thing someone could have said to me at that time is: "it's all in your head." And I was told that... a lot. I learned how to pace myself and I improved, little by little. It seems we all have something in common and that is: many of us have lived our lives at 110% up until our illness. We have that kind of personality. This is not unusual to also see in other diseases, as well. The emotional care that we need to take for ourselves cannot be understated. I now look back and realize that I was resisting working on myself emotionally simply because I felt the need to prove all the time that my CFS was NOT a psychological issue. I didn't completely recover, however, until I realized that my personality-type encouraged myself to run on empty. I then had to dig deeper to understand why I felt that way. It was a long process, but it was one of the most helpful things I did with my CFS recovery. I only mention this because as ME/CFS advocates, we push for a physical cure, which I want more than anything. But we must understand that healing happens on all levels. In our defensiveness, I don't want people to lose sight of the importance of healing at the physical (and surgical if that's needed), emotional, mental, and spiritual levels.

Thank you Ketra, and all those involved with the making of this video...we need to get as much information out there as possible! Please keep challenging the 'norms' of protocol...our ME/CFS community needs far more underdtanding. Bless you.

She seems like an mcas patient and pots probably irlens too . She needs h1 and h2 blockers ,electrolytes. And fluids ,tinted glasses and screens , and to be given the right dietary support. She probably needs iv vitamins too

ME CFS FM 41 YRS. I have been ill for most of my life. Hope is all I have.

How horrible! Let allone when you don't have any help, and think about the future....

Some good advice when going to any doctor; ALWAYS TAKE SOMEONE WITH YOU. IF YOU'RE A WOMAN, TAKE A MAN WITH YOU. IF YOU'RE A MAN, TAKE A MAN WITH YOU. PREFERABLY A WELL DRESSED MAN. JUST HAVE HIM GO IN WITH YOU AND THE DOCTOR, SIT AND BE QUIET. JUST OBSERVE. THIS MADE ALL THE DIFFERENCE FOR ME WHEN TALKING TO ANY PHYSICIAN. THE DOCTOR WILL TAKE YOU MORE SERIOUSLY. ALSO, WRITE ALL SYMPTOMS DOWN, READ THEM TO THE DOCTOR. WRITE ANY QUESTIONS DOWN. I would like to thank you Ketra and all who contributed for this film. THE MEDICAL WORLD NEEDS TO WAKE UP TO THIS UNKNOWN ILLNESS AND BE MORE COMPASSIONATE !!!!

Just going through a resurgence after a very stressful time. It's awful. Dr's in the 90s where so mean to me in those early days. 4 years in bed.

As you get more severe and less able to speak up for yourself, in my experience you have to confront more ignorance and judgementalusm even with a diagnosis in the past.

Qigong and tai chi - both of which can be performed seated - have helped me immensely. The gentleness of the exercise, the 70% rule (only ever do 70% of your maximum in tai chi - if you do 50% you never improve, if you do 100% you can be harmed - so 70% is just right), the flow & calmness of breathing. So helpful! Another technique which helped me from yoga is to lay on the floor with the legs up on the wall. You can work on stretching hamstrings or have your legs bent. You can play with the curve of lower back with your breath. It's very calming, helps immensely with anxiety.

Está el video traducido en español o subtitulado? Gracias

#MillionsMissing

It was my greatest opportunity using a herbal medicine from Dr Madida that cure me of my Terrifying virus that costed me so many outbreaks and sores.

Thankyou for this small documentary... It makes me feel less alone; It’s such a isolating disorder… My life has been slowing but surely spiralling out of control. Most days are a total struggle for me. Just getting out of bed takes so much of my already limited resources. I have been rejected twice for a disability pension, and don’t have the energy or mental cognitive function to keep fighting them because they don’t understand that I don’t have the capacity to support myself. My bank account is dwindling. I’ve tried to got back to work 3 days a week, just to get some income, but as soon as I get near, noise, light, smells, pollution, cleaning chemicals I react. Not to mention, with a compromised immunity it doesn’t take long until I pick up colds and flu…. And then I’m back in bed again, even worse…. I’m not sure I will be able to cope much longer. I can’t tell you how many doctors/psychologist/immunologist’s I’ve been too…. I can’t afford it anymore. I never imagined that I would end up like this. It’s so lonely and debilitating. You wouldn’t wish it on your worst enemy. I could win the lottery tomorrow and become a millionaire, but it would mean anything, because I’d be incapable of enjoying any of it. When you don’t have you’re health, you have nothing.

