Stroke Community Choir
16:51
6 ай бұрын
NW Stroke Choir
17:54
Жыл бұрын
Opening remarks - Christine Hyde
5:10
Пікірлер
@learnzoology1588
@learnzoology1588 3 ай бұрын
Plz can i get this ppt?
@michaelhickey4615
@michaelhickey4615 3 ай бұрын
This was a complete waste of time
@JordiMorell77
@JordiMorell77 4 ай бұрын
You spelled "ovale' wrong....
@GMNISDN
@GMNISDN 4 ай бұрын
Thanks!!! Amended!
@meenaljanakiraman2253
@meenaljanakiraman2253 5 ай бұрын
Hai sudha how are you?
@lalaa2484
@lalaa2484 6 ай бұрын
Yes please why could you just tell us what is wrong with us. I when on to get a degree to learn to drive. I am going to try my very best to hurt my self and give my self a second head injury. Life is so very frustrating when there is no NHS support.
@lalaa2484
@lalaa2484 6 ай бұрын
I've ask for mental health support for the last 3 years in west Yorkshire icb and I've been rejected support. I've had self problem since for the last 27 years. I've attended suicide and have been diagnosed with suicidal thoughts without intent.. I've had it all expect I've never play contact supports, I stay away from alcohol now..
@lalaa2484
@lalaa2484 6 ай бұрын
There is no NHS clinical support for people with a none acute brain injury in West Yorkshire ICB. Not only have I been fighting at time to get the support. I have been reject twice in 3 years for mental health support. It a total disgrace.
@lalaa2484
@lalaa2484 6 ай бұрын
This has been my personal experience for 27 year since my brain injury. Why have I never been given this information but anyone in the NHS? Why is NHS clinical injuries support still a post code lottery? @RhonddaBryant is trying to set a brain injury national strategic, it sad there been very little progress in this 7 years, process is too slow for people like me who are suffering. I have no criminal record.
@johnventers6932
@johnventers6932 6 ай бұрын
Very interesting
@LinCheng-nx3wh
@LinCheng-nx3wh 6 ай бұрын
Hi, can't seem to be able to see any presentation here
@SusiBrown
@SusiBrown Жыл бұрын
Very good presentation, thanks you. I would caution against discouraging patients from using mobility aids without helpful alternatives. It can easily exacerbate symptoms and isolation, which can then impact mental health and can introduce additional challenges. Patients use them because they are less functional in basic daily tasks without the aids. When symptoms improve, patients happily put their mobility aids aside. Assessing a patient for POTS and PPPD can sometimes explain their use of the aids. When addressing the question of Comorbidities, in addition to Epilepsy, Parkinson’s, MS, recent studies are indicating EDS (Ehlers Danlos Syndrome) and ASD (Autism spectrum disorder) are frequently co-existing conditions with FND. Programs should be tailored taking issues concerning sensory processing and joint hyper mobility into account.
@trentconner3019
@trentconner3019 Жыл бұрын
"Promosm" 👀
@rachelbassett4942
@rachelbassett4942 Жыл бұрын
Thank you this..x
@ut0p1an
@ut0p1an Жыл бұрын
Fascinating and irritating in equal measure. I was diagnosed with FND after experiencing neurological problems following a Pfizer Covid vaccination in early 2021. Paresthesia, hypoesthesia, POTS, ongoing fatigue with PEM. I was given zero reasons for the diagnosis apart from the vaccine cannot do this (it can and does). I was told it looked like I had small fibre neuropathy but wasn't experiencing enough pain. I was pushed to have a second vaccination which I did. Two days later some of my symptoms increased a great deal (electric shock sensations etc). I also developed almost constant fasciculations in my lower legs. A year after my original consultation I was referred back to the neurologist who reconfirmed their FND diagnosis - in a somewhat aggressive manner it has to be said. Six months later I sought a second opinion as by now my toes and feet were completely numb and I had difficulty walking outdoors on uneven ground. I was told I have an idiopathic neuropathy - probably small fibre. Idiopathic = no known cause. Really. It has been over two years since I had to stop work. I have been offered zero help or support bar attending a short online course about pacing & DIY CBT & being advised to drink more and take extra salt re the POTS symptoms (undiagnosed but suspected by GP after a home stand test). The FND diagnosis still stands alongside the CFS and idiopathic neuropathy diagnoses. Medical gaslighting has been a shock. I could write an essay on that alone sadly. I accept that FND Is a useful categorisation for neurologists to put people into when they don't yet know what's going on. Didn't MS patients get given a similar diagnosis (eg 'hysterical woman') until MRI scanners came into being? It is clear that mind and body cannot be separated and shouldn't be as much as they often are. However it is also abundantly clear that neurologists often throw people into dx of FND as a way of getting rid of them. It is a medical dustbin diagnosis for many of us. I wasn't anxious. I wasn't depressed. But after 2 years of this I am starting to struggle with depressive thoughts. Oh and just for the record I am no antivaxer. Far from it in fact. I still believe in the great benefits of population vaccination programmes and am a very vaccinated person. But I no longer trust vaccine safety as people like me are not being researched or counted and that is a very big problem.
