so in other words, I'll be dead before the FDA denies this one too🥲

Please pray for my mother She is heaving this disease

2.23 minutes.....beautiful

If there's any help regarding treatment or any leads regarding the same, kindly share. I dont want to loose my father 🙏

This song is beautiful

My father had MND

My father died of this disease. When he was diagnosed of this disease he was 70.He suffered from this disease for 3 years and died at the age of 73.

Are there workshops we can attend. My husband suffers from MND

Hello! there. I saw your videos and was impressed by the quality of your content. However, after analysis, I noticed there needs to be improvement for getting more views and subscribers. You are working hard but the main motive to reach an exact audience is not fulfilled. You are working for your audience if the video can't reach them. That's a waste of your energy and time also. I will show the problem in your video and share how to fix it. Only say ‘yes’ if you want to grow your channel.

As I see it, Lived Experience allows those with MND, and their carers, to voice their concerns, opinions and ideas in a forum where those things are listened to with empathy and understanding, and without judgement. More importantly, the accumulated experiences on the journey that is or has been MND are to be used to plan better future experiences.

Wonderful project. So vital for everyone .

My Husband was diagnosed with ftd first then mnd 15 months later at 54 years ago. Totally devastated 😢

Thank You Susan for all of your efforts applied to the Pharmaust Phase I MND Trial , Highest Regards to you and your Team ..

Donnie Passage

Her little finger on her left hand lost movement and spread to the ring finger and up through the arm and weakening the left shoulder. This took about two to three months. The onset of the weakness in her arm meant each day we were reminded it wasn't going away and you have to just do what you can with every hour in every day - we prayed a lot for a cure, then you also pray for acceptance and a cure. It is a lonely existence living with MND I'm afraid to tell you, but something inside you keeps you going ❤️

I am suffering from mnd please help me

How to enrol in this trial, please give me contact details

PLS help

L😊

As long as there are people like Dr. Bedlack, there is HOPE for those of us with ALS. I am grateful.

my wife had ALS

I saw your MND Australia channel, And your channel content is very good. But video views are not good. Your channel has some issues due to which your videos are not getting good views. The main problem is SEO.

What are the supplements that people with refersal are using?

PS: Covid vaccine connection???

My heart already always went out to ALS sufferers, & then my brother aged 80 got late onset MND - ALS Bulbar. The anguish of watching him rapidly decline, a shell of himself, swallow & speech impairment, etc. a truly horrific scenario. What puzzles me is surely such late onset is rare? It’s the most vicious & cruel disease out there and as a family we are stunned & heartbroken for our dear family member. No treatment of any significance, terminal. WHAT ‘S BIG PHARMA DOING? Not much in terms of trials. Not a great money spinner for them. Shame on you.

Yall made me choke on my breakfast when I saw “POOP” as your first wordle choice lol

The cruelest disease out there. It’s when you hear there’s no cure or treatment that your heart sinks. Torture is the only word that comes to mind.

Pls👍🏽help

root cause is herpes virus

Thank you Dr. Bedlack and to your whole team for your work!! It does indeed bring hope and courage being part of the pALS community with all the information and support and opportunities to contribute. Your leadership is precious.

Spg 302 coming date

Check stem cell therapy

I feel like the breakthrough in this disease is very close. Praise God. We must keep praying for these scientists, doctors!!!

I HAVE ALS!

I have had bulbar ALS for 2 years and 9 months. Three minutes into video telling what you need, I received none. All iI got were lies. Virginia

contact me for your studies. i have ALS

My boss ia also suffering from MND since almost two years bt it just one week we discovered it's mnd,,is there anything update

Fantástico 🎉

I feel that I am a very good candidate for these programs mentioned. What is the process? Thank you kindly for more information. Mrs. Richardson

Wow so empowering for so many of us battling with mnd, thank you xo

Very interesting and understood you very well sister dr Margreet Ridder…

Are there any forums where i can talk to other mnd sufferer's?

very helful video

Our governments can waste billions of dollars on weapons and nukes and space projects but guess what they don’t care about such deadly diseases like this.

Unbelievably good cause and well played. But when will they stop autotuning beautiful voices like Tim's? Imperfection is beauty.

I lost a very very special person to MND in 2007. I miss them beyond words. After some nurses came and spoke with me & assured me not to worry as it was not hereditary. I now think how could they have made such an assumption. Anyway, it is what it is. I miss you more than all the oceans combined in space and time Es. I'm attempting to do a coffee, cake & natter morning soon to raise funds for MNDA UK.

Just found out one my old school mates just passed away from this cruel illness he was a extreme athlete too so so cruel

My father suffering from MND disease since 7 months . any updates and treatment about MND?

nice sharing

Thank you so much xxxxx