Do not give up hope on recovery ever. I am about 92-95 percent recover and back to doing Brazilian jujitsu after 11 months and have a job and in school. Diet, supplements(coq10 is a good one), brain retraining(Gupta program), cold water exposure(cold showers) water and no fap brought me back. I still get occasionally fatigue and have a very small amount of brain fog buts it’s not to the point of deblitation. If I feel a little weird I go lie down and listen to a meditation guidance from Gupta or soul chakra bineral beats for 20-30 min. Makes me feel instantly better

Do not give up hope on recovery ever. I am about 92-95 percent recover and back to doing Brazilian jujitsu after 11 months and have a job and in school. Diet, supplements(coq10 is a good one), brain retraining(Gupta program), cold water exposure(cold showers) water and no fap brought me back. I still get occasionally fatigue and have a very small amount of brain fog buts it’s not to the point of deblitation. If I feel a little weird I go lie down and listen to a meditation guidance from Gupta or soul chakra bineral beats for 20-30 min. Makes me feel instantly better

Buenas tardes y bendiciones para todos, me gustaría saver como accede a este tipo de aciestencias y evaluaciones una persona de habla hispana. Tengo muchos años de estar enferma y nunca e encontrado ayuda o respuestas a mi condición; si alguien pode ayudarme a enter como puedo acceder a estos recursos se lo agradeceré.

What are those of us who are severe a very severe supposed to do we can't do any of these things??? The PEM I will get just from thinking, listening, leaving these few comments will be horrible. But I'm trying to understand what is to happen to those of us who have no carers

My own family will still not bother to watch Unrest, watch or read any information that may help them understand the struggle of Severe ME. I've heard it'll make them feel bad, loved ones who say they're tired of trying to call... as if I'm going through this only to inconvenience others. I want my life back.

How wonderful to hear a medical team speak sympathetically and knowledgeably about ME/CFS. If only funding bodies were more willing to respond, we might have full understanding and treatment for this condition very soon.

I have 14 year old. I don't work. Jobcentre say I am fit to work despite years of Fitnotes from GPs saying I am not fit to work. I feel guilty if I can't do housework & push myself to keep up with it.

How I wish that a fraction of cancer research could go to ME/CFS research. I know I have it, and have ever since I caught Mono and Epstein-Barr virus after a friend’s teenage son drank from my can of soda! It got worse after I had COVID 3/20, and even worse after I had a knee replacement in 2021. Thank you to all who strive to help all of us in various stages of this illness.

