#replay 🎉

Thank you for addressing this disease. I was diagnosed 6 years ago and it’s horrible. Utterly painful. My rheumatologist offers me plaquenil only. I can’t take it. Broke out in terrible all over body hives, chest pain and vertigo. Discontinued the medication and no hives, no chest pain and vertigo vanished. He offers me nothing else. Must have to do with the insurance. Very grateful for doctors like you doing videos on this disease. Because it’s difficult doing research on it!

Thank you for very informative explanation! What is your opinion on Ivermectin for MCTD? Thank you

I would be interested in hearing about how RA can affect cognitive function and also about how it can affect eyesight, if you haven’t already covered those topics.

I’m so glad you discussed this issue. After years of various symptoms including plantar fasciitis I was eventually diagnosed with non radiographic ankylosing spondylitis. Initially I was on meloxicam but this wasn’t enough. I have been on Adalimumab for two years and this has helped a lot with the axial inflammation, especially in my neck. However I am still struggling with peripheral involvement in the joints you mentioned. I have been on 15mg of methotrexate for a while given by my rheumatologist to help with this. My archilles heel though is still inflamed. This seems like the most difficult area to heal. It just locks up when it feels like it. Any suggestions

Thank you so much for doing this video!! You have been sure a great resource for me to better understand what is going on with my body!! ❤❤ thank you!!!

In one of the next episodes please share some info about ankylosing spondylitis. Thanks!

Is it feasible that myocardial ischaemia could be diagnosed in relation to GPA but the individual not put on any specific medication for this?

Is histone antibody harmful? Or is it more just one that gives a sign?

Can you explain histone antibody maybe in context in Dil and regular lupus?

Can you do a video about enthesitis and treatment for that!

Why do you always go to plaquenil it makes you have skin rashes but you doctors don't tell your patients??? I was put on it 2 yrs ago and it made me breakout in to rashes on my arms and legs. There are no good news when you are talking about a disease that will just attack your body and destroy your organs. I'm a 63yr old woman that just got diagnosed with this awful disease and you're talking about long term life??? Why don't you just tell the truth and tell your patients they are going to die from this disease. I have Burning Mouth Syndrome also which is a fight everyday from the time I get up until I go to bed at night. You need to talk more to GP's and educate them in paying attention to their patients and the symptoms instead they sweep you under the rug and send you on down the line of other doctors and specialists. I take 3mgs of prednisone everyday just to get through the pain. STOP giving patients Plaquenil and think that is the answer because it's not. Please make sure you tell your patients all the side effects that comes with the medication. I know you only have your 15min time with each one so don't waste their time because they are the ones who leave your office and have to go home and deal with all of the pain. Pain you doctors don't even want to give anything for the pain. You are so scared that if you do you will be slapped on the hand for prescribing it. So please don't bullshit people with all of your lies. By the way what do you think you would feel like if you lost all of that hair you keep flipping around. I had hair like that and I know it is gone add that to the disease which you should also go over with your patients. Do yourself a favor and tell the truth about Sjogren's Syndrome and not the bullshit of how you care.

Great video! Do you know what other kinds of autoimmune diseases can be atypical P-ANCA positive? Thank you!!

I love your positive attitude.

#Replay thank you, I love learning about different diagnosis. Is this an autoimmune disease as well?

Hi. I was recently diagnosed with psioriatic arthritis. Rheumatologist suggested a Methotrexate, but said maybe think about it first. When is the right time to start it. At the moment I don't have any swelling except right hand and my right ankle. I get pain every day in different joints and at night my back and foot. I am just not sure if this is the time to start taking the meds.

I wish more doctors in the US were like her. Thanks for sharing your perspective on taking the reigns of our own health. 🙏

This is very interesting. Doctors need to be excellent at reverse engineering it seems. You are basically given a highly complex system - the human body - and you experiment with providing certain inputs, observing the output behavior, based on which you attempt to define what's happening in the body. As an RA patient, I really hope the medical research community makes advances in the coming decade, especially with the help of AI.

Thank you!!!!!❤

Gut health. You need to treat the cause.

#Replay

I’ve had 3 positive ANA tests and have seen 2 rheumatologists. The first one told me that he thought my ANA test was a false positive. The second one has diagnosed me with psoriatic arthritis ( I have psoriasis). He put me on methotrexate and I will say the first dose (injection) seemed more effective than the pill form. My fatigue seems to be much better, but one symptom that I didn’t think was related is that before the methotrexate is that if you lightly ran your fingers over my arm, it didn’t feel good. I wouldn’t exactly call it pain, but more uncomfortable. Now, it is comfortable and feels normal. I do have arthritis and am certainly confused as to whether it’s osteoarthritis or psoriatic arthritis. Some articles say psoriatic arthritis is not bilateral and osteoarthritis is bilateral. My rheumatologist says osteoarthritis is not bilateral. So there’s confusion in that. I guess my question is, could my skin sensitivity be part of some other kind of autoimmune condition? I wish you were closer, I would love to make an appointment with you. I live in North Carolina.

Your videos are helping me so much! I initially went to rheumatology for crohns arthritis but some questions have come up if my arthritis is in fact from crohns. Can you please do a video about crohns arthritis from rheumatology point of view?

