What about migraine in neck shoulders.chronic nonhead paon by

Awesome talk! Thank you to Dr. Tepper and Shoshana!

Had terrible migraines until I started with Magnesium supplement, 800mg per day divided into two doses .

Vielen Dank an den Herrn Doktor für seine vielen Antworten leider verstehe ich nicht so gut englisch ich würde mir so etwas auf Deutsch wünschen❤ Ich leide sehr unter meiner chronischen Migräne sie hat mir ganz viel Lebensqualität genommen habe meinen Beruf verloren und bin in Frührente und schwerbehindert

So true. I used to have them and the pain is awful but together with that you get cold feet and hands, nausea and vomit, you cannot be any near a source of light. Migraines are incapacitating and terribly misunderstood by the ones who luckily do not suffer them. I hope you can raise awarness about this. Thanks!

Thank you, this was so helpful. I so appreciate it!

FANTASTIC!

This is an amazing presentation! I shared it with my support groups! Thank you so much!

Yes it does.

This was such an informative presentation and interview - learnt so much! Did you know that if someone's acute migraine medications are not working well to stop the attacks then that person has 3X more chance of becoming chronic in the next year!

It doesn’t work. It's just a placebo designed like a glorified tens unit.

Have you found any treatments for daily chronic vestibular migraine that actually work?

When you hear the words FDA-"cleared" device, run

It is an important information to know. Thank you

Thank you.

Thank you for this information!! Suffered with mild migraines until 2022 and I was hit with severe Vestibular Migraine at 53 years old.. I am on meds and starting to get better as I have not had any severe vertigo since October of 2022 BUT I am not the same person.. I still don't feel human. The dizziness is still my enemy! I pray noone has to suffer through this and that a cure is someday found!!

Near constant nauseous burning in this occipital region for about 30 years. I've seen three migraine neurologist/specialists, have been told I have occipital neuralgia. Its worse when I look up or lie down to sleep. Cannot find a position that doesn't aggravate it. Even when pillows are placed just right, if I move in my sleep to a position that triggers it, I wake with horrific migraines. I have the diagnosis, but no treatment has been offered. I note the neck triggers my migraines, along with bright lights, certain smells, looking up/down, left/right too long. What to do? This is ruining my life. I take Imitrex vasoconstriction meds for the migraines, but they aren't good for kidneys, liver.

I have all these symptoms after a terrible fall But i hear a thumping while lying down

I can agree and feel the same way. You're not alone.💛💛💛

Can you still get it for $10? It seems more expensive now.

Thank you for sharing this!

Omg. I'm bawling 😢😢.. I am suicidal because of pain.. I have occipital neuralgia,,, chiari malformation type 1 and now I think I have Trigeminal neuralgia... My doctor here in Ireland says it is just new daily migraines which I'm on emaglity pen injection for the last 13 months and is not working.. Botox definitely works but he wants me to do this trial injection. Im so sad.. So much pain... Do you think my chiari could be causing all this pain.. Wd so appreciate your advice please please please also are Trigeminal and occipital neuralgia related or can you have both? Nerve blocks into my greater nerve 100% work. But now I have face pain jaw pain eye pain on one side,, can't touch my face. Open my jaw 😢 Please reply because you seem to know what ur talking about xx

Any reviews if it works for migraine

We can all be a voice for change. Take action now and let your voice be heard.

Non-medical switching seems really close to “practicing medicine” and should be made illegal for insurance companies to do!

I love that you are talking about migraine and sex drive because I still can’t find out why I’ve never had a sex drive. My migraine started at 10, so I really think this might be a correlation.

I just started gabapentin, I would not recommend it… I have felt awful depression and suicidal ideation and I am not sure that you should take it with Tramadol. I was forced to stop taking Tramadol, I live in the US and it’s considered an opioid. I have chronic migraines, every day, the pain is either bad or worse. I take the new CGRPs Qulipta and have Nurtec and Reyvow. They do nothing. I’m to the point of just asking to be put back on the Tramadol because I have literally not left my apartment since Christmas except to pick up groceries that I have ordered. 😢 I hope you find relief 🙏🏻

Where is dr shin beh located

What meds that have a least side effects for Vestibular Migraine( 24/7 dizziness)

Great talk!! Thanks to the panel for sharing your stories and experiences!! You help to make our community stronger!

Awesome thank you Dr. Beh! Fantastic informational video.

How much do the machine run in price?

👌 'Promo sm'

Thank you for sharing this!

I was diagnosed with PH in May , initially 25 mg of Indomethacin was like a miracle drug then the headache attacks , they're actually a full body attack ,came back with a vengeance 😢. I am up to 100 mg Indomethacin and was even hospitalized over night , no relief and am totally miserable

I m a patient of lumber, Cervical issues, osteoporosis for 40 yrs.Asymmetric Parkinson's with vestibular migraine for 5 yr, imbalance ,too much of tightness in head,forehead, neck,back of the skull,vibration inside the head, forehead so many peculiarities too imbalance, incapable of exposed to sound n light, temples tightening,n a constant pull inside the point btn the eyebrows made my life miserable. What'sthe treatment,exercises .Brandt Daroff exercises have stopped. response. Measures please could be suggested ?

