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@user-ek7kd3il5m
@user-ek7kd3il5m 11 күн бұрын
I am from Switzerland. First they removed the cancer and closed a long cut along the breast. A 10 cm x 2.5 cm x 0.5 cm fat necrosis developed which was like a hard plate in my breast which was painful. The breast was removed, not because of cancer, because of the necrosis. The breast, muscle and lot of tissue was taken to tight. To keep it short, the skin is glued to my rips and I can't use my arm anymore. Shortly after I started to get exactly those pains you describe. 4 years inn I have no more quality of live and massive nerv pain. I am on opioide and other pain killers. I am told that a flap reconstruction will cause more nerv damage. There is a really good surgeon here who is would take a flap from my belli and hopes of better movement. I am in such pain where life is no more worth living. I have never heard of nerv reconstruction. Did anybody had it done where it helped with those horrible nerv pain?? Thank you.
@DiepCFoundation
@DiepCFoundation 10 күн бұрын
I think the best advice I can give you is to ask your surgeon in Switzerland this question. I do have one listed who is a very notable surgeon in Switzerland on this page. I'm not sure who you will be going to. Wishing you improved help as you move forward. diepcjourney.com/breast-reconstruction-and-breast-cancer-resources/board-certified-plastic-surgeons/
@user-ek7kd3il5m
@user-ek7kd3il5m 10 күн бұрын
@@DiepCFoundation Thank you. I can not find the surgeon in Switzerland. What is his name? I have a very good insurance which allows me to go anybody here in Switzerland.
@DiepCFoundation
@DiepCFoundation 9 күн бұрын
@@user-ek7kd3il5m Did you click on the link I provided in the previous comment? If not, here is his direct link. You'll have to check if he is still in practice and doing DIEP flap. www.phillipblondeel.com/
@mjurbina-riedel7753
@mjurbina-riedel7753 12 күн бұрын
Did cold capping, still lost 90% of my hair.
@vegrunner6688
@vegrunner6688 14 күн бұрын
Cold capping was one of the most awful and traumatic parts of my cancer treatment. I know many benefit from it but I would never do it again. (Also, lost 50% of my hair anyway)
@DiepCFoundation
@DiepCFoundation 13 күн бұрын
I put a heart of this just to send you a hug. I know it doesn't work for everyone and she even says that in the video. I can only imagine what you've been through. I hope things are improving for you now. All the best in recovery and survivorship to you.
@annamb1600
@annamb1600 21 күн бұрын
Thanks very much for the video. A question for you please...I need to go under breast reconstruction in one breast and I've been offered Fat grafting but some implant, and that would reduce the number of operations. Given that I can have enough fat to recontruct my breast with fat lipofilling rather than a combinaion of fat and implant. . What would you suggest? Why? Which would give the best results for matching my other breast? Thanks very much
@Platizza
@Platizza 24 күн бұрын
How could these exercises also be helpful for pre-surgery?
@DiepCFoundation
@DiepCFoundation 23 күн бұрын
Adding any daily exercises to strengthen core are important whether you are having surgery or not. Even though the abdominal area is having the surgery along with the breast area, the core muscles are what helps support our posture, reduce back pain, help with balance, and much more.
@Platizza
@Platizza 24 күн бұрын
I wonder if anybody has had luck getting insurance to cover it?
@DiepCFoundation
@DiepCFoundation 23 күн бұрын
The procedure I had done did not require a "nerve graft" which is a product sometimes used if there is not enough of the patient's existing nerves to connect at the breast area. The nerve graft is not always covered by insurance. You will have to talk to the surgeon regarding insurance coverage if they use this product. There is another video on this channel referencing this product here: kzbin.info/www/bejne/rKe1Zpuuf8aDeJo
@Platizza
@Platizza 23 күн бұрын
@DiepCFoundation It's encouraging to know like in your case that you didn't need a nerve graft. 🤞🏼 Insurance wouldn't cover it, "not medically necessary". I feel urgency to get surgery asap So don't feel I can appeal in time for already scheduled DMX/diep . I wonder if a nerve graft can be performed at phase 2 recon surgery or best results only during initial placement of flaps?.. I'm afraid that will be so.