Can you talk about crohns and crohns arthritis from rheumatologists point of view

This was really useful thank you. Can you have a positive RNA Polymerase III and not have Systemic Sclerosis. Or can you have a weak positive. As there is so much crossover between autoimmune issues it is likely to be overlooked

I saw one video that recommended not to take folic acid the same day as your Methotrexate dose. It said to take your folic acid the following day. Probably insignificant, but I thought it was interesting.

Great, to the point video. Very informative. Thank you.

Do you have any autoimmune conditions? Also, how effective have you found diet changes to be? My PsA flared badly a couple weeks ago - to the point I couldn’t bend over to pick things up - so I fasted for two days, then cut out all wheat and all sugar, and so far the flare is gone. I hope it stays that way. My Dermatologist wants to start me on Taltz, but I almost want to hold off and wait to see if diet works first, cuz I don’t know how I feel about suppressing my immune system when I’ve already been getting so many sinus infections, etc.

Can you talk about crohns from a rheumatologist point of view.

Does fat loss help PMR too and other inflammatory arthritis type conditions?

What medicines do you recommend for someone that is diagnosed but feels fine for now

Please do a video on diffuse connective tissue disease. I was diagnosed with that.

Can you please make a video about diagnosis of scleroderma.Tnank you.

Thank you for detailed explanation.

Wish I had the money to see you, especially as I’m near Denver for a few months. I would love to do direct care for all my healthcare needs. I think that’s the best option for anyone who can afford it. And I would love to create a health plan for my RA with a rheumatologist who believes in treatment plans that are more comprehensive than just prescribing drugs. I am a huge believer in lifestyle changes. Seeing your channel gives me hope that there might be more rheumatologists out there like you.

Thank you for your continuing making videos for us. I so appreciate it.

Truth!!

A question for another video, perhaps? My consultant told me yesterday that I have no PR3 in my blood even though I have symptoms of systemic small-vessel vasculitis. I have responded well to Prednisolone and, she says, I’m effectively in remission but she has no indications of progress in my blood. I’m down to 2mg Prednisolone and should finish taking them by the end of August. That will leave me on Mycophenolate which we’ll try to reduce next year. How unusual am I?

Im waiting to see a NHS rheumatologist in the UK. I've started writing a list of things I want to know. In the last 8 months my life has fallen apart. I had to ask the Doctor for RA blood test as was never offered it. Im 64 and would normally be very very active and I am determined not to be put on the OAP list.

I was just prescribed this drug. I have abdominal pain and recently diagnosed with diverticulosis. My dr offered me the injections, but the pharmacist gave me pills. Should i try them , already having stomach issues?

Your videos have helped me a lot. I recently found out I have psoriatic arthritis, and I'm having a pretty bad flare up (right after being laid off and losing my insurance lol). Doctors have been trying to figure out my frequent urination for over a decade, and haven't figured it out. After watching one of your videos talking about urinary inflammation, that connected the dots for me (finally). And after thinking about it, the irritated bladder is 10x worse while I'm having a flare up, so it must just be the PsA.

The background music is a huge distraction 🫤

i have psoriatic arthritis and have been on 7 different biologics. why cant i acheive remission

How much Plaquenil for a 50 kilo person? I read 6 to 6.5 mg per kilo of ideal weight. Can you take 400 one day and 200 the next day to equal 300mg dose?

Please can you do a video on MPO vasculitis. 🤞🏼The eye improves better quickly

Where is pain management for this? Bladder pain and headaches are unbearable. I'm weary of hearing about the opiate horrors when suffering is unbearable.

U need a professionals KZbin thumbnail designer and video SEO expert?

Thank you for your advice - i started Orencia many years ago - injected every two weeks - but decided i didn't want drugs and had a fear of side effects. I caught covid and was fearful of having no immune protection that i would get it again. I am in pain; my feet and wrists are mainly sore, and I have stiff joints, so after seven months of no Orencia shall start it again after hearing your reassurance. The aim is taking something for the rest of your life is a worry - can't the body heal naturally?

Thank you so much for this video, Dr Amigues. I have psoriatic arthritis without having psoriasis. I am not overweight; rather the opposite. I also have Sjogren’s. Right now I am in a rehab ward following hip replacement surgery. I have had an excellent result and am going home walking just with a walking stick. Now I am no longer in agony, I can turn my mind to understanding these two conditions with a view to managing symptoms and, if possible, achieving remission. You have given me a good start, and I appreciate it.

#replay I think I have mctd. I have positive Ana homogeneous, rnp and hla-b27, low thyroid markers (?)and early sjögrans. The doctor diagnosed me with sjögrans Fibromyalgia and AS from bloodwork from last year. But was only treating the AS and fibromyalgia and I felt progressively worse. So we ran the bloodwork again last month. That’s when I saw the high RNP result. At the same visit he prescribed a bunch of medications while I was to wait for the results. I’m slowly starting to feel a little bit more like myself. It’s been almost a month on on hydroclroquine? Prednisone, gabapentin, cymbalta and sulfasalazine. Hopefully in this next appointment I will know for sure what I have. I hate the term fibromyalgia though. I hope I made sense. Anyway thanks for the videos.