Hope this helps someone. I’m recovering from Lyme disease right now in Massachusetts. Avid outdoorsman, hunting, trapping, hiking, fishing, competitive cyclist until 35, also a commercial roofer. I’ve been bit 100’s of times in my life. I declined very fast in 3 months, couldn’t work especially after covid, my immune system never recovered. I was bitten on my stomach by a deer tick nymph no bigger than a poppyseed, first symptoms was terrible G.I issues after eating. I didn’t put 2 and 2 together yet. I lost 25lbs, had a bunch of imagery of my entire G.I system and seeing a G.I Dr that basically said I was weak and get drugs from my PCP. My PCP did a battery of testing, tested negative for lyme and everything “looked good” I didn’t have cancer. It wasn’t until my feet got cold, numb with stabbing pain and memory loss that I remember about my bad reaction to that deer tick nymph. Never got a bullseye, the bit was nickel size with a dark and open center that lasted 4 weeks. Then I was sick. My dr said u don’t have Lyme u tested negative. So I pushed through the intense laundry list of symptoms. I got bit again by a nymph. This time I got a rash and ran to an urgent care right away. Got 2 weeks of antibiotics, then went to PCP and wouldn’t take no for an answer on get more meds. I was already sick for 3 months and received another 3 weeks of antibiotics. My symptoms got more intense the more antibiotics I took, on day 6 of antibiotics today and feel somewhat better. I hope it doesn’t come back after 5 weeks of antibiotics. I’m seriously reconsidering my lifestyle, never thought I’d give up the outdoors because I’m fearful of ticks. Also considering giving my family pets away because me and my wife are fearful for our children. It was that scary with the gaslighting test and Dr’s. The gaslighting was the worst part because I knew 100% I had Lyme disease.

The most disappointing thing in my community (SW Michigan) is that Lyme Disease1) was not believed by (many) conventional western medicine physician and 2) treatment plans are not being covered by most insurance companies. This means out of pocket costs and many familitiee and individuals cannot afford that.

People are so desperate when infected with Borellia. Almost overnite, lives change dramatically. Been on doxycycline 2X & amoxicillin 1X in span of 2 years. Doing red light therapy but not sauna because heat & cold affect my joints to point of extreme pain & weakness for days after. Been dismissed by 2 infectious dz drs & neurology clinic because there's nothing more they can do under CDC guidelines. I am not at death's door like I was in 1st 6 months, but my symptoms now make me weak with exertion & legs feel like they are dying. Rope burn, twitching all over. Will follow up with rheumatologist in 4 months, but no blood test is autoimmune positive yet. And will follow strict autoimmune diet to see if I can get my immune system back to normal. My old life is fading from memory now....having to deal with Borrelia every waking moment for 2 years with no end in sight.

We need new up dated videos...

The fed and medical system is making there own science up for there own Benefit, and avoiding the truth.

I live near the Silicon Valley in Santa Cruz, California. And there has been absolutely no progress or recognition or help here for people with Lyme disease. Even and especially at Stanford. I’ve given up on finding a physician that I can trust and can hear me. Will hear me.like most people I have medical or physician trauma. From all the lack of care, empathy, and being gaslit pre-and post diagnosis. Where I live, they even refused to do the CDC recommended treatment for Lyme disease once it’s gone neurological in the body.