@Platizza
@Platizza 23 күн бұрын
@DiepCFoundation Thank you ❤️. And thank you for these videos. So much good information
@DiepCFoundation
@DiepCFoundation 23 күн бұрын
@@Platizza You are correct. The nerve graft can only take place at this time during phase 1 during the initial DMX/DIEP flap.
@divyas2875
@divyas2875 27 күн бұрын
Hi Dr ,is cryablation possible for Her2 positive Er negative cases??is it available in uk??
@DiepCFoundation
@DiepCFoundation 23 күн бұрын
Great question but I'm afraid I don't know the answer to that.
@redreadyj8916
@redreadyj8916 Ай бұрын
This was perfectly explained better than I’ve ever heard before so with the Latissimus Dorsi is that flap twisted and drug around front as well or is it a free flap ?
@DiepCFoundation
@DiepCFoundation Ай бұрын
LAT flap is considered a "pedicle" flap; meaning, is is tunneled through from the back and to the chest area. Thus, is is not considered a "free flap" like the DIEP flap. Hope this helps. We do have a video on this channel on the LAT flap. If you use the search function you should be able to find it.
@cher7438
@cher7438 2 ай бұрын
Do you have the links to the studies you mentioned at the beginning? I don't see them in the show notes.
@DiepCFoundation
@DiepCFoundation Ай бұрын
Thank you for pointing this out. They are in the DiepCJourney podcast show notes. I will add them here but in the mean time, here you go. Recent study from France: Oncological Safety of Autologous Fat Grafting in Breast Reconstruction after Mastectomy for Cancer: A Case-control Study Article from the Cleveland Clinic: Autologous Fat Grafting For Breast Reconstruction: Safe but Worrisome to Patients
@LisaEvans-p4c
@LisaEvans-p4c 2 ай бұрын
Excellent video. Thank you!
@teresaschoch344
@teresaschoch344 2 ай бұрын
Grateful for your sharing. This has been a long road to find this answer.
@joyphoummavong3165
@joyphoummavong3165 2 ай бұрын
Massage with Castro oil
@laureoneal1949
@laureoneal1949 2 ай бұрын
I agree with the need for accurate information and avoiding the urban legends, etc. I find it overwhelming to sift through the journals and the technincal information to be too much. I am first looking to learn about the procedure itself and the pre and post aftermath. Somewhere in the middle, I want to understand a personal relevance as to what I can personally expect in my medical choice. I am a member of the DIEP-C Support group on Facebook. I have to sift through alot of "noise" and determine what is most valuable to me. I see comments that scare women away from making a decision about whether or not to pursue DIEP-Flap. I read and accessed photographs in order to help understand what to expect -- the good, the bad, and the ugly. I found it all very overwhelming and bottom line, how do you choose to whom to listen? I underwent my procedure on July 29, 2024. My surgeon was completely up front about some of the healing challenges I may face because of prior abdominal surgery. I am grateful for whatever information I was able to access and I am more grateful for the support provided by women who have had similar experiences as mine. It's tough to get the "real" story and I think that we have to be smart and well informed to determine our own best source. At the very least, it helps me to know what questions and clarifications to seek from my medical team.
@Sharon-pb7so
@Sharon-pb7so 2 ай бұрын
HI just had my dIEP procedure on Oct 4rh. I'm having another surgery tomorrow and I'm not really sure why. I think it has to do with my abnominal scar. It weeps, I know I'll have more drains to tend to. I got rid of my last drain yesterday, I get one day off and I'll have 4 more to coddle and keep track of their progress or lack thereof. Maybe I'll name them. 😂 I had 6 plus 2 wound vacs after my first surgery. One of my nurses told me I was a mama possum and the drains were my babies. 🤣 Oh and if you're a little on the small size the surgeon might go looking for blood vessels, they took 3 from my left arm. I'm happy with the care I've been given, my surgeon is top-notch I'll be happy to update this as I continue my journey if anyone is interested.
