What about the cheddar cheese and chopped chives? Mix together with the butter? Thanks.

thank you for sharing! how are you feeling now?

Is it better than Pillsbury Dough?

Thankyou so much for sharing.. My a kles upto my knees turned very dark in colour. And few other problems too. Very much better since after blood taking 4 times.

Yes Kyle!!!!

Good for you ❤

God bless

I have hemochromatosis and I can only tell you a lot of encouragement

Hi 👋 just wondering did you experience any loss of appetite/ unexplained weightloss? Thank you

do you feel better?

Pretty sure I'm near my 10th now have not really been counting them what helps me is talking to nurse and not being awkward you know dunno what it's like there but nurse stays with you until its done. Also my level been going down but recently been going back up I go every 2 weeks so annoying when it goes up I'm still trying to understand what to eat and what not

Very nice video carl, I have hemochromatosis come up did you ever suffer from shortness of breath and weakness, I've been doing phlebotomies now for several months my numbers are slowly going down I'm down to 600 but what I've been noticing is that any amount of exertion and I'm completely exhausted and I feel weak and sometimes I get shortness of breath, did they ever happen to you?

Had first phlebotomy yesterday easier than I thought nothing to worry about nurse was great😊

Thank you for your story even my transferrin saturation is high 55% and all other iron status is normal ferritin is 70 but I feel like crap I have a metallic taste in my mouth,brain fog fatigue digestive issues and even a white coating on tongue I think iron overload is my root cause for these issues

Can you lose the music please I’m having my first phlebotomy tomorrow you put my mind at ease thank you

My symptoms were strange aches in my joints mainly my knuckles and ankles, fatigue was extreme, I just thought it was the female hormones, & dizzy sometimes thought it was just vertigo. Try & cut down or cut out any vitamin supplements that have, iron, vitamin C & B12.....just my suggestions :)

Diagnosed yesterday, really good video ,

Hello Kyle! I was diagnosed a little over one week ago. My Feritin level was 609 but all my iron panels & liver panels are within normal limits. Have you ever heard of high feritin combined with normal iron & liver panels???

Kyle I would like to learn even more from you as I am I have had cancer and in remission but all my life I have had blood issues I just had a blood transfusion and feel it has done nothing my heart was touched watching your video as I am learning what and why I can’t feel good Bless you Kyle! 💛

Kyle , are you taking any medication to control the iron levels or just a diet ? My husband is suffering with this problem for 3 years and he is no been treated yet , we are waiting and waiting ...I just found you ,, Thank you !

4,000! Wow! I was diagnosed by happenstance so I was lucky not to be that high. I am not in "maintenance" yet but hoping in a few months I will be. I like hearing other's stories. Best wishes!

Just find out my 99 years old grandpa got blood transfusions over the weekend for low red and white cells.I am trying to find out how serious it is and the causes.He had fluid in his lungs last month.

Hey from Saudi thanks for sharing

I was wondering if you were baking it on the ice cube tray. Ha ha

Did you ever go back? Hope you are well!

Just sent this video to my Mom as a perfect example of how to introduce herself on KZbin for her new consulting business!

I have been aroun 8000 when i was diagnosed and a month ago it went up to 7900. Now its 5000. Its 6 months since i was diagnosed. Been doing phlebotomis every week. Any addvices for me? My heart and liver is affected the most. Thanks.

My level only 800 but they said I have fatty liver can I ask what ur meals are everyday what I should stick too and eat and not eat

I'm from the US and have a flight in march. Do they allow you to leave the airport easily? Or did you need a visa or some other document to leave the airport and come back?

Dear Heart. Thanks for sharing. It will all work out. Now, I know to go to a phlebotomist. My Oncologist who was so awesome passed away. I am not to take iron to prevent sepsis.. this new oncologist is insisting I do not know my body and my health dos and dos and don'ts. She say there are no blood levels it iron levels. Thank God, after insurance my copay is 1000.00. I will not be going for iron injections. I have Sarcoidosis and Active Sickle Cell Trait. which she says sickle cell trait does not become active.. Thanks for the idea of going to a phlebotomist. God Bless You. One Love ❤

How are you now. Im from d philippines and so happy to see your blog

Thank you for sharing your story. I was recently diagnosed with Hereditary Hemochromatosis and it has been an interesting process going through treatment. I am going through weekly blood-letting and have radically changed my diet although I eat really healthy. Thanks so much!

I feel your pain, and this month my Dr. reveal to me how I too have very LOW blood count. Its very sad and I have to go back to my Dr. office this wk. to get blood back inside of me :(((

I’m praying for you and asking God to heal your body and to uplift you. God bless you.

What a beautiful place! Thanks for sharing with us! (PS I was hoping a little someone would be waiting at the gate to welcome you home with a big running hug! 🤗😘)

I'm waiting on a genetic test now. 😣 I'm so glad you've done so well!

Hello,Point Number one,phlebotomy is not the only was to your numbers down. Your. Nutrition can help,coffee ,cabbage yoghurt, cheese Lactoferrin Colostrum,Vegetables etc. Supplements like Vitamin B Complex, Magnesium helps too. See also IP6 etc Second point. You guys like seeing Therapist for almost everything under the earth. I just wonder. Third Point You do not need make Confession. We appreciate the love to set up this channel to educate us of this condition. That in itself is a sacrifice worth appreciating. And I know people here do appreciate your contributions. Finally, waiting over one year makes me worry over your health. We do not want anything wrong with you. So pls get back to your duties for humanity. Stay safe. Stay blessed.Stay healthy!

He has Spoken, you will be safe and well. He choose you to inform his people. You are truly honoured and Blessed🙏🏿

I’m sorry this happened to you I feel like I have a low blood count and low potassium as well I woke up in the morning shaky i looked up symptoms and I have most of them I’m hoping I feel better soon and I hope you are doing good as well.

Keep the positive thoughts my friend I’m praying for you I have a similar situation and post cancer So friend I know how you feel I’ll be sending prayers up keep fighting

you are loaded with iron, i am lack of iron. We're both low of blood. thinking go to have blood stransfusion but doctors say no because it don't meet certain requirements. Life is miserable. living with dizziness and ringing in the head.

hmmm, lidocaine. How well does that work to diminish the pain?

They don’t want you to get better that’s for sure

Your 🙄dr doesn’t order labs to test for Deficiencies unless you ask!!!!!!!! Years freaking years of high levels of iron. I’m 😠 because I was completely depleted of vitamin D AND HIGH IRON. WTH!!!!!!! Shoulder injury wasn’t healing after A year and a half well when you’re in a lot of pain and you don’t have any vitamin D or you’re deficient and other areas and iron overload and they act like it’s your fault. Doctors are a joke amen

It was very good of you to provide and share this info regarding your Hemochromatosis plight. Often a calm voice can help and add reassurance to others with similar concerns. You have probably done more good for others than you realise.

I watched another video where they roasted the corn... Perhaps, something to consider... 💥💥💥💥💥💥💥💥💥

Keep going with it, you'll kick yourself if you develop problems for not keeping up with it. I'll tell ya, you've already conquered your fear. Three years of weekly blood letting, you've conquered it!

What kind of doctor you need if you have hemochroatosis.

I understand fully how you feel because I have low blood counts be positive and strong. God bless