3 weeks in cycle getting the injection from NHS is like the pain I can’t believe they even don’t understand what pain I am going through
@Chris-f5313 күн бұрын
Mushrooms
@jimmy2k4o17 күн бұрын
My neurologist assured me my CH wasn’t caused by cocaine abuse, but I’m sure it is. But maybe psychologically I want it to be my fault so I have a sense of control.
@jimmy2k4o17 күн бұрын
My neurologist assured me my CH wasn’t caused by cocaine abuse, but I’m sure it is. But maybe psychologically I want it to be my fault so I have a sense of control.
@Mike-s2f4t17 күн бұрын
Everyone, I’m going to every cluster headaches platforms I can. I’ve suffered for over 25 years and I’ve researched it seems almost everything. I finally found the miracle herb. Yes an herb in every grocery store. Take CAYENNE PEPPER. Take crushed cayenne pepper about a teaspoon with water in a shot glass. It burns the tongue a bit, but 100% takes clusters away. Go get some now. It’s a miracle. Don’t think that this is crazy or not true. Go get it now. No more ambulances, crying on the floor, beating our heads. My clusters have almost killed me. Last year I got them for 11 months at 3-5 a day. It’s was unbelievable. Prednisone, sumatriptan shots no more. Tell everyone. You’re welcome. God bless!
@Man_iCR824 күн бұрын
Currently experiencing this, decided to check KZbin!!! Knowing I'm not alone is soothing temporarily
@JohnDoe-lm6sqАй бұрын
Hello I often watch this video I have been a cluster headache sufferer for about 10 years not knowing what it was I discovered it this year this condition is just evil and I don't know anyone who has them so it's nice to listen to others who suffer this condition how do I join cluster busters thank you all for your bravery and support
@danahersey2255Ай бұрын
I've had them for 48 years now, I don't get them as often since I moved from Massachusetts to florida
@nathanduvalrealty1150Ай бұрын
If you have Cluster Headaches or Migraine please investigate about Nasal Sprays Medications and Nasal Sprays Antialergics. Also try detoxing your body with Cilantro Tea and Coconut Oil "I add a little bit to my coffee" in the morning. This helped me 1,000% more then any other treatment. Thanks God!!!
@nathanduvalrealty1150Ай бұрын
If you have Cluster Headaches or Migraine, try using Nasal Sprays medication and Nasal Antialergics. Also try detoxing your body with Cilantro tea, Thanks God This Combination Helped Me 1,000%. ❤
@shanevoysey9046Ай бұрын
Had them since 20 am 45 now have oxygen tanks injections tablets ect have been in remission for a little while but yes I've lived and am living a long fucking stint of them.bless all who even have one of them
@Throw.Cheese2 ай бұрын
From 17-35 so far. This shit sucks. Mine peak with hot flashes and vomiting until soaked in sweat and then freezing and dry heaving.
@JeffCooksey2 ай бұрын
16 days into a cycle right now. It's hard to explain how bad they hurt to someone who has never had them. Going to bed seems to trigger mine within an hour. Last 45 minutes to 3 hrs and 2 or 3 a night. I can understand why they are called suicide headaches, but I'm not giving up, just wanting them to stop.
@serigalakorea2 ай бұрын
Im prepared to die
@BelindaShort2 ай бұрын
I need to know how you got that on demand system, I'm struggling as a singer with a huge lung capacity and I'm wasting so much oxygen and I've not been able to get it to work yet at 15LPM, my tank won't work with the 25LPM ones I've found currently so I need to deal with that
@NellysEspinoza-i1e2 ай бұрын
I dont know anyone who understands me. I would love to have a group of people like you guys have
@NellysEspinoza-i1e2 ай бұрын
I cant find these mushrooms in my country :( 😢
@Mbz-Hitta2 ай бұрын
How can I find mushrooms can anyone help me please I think that’s the only thing that will help
@MOONSLIFE362 ай бұрын
I'm suffering from one right now with a clenched jaw. I write this!!! It's an elephant crushing my skull I had brain surgery and they started after that
@mldwnkw0501072 ай бұрын
Im around 20 years in now, this year has been the worst ever. The ‘Beast’ changed his tactics, for a few days now 12 hour episodes, and i feel drained. 😢
@Callemanuel2 ай бұрын
Oxygen when in crisis max intake with mask in15 / 30 min is low or gone ,cortisone lepicortinolo 20mg 1week 3 pills in morning 1pill at dinner plus verapamilo 40 in the morning 1pill and dinner 1pill after one month it’s all gone !!! A true miracle after 18 years of suffering Thanks to Prof DrJose Ferro in hospital da Luz in Lisbon Portugal ps all this medication is reduced slowly weekly
@Callemanuel2 ай бұрын
Oxygen when in crisis max intake with mask in15 / 30 min is low or gone ,cortisone lepicortinolo 20mg 1week 3 pills in morning 1pill at dinner plus verapamilo 40 in the morning 1pill and dinner 1pill it’s all gone !!! A true miracle after 18 years of suffering Thanks to Prof DrJose Ferro in hospital da Luz in Lisbon Portugal
@Callemanuel2 ай бұрын
Oxygen in max intake with mask Medication is cortisone
@lashana84293 ай бұрын
I too suffer from these episodes however mines do not last for minutes they last for three days and I find myself taking my prescription meds followed by otc’s back to back and still no relief. They get so bad I feel like I might stroke out or have an aneurysm. I hate them so bad and migraines and cluster headaches is genetics in my family unfortunately. I’m going through an episode as we speak and they typically happen twice a month. I’m praying for a cure. They are so debilitating and depressing. Sending healing and comfort to all of us sufferers.
