I am so sorry you went through this. I had this with my daughter and was induced at 37 weeks. My daughter was a healthy baby at 6lbs 11oz. Thank goodness my doctor took it seriously when I mentioned the itching at 34 weeks and immediately tested me. She got me on a medication to help with the itching. I'm currently 7 weeks pregnant and am quite concerned this will be a problem again. I'm hoping since I have already had it they can watch me from the start and catch if/when my toxins begin to rise.

I had four children with ICP , the first one I was 18 years old and at that time there were not awareness about it so I was blessed my daughter could make without any control and medication, my water just broke and I got in labor. With my second child it’s when I found out about ICP so the doctor told me that was more likely that I had the same condition with my first child but the doctor thought it was a simple allergy. So then my third and fourth babies ICP but this time they knew about it so they were very careful and I had sonograms twice a week and started with ursodiol .

I was diagnosed with cholestasis and thankfully doctors treated me so well. And on 36weeks I induced labour but had c-section later. My baby is healthy alhamdulillah. I am crying literally. I was monitored full time and it was most difficult part as the jel increase iticing on belly. Now I am happy that they did monitoring.

It deeply saddens me to hear your story. I was also diagnosed with the same condition but by God's grace my baby was born perfectly healthy at 38 weeks, without any induction. To all the mothers going through this...God is with your baby. Stay strong.

Thank you ❤

I live in Georgia as well not too far from loganville and I have ICP but I got diagnosed at 20 weeks

I was recently diagnosed at 30 weeks and I got my test results within one day after the labs

Thank you for spreading awareness for ICP! I wanted one more baby but I have two and through because of this. I could have lost my kids but I was sent out to have them early with induction. I hated the itching and taking the ursodial. The ursodial didn't really help because I was still itchy. I had it worse with my last born because of ICP and Pre-eclampsia of pregnancy. I'm so sorry for this but thank you again for spreading awareness.

Me and my wife going through this right now thank you all for sharing.

I had icp soooo bad, worst case Dr's had ever seen,so bad they blew it off as not being cholestasis because it was head to toe,face to bottoms of my feet, I was covered. It was horrible! They ended up not actually catching it until I was 39 weeks even though I had gone in at 37 weeks to be seen for this and when they did my Labs at 39 weeks as soon as they got my labs back they set me up to be induced the next day. I am so thankful my daughter was born healthy . I tried getting them to test me multiple times and they didn't believe me. When I went back a 3rd time my husband came with me, he told them this is not normal and that I was awake all night ripping my skin apart and that it wasn't just stretching skin. With my first pregnancy I had PUPPP rash, also head to toe itchy, only not harmful to baby. I haven't met anyone else who had cholestasis as bad as I did. Many just have it on hands and feet and sometimes their belly. I feel like cholestasis is not talked about enough, I didn't see any videos about it back when I had it 8 years ago. I was terrified of a still birth the whole time and I was so angry at the doctors for not believing me when I told them what I had wasn't normal. Your story is so sad, I'm sorry this happened! I was soo scared I would get it again with my 3rd pregnancy and I was seeing a high risk doctor as well to keep an eye on me and baby to be sure I didn't get it again because it's actually more likely once youve had it before and knowing I had PUPPP the first time I felt like I was doomed to get some sort of dash or itching disease with every pregnancy. But I absolutely agree, so many doctors just don't know what ICP is, I stumped a lot of doctors before they figured it out and it took them weeks. I could of easily been in the same situation. I consider myself lucky everyday to of had a healthy baby.

I noticed itchiness at 33 weeks pregnant and I thought "it's gotta be either bacterial or something wrong with my blood" (it was so insatiable!!). So I told my doc and they got me tested and diagnosed. I am so glad that I got diagnosed early. My OB has my back and we made a plan today to induce labor at 37 weeks. I'm so glad that we didn't go with a midwife. My OB is so on top of things- incredibly capable. I'm new to this community but I am so glad that it exists because its so few of us who experience it. Stillbirth is so scary. Thanks Emily for sharing your story. It means a lot to me.

I’m over 35 and I’m 32 weeks pregnant. I just started noticing a lot of itching of my hands and feet today so hoping it’s nothing but wanting to get tested to be sure. This is my third. Last one was a homebirth and have been planning another.

I’ve been itching like crazy this weekend. Waiting to hear back from my midwife tomorrow. I’m so nervous.

I’m so sorry for your loss! I was diagnosed with icp at 9weeks and I’ve been trying to find someone who has had a similar experience but still haven’t found anyone who had icp this early. If anyone has any insight for me I would love to hear it! This is also my first pregnancy.

Omg...I'm so sorry for your loss. I'm currently pregnant 36 weeks and they are monitoring me for this..

Thank you for sharing with us! I'm so sorry that you lost your baby girl. My daughter just developed this condition. We are praying for God to protect our first grandchild. I'm glad God blessed you with more children. God bless you!

Thank you for this video! So sorry for your loss. My daughter has this and we are very worried.