Me and my late husband had the opportunity to meet The Great Dr. Neil Spector. My husband was diagnosed with Myleodplastic Acute leukemia from drinking contaminated water at Camp Lejeune NC while in the Marines. My husband would go to Durham NC VA Hospital on Thursdays. That was the day that Dr.Spector would walk over from Duke Cancer Institute to the VA which was side by side. Dr. Spector was absolutely The Best of The Best!! This was in 2013 into 2014. He talked so softly and showed so much concern. He talked to me in the hallway concerning my late husband. He knew i was falling all to pieces. He told me about he is not even suppose to be here due to his heart. What he told me id there is Miracles. He would go into the room when me and my husband on Thursdays had our appointment. He talked to us gave my husband so much hope. He worked and went the extra mile for my late husband. Dr. Spector was The Most Caring Loving Intelligent Oncology Doctor. He along with all his studies have saved numerous lives. He Totally Cared And Went The Extra Mile. He called me the day my husband past ,(June 14,2014) and explained how sorry and what can he do for me to get The VA to approve that it was service connected. He wrote a letter to the VA (which was great). And that letter said a million words. He also said if need be he would even go to court eith me. Dr. Spector was an advocate for his patients too. I just read he passed away on June 14,2020. Four years to the date that my husband passed away June 14,2014. Wow!! His name and what he has done for research and patients will go down in hustory. Physicians can learn alot from this Genius Dr. Thank you Dr. Spector❤❤

I have limes lease now

She’s speaking of neuroplasticity

36 years undiagnosed

Also when tested first time ead told id always show positive. Moved to Paradise retested said didnt have it. Came to humboldt county retested positive again. Tests are so inaccurate. My sister keeps testing negative. But 12 years ago tested positive by an epfx machine which i trust 100 per cent more than medical lymes test. I tested positive on epfx machine also. God be with us all during these last several years. And please no more covid poison vaccines!

Thank you for sharing. Ive had chronic lymes for 14 years. Believe bitten first time in Northrrn CA or Southern Oregon. Brookings Harbor. I was bitten didnt know for about a month. Diagnosed in Crescent City CA. Rebitten in exact same spot 3 years later. Brookings Harbor Oregon. My sister 18 months older bitten 24 years ago undiagnosed . Susanville CA area. She now uses a walker no short term memory shakes chronic pain fatique and now heart issues. Mine some shaking chronic fatique short term memory loss chronic pain. Etc. Both untreated. No drs here that accept medical medicaid. I see my sister and just cry. Was a police officer 20 years in Susanville. A good one not a jerk. My mom thinks i just complain too much. Trying to take care of her 88 yrs old. So frustrated and no one seems to understand. Makes me suicidal at times. God bless and help human beings. Thank you for sharing info. I now live in Mckinleyville CA since the Paradise fire 11 8 2018. God be with us all.

Thee obfuscation of science, hence "science", as it is generally presented.

Tested positive for lymes. Ive been detoxing fasting each week 72hours water cleanse. Taking cats claw ,lions maine and black walnut tinctures. Enegry has come back. I can think clearly. Will carry on with the tinctures for 2months and then get another test. I am taking a holistic homeopathy approach to this as I believe negative energy has been stored in my body also and had an effect. I am an out doors person but 2months ago i changed my diet and stopped eating fresh garlic this is when I started to feel something was off with my body. And i had been bit by a tick. Ive introduced garlic back into my diet. I am fully following my intuition on curing myself. I highly recommend doing your research and using herbal remedies. ❤

I've had lymes for 5 years now along with 8 other co infections, 4 fatal. Dr. Crist in Ashland Mo saved my life. Highly recommend!!! Cash only but works with insurance for labs. Mone were sent to mayo clinic of Minnesota. Came back with lyme, sle lupus, Reynolds disease, plus. Had extremely deadly levels of heavy metals aluminum mercury, cadmium, lead, ARSENIC, plus. Detoxification and your diet will make or break you!! Remove all processed foods as well as all sugar

Morgellons needs to also be researched. They're connected. Bblessed

What herbs?

I wish these Lyme doctors would charge a lot less than their $700-$950 USD PER 10-15 MINUTE APPOINTMENT. This is NOT helpful for Lyme patients who are already extremely debilitated and impoverished by the disease and what it does to us, IN ADDITION to the $$$HUNDREDS$$$ we have to lay out for monthly antibiotics. These doctors' outrageous charges are NOT helpful for people suffering from this terrible disease.

