I am from Switzerland. First they removed the cancer and closed a long cut along the breast. A 10 cm x 2.5 cm x 0.5 cm fat necrosis developed which was like a hard plate in my breast which was painful. The breast was removed, not because of cancer, because of the necrosis. The breast, muscle and lot of tissue was taken to tight. To keep it short, the skin is glued to my rips and I can't use my arm anymore. Shortly after I started to get exactly those pains you describe. 4 years inn I have no more quality of live and massive nerv pain. I am on opioide and other pain killers. I am told that a flap reconstruction will cause more nerv damage. There is a really good surgeon here who is would take a flap from my belli and hopes of better movement. I am in such pain where life is no more worth living. I have never heard of nerv reconstruction. Did anybody had it done where it helped with those horrible nerv pain?? Thank you.
@DiepCFoundation10 күн бұрын
I think the best advice I can give you is to ask your surgeon in Switzerland this question. I do have one listed who is a very notable surgeon in Switzerland on this page. I'm not sure who you will be going to. Wishing you improved help as you move forward. diepcjourney.com/breast-reconstruction-and-breast-cancer-resources/board-certified-plastic-surgeons/
@user-ek7kd3il5m10 күн бұрын
@@DiepCFoundation Thank you. I can not find the surgeon in Switzerland. What is his name? I have a very good insurance which allows me to go anybody here in Switzerland.
@DiepCFoundation9 күн бұрын
@@user-ek7kd3il5m Did you click on the link I provided in the previous comment? If not, here is his direct link. You'll have to check if he is still in practice and doing DIEP flap. www.phillipblondeel.com/
@mjurbina-riedel775312 күн бұрын
Did cold capping, still lost 90% of my hair.
@vegrunner668814 күн бұрын
Cold capping was one of the most awful and traumatic parts of my cancer treatment. I know many benefit from it but I would never do it again. (Also, lost 50% of my hair anyway)
@DiepCFoundation13 күн бұрын
I put a heart of this just to send you a hug. I know it doesn't work for everyone and she even says that in the video. I can only imagine what you've been through. I hope things are improving for you now. All the best in recovery and survivorship to you.
@annamb160021 күн бұрын
Thanks very much for the video. A question for you please...I need to go under breast reconstruction in one breast and I've been offered Fat grafting but some implant, and that would reduce the number of operations. Given that I can have enough fat to recontruct my breast with fat lipofilling rather than a combinaion of fat and implant. . What would you suggest? Why? Which would give the best results for matching my other breast? Thanks very much
@Platizza24 күн бұрын
How could these exercises also be helpful for pre-surgery?
@DiepCFoundation23 күн бұрын
Adding any daily exercises to strengthen core are important whether you are having surgery or not. Even though the abdominal area is having the surgery along with the breast area, the core muscles are what helps support our posture, reduce back pain, help with balance, and much more.
@Platizza24 күн бұрын
I wonder if anybody has had luck getting insurance to cover it?
@DiepCFoundation23 күн бұрын
The procedure I had done did not require a "nerve graft" which is a product sometimes used if there is not enough of the patient's existing nerves to connect at the breast area. The nerve graft is not always covered by insurance. You will have to talk to the surgeon regarding insurance coverage if they use this product. There is another video on this channel referencing this product here: kzbin.info/www/bejne/rKe1Zpuuf8aDeJo
@Platizza23 күн бұрын
@DiepCFoundation It's encouraging to know like in your case that you didn't need a nerve graft. 🤞🏼 Insurance wouldn't cover it, "not medically necessary". I feel urgency to get surgery asap So don't feel I can appeal in time for already scheduled DMX/diep . I wonder if a nerve graft can be performed at phase 2 recon surgery or best results only during initial placement of flaps?.. I'm afraid that will be so.
@Platizza23 күн бұрын
@DiepCFoundation Thank you ❤️. And thank you for these videos. So much good information
@DiepCFoundation23 күн бұрын
@@Platizza You are correct. The nerve graft can only take place at this time during phase 1 during the initial DMX/DIEP flap.
@divyas287527 күн бұрын
Hi Dr ,is cryablation possible for Her2 positive Er negative cases??is it available in uk??
@DiepCFoundation23 күн бұрын
Great question but I'm afraid I don't know the answer to that.
@redreadyj8916Ай бұрын
This was perfectly explained better than I’ve ever heard before so with the Latissimus Dorsi is that flap twisted and drug around front as well or is it a free flap ?
@DiepCFoundationАй бұрын
LAT flap is considered a "pedicle" flap; meaning, is is tunneled through from the back and to the chest area. Thus, is is not considered a "free flap" like the DIEP flap. Hope this helps. We do have a video on this channel on the LAT flap. If you use the search function you should be able to find it.
@cher74382 ай бұрын
Do you have the links to the studies you mentioned at the beginning? I don't see them in the show notes.
