I've had misophonia since elementary school. I have no escape from it in my daily life. It's a serious struggle. For me, i have so many noises in my life daily, way beyond just eating and breathing. I don't think people realize how many sounds can literally drive a person crazy.

Hey, I really enjoyed this documentary and what you had to say. I have a lot of the same feelings. You voiced and advocated for it very well. I shared it on social media. I will say one thing though, as somebody who suffers from misophonia, I found the microphone rubbing against the clothing a little "triggering". I also think you should put some kind of trigger warnings ⚠️ especially before the clip of Cathy and Hoda- that video was torture. 😮 I absolutely lost respect for them after watching that too 💔

Thank you so much for all you do to help raise awareness!

Like left in appreciation for your effort in making the video, but i couldn't finish watching it.

i am leaving this comment as constructive criticism. The mic you are wearing is making a lot of noise by rubbing against your clothing. Ironic since this is a video about disturbing sounds. It was very difficult to tolerate through the video. please change to a different style of microphone , i couldn't finish the video.

Restocking holy Moses 😮

ASMR is a misophoniacs nightmare omg

I hope you don't mind, but I'm trying to understand why there is need for reduced motion specially in web, I understand reduced motion in os level, because sometimes that hurts productivity, but is there any health condition? I'm just curious!

They ask for a donation in order to access their page.

Some of the links don't work.

I will have my loop earplugs on me at ALL times 😊

Where do we sign the petition?

This is hard, but sometimes you have to cut your losses. This condition is so unknown that is a huge battle to try to force companies to understand when most doctors don't even get it yet. Even working from home has its struggles. Do people have treatments that help us cope when we can't control our surroundings, besides headphones attached always?

Mine is getting worse not better… 😱

Help Ty!!!!

Talking about misophonia with shitty audio like this is f*ing wild. Hope she is trolling 😅

You don’t need Twitter stay off it it’s dangerous and it’s owned by that shit head

Get the braces sweetie you deserve it it’s for you. I had braces when I was a teenager and I got them again when I was 50 years old because I needed them get them. You deserve it it’s not vain get the braces.

One of my reactions is my feelings are hurt so bad because I feel like the noise has been made intentionally to hurt me and in my right mind I know that’s not true but that’s what it feels like that it’s intentional harm

You never get used to it never ever I can’t even eat corn chips, because of the sound of it in my own head skyrockets me to instant rage. Isolation is the only coping mechanism for me I’m 16 years old I’ve not gotten married I don’t live with people I don’t like to be around people

You never get used to it never ever I can’t even eat corn chips, because of the sound of it in my own head skyrockets me to instant rage

I can’t explain it either without getting upset and crying. It hurts.

I’ve never met a doctor yet that he even heard of this every doctor I’ve visited in the last 10 years I told him that I have this and they have no clue what it is they’ll have to look it up and then they don’t do anything American medical system sucks

Hi I’m Cheryl , I was wondering if there are new treatments for misophonia. Ive seen some that claim to work on KZbin.

Hi there

Thank you!

Withholding food is horrible, but I find when it comes to main triggers, miso’s tend to harbor extreme, cemented hostility and demonize them for actions the non miso world would consider innocuous (eating) or minor. If the stepmother had a legitimate reason for locking the fridge (e.g., she was on a diet and withholding food from herself), she’d still be a “monster” and “cruel” in her daughter’s eyes because she’s a main trigger. It’s revealing that there are no actions or words a main trigger can do that will make them less demonic - because of the disorder. Not them, but the disorders distorted perception of them. You’re even accusing her of modeling hitting of her child. Yet she was livid about her son getting hit, and you brushed off the sisters actually hitting him. Do you understand the lunacy of hitting a child for making normal child noises in the non miso world, and how upset a mother would get? This reminds me of the distortions and splitting caused by borderline personality disorder. In that one, mere inattention will cause splitting. Here, its chewing.

I wish I watched this video sooner but thank you so much 🤍.

My sister says it would work 😢😢😢😢

I think it may be genetic my mom also has itc and we basically share the same triggers

Yeah my sister always says she used to have it worse than me (she did and it somehow went away😂) and she said all I had to do was deal with it but she doesn’t understand I can’t just forget about it!😢

Omg I have visual triggers too! For example: leg moving, the way the mouth moves when chewing gum, talking with mouth full

I want to get a 504 plan! Should I? I already asked my mom she said I would just have to deal with not having one, but then my dad said it would be fine

What coping skills are there

On point. You can’t be an expert when we don’t know what it even is. There are a lot of quacks though

Behavior therapy is “acting lessons “

It would be a good idea to define it 😂

Some phobias are also unavoidable. I have misophonia AND Kosmemophobia. I can't leave the house or watch tv or even be around most other people without suffering. It sucks, and no, exposure doesn't help that particular phobia either. And it's not a fear phobia, it's a repulsion phobia. Literally I was not built for this planet. 😅😢😅

Absolutely right ! It's a hellish nightmare. For me it's mostly mouth noises that are trying to kill me.

As a great-great grandfather and a great-great grand uncle (retired military) with misophonia going on almost 15 years...hearing this story was almost more than I could bear. I am doing my part to raise awareness and - hopefully, one day, help us find an inexpensive and readily available cure for all of us wounded warriors out there, whoever they are, wherever they are, whenever they are. Stay strong, sweetheart. You are one of my inspirations to keep waking up every day.

Thanks for this ❤

I've dealt with this disorder for 40something years. Most people haven't even heard of it. When I have brought it to people's attention, whether personal or professional, it is typically dismissed. I hear, 'why don't you wear headphones to dinner?" Or at work, wearing headphones is a safety hazard when the real safety hazard they should be worried about is when I snap from being pushed too far. Most people think the most enjoyable thing you can do is get together with others for meals. For us, the prospect is a nightmare. I really do wish this was recognized as other disorders and would do anything I can to spread the word. There is absolutely nothing bratty about it.

Yeah I wish I could work from home too. I am considering quitting this job because it is just ridiculous. If people work better with certain accommodations, why not just let them use those? I mean, you want them to be productive right?

Ok?

I read the transcript of her story. Terrible. People do not understand this disorder or how difficult it is to live with it. I didn't even find that it had a name until 2012, though I've suffered with both misophonia and misokenisia since I was about 8 years old. Periodically I would search for it on the internet. Thank you for sharing it and for your work on this issue.

I am From Europa end looking for help

I really like this idea 💡 it can make our experiences heard and share to maybe people who don't understand as much.