@DiepCFoundation
@DiepCFoundation 2 ай бұрын
Sharon, that is a top notch surgeon who knows how to look for alternate blood vessels. I'm glad you are on the mend. It is not a linear process but take one day at a time.
@tanj.6972
@tanj.6972 3 ай бұрын
After surgery, my back feels numb. It has been 3 weeks post surgery and doing all exercises advised but the numbness doesn’t go… any advice?
@DiepCFoundation
@DiepCFoundation 3 ай бұрын
Did you have a LAT flap? I'm sure some nerves were cut and there may be permanent numbness in some areas and in other areas the nerves may "wake up" over time and you will have sensation in those areas again.
@KensingtonGore-o3p
@KensingtonGore-o3p 3 ай бұрын
Can I bring pictures or is it more of a “get what you get” kind of thing? I have a vertical belly button and I really love it.
@DiepCFoundation
@DiepCFoundation 3 ай бұрын
@@KensingtonGore-o3p You can always bring pictures to communicate your wishes to your surgeon but because everyone has different anatomy there may be some limitations. But, yes, bring pictures.
@julysummer937
@julysummer937 3 ай бұрын
I am grateful for the surgeon’s openness!
@julysummer937
@julysummer937 3 ай бұрын
Wow! For several years after my treatment I felt resentful towards the medical community. I felt they carelessly omitted to tell me all the side effects my body was going to go through, especially sexually. Being that I am married and was only 36 at breast cancer diagnosis. Surgeons and doctors take you apart and put you back together but they fail to help you transition into life after cancer. Life is never the same after that. In any way. No one can romanticize it for me.
@DiepCFoundation
@DiepCFoundation 3 ай бұрын
@@julysummer937 I do hope this video helped.
@RoseannTrautman
@RoseannTrautman 3 ай бұрын
I loved this video, Teri & I would be very interested in seeing a video to do with failed left & right diep flaps & if you can get new left & right microsurgical flaps. I appreciate your time & thank you!
@createwithconfidence8094
@createwithconfidence8094 3 ай бұрын
I must come back and finish this video... I find the story just opposite of what I had to do, not by choice but by necessity. In 2009, after a cancer diagnosis where one breast had two sources of cancer, I opted for bilateral mastectomy with immediate DIEP flap reconstruction. Unfortunately, despite numerous surgeries to try to establish blood flow, the flap failed. I had one side where the flap was successful. It was a heartwrenching decision I was forced to make... keep one flap and have an implant on the other side? Two implants? No implants? Typing this brings back a flood of memories. I look forward to finishing the video to hear the outcome. It is many years out from that time, but the implants I have still feel like a foreign body, too. And I want a change. Linda
@ilanak-art
@ilanak-art 4 ай бұрын
I had a breast mastectomy and reconstruction due to breast cancer. My last major surgery was a year ago and I still feel a lot of pressure and uncomfortness with every move I make. I had months of physical therapy and it did not help much. I'm taking vitamin E and it helps a little. What would be your suggestion doctor? It's really really bothering me. 🙏🙏 Do you think acupuncture would help? Thank you for your help!
@DiepCFoundation
@DiepCFoundation 4 ай бұрын
I am not a doctor but the gentleman in the video interview is. If you'd like to reach out to him his information is in the credits at the end of the video.
@alenegonebad1259
@alenegonebad1259 4 ай бұрын
Teri, thank you so much for featuring Beth’s story and her work. Her artwork will speak to so many. I’m so proud to know both of you! Keep up the amazing work you’ve been doing! I will share widely!
@DiepCFoundation
@DiepCFoundation 4 ай бұрын
Awhh. So good to hear from you Alene! Thank you for your kind words. What a delightful interview for me to showcase Beth's work. Terri
@RoseannTrautman
@RoseannTrautman 4 ай бұрын
Teri, keep these videos coming, it’s such important information!
@DiepCFoundation
@DiepCFoundation 4 ай бұрын
Thank you kindly. That's the plan. Let me know if there are topics you'd like to see covered that you cannot find on the channel. I love hearing from our viewers. 💖
@nancyfelstein3148
@nancyfelstein3148 4 ай бұрын
I enjoyed the podcast very much however I was uncertain about if you were having a tissue transplant if you would use if you would use that grafting, I felt it was more about implants. Thank you.
