at 27:17 when you talk about dRVVT in relation to vWD activity. You are flat wrong.

Before taking factor i was having severe hemophilia B after taking factor i do agan inhibitor test the report change into mild hemophilia B

Hello man i am suffering from hemophilia B does after taking factor aPPT change

What a blessing you are Reid to the Hemophilia communities...you have done so much advocacy work in your state and also in DC that you should be held up as a role model. Keep up your important work!

❤❤❤

Me and my brother are hemophilia patient can ask you something

Can't wait! 🙌

Thanks a lot, this was helpful

Hello dear I am a citizen of Pakistan I am suffering from hemophilia My age is 24 years. Now I want to treat there I am in great pain My life is very important for my wife and daughter. It would be greatly appreciated if you could help🙏

YOUR SUCH A WASHING MACHINE BRRRRRRRRRRRRRRRRRR FUCKKKKKK 🔥🔥🔥🔥🔥🗣️🗣️🗣️🗣️🗣️🗣️

My husband, in 2016 at age 74, was sent by his hematologist in Virginia to UNC and Dr Kastori for HHT. He was put on Avastin infusions. Prior to starting the infusions, he was having severe, debilitating, and life threatening nosebleeds (3 a day), and GI bleeds. Within six weeks, the nosebleeds stopped completely, as did the GI bleeding. He died in 2022 at age 81 of an unrelated illness. Avastin gave him his life back in his later years. Our daughter and grandson have been diagnosed with HHT also. Their future does not look so bleak now. Thank you for all your work.

As a hemophiliac this webinar is an amazing project. Growing up over the years with severe hemophilia I dealt with pain almost everyday of the year. Have been put on multiple pain killers over the years. So much useful information on managing bleeds and pain.

This is Great Information! THANK YOU!

My father is also suffering from acquired hemophilia.... He's bleeding from right iliopsos muscle and now he is having hemothorax too.....He is admitted in India SGPGI ,Lucknow... I have query that what's the best line of treatment through which my father is able to come out with this problem

Acqired vwd pl shed some

Hello sir! Iam suffering bleeding from nose since childhood when I become younger not regular bleeding but if I eat hot items or cold items I don't know it start bleeding from nose sometimes by coughing also got bleeding.. And since many years my weight is constant 45-46kg, I am suffering with clubbing fingers in hand and legs.. But I not faced any health issue. I started searching reason for my clubbing I found a doctor Sharath internal cordiologiest he said there was multiple avms in my lungs it is not possible to do treat them all but he did coiling to 3 avms which might Are serious at my age of 30. After I got married at age of 33 now Iam 41 with 3kids 2girls 1boy.. I not faced any problem.. On covid also I not faced any health problem but because of covid lockdown I faced financial jobless problem for almost 2 years in between this period my kidneys are failed now Iam on dialysis.. Weekly once.. Still Iam very active.. But doctors are asking me to get genetic testing hgt, isler weber render test... My request is there any treatment for my issue?? I couldn't effort money for genetic testing.. I am fear that is it effect to my innocent kids.. Please help me in easy way sir... Thank you

the statement is made help is always available. NO no IT IS NOT!!! and even if you lived where you might know how to find help, how do you get the time and energy to just call and make an appointment to ask for help? i needed someone to care for my mother for a month. had to move her 3 times in 2 weeks and ended with her and i in hospital for 2 weeks. because they didn't trust my instructions learned by "trial and error" already, and tried to do it their own way. we were in much worse shape than when i started looking for help.

Thank

Diagnosed after two different brain injuries (one in 1991) with HHT in 2005. I live now through regular visits with Hematologists, allowing me to work in Southern California. I can't wait for a successful breakthrough in technology in the relief of this genetic illness.

I’m so much excited about how dr OARE on KZbin channel was able to shrunk and cure my multiple fibroid and heavy period, thank you 🙏 very much xx dr OARE and you too can also visit him on KZbin channel for any compliant..

I’m so much excited about how dr OARE on KZbin channel was able to shrunk and cure my multiple fibroid and heavy period, thank you 🙏 very much xx dr OARE and you too can also visit him on KZbin channel for any compliant.

Hemophilia factor cascade equals Amazon delivery... what a correlation. Thanks. Not everyone's an idiot (it doesn't help when you explain things like a kindergarten teacher). People are a little smarter I would imagine. Where's the citations-Please refer to scientific publications when referring to these trials.

2 likes 114 views as I type... something to think about #Pfizer got to step up the information game. Thanks and you're welcome.

Hey, I have sever hemophilia b and I keep myself in decent shape. I'm on the light size though 150 IB, less stress on my joints. I'd like to get into martial arts but I have no idea what would be the best. What would you recommend

God bless you!! God bless your family!!

