Friedreich's Ataxia Research Alliance

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@cintiafonseca7730 4 ай бұрын

FARA❤

@akshajdabral287 5 ай бұрын

hi , Please make this (Omav) a available in India. Nobody is ready to take initiative...Please take a look at this matter in India....

@pawankalyan3318 5 ай бұрын

But skyclarys not available for all when available this in India

@cintiafonseca7730 6 ай бұрын

Este vídeo me deixou emocionada!

@giuseppe006 7 ай бұрын

There is talk around about safety for the cardiac side, but are there any benefits? I think so, because if the mitochondria work better, they will do so everywhere and if there is a neurological benefit there must also be a cardiac benefit, right?

@AquariusGate 7 ай бұрын

An interesting few minutes. Ots amazing how neuroscience digs deep for information and misses much on surface reflections. Have you considered that every sense perception is a variation of touch? Proprioception mirrors posture of attitude, as well as body dynamics too. I'm big on mirror instincts and mirroring as internal signalling.

@zakwood3094 10 ай бұрын

i have fa, but am not great with the science of it. This really helps thanks

@Meshamu 11 ай бұрын

But the tested mice never learned to say NRF2 properly, calling it "narf" instead.

@jonnip7225 11 ай бұрын

My family member was approved to receive this new treatment, and is already showing small improvement! After 35 years of waiting, a treatment for Friedreich's Ataxia is here! This is a huge milestone, and we are so grateful.

@krishnavenivallamdasu5529 11 ай бұрын

Hii Im from India and my family member is having Friedreich's Ataxia. So how to approach to receive this medicine? It is not available in India. Please give your contact details like email id. I want to talk to you further more regarding this.

@jonnip7225 11 ай бұрын

@@krishnavenivallamdasu5529 Reata Pharmaceuticals makes the medicine called omaveloxolone, also called Skyclarys. The company can be found online and reached on the internet.

@michelepallaver Жыл бұрын

It's really difficult to understand because of bad audio. Is it possible to find this video in paper? At least the part of Sulforaphane . thx

@user-kn8oh6dc6s Жыл бұрын

"Interested in music" hmm! Remind of me of one girl character from the anime! Same interest & same disease!

@athivijayakumaran2988 Жыл бұрын

When we will get it in india, FDA and The company Discovered omav must circulate to all parts of the world

@kennethdarlington682 Жыл бұрын

Just finish speaking to a friend of mine who was suffering from Ataxia 🤒🤒for years but after a recommendation of Madida herbal center’s treatment to him, all his symptoms and ataxia was reversed with him completely restored to he normal self….

@klyrouxas Жыл бұрын

Do you know if this device exists in Europe ?

@chandler_h Жыл бұрын

Hi I have FA and I think it's kinda fun. This seems pretty legit. Looking forward to trying this. Thanks, FARA! See you at the RideAtaxia in Florida :)

@partyushgamers3742 Ай бұрын

Have u tried this treatment and does it work?

@klyrouxas Жыл бұрын

Thank you very much for your help to provide us with this video.

@paulalopezgalindo6332 Жыл бұрын

Hi I'm 24, I have AF and u am from Spain. My dream is be curate from ataxia. And you fara are my heroes. I'm whishing omevaloxone too

@AmaanKhan-ju9vn 3 ай бұрын

Hi I'm also suffering from freidrich ataxia

@partyushgamers3742 Ай бұрын

Dose it work I mean this treatment 😊

@liamzgaminghd8683 Жыл бұрын

Let’s all sit tight with our fingers crossed today and hope for some positive input from the FDA because having access to something as big as Omaveloxolone is will change our lives forever in soo many ways, As soon as I know I will literally shed tears of relief 😭