@ybmountaingirl19703 ай бұрын
to Paul 💖🙏 and to all of us who suffer with this relentless condition, stay strong and big love
@KarliaRamos-t8q3 ай бұрын
I live in Minnesota, and I think they opened a mushroom dispensary. What do I do to try this treatment. I have tried everything, and I am allergic to over 30 meds
@frilsby3 ай бұрын
I’ve sent this video to family and friends to try and explain the issues that we suffer when we are attacked by “ this beast!” It’s helped my dearest and nearest to understand ! Thank you Bob 👏
@mldwnkw0501072 ай бұрын
That’s exactly what ive just done right now. I wish my closest could understand the pain. Your not alone ❤️
@alanphelan5783 ай бұрын
I “only” get them for about 2 weeks once a year, the pain it’s indescribable. I can’t make people around understand what I’m going through. Just to hear people talk about and describe it is very comforting. Thank you
@aljeff293 ай бұрын
Im taking 2 caplets of excedrin every time i got cluster headache
@plaguebringer11903 ай бұрын
Couldn’t help but cry like a baby when I first found out I wasn’t alone 😅 love y’all keep up the fight.
@ragnaread82243 ай бұрын
Nothing helps with this, i know, nothing helps.. you just have to go through with it
@ragnaread82243 ай бұрын
Well, i have cluster headaches, chornic lung deciese, high blood pressure, clamydia in my lyng,❤ i am still laughing, i can walk and talk.. still.. cluster headaches are the worst pain ever to
@ragnaread82243 ай бұрын
I took all my pills i had at home, about 20 , all i had, these were just painkillers, i didnt want to die, just the headache to die..nothing happened.. just constant hurt
@lexuanhung26763 ай бұрын
I started having these when I was about 19, I'm about to turn 28 and I've been researching these things myself ever since..I've been paying as much attention as I can to my body when I have these attacks..I'm no scientist but I've pinpointed exactly where the pain comes from and that's exactly where the pain starts when you have a brain freeze..I accidentally discovered this, noticed the pain when I drank a glass of ice water and I thought I was having episodic migraines. Now I know this sounds crazy but when you notice a migraine coming on, feel your head go numb..I'm serious, as much as you can..you'll be amazed. It stopped the pain and the pain..I tried this because I've tried everything. Everything we do is basically external, cold, hot, it works but it doesn't work because it hurts inside you know?? I was given oxygen, yes it "might" help, microdosing with mushrooms "just eased" my pain, but all that just helps with headaches can't be good for you if you keep doing it.. the brain freeze was blocking it in there is trace..don't know what it is, but I really think doctors need to look into this. 👍 Please let me know if it helps you and tell your doctor if it does. We need a way to stop this pain guys..I know what you're going through-
@John316forlife4 ай бұрын
God bless anyone suffering from this disease it is truly one of the most painful and horrible conditions to deal with. May the LORD have mercy on us suffering. In Jesus name I pray, AMEN.
@rakshithashivakumar80754 ай бұрын
Wow i am happy ancient ✨indian ayurvedic culture is appreciated🇮🇳...I am Indian and I am proud 🎉
@kapilthakur56483 ай бұрын
Why ayurveda mai koi ilaj hai
@Mimimandycarol4 ай бұрын
I am terrified still. I am in my second cycle of cluster headaches. I have had chronic migraines for 8 years and migraines since I was 14. This last cluster cycle is 3 months and going. I can have a cluster headache on my left side and a migraine on my right side at the same time.
@saratakala86284 ай бұрын
Misdiagnosed for years as having migraine but I knew EXACTLY what I was having was cluster headache and I was so exhausted and felt so defeated 😪 every single morning the beast would jolt me out of bed at 5 am and I would be rocking back and forth with my head tucked between my knees for anywhere between 15 mins to hours and this cycle would repeat several times a day, for weeks to over a month. The crazy part is I noticed retrospectively I was having these cycles approximately 6 months to 8 months after giving birth. Ive had 3 children and like clockwork, these headaches came after in that time frame...those clusters were the worst so I'm thinking there has to be a hormonal component in my case as to what triggers them. I have been in remission for 15 years, since my son was 10 months old. So much more research needs to be done and more awareness needs to be brought to the medical community as I wasnt being heard by every doctor I saw and ultimately treated like a drug seeker. I wanted to blow my brains out. I missed so much work and couldn't care for my children. Im so grateful for this video and the commentary because it was such a lonely and exhausting and frustrating time. Everyone needs to share this video as much as possible to reach others...knowledge is power. Love and blessings to all! ❤❤❤
@gabrielemahfouz-pospichal38774 ай бұрын
Big ❤ Thanks to all of you! So many helpful advices😂. I send my best wishes❤ to All of you. Greetings from Vienna.