Thank you, Ketra, for putting this together. ❤

Everything in this video is me in a nutshell. I have been so weak in bed that I felt as if I sunk inside myself, I have been so thirsty but did not have the strength to bring water resting on my chest to my mouth for half an hour or more whilst I mustered the strength to make my arm move, all the time my heart racing like I just ran a marathon , whilst feeling like I would die of thirst. There are so many things I have suffered over the years the only hope I had was left in the hands of my 14 year old daughter. My Daughter was amazing over the years, my rock and life line. As soon as she was old enough she jumped out of planes to raise funds for ME research uk. She is 26 now, still my rock and I have survived to have a quiet life listening to the needs of my body. I stayed focused on building up my stamina and a small life within my home as I paced my self. The first positive thing I did was strip my life down to nothing, no people just my Daughter to support me in our home. We got rid of carpets and chemicals, noise ect in the home, stopped buying processed food and made everything as simple as possible. My exercise consists of stretching muscles every day whilst still laying in my bed that way if I feel exhausted I could lay there as long as it takes to recover. My trips out are mainly alone in quiet surroundings that are easy to reach in the car. Enjoying nature sunshine and peace as it’s good for my well-being, away from hustle and bustle because it always triggers my symptoms and can disable me in minutes. I now know myself and my limits so I keep it real for my health, everything is short and sweet and I return home as soon as I start to fade or I rest in the car, my life is tiny but I am happy in my bubble now. I get judged but I don’t hold on to negativity as it’s bad for my mental health, I leave my past behind and each day is my first day, it’s easier to cope like that, I want no baggage so I don’t engage with others unless it is briefly, as I get overwhelmed easily and I am also allergic to perfumes so it is tricky, yes 👍 it gets lonely at times, so I stay focused on what I am doing when I feel up to it and what I want to achieve in my small life, I study new skills from clever people on KZbin at my own pace reinforcing it when I forget what I have learnt. Forgetting things is normal for me, I leave myself notes so I can achieve my set goal, I am like the tortoise 🐢 and others are like the hare, I always get there in the end by leaving myself a note it might take me months but I keep trying to get there. You tube puts me in touch with real people out there that are doing things with the same interests, I watch what they are achieving it makes me feel hopeful. Mentally I feel as if I am supported as I could message them if I want to, which is very helpful, I don’t do that but just know I can. It stops me feeling so cut off. I could not watch any tv for over 10 years because of light and sound and everything is to fast paced for my brain to process. so Now I found I can cope with KZbin it is great as I can take it or leave it and can keep coming back to the same thing when I have good days. It’s all about building myself up to cope with my life and having an interest that gives me hope and self worth. Having ME is very complicated and difficult to explain as it affects my whole being, so coming as far as I have is a real achievement for me, staying patient over the years focused and strong has got me here today. Excepting I have a disease was very hard and it took me years of crashing for it to sink in. I sit in silence for days just to have a few hours coping somewhere nice. This is my life now. I don’t expect anything other than what I can muster. I feel like a small boat alone on the ocean that weathered a really long storm and now the sea is calm, with the odd day with vertigo. Enjoying the good days throw away the bad, keep moving forward because when you look back you have got somewhere and you can feel proud of yourself. People suffering with ME should always Pamper your body, turn off sound, wear sun glasses, do what ever it takes to make your body feel rested, softer towels softer chair softer bed, sheets, socks, it all helps in the end to de-stress your brain from becoming overwhelmed …. It may sound funny but These are all helpful tips. My attitude is that I have to help and save myself the best I can … people around me would make me so much worse, so no one is coming…….all the clinics, doctors, hospitals, therapists ect in the past nearly killed me. I know what is best for my body I can feel it inside me each day, so I am plodding on in this small way taking my time to grow. I hope money is freed up for more research to find a cure as it would be nice to be a social butterfly 🦋 again but I won’t pin my hopes on it. So I will keep moving forward 🐢. Staying focus on achieving my goal to succeed in all I do. Days just disappear, My famous last words… go to bed and start again, tomorrow is another day.

excelente documental para hacer visible y el mundo entienda q la fatiga cronica es real no es sicologica

I was diagnosed in 1982 and was bedridden for 12 years. My saving Grace was that my Doctor knew me before the onset of my worst symptoms, and knew I was not just depressed or psychosomatic. I had improvement and a three year remission but I relapsed following a surgery. I am better than I was, especially cognitively, but have not known a day without severe pain since it started. I try and regulate activity and can avoid some crashes, but I still get it wrong and end up in bed in a dark room for weeks at a time. Flotation and sensory deprivation helps me through a lot of it, and massage therapy when the pain is not too severe.Still hoping for a cure someday.🖤🇨🇦

One of the things that really bothered me the most when I was at my worst was that smiling was enough to bring on symptoms. Its confusing when your body punishes you for feeling happy

Thank you so much

Sending you love and light. I’m living the same. 8 years here. X

I am happy to see these findings. Unrest brought me here and my behavioral physiology assignment brought me to Unrest film. <3

Brilliant video, I've been battling since 1993, and hopeful. Are there more links to keep updated? I'm now basically bedridden 21 of 21hrs, THANK YOU 😊

Great video, thanks for sharing

Wow, Thank you for the no music version. Brilliant.