I had Lyme disease (w Bulls-Eye target) with multiple bacteria. First reaction was malaria symptoms from Babesia parasite. Second was Bell’s Palsy on my left side, and the third symptom was “Lyme arthritis in left hip. One trip to a “medical doctor” for the doxycycline 21 day treatment. For the Babesia infection I took anti-parasitic supplements with the guidance of a lady associated with Hanna’s Herb shop in Colorado. I then visited a practitioner for 2 radionics treatments (uses radio frequencies). And my final stop was a local nutritionist who suggested I treat the arthritis pain as if it was “gout” and I took a supplement called “Uric Acid Control” (Life Extension) $990 and 3 weeks later I was symptom free. NOW stay here for the “rest of the story”! The left hip excruciating arthritis pain began EVERY NIGHT around 10:30 to 10:45 PM. It was so bad that I never went to bed. I paced all night in my home and tried every imaginable treatment I could think of. Miraculously the pain would subside at “dawn” and I could then go to bed and sleep. This went on for 3 weeks! Up all night with excruciating pain that kicked in around 10:30-10:45 PM and subsided around 5:00-dawn. The nutritionist suggested the Uric Acid Control supplement that seemed to do the trick. Btw, that “on and off” pain sure made me suspicious that I was dealing with a “programmed” something. I now believe ticks are escapees from the National Agro Defense Lab on Plum Island (NY) off the coast of Lyme Connecticut. Most likely a bio-weapon from that lab there, now abandoned and moved to Manhattan, Nebraska-conducting research on the deadliest animal pathogens, including foot and mouth disease, in the heart of cattle country. Where has “common sense” gone??

I hope that her daughter has been thoroughly checked, because a lot of evidence shows it can be passed on from mother to child. And actually a lot of the tickborne illnesses are passed on generation, after generation within the ticks themselves! Like tickborne, relapsing fever, which I have…

I really wish I knew her personally, because her story and mine are so similar other than having famous wealthy parents. ❤❤❤ There is something so insidious about how the CDC and the medical establishment refuses to educate themselves on this. Even though the CDC does not admit that chronic Lyme exists, and they only recognize the same testing that they’ve used for 20 or 30 years…there are plenty of NIH studies talking about how within six weeks borrelia can infiltrate the organs and build a biofilm that antibiotics cannot get past. And also keeps them from showing up on the testing. I really think there’s some thing nefarious behind their refusal to help people because they obviously know… and this whole “post Lyme syndrome” thing… basically what they’re calling everyone who is still sick after a round or two of Doxy, (possibly can be something real only in the way that having a disease like this throws your limbic system out of whack). But again NIH even admits that the rounds of Doxy can’t bust through the bio film. So they’re just gaslighting people telling them they don’t have it anymore but they have “post Lyme syndrome”. They might as well tell them they just have fibromyalgia again, because that’s obviously not a real diagnosis just like Fibro isn’t. But I just finally got diagnosed after insisting that that had to be it, and being told that my wonky tests were false positives. And a lot of the big research hospitals in Ohio like Osu don’t even diagnose or treat it. I’ve probably had this since I was about 11 years old and I’m now 47. There’s been many ups and downs with my functionality, but it’s been 10 years or more since I’ve been able to lead any kind of normal life. Just finally getting the diagnosis, which had to come from functional medicine at the Cleveland clinic, using Igenex testing that the FDA still won’t approve, I just feel so validated. And of course there’s other things that come along with it…. Usually not one bacteria is passed on from the ticks. And then that wreaks havoc on your immune system opens you up to mold toxicity, and heavy metal and many other things that normally wouldn’t be able to beat your immune system. I just hope that I can have a story that helps people eventually too!!! 🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️

I have registered previously. Cannot sign in. Questions keep revolving

Ruqya Sharaiyya to be included.

My LLMD (Lyme Litterate Medical Doctor) thought that if a cure was found for Lyme disease the Government wouldn’t let it be released.

Loratadine > Doxycycline

Hegelian Dialectic I do value the data on Lyme Disease, but not her take on climate change nor the benign take on Gaites.