@DiepCFoundation
@DiepCFoundation 4 ай бұрын
Thank you for your comment Nancy. Fat grafting is used for both implant and tissue reconstruction. On the DiepCFoundation channel, using the search engine, type in the words, "fat grafting" or "phase two" and you will come up with a number of other videos that will discuss the benefits of fat grafting in both instances of breast reconstruction. Let me know if you need further help.
@cher7438
@cher7438 4 ай бұрын
What an incredible childhood story and how you got started. Thank you for sharing.
@DiepCFoundation
@DiepCFoundation 4 ай бұрын
Thank you for your comment. Yes! She is pretty amazing. Proximie is a game changer for surgeons around the world.
@Nicole-wemadeit
@Nicole-wemadeit 5 ай бұрын
Thank you! This was very informative and helpful. 🙏🏾
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
I'm very glad to hear that Nicole! Thank you for watching.
@user-gd2bd7gh5o
@user-gd2bd7gh5o 5 ай бұрын
Tks so much for explaining in detail!!!
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
Absolutely. Thank you for watching.
@cher7438
@cher7438 5 ай бұрын
How much weight did you need to lose?
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
I am not sure how much this young nurse In interviewed had to lose. I am guessing it was under the supervision and suggestions of her surgeon and how I would handle it.
@mjurbina-riedel7753
@mjurbina-riedel7753 5 ай бұрын
Cold capping was not offered by promedica health services.
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
Services for cold capping varies across the country for sure.
@sherriclark1290
@sherriclark1290 5 ай бұрын
No way 😳 to not have pain meds . No way .
@sunshinesummer2024
@sunshinesummer2024 5 ай бұрын
Can you start this procedure at the time of mastectomy? Thank you. This was very informative.
@RoseannTrautman
@RoseannTrautman 5 ай бұрын
Amazing information! Thank you so much!
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
@@RoseannTrautman Very welcome.
@fionato4615
@fionato4615 5 ай бұрын
Thank you so much for this helpful video. It was clear, detailed, and exactly what I needed!
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
@@fionato4615 You are most welcome.
@m.g.1792
@m.g.1792 6 ай бұрын
Great video
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
@@m.g.1792 Thank you. Dr. C presents well. ☺️
@sunshinesummer2024
@sunshinesummer2024 6 ай бұрын
Do you ever do gradual and small amounts of fat grafting as the only means of reconstructing a breast? I know this would take time, but would avoid implants and scars from flap surgery. Thank you!
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
Hello, great question. The answer is yes, and you are correct, it takes time, sometimes more than one surgery for the fat grafting. There is a video you may want to watch addressing this. Hope this helps. Thanks for watching the channel! kzbin.info/www/bejne/fIDCZp96jpaihsk
@femalesurgeon7436
@femalesurgeon7436 6 ай бұрын
Thanks so much. Very helpful for decision making process.
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
You are most welcome.
@JennyChuaviriya
@JennyChuaviriya 6 ай бұрын
Thank you for sharing your stories. I am a B-cup sized woman and plan to have a double mastectomy. I am 5'4", 148lbs. Is there a decent chance that I may get a mastectomy without a mastectomy revision surgery? Thank you.
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
I believe that is possible but there is always a chance revision surgery is possible with any breast surgery. If you are planning on aesthetic flat closure without reconstruction it is hopeful you can have one surgery. Express these wishes to your surgeon.
@butler140
@butler140 6 ай бұрын
After radiation I had breast reduction so that I was symetrical again. No one mentioned the amount of shrinking there'd be from radiation. 9 years later I developed RIAS. I had a mastectomy and an expander was placed, not by my choice. Later a 2nd surgery was needed to remove that and put in the implant, while doing another reduction so that both sides were exactly the same. That didn't happen either. There was nothing about them that were symetrical. One year later I had a recurrence. I had done my research and had opted for AFC and found a surgeon on Not Putting on a Shirt. My surgeon was awesome and I'm totally happy with the results. No emotional turmoil as I had with the other surgeries. I am totally happy with my AFC, but will always wear a shirt (too much tummy)!