💖Just RE VISITING💖 💔😢😢😢😢😢💔 🥀THANK YOU Ketra & all concerned for sharing🥀. 2021 & WE ARE ALL STILL, The Millions Missing ‼ AND we are ALL searching for a Doctor who has a clue about ME/cfs😢. "Unrest" &" After Unrest "Both Brilliantly done & sadly SO TRUE.🍀Keep safe ALL(Covid😥)🍀

The cause for me was the microwave oven. This may sound unbelievable: the internet states that the use is harmless or that the danger is cancer or a reduction in vitamins. The first consequences were: pain in the neck, fatigue, sore throat, depression, ..... After 3 months without a microwave oven these symptoms disappeared. Consequences are greater the closer the microwave oven is to you: if the oven is right next to your dining table, for example. If you bring this to your members' attention, those who wish can give it a try and let you know about their experiences. Everyone can now participate in the study! People will not think much of CFS. Organs are not damaged. It looks more like an internal strangulation. I don't know if that can be found. The muscles tense under the influence of microwaves (microwave), Hence the pain and the intestines are too tense, which makes digestion poor and too few vitamins are absorbed. In the throat one has pain due to the tensioning of the muscles there. Be careful not to cure other diseases with fatigue for CFS.

Question and don’t be mad I’m asking “asshole” questions and I’m on this video to learn. Ok here’s my frustration. It literally seems like people with this disease have every symptom of every disease that ever existed...I’m tired, head hurts and I’m burning and if I do anything when I’m tired ummm I might never recover and lights bother me and sound bothers me and I don’t sleep well and I hurt and i feel mentally very similar to people who experienced loss of child and my throat hurts and nobody is ever allowed to push me to except use cause I’m a pro and even though nobody ever I’m history studied it I decided exercise over long term ummmm well no chance it will works and I won’t try water excersising and I’m positive long term pushing myself will kill me stupid and I may not get that energy back so unless u give me meds u can’t make me DO anything and ur silly to even ask me....heart rate......honestly if it’s all that and u cannot help yourself them this generation will have to except it....it’s a stubborn group who studies there’s own disease so much cause nobody else does so u can’t tell them anything and they are listening to advice from (remember) a person with such symptoms I can’t fucking take there medical advice....impossible to help them so that I honestly think hurts them indirectly ....it’s a dick thing to say but speaking to anyone with this is the worst convo. They won’t do shit so why talk. Meds is all they will do

I worked full-time as an RN until I was 50, when I got the flu that never ended on 12/24/09! It happened despite (or perhaps because of) getting yrly flu vaccines (plus the H1N1 flu vaccine that year). I’d always been incredibly athletic- at that time I’d been bicycling 200 miles wkly for years. I was looking forward to celebrating Christmas with my daughter, her husband and my first grandchildren, 9 month old identical twin boys! As I was leaving work on Christmas Eve, I noticed a strange heaviness in my legs that I’d never experienced before as I struggled to walk across the lot to my car! It felt like I was wearing fishing waders filled with water! Each step felt like trying to lift a dead tree trunk. It was like having Parkinson’s disease- my brain said walk, but the message to my legs was delayed! The neurologist said all my reflexes were intact, so that was no help! I learned later, this is called paresis- like paralysis, but you can still feel! I made it through Christmas Day, but then the flu knocked me out! The pain was all over, but mostly in my legs, emanating from my bones outward! During the first year I seriously considered cutting my legs off or suicide to escape the pain- it was that bad! Other symptoms: Temperature dysregulation- despite living in temperate San Diego, my hands and feet were ice cold- 5 years later I developed Reynaud’s syndrome; Core body temperature dropped from 98.6 to an average of 96.6 to 97.7°; I was too hot or too cold; Profuse sweating, often requiring hourly pajamas changes remains a problem (It’s not menopause); Severe Fatigue-Bathing wipes me out for hours, I live in bed or on the recliner; Sleep dysfunction: Initially couldn’t stay asleep more than 2 hours at a time despite being exhausted, later suffered episodes of hypersomnia and circadian rhythm reversal has persisted throughout, I require 10 to 12 hours sleep; Sore throat with red crescents on both sides for 8 years-now with exacerbations; Weak, hoarse voice first 4 years- now during exacerbations; Photophobia plagued the first year, now only in severe exacerbations; Lost half my hair the first year- it never came back; Noise sensitivity the first 3 years; Poor appetite, only wanted green salads and oranges and developed a sudden aversion to meat and alcohol (very light drinker before); Developed POTS requiring 1 L of normal saline every other day via IV. Several inflammatory problems occurred during year one: chest pain- costochondritis, sudden onset interstitial cystitis, right carpal tunnel surgery, right thumb joint surgery and left knee surgery for torn meniscus, New onset of severe migraines requiring ER treatment remain a problem.The worst loss of all has been the cognitive dysfunction affecting my concentration and memory! Specialists ruled out major diseases and diagnosed post viral syndrome. I remain about 90% bedbound with very rare remissions when I can tolerate being up.

