How are you today?

So its a Mental Illness?

Thank you❤

I went to the er after having 4 pnes attacks on my front lawn the last 3 were all within 5 min i had another one in the waiting room while choking staff disregarded the fact that i was choking and and just watched

When there is no solution to your traumas you can cry, argue, but there is no solution you are hitting a brick wall . You can be sick and doctors agree that you are sick with a disease but the CDC and insurance company’s have decided that you have received the allowed treatment even though your doctor wants you to have more medication. So you go from doctor to doctor who don’t except insurance because insurance companies will try to take away their license to be a doctor so you pay and get the medication and are cured .

Amen sister ❤

I really feel for you having to have endured this experience of having these type of Dissociative seizures which are related to FND as I was recently diagnosed with that this year. I've had CPR four times due to going into either cardiac or respiratory distress. I decided not to give up but rather fight for a proper diagnosis to having Hypoxic episodes. As it turns out I also have Patent Foramen Ovale (Hole in the heart) or PFO. Should the CPR not have been done I wouldn't be here today to advocate for myself and for my family.

What heals PNES?

Thank you for sharing. Currently struggling with PNES myself.

I have non epilepsy seizure, tics, passing out episodes and possibly fnd

It’s been a wonderful video st age 70 nothing has ever expressed in terms of I could understand until now thank you for your love

I’m currently on a mission to help my wife heal from PNES 🙏

Thank you so much for sharing. It is so scary to not have any control over your own body. I too suffer from PNES, and so much is still unknown about it. There is a stigma attached unfortunately.

Absolutely beautiful description, describing what you have been suffering from. Certainly sounds very similar to me. Thank you so much for sharing your story ❤️ 💕 😊

I had no choice, I was in some really desperate circumstances and I couldn’t do anything but focus on my own survival. During that time some things happened and I wasn’t able to be there and I couldn’t help someone really close to me during a difficult situation. It wasn’t handled the way it should’ve been, and I was talking to my therapist about it. I started crying and it got really intense. The next thing I knew I woke up in an ambulance on my way to the hospital.

Finally. I know I am not alone in this. You are where I am right now. 😢 I am trying my best to get anyone and everyone to listen. I keep getting getting someone to listen. I have tried to commit suicide, but if it weren't for for knowing Jesus I would have been dead. I started out with grandma seizures at the very beginning as well 15 years before, but then time passed I had the VNS implant, I thought would help. Boy was I wrong. Medications have not helped so far. Now I'm to the point where I don't have a home, I want run away and hide from everyone because no one believes me. Now I have lost feeling through out my body I have problems talking and I have moments where I still blackout. People just walk away when I have my seizures though, so I just feel like I am in everyone's way. I want to help others not myself. I just don't feel like I have been able to do enough for others. And I miss my daughter. I still love my husband but I know it's over. I will never be able to go home again. 😢 I agree. Doctors also need to do more to have more life saving training and research to save lives. Thank you ❣️

めちゃくちゃ可愛い大好きです💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖💖

Thanks for helping me

I’ve been diagnosed with PNES. I’m a full time chef and I’m unable to do the think I love most. And at such a young age. I’ve had it rough but I thank god for being here for me. This is gave me relief

I understand that

Im dealing with them also

I am being informed I have this however my episodes only happen right around my period and it’s not seizure like. I become very groggy, hard to wake up, complain of neck pain and have horrible night sweats Does this sound like pnes? I have also been diagnosed with POTS so I am thinking it’s all from that more so My testing came back non epilepsy but I did pass out and become unresponsive when they did the lasers on me

Thank you so much sharing, so helpful

What do they look like? I've had 2 drs tell me that they're "tremors" and I need to see a psychiatrist to get anti-anxiety meds. My primary Dr says they absolutely are not tremors.

Thank you for caring to share!........I have had a run in, a run down, and a runaround, to fight thru fraudulent TRO's communication manipulation, conspiracy, the back 9 miles skidding on a 10 mile ride!.......hot🔥as a pistol, but cool inside!......it's like I told them!, what I said!...the whole deal for a friend 20,000 study hours logged, we will soon see!.... looks like we have 20+ years misdiagnosis if not, a multiple family conspiracy, medical malpractice wide!... This is how they do it!!!...many more than 1 against working together, opposed to the best interest of the patient family members, human rights, sometimes 10,20,50 people in on this whole trip!...there would be 50 more if they were invited!...leaning towards guardianship, conservatorship, p.o.a.....financial fraud, conspiracy, exploitation, coercion, isolation, it's a all in 1, form to fashion! schema, tough enough to have to take this overal Central Nervous System & more!..... Then to have the buzzards🦅 circlin'🦅too!.....it's real!....becoming ever apparent, times get tough history tells a story same trip count on it!.. June 12th 2023 I chime in today's reality hopefully might get somebody out there to start asking questions be ready for the crock o shit answer never ask just 1 ask 14 right of the bat! Get your answers too they should not have put u in the position to have to even think like this, your just trying to make sure a loved 1 is receiving all good not all bad! Takes uncomfortable questions!.....you know!.....his is going to be revealed country wide for the next few years!......takes more then these maggot minded fools got, that's why they got caught holding the bag now isn't that funny how it works!....Turkey's🦃🦃🦃🦃🦃