Emily is a dear friend of mine, and we both were expecting our first child, both daughters, at the same time. Hearing about her losing her daughter when I was days away from hopefully bringing my own daughter home, was something I will never forget. Each year that my daughter has a birthday, it is a painful reminder of how hers isn't here to celebrate one too. I'm grateful for the knowledge Emily has now and the courage she has to share her story! We will never forget Addison 💜

Also to add to be wary of hormonal based birth control in the future. That’s what my obgyn has brought up

So helpful!

I was brushed aside when I kept going in about all of my symptoms. I went into premature labour at 31 weeks and had my baby. Spent 5 weeks in the NICU. I don't know why they couldn't just give me a blood test. Push hard girls when you know something isn't right.

Ihad icp With my son I had to have a c-section at 37weeks and I’m pregnant again and think i have it again 😕 I been itchy for 3days now

I have cholestasis. I caught it myself. My doctor was not listening to me and didnt even want to test my bile acid levels. I went to ER. Forced them to do the test! It took them 7 days to the results. I have cholestasis and im going to be giving birth in couple of days.

I'm 31 weeks pregnant and fully disturbed with it. It started in my second trimester. My bile acid was 155 .

I got cholestasis really early, at the end of my 1st trimester (20th pregnany). And just delivered my stillborn 20 week old son. I got ursodial and baby asprin pretty early. Nicholas still died.💔 I last heard his heartbeat on Tuesday a little over a week ago and found out he had passed 1 week ago.

How many day... itching stop after delivery

10 days before I deliver a baby boy in 31 week..bt itching still continues...

I m suffering with same ... problem dear...

Thanks for sharing. I lost my son too in Aug this year. I was on medication and bile acid values came down but I still lost him in week 33. ICP is cruel.

Hi Please tell about the use of Rifampicin with Ursodiol for Cholestasis of pregnancy.

So so sorry 😞 im experiencing the fear of possible stillbirth now, waiting on my bile levels to come back I'm 36 weeks 5 days & hoping i can be induced this coming week bc I'm just freaking out

I started week 13… 😞

This is so sad. I’m so sorry you had to go through that and lose your little one.

Nice initiative.. my wife started feeling itching around week 22... itching bit severe on days moves.. when we consulted doctor no proper response..so we Googled and came to know the blood work to be done and tested liver and bile acid test..seems initial bile acid level shows 11 (which is beyond the normal range of 0-10), sgpt sgot levels are also high.we worried and consulted doctor and started medication now...now we are in 27th week..things are moving with the positive hope..most of ICP stories says they had symptom around 30,32 34 etc..but ours syarted super early...much worrying

Thanks for sharing

I am already suffering with icp... watching this cause I can't sleep because of itching

I am already suffering with it, I am 34 week pregnant and really intolerable.... I am dying of itching

In this April I also lost my baby at 36 week because ICP...I live in Hungary (Europe) and here isn't any bile acid testing....from the day of stillbirth I also fight for raising awareness about ICP. It's so hard....

In the first delivery, I was an ICP patient. I had backpain a month after the first delivery and had a checkup or wear and tear. I'm very thin. Can this come from ICP? My body was weak. Now the second delivary also had symptoms of ICP. Udliv 300 was eaten. Back pain occurs 76 days after 2nd delivery. What are the possible problems after ICP delivery?

How did your itch feel like

Is it safe to do exercise with ICP?

Mine was not that itchy and my bile acid levels were still elevated so we had to induce right away at 37 weeks. I would say to get checked out anytime you have prickly itching whether it’s severe or not. Better to play it safe!

My wife is in her 36th week (Today 36-0) pregnancy. She has itching on her foot and palms but it is not daily and not continuous . Doctor said her bile acid test results are slightly elevated . Is this something needs to be worried . Can she wait for another 3 weeks for her labor

My wife is in her 36th week (Today 36-0) pregnancy. She has itching on her foot and palms but it is not daily and not continuous . Doctor said her bile acid test results are slightly elevated . Is this something needs to be worried . Can she wait for another 3 weeks for her labor

Good info, what will be the best combination of medication to stop icp

I had cholestasis in my first pregnancy but was only told after my birth of my daughter at 37 weeks the itching became so intense that I went into emerg. My family doctor saw me and I’m not even sure if he ordered the right test. Luckily I saw my OBGYN a few days later and he knew that I needed my bile acids tested. They called him with the results and said they were negative. When he actually got the bloodwork back it was super high. Luckily I had booked myself in to induce with accupunture that day. And had my daughter the morning I was supposed to see my OBGYN. Now I’m 34 weeks pregnant and started getting symptoms at 30 weeks. Got my results back and I have it but it took 3 weeks to get the results of the bile acids! Her baby died over the weekend and it takes 3 weeks to get bloodwork back?! Luckily I see my OBGYN tomorrow and can make a better plan. I think this baby needs to come out early! Hopefully we can wait until 37-38 weeks

Thank you for such an informative content..I am also affected by ICP; currently at 26w..

My doctor put me on Cholestyramine and hasn’t even gotten my lab work back yet.

😥 oh, she is a warrior!

How do you feel after delivered