Theyis a leading hospital in London called the Royal Free. Working on this, my brother died from it. You were tokd correct. They are no cure for now, hopefully

Yeah right this was 9 years ago im 49 and was diagnosed 6 months ago and ive been told theres no cure my kidneys are only working at 10% had two unsuccessful operations trying to get a fistula in so I can get kidney dialysis on waiting to get it done in Glasgow there should be more awareness about this illness if anyone is feeling weak all the time get a blood and urine test and ask for Dr to check for Amyloidosis.

Good Evening, Myelodysplastic Syndrome presents with a chronic phase of lowered complete or full blood counts. The Light Chains in your kidneys are the first organ to suffer and if a patient is experiencing abdominal pain, they should ask their Rheumatologist or Haematologist to screen for Aortitis which is an over growth of the peri-abdominal aorta. Systemic Lupus Erythematosus is a complication to the Myelodysplastic Syndrome as it produces T-Killer cells that attack vital organs and these rare diseases are often missed as fatigue which is overwhelming at times can also be Lupus related. Myelodysplastic Syndrome can present in either a chronic or acute phase depending on patient and patients can feel tired on one day and better the next based on the how the light chains are coping with hydration. Chemotherapy and Radiotherapy can also cause Myelodysplastic Syndrome and Myeloma and your Consultant will have to determine which condition is more prevalent and active before even considering progressing to consider Stem Cell Transplantation. Only if Acute Myeloid Leukaemia is found after a series of 3-6 blood serum tests will the next phase of treatment be considered. How do I know so much about this condition? One was diagnosed with chronic Myelodysplastic Syndrome and Kidney Damage after a failed pancreatic transplant after complications with Septic Encephalitis and received a cycle of both chemotherapy and radiotherapy and the PET scan detected the primary source in One’s breast bone. It’s incredibly rare and is in fact a chromosomal abnormality, for what it’s worth. There is a 15 year change of stages and all involvement of kidneys should be investigated immediately for Myelodysplastic Syndrome! HSH NFSHR 2024 ©️ ™️ ®️ - BSc With Commendation In Health Studies - LLB

Good Evening, Please can you do a video explaining how some chemotherapy can actually cause myeloma as patients are not aware how dangerous chemotherapy and radiotherapy is. Having had CAR-T cell therapy the problem is if the patient also suffers from Systemic Lupus Erythematosus which produces Killer T cells which also attack all vital organs. Absolutely Fabulous presentation for patients as well as families and health professionals to understand the impact of all other diseases as well as suffering from Myelodysplastic Syndrome. HSH NFSHR 2024 ©️ ™️ ®️ - BSc With Commendation In Health Studies - LLB

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"If you're looking for an alternative to mainstream treatments, I’d say go for Planet Ayurveda’s products. They helped me manage my amyloidosis in a natural way without any side effects."

I'd like to know if there are different definitions for "Free light chain (Kappa) amyloidosis" vs. "Free light chain (Kappa) MGUS"? Thank you.

Thank u Egypt 😀

I have just been diagnosed with MGUS, i also have scoliosis and spondylitis so used to back pain. I am feeling fatigued i have had 2 recent kidney infections this is how MGUS was discovered through the blood tests from kidney infections.

Do the check for for this in a normal blood test

Do they do this test in a general blood test

Videos like this are inaccessible for people with poor vision. Why no audio/speaking?

Yes it is absolutely correct .

What is the solution to recover from CKD for multiple Myeloma patients?? Pls answer

MGUS…..IS IMO 🏴󠁧󠁢󠁥󠁮󠁧󠁿a Dark cloud that hangs around you ! Especially 6 months bloods tests or Symptoms resembling a downward spiral

Very informative video, thank you.

I loved this information...Aloe Vitals and Gandhak Rasayan of Planet Ayurveda is very effective in the management of amyloidosis

Thank you, I hope that you are still ok and strong. I' m 70, has a stem cell transplant a year ago, now take Revlamid and am in remission 🙏 and feel very good and can get on with my life and it not interfere with my family life. I don't worry about it, the time for concern is if/when it becomes a problem again. Until then, I live like I did before I was diagnosed. All the best.

Treatment sounds worse than the cancer itself... That's why I've turned chem etc.

What are blood work indications of having multiple myeloma

As a certified Ayurvedic Practitioner I can say for sure that Planet Ayurveda's Boswellia Curcumin Capsules, Aamvatantak and Navkarshik Choorna works amazingly well. Removes toxins from the body and possesses immunomudulatory properties.