@shannamack42904 ай бұрын
I have these & had them for the last 5/6 years
@Shooe-wl9eh4 ай бұрын
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried. If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see... Yes, suicide was a thought, A BIG THOUGHT... I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet.. Thank you, winter is is almost here... 😢
@Shooe-wl9eh4 ай бұрын
Yes , I've used a hammer , and baseball bat on myself... Your explaining exactly what I feel during attacks. No words to describe tactics i have taken... humming a certain ohm has helped... I found if can keep from crying it helps "sometimes"... on other occasions i felt the crying and screaming helped push out the pressure.. I don't know anything physically I haven't tried. If i moved to the desert, I may not get them as they come in fall - winter... I lived in Arizona before, as a young woman and never got one there... but...they never started until I turned 50 years old. I am willing to move or do whatever i have to do to live Cluster free... I'm doing a parasite cleanse next week... Will see if it cures them too... Pin worm can enter the brain and cause mucus and swelling ... so we'll see... Yes, suicide was a thought, A BIG THOUGHT... I was actually afraid i would accidentally kill myself because I banged my head so hard... Luckily i haven't, yet.. Thank you, winter is is almost here... 😢
@Shooe-wl9eh4 ай бұрын
Has any of you done a de-parasite cleanse? I spent some time with friends who use mushrooms for medicine, and i didn't get a cluster the winter i lived with them but didn't put 2 + 2 together. Thank God i found your videos... I've had clusters 10 years, and yes, I contemplated suicide on many occasions. I also thank God they only came in fall thru winter. I know if they were daily, i couldn't do it... Each year, i have dreaded winter ... I also thank God for you all because no one knows how it feels except us. I have had as many as 10 per day thru the night, couldn't hold a regular job. I thank God again i have been self-employed for 35 years. I am an energy healer myself. Massage Therapist. . I would love to come to a conference when I can, asap... Cluster busters link please 🙏 I don't do Facebook or any other platforms except KZbin - I need a link to find you ??? Is it clusterbusters.org ??? Thank you
@esmith99024 ай бұрын
I’m in the middle of a spell and just received my cluster o2 kit that he uses in the video. I use two tanks both with 25 lpm regulators and a Y fitting to connect them to the mask. It has made a huge difference. Had always used a 15 lpm with an Amazon rebreather mask but this spell it has been taking almost an entire bottle to abort. Most still lasting 45 minutes to an hour. A 40 lpm on Amazon is 138$, 2 25’s and the cluster o2 kit will cost less than 100$. Keep fighting ❤
@BelindaShort2 ай бұрын
Is that demand valve on the site?
@esmith99022 ай бұрын
@@BelindaShort not that I could find. I couldn’t find the on demand anywhere.
@jessilynmae4 ай бұрын
I don’t have these, I will thank god for that every day. But I cannot imagine what these people have to go through, my heart goes out to them ❤
@ragnaread82243 ай бұрын
thank you❤ It is real hell every day, you cant imagen the worst pain ever to humans.. Childbirth is painful, but it only last for short period. Having these headaches is constant pain , irritable, coming out of blue, sooo painful. after an epicode, you feel soooo tired. and so happy it is over❤ the worst part is, it takes houres to stop hurting.. I walked in London, in middle of the night, for hours , just to get rid of that pain.
@ragnaread82243 ай бұрын
thank you❤ It is real hell every day, you cant imagen the worst pain ever to humans.. Childbirth is painful, but it only last for short period. Having these headaches is constant pain , irritable, coming out of blue, sooo painful. after an epicode, you feel soooo tired. and so happy it is over❤ the worst part is, it takes houres to stop hurting.. I walked in London, in middle of the night, for hours , just to get rid of that pain.
@Ian-km7ks4 ай бұрын
I suffer from cluster headaches, it's the worst pain I've ever felt sometimes I wish I would die so I wouldn't have to feel the pain anymore!
@garethalexander98574 ай бұрын
4years on we have made slight improvements although other members of society gps nurses etc still have zero knowledge on cures causes🇳🇿🕳️🌖♈🫠
@katiasfyri59724 ай бұрын
I want help. Χρειάζομαι βοήθεια . Αφορά τον σύζυγο μου. Παρακαλώ πολύ 🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏 Έχει δοκιμάσει τα πάντα . Σας παρακαλώ πολύ ,φοβάμαι τα χειρότερα .
@sidmcgee61665 ай бұрын
Cafergot works, or used to. First one in 14 yrs today. I am not as strong as i used to beyou can order from India
@sidmcgee61665 ай бұрын
I always called it a beast chewing at back if my eye. Survived 20 yrs, changed the course of my life. Then stopped as suddenly as it came, at 42. 14 yrs later the demon just attacked again. Not as strong as i was. Lots more information and help than 37 yrs ago.