My spouse's family, who I love and usually accommodate my various food sensitivities, did not make one food I could eat at the last holiday dinner. I claimed a headache and stayed in my room cuz I didn't want to ruin the day. But my superhero spouse told them later that night and they felt TERRIBLE. Now it's a family joke and they are so much more careful. I love them.

A family member has coeliacs disease. I didn't think about the gluten content of beer until after i ruined Christmas lunch for her by cooking in it. She brought her own lunch.

I grew up with a parent with celiac disease and have been tested for it aswell but the tests were never fully conclusive for some reason. I personally don't think I have it though. I still remember a time where there were barely any premade gluten free breads, dishes etc and people didn't even know what gluten was. Its really amazing how it has evolved in recent years. Not only are there a bunch of options nowadays compared to 15 years ago, but people also know what gluten is. I haven't had to educate people on it in ages, because most people in my immediate surround know by now.

Pride Enjoy bakery of Wading River, NY makes THE BEST gf/df baked goods I've ever had in my life! This is without a gram of exageration. I am a discerning home baker with multiple food allergies and I tried at least 4-5 different items from their bakery, after my aunt purchased a nice assortment for Xmas. Every item was delicious. The textures and flavors were perfect. If you're ever on Long Island, make the journey out to Wading River and treat yourself.

I find most American and Italian-American restaurants are NOT as safe for people with food allergies compared to many other restaurants such as Lebanese, Afghani, Thai, Vietnamese, Brazilian, Argentinian, Mexican, Ethiopian, and Laotian restaurants in which I've safely eaten. I find that countries whose cuisines do not revolve around dairy and gluten, generally tend to also coincidentally be less likely to cook things in ways that cause cross-contamination, and have more gf options. I always ask about their cooking methods, to confirm whether cross contamination is a risk. There is only ONE bistro-type chain by me which has a dedicated fryer for gf french fries without contamination, and offers gf buns for their sandwiches, and takes allergies seriously. It's called, Wood-and-Tap. I'm not thrilled about paying $20 for a burger and fries, but it's nice not to get sick afterwards. There is also a lovely family-owned brunch place called, Chip's, and they have separate surfaces for cooking their gf pancakes, and take food allergies seriously. I don't live nearby their locations anymore but it is a treat when I get to eat there. I live in the State of Connecticut. I cannot eat gluten, milk products, shellfish, and have low-level allergies to peanuts, sesame, salmon, and tuna. **If you have food allergies, never attempt to eat at a Crapplebee's, or most other wannabe restaurant franchises. I used to work there. It is not safe, plus, they microwave their pasta in plastic bags, their spinach-artichoke dip is microwaved in styrofoam cups and slapped on a plate, and that alone is a crime against food.

We had a girl at a restaurant say that plain rice had gluten, it dose not. At another place a salad arrived with crutons on it even after we asked for no crutons. When i sent it back to be remade she just removed the crutons. I saw that she had not remade it and demaned that she remake it. We talked to the owner when he checked us out as she said we were rude.

*facepalm* it’s also annoying that they could have googled “gluten free soy sauce” and found out tamari exists. Le sigh

Thank you for being nice while informing the waitress of the truth. ( I’m actually in shock that anybody would think of such a thing, gluten is NOT alcohol). And tbh, I’m not totally sure that heat destroys all the alcohol either.

My friend that I have not seen in a while wants to eat in a certain restaurant. She is really excited about it. I called, and they don't have anything gluten free, and won't allow me to bring a snack. I'm ok with not eating, I'll just eat ahead of time, but my friend does not yet know I have Celiac Disease. So the whole thing is really uncomfortable. I don't know how she will react.

My doctor said stop eating rice corn millet milk after not feeling well being gluten free, now I feel healthy😢

I like the gluten free diet cause it makes people understand what gluten is when i got diagnosed i didnt know gluten was in everything people dont care what they eat they dont pay attention till they have too but it does get annoying the explaining very annoying

Translation….No new treatment

Anyone got major hair loss from celiacs?

I cannot take chances. Period! So don't tell me iam being rude for not eating things you prepared. You don't get it

Beyond Celiac had a talk, and they think that getting glutened doesn't damage the villi (with a single exposure, like contamination in a restaurant). They think there is a general immune reaction, which explains the difference in symptoms and how sick you feel.

I wouldn't worry about hearing people trying out the gluten free diet. It's not anything to get frustrated over. I think it's good exposure and awareness 😊

Is there ant news in the pipeline of the treatement,👏👏👏👏

My Dad had it. Barfing 🤮 was a biggie.

This is my life. Thank you for sharing ❤

Im very new to this and came for boost, but this is e petty-me video. Until there is a cure, man the fuck up and deal with it. People with diabetes do it, people with lactoseintoloranse do. People that deal with dialyses deal. So can we. dont bitch about it. Life gives cards, deal them.

Such a beautiful lady....... I'm gonna miss you 🥺😘

Thank you everyone! My daughter is 6 and 1 year into her diagnosis. I hope by the time shes 18 she has access to life altering treatments.