Gandhak Rasayan for Planet Ayurveda It improves the aura of the skin and improves the immune system as well. The formulation is prepared with purified sulphur or shuddha gandhak.

Hi what are the first sign of myeloma please, my gp has diagnosed with ploymyalgia rheumatic please can you help me what is the first test

Last year my mother aged 63 year old went through ASCT and now she is under maintenance therapy with linolidamide 10mg for 21 days and one week rest again repeated but now she is frequently suffering from anxiety, fatigue and constipation she is not fit as like she was well before transplant is there any other therapy in maintenance can be give like immunotherapy or some thing else with low side effects and fatigue after ASCT she has not given any immunizations what are the immunizations which she has to take

Planet Ayurveda’s treatment is amazing for Amyloidosis. It’s been a game-changer for me and my family

After struggling with Amyloidosis, I found Planet Ayurveda. Their treatment is amazing and life-changing

This is such an amazing explanatory animation, it really nearly brought me to tears. Thanks 🔥✊🏾❤️

Thank you. I start the melphalan tomorrow and the transplant the day after. This was very helpful.

Respectfully I appreciate your amazing service #drallenben have always been able to help me with any kind of health issues, thanks for curing my herpes, I’m grateful I’m cured with your medication***..

Thank you soo muchh Ma'am for such a beautiful explanation with very nice animation..

Renal amyloidosis treatment btao please 🥺🥺

I have mgus and peripheral neuropathy. It’s awful trying to sleep. You feel like you’re being stabbed with hot pins, and I feel all kinds of weird sensations in my feet and hands.

Production ideas 😀

my husband and soulmate was dx in 2009. it eventually progressed into plasma cell leukemia. i lost him last year. i miss him dearly.

Awesome !

Ayurveda recognizes the role of stress in health challenges. Explore stress management techniques and herbal remedies from Planet Ayurveda medicine for individuals with Amyloidosis.

When taking Daratumumab, Velcade, Thalidomide and Dexamethasone look out for symptoms of peripheral neuropathy. I first noticed slight pins and needles going down my arms and legs. I thought nothing of it. It later developed into quite significant peripheral neuropathy. My Velcade and Thalidomide were stopped immediately. Maybe if I had told my consultant about the slight pins and needles I may have prevented the peripheral neuropathy becoming significant.

When you feel stimulated by the steroids make sure you don’t overdo physical activity because your bones will probably be fragile. I broke ribs and vertebrae being overactive.

Thank you I understand more about now 😊l am ready

Thank you to all the people who run support groups to help Myeloma sufferers 👍❤️

I am new to Research (myeloma study) and this information is helpful. Thank you!

Great information,thank you.

Do u have stem cells treatments of kidneys Regenerat ?

Having struggled with amyloidosis, I was skeptical about herbal treatments. However, after using Planet Ayurveda's medicine, I can confidently say that their approach has been a game-changer for me. Their supplements are well-crafted, and I've experienced a notable reduction in my symptoms. What impresses me the most is their commitment to using natural ingredients, ensuring safety and efficacy in managing amyloidosis.

January 2022 I was diagnosed with IgG myeloma; ISS stage 3. At diagnosis my Paraprotein level was 79%(g/L). I started a treatment of Daratumumab, Velcade, Thalidomide and Dexamethasone. On my first cycle of Dara-VTD I suffered with pretty severe peripheral neuropathy. Velcade and Thalidomide were stopped. Daratumumab (with Dexamethasone) took my Paraprotein level to 0%. Daratumumab was amazing. I then had a bone marrow transplant which was just over a year ago. I have been told by my consultant that I will not be eligible for another bone marrow transplant, if and when I relapse. However, when I asked if I would be eligible for Car-t cell therapy he said I would be eligible, but that would only be possible if it were to be be approved for use by N.I.C.E. I live in hope. I am currently taking Lenalidomide as a maintenance therapy. My Paraprotein remains at 0%. My neuropathy continues. Thank you for sharing all this information. I don’t feel so alone.

It's easier to understand♡

Somehow I feel a little better knowing that I am not the only one who worries about this. Everyone should check out the research on curcumin done by Dr golombick in Australia reported on by healthtree foundation. Please look it up.

Low Dose Naltrexone has been mentioned as a possible treatment to slow MGUS progression. See LDN Research organisation.