@carmenj5045
@carmenj5045 Жыл бұрын
Yep .. happened to my 29 year old daughter… five years later .. waiting for her to find out more results after treatments ! Hers was on the left
@SimonHarrisPMP
@SimonHarrisPMP 2 жыл бұрын
Ps - as some one that 'jumps' on every unexpected noise I can deffo believe they fes & an auditory cue has reinforcing effectiveness. I also have a waking cat like stretch of the leg that triggers ability to flex the hand but isn't fully discretionary or bidable
@SimonHarrisPMP
@SimonHarrisPMP 2 жыл бұрын
That was very interesting as the 'owner' of a non functional upper limb. There were a many snippets that could be the start of a discussion. The fact that test score reflect ebbighaus curves reinforces my informal belief that learning follows the same mechanisms whether it's arm function or times tables. That also says we aught to be differentiating reps for muscle strength from reps for brain pathways - the pattern of application needs to be different. That may then lead to therapy that attempts one without the other (maybe that explains mirror box?) - this is 1 place where clinical practice could immediately & very easily lead to better outcomes. Another point is the 'fascination' in some circles with "at three weeks". A life changing event has many impacts on the family it happens to and vastly more recovery time is post 3wks (to end of life). Talking and walking may be the priority at 3wks, eating & toiletting & dressing are a focus, spouses and family are trying to understand how life will be now. Interesting for knowing mechanisms maybe but not the timeframe that will be characteristic of the most practical application for most recovery for most people. That's typically longer - Recovery protocols need to be actionable in the stroke warrior's whole context. My arm recovery really started/accelerated after a year. In part that may be to do with the lifestyle change/ habit acquisition that is needed and the lack of pt/ot insight (and covid influenced availability). Building pt skills around creating motivation & educating to address lack of stroke warrior knowledge are a major factors in recovery that would yield huge results for no cost and likely lead to creating satisfaction for pt & client I'd amplify that last point by saying that while grasp & cimt are the best we seem to have neither is well fitted to purpose as defined or as administered - impe/ymmv - An analogy may help; They are all the material for building a house except cement & architecture, all the materials for a fire except a spark, a car without air in the tires Simon (happy to chat)
@slothrr776
@slothrr776 2 жыл бұрын
This is great! A better title would be "What does a clinical neuropsychologist do?" or "What is neuropsychology?"
@mariapatrick1795
@mariapatrick1795 3 жыл бұрын
STROKE is a spiritual sinkness which can be cure true herbal medicine. A friend of mine introduce me to a herbalist doctor that help me cure my husband true his herbal medicine after 11 years of STROKE the God of doctor Oje heal my husband from it, if you have same problem why not contact Doctor Oje on KZbin herbal treatment and share experience testimony like me. I went to say a big thank you to this doctor who God used to cure my husband thank you doctor Oje God bless you..
@steelthespotlightmedia5705
@steelthespotlightmedia5705 3 жыл бұрын
This is wonderful! Thank you for all that you do! I have Aphasia and I will show this to my caretakers so that they can better understand. Again, thank you for ALL of your dedication!
@NickClarkeStrokeInformation
@NickClarkeStrokeInformation 4 жыл бұрын
Lucy, absolutely brilliant !!! Well done you