This is hard, but sometimes you have to cut your losses. This condition is so unknown that is a huge battle to try to force companies to understand when most doctors don't even get it yet. Even working from home has its struggles. Do people have treatments that help us cope when we can't control our surroundings, besides headphones attached always?

Mine is getting worse not better… 😱

Help Ty!!!!

Talking about misophonia with shitty audio like this is f*ing wild. Hope she is trolling 😅

You don’t need Twitter stay off it it’s dangerous and it’s owned by that shit head

Get the braces sweetie you deserve it it’s for you. I had braces when I was a teenager and I got them again when I was 50 years old because I needed them get them. You deserve it it’s not vain get the braces.

One of my reactions is my feelings are hurt so bad because I feel like the noise has been made intentionally to hurt me and in my right mind I know that’s not true but that’s what it feels like that it’s intentional harm

You never get used to it never ever I can’t even eat corn chips, because of the sound of it in my own head skyrockets me to instant rage. Isolation is the only coping mechanism for me I’m 16 years old I’ve not gotten married I don’t live with people I don’t like to be around people

You never get used to it never ever I can’t even eat corn chips, because of the sound of it in my own head skyrockets me to instant rage

I can’t explain it either without getting upset and crying. It hurts.

I’ve never met a doctor yet that he even heard of this every doctor I’ve visited in the last 10 years I told him that I have this and they have no clue what it is they’ll have to look it up and then they don’t do anything American medical system sucks

Hi I’m Cheryl , I was wondering if there are new treatments for misophonia. Ive seen some that claim to work on KZbin.

Hi there

Thank you!

Withholding food is horrible, but I find when it comes to main triggers, miso’s tend to harbor extreme, cemented hostility and demonize them for actions the non miso world would consider innocuous (eating) or minor. If the stepmother had a legitimate reason for locking the fridge (e.g., she was on a diet and withholding food from herself), she’d still be a “monster” and “cruel” in her daughter’s eyes because she’s a main trigger. It’s revealing that there are no actions or words a main trigger can do that will make them less demonic - because of the disorder. Not them, but the disorders distorted perception of them. You’re even accusing her of modeling hitting of her child. Yet she was livid about her son getting hit, and you brushed off the sisters actually hitting him. Do you understand the lunacy of hitting a child for making normal child noises in the non miso world, and how upset a mother would get? This reminds me of the distortions and splitting caused by borderline personality disorder. In that one, mere inattention will cause splitting. Here, its chewing.

I wish I watched this video sooner but thank you so much 🤍.

My sister says it would work 😢😢😢😢

I think it may be genetic my mom also has itc and we basically share the same triggers

Yeah my sister always says she used to have it worse than me (she did and it somehow went away😂) and she said all I had to do was deal with it but she doesn’t understand I can’t just forget about it!😢

Omg I have visual triggers too! For example: leg moving, the way the mouth moves when chewing gum, talking with mouth full

I want to get a 504 plan! Should I? I already asked my mom she said I would just have to deal with not having one, but then my dad said it would be fine

What coping skills are there

On point. You can’t be an expert when we don’t know what it even is. There are a lot of quacks though

Behavior therapy is “acting lessons “

It would be a good idea to define it 😂

Some phobias are also unavoidable. I have misophonia AND Kosmemophobia. I can't leave the house or watch tv or even be around most other people without suffering. It sucks, and no, exposure doesn't help that particular phobia either. And it's not a fear phobia, it's a repulsion phobia. Literally I was not built for this planet. 😅😢😅

Absolutely right ! It's a hellish nightmare. For me it's mostly mouth noises that are trying to kill me.

As a great-great grandfather and a great-great grand uncle (retired military) with misophonia going on almost 15 years...hearing this story was almost more than I could bear. I am doing my part to raise awareness and - hopefully, one day, help us find an inexpensive and readily available cure for all of us wounded warriors out there, whoever they are, wherever they are, whenever they are. Stay strong, sweetheart. You are one of my inspirations to keep waking up every day.

Thanks for this ❤

I've dealt with this disorder for 40something years. Most people haven't even heard of it. When I have brought it to people's attention, whether personal or professional, it is typically dismissed. I hear, 'why don't you wear headphones to dinner?" Or at work, wearing headphones is a safety hazard when the real safety hazard they should be worried about is when I snap from being pushed too far. Most people think the most enjoyable thing you can do is get together with others for meals. For us, the prospect is a nightmare. I really do wish this was recognized as other disorders and would do anything I can to spread the word. There is absolutely nothing bratty about it.

Yeah I wish I could work from home too. I am considering quitting this job because it is just ridiculous. If people work better with certain accommodations, why not just let them use those? I mean, you want them to be productive right?

Ok?

I read the transcript of her story. Terrible. People do not understand this disorder or how difficult it is to live with it. I didn't even find that it had a name until 2012, though I've suffered with both misophonia and misokenisia since I was about 8 years old. Periodically I would search for it on the internet. Thank you for sharing it and for your work on this issue.

I am From Europa end looking for help

I really like this idea 💡 it can make our experiences heard and share to maybe people who don't understand as much.

Also I emailed my counselor she will talk to me about it soon and I would probably choose frequent breaks/testing in another room

haha I like Hannah Alonzo too :D I was binging that for a while. Anyway, I am struggling at the workplace right now. My collagues trigger me, I can use headphones luckily, but it is inconvenient if you have to collaborate on things. Also, for me it is way too cold in the office. This is not related to misophonia but the coldness stresses me out so much. It would be so much better if I just had my own little space. This would help with my misophonia too. Women get cold more easily and unfortunately I am surrounded by men. I have to wear so much clothing and with summer and the AC on, I am getting very sad. Outside it is too hot but inside I am just miserable because it is too cold.

What's the best way to contact you with these stories?

And not alone sounds... My daughter is always twirling her hair it irritates me sooo much!! Son-in-law eats with his mouth open with a noise!! Dogs barking boils my blood!

People who whistle!Older man..like my own dad that was just loud Whistleling to irritate me on purpose..😢 because he knew I hated it!

Hey can u help me, I think I have misophonia but idk how to get tested for it. Also i get really mad at people when they breathe loudly, shake their leg, and chew it just bothers me sm even if they can’t control it, and then I take my anger out on them 😢 (mostly just close people like my family) and then I also get triggered when our house is messy and I like have these outbursts (may be related to OCD but idk) and in school sometimes this one class has people who move their legs and breathe loudly, what should I do? Should I get a 504 plan for next year? Like……… idk

Hey can u help me, I think I have misophonia but idk how to get tested for it. Also i get really mad at people when they breathe loudly, shake their leg, and chew it just bothers me sm even if they can’t control it, and then I take my anger out on them 😢 (mostly just close people like my family) and then I also get triggered when our house is messy and I like have these outbursts (may be related to OCD but idk) and in school sometimes this one class has people who move their legs and breathe loudly, what should I do? Should I get a 504 plan for next year? Like……… idk

After 60 years, i think i know what helps me...a few glasses of alcohol!

After 65 years, i think i know what helps...a few glasses of alcohol!

This young woman has some vocal fry. It's very prevalent with young women these days. Not sure why. A big trigger for me.

An occupational therapist told me to chew my tongue when I was triggered by sound and that helps a lot !!!!

First it started with my sister. I was afraid to eat around her. The next thing I knew I started to feel the same way. I would lose my mind if some ate a bowl of cearl

I wish it was defined in the DSM