Still enrolling?

I am reason to believe that it's definitely not just ticks. I was attacked by a flying insect in Florida. The doctors here IMMEDIATELY acted like it's impossible and I need a psychiatrist, or I must be a meth addict- I've NEVER done anything like that in my life! That was six years ago, and I still can't get help. I can feel this taking over my body and moving from my scalp to my legs. I've been paying for doctor's out of my own pocket because I was told that insurance wouldn't cover it. I recently asked about a Lyme test and was told ", but you don't have insurance". Meanwhile I can recognize others in my community with the same condition - and there's many.

Years ago my bullseye was brushed off as ringworm 🙄

👏🏻👏🏻👏🏻Great talk!❤️🎄❤️🎄

SAME OLD BLAH BLAH BLAH .AS WORLD RECORD HOLDER OF LYME SINCE APRIL 1984 FIRST TREATED 5 YRS LATER 1989 THEN 6 MONTHS MINNESOTA HOSPITAL FOR CHRONIC PAIN I AM THE WORLD EXPERT GETTING LYME 21RST YEAR WAS 2020 HOSPITAL EMERGENCY TREATED. ANTIBIOS AFTER BLOOD TESTS ETC. I KNOW MORE HOW WHAT HERBS VITAMINS ETC ANTIBIOS THAT WORKED FOR ME TEMP BLINDED ONE YEAR. 42 YEARS CENTER OF MINNESOTA MY RANCH IS VIETNAM MEMORIAL FOREST WHERE HOW I GOT LYME. I HAVE READ LYME BOOKS SINCE 1980S FIRST GROUP I STARTED WAS 1990 HERE ,I AM DISABLED VETERAN SO I KNOW WHAT HOW VAS DRS ETC TREATED ME . U OF MN DISEASE SPECIALSITS TREATED ME 3 YEARS TILL I MET MY NOW LLMD WHO WITH ANTIBIOS GOT ME WELL. I HAVE BEEN TO SO CALLED EXPERTS DRS . 90S ETC TREATED LIKE HELL FROM MOST ...IF I WROTE A BVOOK MY INFO COULD HELP MANY GET WELL. CHAPLAIN GEOFFREY STEINER.

I'll take the sauna, Chuck.

Ty for making the film, my first llmd told me to watch it, cause I was going through all of it. I have inappropriate sinus tachardia after lyme, I can't function

I have Lyme? How do you qualify?

Can I ask a question. Could mitral valve prolapse be caused by lyme?

why is no one talking about the blood supply?

i have had this for 18 years

they lie we die.

know lymes, know the neurological effects of this illness.

I was misdiagnosis and I had tick bite and bullseye adult female deer tick they still wouldn’t diagnose me with Lyme my Elisa first test was equivocal they didn’t run western blot when they should have and I was not diagnosed till to late and have been on IV antibiotics ever since it’s been years and 100s of thousands out of pocket

Nothing mentioned about side effects.Didnt find this to be helpful.

great speach.

march on. Ive had it for 18 years.

how do i join....18 years lymes.

I highly suggest you take the time to peruse this highly informational website with the latest up-to-date articles and references that are easily understandable by the layperson as well as the medical professional.

Your book does give me hope. You speak well despite not going to college, I have Lyme, dyslexia, learning disabilitie, peeing issues, parents divorced, eldest, went to live with my dad for bit... Ty for your book

kzbin.info/www/bejne/bauvp4xpp6qtZrM lime disease is created in Lab.

I am a patient with Chronic Lyme Disease, and so far Rife, Detox, herbals, colloidal silver, and NAET (one not mentioned) have been very successful for me so far. Some size effects, but worth it. I will have to join my lyme data.

I have found in the 35 yrs. of Lyme, the minute I say anything about Lyme, every Dr. goes into “how to prove I do not have Lyme mode!!!!” Loss of life doesn’t always mean dying!

My heart goes out to all of us with Lyme. I still am so sad about all of us who were told it is all in my head.