As a patient with HHT and retired healthcare professional, I sincerely encourage all those afflicted with this disorder consider volunteering for HHT Research and Trials which could help us as well as others in our families and toward future management and potential cure. HHT afflicts many areas of our lives and we all hope for a CURE!

This is beautiful! Thank you for sharing.

Thanks to Dr. Gbenga on KZbin for his herbal medicine which cured me of Hepatitis A after series of medication which produces no result, since April 2, 2021 I have been cured completely.

Cómo puedo contactar a la señora Edna mi hija tiene exactamente deficiencia de factor V me gustaría platicar con ella sobre las experiencias y tratamiento de su hija

Thank you Reid for advocating on behalf of yourself and others with hemophilia. This is a good video. While I do not have hemophilia, I can relate to the need to physically protect ourselves. I am a version of a Highly Sensitive Person or HSP, discovered by Elaine Aron and her husband Art. I am also a gifted adult and an empath. ------ Your difference is more favored than mine. Most people can understand why you must protect yourself. Most people don’t understand why I must. When protecting myself I have been called selfish, a narcissist and even a bully, when all I am doing is having to say “NO”, and sometimes more forcefully than I would like to do. I sometimes must firmly stand up for my genuine and natural needs others are oblivious to. If only people knew that my abilities to care deeply and help out are boundless, and they are not freely given out at the expense of my own well-being and sanity. It is cool to have healthy boundaries and to just say No. 👍🏼 While I won’t find myself bleeding to death, I must protect myself from many different toxic people, or as instances, people that have a mental illness, who are consistently highly anxious and paranoid. Or basically, are experiencing their unacknowledged biological death anxiety. This deep inner anxiety manifests into being competitive, harshly & falsely judge and punish, and or lack fair minded critical thinking and empathy, and or are adults who are immature and self absorbed, jealous, unloving, and manipulatively lying at the expense others and a relationship. Whew! That is a long list and vital for me to know about. Time to take some long deep breaths before going on. Their toxic energies they emanate from their bodies and minds, I am vulnerable to and am harmed by. Sometimes to the point of feeling like vomiting and fainting. I feel and absorb all energies or vibrations near and far. While you are more easily able to avoid bleeding to death, I am easily harmed by what is simply in the air. Your physical difference is favored over mine in an important way Reid. You will not be put down, rejected and be disinherited by ignorant family for needing to simply protect yourself from bleeding. Even after sharing factual information with family about what my abilities and limitations are, this info flew over their heads, then was dismissed and even scorned. This hidden and genuine need for self-protection from harm is a life-long struggle all highly sensitives, empaths and gifted people have. From my personal experiences, only those who have the similar abilities and limitations, and awareness I have about these characteristics can relate. This is same for those with hemophilia - can understand each other - yet I can have an idea of what you and others with hemophilia feel like and need. It helps to be self-educated, and to have a way to publicly and easily share & receive the information about hemophilia. Good going Reid! 👍🏼

This helped me

why are people circumcising babies when they could be hemophiliacs? why would ANYONE insist on circumcising a hemophiliac child? total insanity.

Me interesa tener contacto con la señora soy padre de un niño con hemofilia B vivo en cd Juárez chihuahua !

This is beautifully done and captures the essence of HFA--family. Honoring our fallen heroes. Inclusion. Love. HFA, you do a great job of bringing our community together. I hope everyone can attend at least one of these events!

That was great! Great video, great ride! Thank you HFA for all you do! Thank you, Ashley and Michael, and Tom and team... your commitment and enthusiasm is contagious!

Love this video !!

Thank you for an excellent and informative lecture on laboratory aspects of haemophilia management.

Can u please provide more videos for hemophilia kids swimming techniques

Outstanding webinar. A must for all hematologists and those caring for Hemophilia patients. Thank you so much

I would love for y'all to find a cure for hemophilia

An amazing and articulate young lady! Love it! :-)

Awesome!!!

My brother also

regards to any condition I'm sure people can still learn something new such as Martial Arts or anything physical.

I have dealt with female bleeding issues often called Mennorhaigia-mettorphaigia a possible closely condition of hemophilia that effect my Monthly menstrual cycle. It might be a type or form of hemophilia of which effects the monthly menstrual cycle. It might be closely related to hemophilia or something like a cousin to the blood disease.

Wonderful video; Barry was so articulate, thoughtful, compassionate and intelligent, and so deserved better than what he got. Yet he gave and gave, and his efforts have helped hundreds of children with hemophilia globally. Barry was a true hero and will remain in our hearts always. Thank you, HFA, for publishing this.

married to a True Blood Brother. Chris Merrill severe type A With Hep C. he is still going strong. you all are the stongest men i have EVER MET!

I want to start a program like this at our Do Jang

Thank you for sharing this very small, very significant, part of your story...

I hope they make more video's in the future. With a little bit of practice these could be shown in my classroom.