Dear, now the cause of Chronic Fatigue Syndrome is found: radiation of microwaveoven. To stop you have to eliminate the oven out of the house. The plug out of electricity net because the oven has also radiation when it is not in use.And out of the house because the oven has a high voltage capacitor. The distance between an oven and a person is very important.After a 2 weeks without microwaves health becomes better.

*Wow this was powerful it made me cry, i have been bedbound since 2006 my family GP doctor was amazing and helped as much as he could and he was very concerned with my health and saw the rapid decline in my health but he emigrated to new zeland in 2010 and all the other doctors had no concern for me and dont understand me even though they can clearly see how weak and fatigued i am, one doctor said i just needed to get up and exercise and that would give me energy, i cried that day alday as iv no medical professional to help me through such dark times, i miss my old life i was vibrant full of beans i ran twice aday, went the gym 4days awk and went on family bike rides at wkends, over night it all changed back in 2006 i went into hospital to have a laparotomy to have adhesions and a large growth on my bowel removed which i had done also the year before and for 8yr before that had lots of bowel surgery/hysterectomy surgeries performed and i was out running/going the gym and doing aerobics all within 3wks after surgery but this last one was different for one when they opend me up they saw a complete mess of adhesions all over my intestines and what they thought was a large 13 by 13 centimeter growth like the year before was not a growth but my bowel which was fused in a large mass and was rock hard so the gynaecoligist doctors sent for another surgical doctor that was on duty in the ER and he told them to leave me alone not touch anything and close me up which they did then in recovery my heart stopped and i had a crash team resuscitate me which parts of that i remember and boy did that hurt, but i couldnt breathe for myself and was sedated and put on a ventilator till that evening so about 6/7hrs then was on oxygen for 24hrs after and was home 2days later were i just didnt recover back to myself and my family doctor was so concerned and took amazing care of me over the next 3yrs til he emigrated but since then iv just been left to rot with no help or care or concern, i wish someone would help me, i have now accepted i will never get my life back but for years i thought this time next year i wil be ok but i know thats never gona happen, i just want to be able to breathe better especialy just getting to a bathroom its so hard and everyday as im trying to get back to my bed and crawl up the stairs i think im going to die its so hard then i just lay there panting and crying then i fall asleep as that is like running a marathon and yes i know what thats like i loved my runs back in the old days, but this vlog was so good i wish all GP doctors in the uk watched this so they could be educated*

That’s interesting fact about calcium as Anthony Williams says it’s a virus that uses up calcium in the cells to grow itself!

There is a reputable explanation for the cause of ME/CFS. Its a particular brain structure that has been traumatised in the beginning of the illness (that's not psychological). The brain goes into defence mode and triggers the immune system and a massive stimulation of the nervous system. Please have a look at the Gupta program for further information. I went from bedridden and in need of care to 100% health with that. Yes, it sounds unbelievable, but the explanation and the solution are already there

There is a reputable explanation for the cause of ME/CFS. Its a particular brain structure that has been traumatised in the beginning of the illness (that's not psychological). The brain goes into defence mode and triggers the immune system and a massive stimulation of the nervous system. Please have a look at the Gupta program for further information. I went from bedridden and in need of care to 100% health with that. Yes, it sounds unbelievable, but the explanation and the solution are already there .

Doctors are not gods!

Dr Myhill has been curing CFS for years and I am one of those recovered. I have managed to get my energy levels through the roof but it's a long story as to how, you'll have to learn yourself but I will answer questions if asked. You won't hear anything from mainstream media unless a company turns that into a drug then pays them to spread it as news. Good luck, kzbin.info/www/bejne/rp-5dJmQn7h3nZY