Hi sir, For real you know what you’re talking about. I’m in us army , I’m dealing with this headache now and alll doctors I’m seeing are talking about migraine, I got injections twice but no releave. I’m suffering, I really need help. Didn’t get diagnosed yet. Thanks for your information on this subject.

I have been suffering from severe migraines for 30 years and was running from pillar to post to get relief even though no proper diagnosis was made. Just managed with symptoms suppression medication. Now after menopause, experiencing more vertigo symptoms and eye pain with double vision. Very informative discussion.

Whats a good medicine to help, ive been trying different meds from my ent specialist...im so tired of this!!

I had a horrible head pain that lasted weeks. Turned out I was leaking CSF and my brain had slumped in my skull. If you have head pain that wont stop look into the possibility of a Cerebrospinal fluid leak.

I realize this video was made 1 year ago, but I just received my GammaCore Saphyre, and just searched for info on it. I used it today for the first time, as i was starting to get a tightness across the back and side of my head. I did not know it would stimulate my lip so much. I am also suffering from an episode of Bell's Palsy, and the left half of my lips have not fully recovered full strength. I wonder if this stimulation will help with that or not. Regardless, I used the Saphyre for the first time and I feel a little different than before I used it. I also have a Cefaly device I use from time to time when I have a headache. It seems to work as a reducer/stopping and prevention device, but my Neurologist suggested I use this as well. Now that I have used the Saphyre and I am concentrating on my headache, I feel like it has lessened and the tightness is slightly less as well, but not completely gone. I am not sure how many treatments I am supposed to use in a day or how often/far apart. Oh, now I am feeling a bit light headed while sitting. Hmm, that is a bit odd. It isn't necessarily a bad feeling like a typical light headedness from standing up too fast etc., it is a different feeling.

Dr. Been is my neurologist and he has helped me tremendously with managing and treating my vestibular migraine. He is an outstanding doctor and his clinic provides patient support with a care coach which is super helpful. It is called NeuraHealth

Dove si può trovare in italiano . grazie

Excellent presentation

My 11 year old daughter has been suffering from migraines for years now and so far they tried Topamax which caused bad side effects and didn’t work and now she is one levetiracetam which hasn’t worked so far they have her on 1 1/2 twice a day. To abort the migraine they have given her other medications as well but none have worked. I came across nerivio on Instagram and asked her neurologist about it. We will be receiving it in 2-5 business days. I feel so hopeless and helpless seeing her suffer daily. I am praying the nerivio works on her but now that I hear there are other devices I will be asking about them at her next appointment. It’s hard because she’s only 11. Nobody understands. The school doesn’t care. It’s hard. Very very hard. She is a strong beautiful smart little girl and I try to help her any way I can but nothing has worked in taking it away fully. Her story is complicated because it all started with a vaccine. When she was 2 she got her first varicella shot. She started having myochlonic seizures after that. After a few months the myochlonic seizures disappeared but now she started to get headaches. In kindergarten she was pushed by a kid onto a bench and the school called me to let me know she was going to need stitches and needed to go to the emergency room. After this her headaches became more frequent and they started to hurt more. Fast forward to 4th grade and she was now having migraines. Forward to now in 6th grade to her getting them everyday or waking up with one already that won’t go away. It’s just awful. I get migraines sometimes around that time of the month and when I get one I am stuck to the bed it’s debilitating. I cannot imagine how she feels having them daily. We pray something works for her and soon. School is hard because of all the alarm drills and how loud classes and lunch can be. Even going to the food court in a mall can trigger a migraine. We bought noise canceling head phones but they haven’t helped. So we pray and pray and try to support and help her as much as possible. I wish drs could try to find the cause instead of just trying to mask the symptoms with medication that hasn’t worked. Sorry for the long rant. Praying for God to provide migraine sufferers with medical help that actually works.

Is this something you are still using after three years?

Thank you! I needed to hear I’m not alone in this 16 year battle of 24/7 365 pain. The neuro I’d trusted for over 30 years of having 1 hormonal migraine a month accused me of making this up when I didn’t improve over 4 years of trying everything suggested by Jefferson Headache. She said “You’ve tried everything that has worked for EVERYONE else so you’re making this up”. When I asked how I was supposed to be a mom while in so much pain, she replied “Go to an ER”. That was just the beginning of the verbal attacks I’ve endured from medical professionals.

I have 24/7 migraines and started at age 67 and is in pain constantly. It’s very debilitating and I don’t accomplish very much.

I’ve been trying to conceive for a year, my neuro told me that all he can recommend are lidocaine nerve blocks to help my migraines. They didn’t help at all and I’m at a standstill. I’ve been taking Ubrelvy as needed for my worst attacks and he isn’t in favor of that. The Ubrelvy is the only thing keeping me out of the ER. I’m at a loss here and would like to switch neurologists, but here in Boston, it’s very difficult to even get an appt. I have no idea what to do. Any recommendations?

This makes total sense ... I have vertigo with tinnitus and headache.