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
NPOAS has great resources for AFC surgeons. I am glad you connected with this organization and very pleased to hear your AFC surgery went well and things are moving forward for you!
@RoseannTrautman
@RoseannTrautman 7 ай бұрын
Thank you Terri. Keep these wonderful videos coming! They’re so important!
@DiepCFoundation
@DiepCFoundation 7 ай бұрын
You are most welcome and I appreciate your kind words. I am fortunate to collaborate with these skilled microsurgeons across the globe. ❤
@alisaaslanyan567
@alisaaslanyan567 7 ай бұрын
I have a bulging after diep flap. What are my options to get rid of it? I go to gym and work out very hard 5 days a week, I don’t see any improvement. I also have some cramps that sometimes they are very strong and sometimes I can control them. Please tell me if I have any options to get rid of the bulge? I’ve been thinking of getting a 2nd option. Thank you ❤
@DiepCFoundation
@DiepCFoundation 6 ай бұрын
If you believe you have a hernia or bulge this video may help you understand more. The information to locate these two surgeons to schedule a consult can be found in the credits at the end of the video. Here you go and I do wish you all the best: kzbin.info/www/bejne/o4DQaqmMo7aSrdk
@samanthadavis1862
@samanthadavis1862 8 ай бұрын
Can I have symmetry surgery if I have a pacemaker
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
Samantha, this is a medical question that needs to be addressed with a microsurgeon who performs surgery for breast reconstruction.
@samanthadavis1862
@samanthadavis1862 8 ай бұрын
Can a person with a pacemaker have breast symmetry surgery
@DiepCFoundation
@DiepCFoundation 7 ай бұрын
This is a conversation to have with your medical team.
@samanthadavis1862
@samanthadavis1862 8 ай бұрын
I have a pacemaker can I get symmetry surgery
@ybigirl
@ybigirl 8 ай бұрын
Glad to see this. I don't think many patients consider the stress of a 10 hour surgery on their body and brain when making a decision about Diep Flap. Fat grafting is a great alternative for those not wanting to be put under anesthetic for various reasons (like the likelihood of Alzheimers and permanent neurological damage for those with poor DNA detox profiles which may have been a contributing factor to the cancer diagnosis).
@melissadd7597
@melissadd7597 8 ай бұрын
Absolutely agree
@KathleenHelenLisson
@KathleenHelenLisson 8 ай бұрын
Thanks!
@DiepCFoundation
@DiepCFoundation 5 ай бұрын
Of course, Kathleen. Thanks for following us!
@KathleenHelenLisson
@KathleenHelenLisson 8 ай бұрын
Thanks so much!
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
The Foundation always appreciates hearing from you Kathleen. Thank you.
@JaneBurney
@JaneBurney 8 ай бұрын
great prensatation! 0:44 0:46
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
Thank you Jane.
@terrynashhartmann8419
@terrynashhartmann8419 8 ай бұрын
Thank you! Very informative. Info that I didn't find anywhere else.
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
I’m very pleased to hear this Terry.
@jeanettedodds9774
@jeanettedodds9774 8 ай бұрын
Lots of cancer in my family. I had genetic testing done and found out that I have the PALB2 mutation. Four months ago, I had my ovaries removed and last month I had the first of my cancer prevention breast surgeries. I’m having the DIEP flap surgery done July 9.
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
Hi Jeanette. Please let us know if the Foundation can be of any support. We do have a private Facebook group if you are interested in joining. DiepCJourney: Breast Reconstruction after Mastectomy. You are making strides in your future given your genetic mutation. I know it's not easy and we applaud you. ♥
@Love-rx2se
@Love-rx2se 8 ай бұрын
So very much informative . Excellent education. Thank you very very much!
@DiepCFoundation
@DiepCFoundation 8 ай бұрын
I'm am happy to hear this. Thank you for your kind words.