Thanks. Sometimes I think if I look at gluten, I get ill. ❤

I have coeliac too, and I know it's hard but it's reward for the hereafter so keep striving and never give up

It's not just the food, the plates, dishes, spoons could get cross-contaminated. Also we don't just get "an upset stomach". I will be in pain for three months and have to go to a physio to manage as some of my joints may give out. That's scary because I can unexpectedly fall or drop something (like boiling water). I may also suffer a gallbladder or kidney episode due to inflammation and end up in hospital... I dont "just" get food poisoning.

I have other food allergies besides having celiac disease and so many times I’ve heard “well my friend ____has celiac and she eats ____ so you could eat this!” Just because something is labeled gluten free doesn’t mean it’s safe for all celiacs! Corn is a major allergy for me because it’s in EVERYTHING‼️😣 I especially hate holidays with my one relative! It’s Xmas and it’s a tradition and you could have a little bit…! 😡 ok your allergic to fish so I’ll make you a deal…you eat some fish and I’ll eat one of your cookies! 🤨 yeah, thought so! Now shut up and leave me alone! 😒 Then she acts like I ruin holidays because I won’t eat something that she knows I can’t eat! 🤨 well tantrum like a 2 year old all you want but I’m not eating anything that we both know will make me sick or worse, kill me! Are you trying to kill me? My drs are aware of you doing this so if I die you will be interrogated about my death! Her “don’t be so dramatic! You’re not going to die!” 🤨 Yeah because I refuse to eat anything you make! 😒

Well said ❤

Great mom.

Back aches digestive issues tiredness head aches joint pains cramps kidney pains leg pains rashes itchyness feeling dizzy feeling sick brain gog eye sight issues skin issues

as an italian I know what your talking about it sucks big time. I just got diagnosed at 53. Its hard to deal with this BS. I really hope that one day they find a cure for this since this is increasing. I hope your dad finds a cure soon.

Very nicely equipped team for interdisciplinar work, i am very interested in their findings and future knowledge about causes and microbiom and regeneration

When is there going to be a cure

i have coeliac disease and yes its bad. i feel tired, nauseous and many other symptoms like diarrhea, mental fog. i am from India and here it is more hard to follow gluten free diet.

Thank youuu beyond celiac🎉🎉🎉🎉🎉 , i just did a donation from morocco 😮😮😮😮 and îm supporting youu the best that i can, i hope you will find an output in a very close time👏👏👏 I would love to give help in my local area Please contact me in order to do so

Thank you, Beyond Celiac for sharing these informative panels. Are there trials specific to celiac patients that get “brain fog” after exposure to gluten?

Thank you for the great research

I actually went to the hospital for a flare up for the first time in a long time and it was so discouraging. They just reminded me of being 8 years old and nobody listening to me about what I’m feeling. Cat scans show good so we gotta send you home buddy

its so hard and I am so sorry and you are super strong for sharing

As an African American, This is even harder to deal with in my culture, because AA people & food is a big part of our culture🥹 I weigh 96 pounds & my height is 5'3....I look like a literal nutrient deficienct CHILD🥺 I cant enjoy most of anything like dinners with my Family ( Step father has a catering company) And he cooks Extremely well, I can not enjoy his foods at events & celebrations because of my celiac disease. The rest of my life is going to be really difficult to navigate I have to carry special gluten free food with me to work & do all these extra steps to avoid gluten its not very pleasant

I was recently diagnosed with this, I’ve struggled for years with the symptoms while not knowing what was going on, and it was frustrating. Watching this I was in tears, because I finally feel like I’m not alone and that there are other people that get it.

Do you still use endoscopy as the gold standard in the Usa ? Thanks folks

I hope you will find a cure Dr , for all the children 😢😢😢thank youuu

Hope there will be a cure by 2030 😢😢😢, for my son

I like when the guy across from me flings a breadcrumb into my coffee while buttering his toast ...

My late father had celiac disease. He was diagnosed in his 60's, the hardest thing for people to understand was cross contamination and the severity it can really cause. Thanks for speaking out.

Thank you for speaking out! Stomach issues is really just the tip of the iceberg with gluten intolerance. After inflamed guts follows a loss of the gut microbiome - it is responsible for creating all of our serotonin and plenty of other neurotransmitters! In my experience it takes the healthcare way to long to suspect a gut related issue of psychological symptoms. Please spread the information and help those suffering from brain fog and lack of hope with establishing better routines. It's hard to believe bread and pasta is the root of the existential crisis after possibly years to decades of psychotherapy and medication.

Pleaaaese help my son i cry everyday, We need to find a treatement , thank youu very much !!!!

Don't do the background music please.

What about cross reactivity eith other autoimmune diseases, glucose spikes, vitamin b 12/iron malabsortion,

Hilarious , they've been hiding the symptoms since after ww2 ...(hiding people from themselves to protect the church) ... pretending like they're trying to help us...