Good morning I hope you're doing well i don't know how I found you because its may 2023 but im happy I did i have been on this journey since 2005 and I have seen so many doctors had EEG AND MRI its frustrating because they say they can't find a reason. But my mom always believed it was stress i take so much medicine its something I don't like. But you said not having the tools to deal with the situation at that time for the first time in such a long time I believe they is hope thank you very much be well

Just wanna say God is using you to reach others thank you!

Oh you poor girl! My heart breaks for you I could barely listen it sounds awful!

Do these ever end? My wife was diagnosed with PNES 3 weeks ago after passing out which changed over time to seizure like events.

Thank you sweetheart I appreciate this video I've been going through seizures for 4 years and hopefully this will help me I'm going to take all your advice and follow this

Is there a support group for this condition?

I feel that God sent u to all of us. You teach us all so much

I understand stand that but I'm stuck. I'm not sure what to do next!

I think that is why my body has reacted this month so badly.

Yes. I agree with you that I don't have a true support system. I have a therapist. I have a husband who doesn't help in the right ways. I'm not sure how to fix at this time.

No way in the world am I blaming myself for what happened to me when I was five I don't know your past but there's part and a small part of the problem because then came my next attacker I have no reason to forgive myself I haven't done anything to myself except for well attempted to unalive myself many many times so don't you dare come to these people and ask them to forgive themselves for what happened to them through no fault of their own none I'm glad that you've gotten through your PTSD and your PNES now my big question is why do you have to forgive yourself for something you don't have control of?

I can not thank you enough. I have lost all senses of reality thanks to these “people” absolutely ruining my life..but this has given me hope. To figure out I have PNES currently and to see your video confirms I can overcome this. Very grateful for this..and you..🙏

I do want to say sorry for the cruel experiences that you have gone through. That’s awful. Something I think it’s important to note is that EMS usually elicit a pain response on an unresponsive person to determine just how sick they are. Normally it’s not done for the sake of inflicting pain but to see if the person has a verbal or groaning response instead of being apneic or completely limp

I have epileptic and PNES It is hard

Thank you for your advice. ❤️

Hope you are doing better after all these years. Our problem is getting the correct diagnosis. So many Dr's want to say it is epilepsy so they can suggest a drug. After many years finally a Dr said PNES, but without any direction. Do you only have these events when you are awake or have you had some in your sleep?

Has anyone tried CBD Hemp oil, the legal kind. My son has a very extreme case and he was diagnosed with epilepsy in 2000 after a normal EEG. He has failed so many meds, numerous VEEG's and spent many months not living life. We found the right product and he is seizure free. He takes it twice a day under the tongue. Try it, it might work and let you live life. Big Pharma hates it but it works.

I have a young family member that was received the epilepsy at two. Thought he had seizures for 18 years, failed many AED's over the years and they had so many side effects. Hospitalized for weeks due to uncontrolled seizures and weight loss. Finally at 20 received the diagnosis of PNES, makes since because totally normal VEEG's. He did not believe it but he was started on CBD Hemp oil, a good brand. Took twice a day and was now seizure free. Look it up, all those drugs can be so harmful and expensive when CBD Hemp can work.

Car accident caused mine

Hi, it’s been years since I posted to your videos. You and I had exchanged numbers back then. Here is my update, I have been PNES free for many of years. I have been working on regaining stress free friendship back into my life. Maybe you and I can do a video chat one day.

Was diagnosed today with PNES, mine kick off when stressed and people knocking on door,

I was diagnosed with pnes but then was also diagnosed with epilepsy

Thank you! Been struggling with my partners NEAD at times and understanding how to help him, you have given me some fresh ideas 💡 and a better understanding of what is going on, as he can’t verbalise this himself very well.

For 2 years I've seen countless doctors/tests. Everything from your videos hits home. Something that I don't see often from people's tutorials are some of my symptoms. I have a constant unrelenting off-balance/dizziness, right side weakness, and pain/discomfort my tendons/nerves/joints mostly on right side. Have you come across many people with dizziness, etc? Your comment about this disease being a huge red-flag pleading for us to stop resonates so much. Thanks for these videos.

Very helpful. Thanks for the advice and resources.