@DiepCFoundationАй бұрын
Thank you for pointing this out. They are in the DiepCJourney podcast show notes. I will add them here but in the mean time, here you go. Recent study from France: Oncological Safety of Autologous Fat Grafting in Breast Reconstruction after Mastectomy for Cancer: A Case-control Study Article from the Cleveland Clinic: Autologous Fat Grafting For Breast Reconstruction: Safe but Worrisome to Patients
@LisaEvans-p4c2 ай бұрын
Excellent video. Thank you!
@teresaschoch3442 ай бұрын
Grateful for your sharing. This has been a long road to find this answer.
@joyphoummavong31652 ай бұрын
Massage with Castro oil
@laureoneal19492 ай бұрын
I agree with the need for accurate information and avoiding the urban legends, etc. I find it overwhelming to sift through the journals and the technincal information to be too much. I am first looking to learn about the procedure itself and the pre and post aftermath. Somewhere in the middle, I want to understand a personal relevance as to what I can personally expect in my medical choice. I am a member of the DIEP-C Support group on Facebook. I have to sift through alot of "noise" and determine what is most valuable to me. I see comments that scare women away from making a decision about whether or not to pursue DIEP-Flap. I read and accessed photographs in order to help understand what to expect -- the good, the bad, and the ugly. I found it all very overwhelming and bottom line, how do you choose to whom to listen? I underwent my procedure on July 29, 2024. My surgeon was completely up front about some of the healing challenges I may face because of prior abdominal surgery. I am grateful for whatever information I was able to access and I am more grateful for the support provided by women who have had similar experiences as mine. It's tough to get the "real" story and I think that we have to be smart and well informed to determine our own best source. At the very least, it helps me to know what questions and clarifications to seek from my medical team.
@Sharon-pb7so2 ай бұрын
HI just had my dIEP procedure on Oct 4rh. I'm having another surgery tomorrow and I'm not really sure why. I think it has to do with my abnominal scar. It weeps, I know I'll have more drains to tend to. I got rid of my last drain yesterday, I get one day off and I'll have 4 more to coddle and keep track of their progress or lack thereof. Maybe I'll name them. 😂 I had 6 plus 2 wound vacs after my first surgery. One of my nurses told me I was a mama possum and the drains were my babies. 🤣 Oh and if you're a little on the small size the surgeon might go looking for blood vessels, they took 3 from my left arm. I'm happy with the care I've been given, my surgeon is top-notch I'll be happy to update this as I continue my journey if anyone is interested.
@DiepCFoundation2 ай бұрын
Sharon, that is a top notch surgeon who knows how to look for alternate blood vessels. I'm glad you are on the mend. It is not a linear process but take one day at a time.
@tanj.69723 ай бұрын
After surgery, my back feels numb. It has been 3 weeks post surgery and doing all exercises advised but the numbness doesn’t go… any advice?
@DiepCFoundation3 ай бұрын
Did you have a LAT flap? I'm sure some nerves were cut and there may be permanent numbness in some areas and in other areas the nerves may "wake up" over time and you will have sensation in those areas again.
@KensingtonGore-o3p3 ай бұрын
Can I bring pictures or is it more of a “get what you get” kind of thing? I have a vertical belly button and I really love it.
@DiepCFoundation3 ай бұрын
@@KensingtonGore-o3p You can always bring pictures to communicate your wishes to your surgeon but because everyone has different anatomy there may be some limitations. But, yes, bring pictures.
@julysummer9373 ай бұрын
I am grateful for the surgeon’s openness!
@julysummer9373 ай бұрын
Wow! For several years after my treatment I felt resentful towards the medical community. I felt they carelessly omitted to tell me all the side effects my body was going to go through, especially sexually. Being that I am married and was only 36 at breast cancer diagnosis. Surgeons and doctors take you apart and put you back together but they fail to help you transition into life after cancer. Life is never the same after that. In any way. No one can romanticize it for me.
@DiepCFoundation3 ай бұрын
@@julysummer937 I do hope this video helped.
@RoseannTrautman3 ай бұрын
I loved this video, Teri & I would be very interested in seeing a video to do with failed left & right diep flaps & if you can get new left & right microsurgical flaps. I appreciate your time & thank you!
@createwithconfidence80943 ай бұрын
I must come back and finish this video... I find the story just opposite of what I had to do, not by choice but by necessity. In 2009, after a cancer diagnosis where one breast had two sources of cancer, I opted for bilateral mastectomy with immediate DIEP flap reconstruction. Unfortunately, despite numerous surgeries to try to establish blood flow, the flap failed. I had one side where the flap was successful. It was a heartwrenching decision I was forced to make... keep one flap and have an implant on the other side? Two implants? No implants? Typing this brings back a flood of memories. I look forward to finishing the video to hear the outcome. It is many years out from that time, but the implants I have still feel like a foreign body, too. And I want a change. Linda
@ilanak-art4 ай бұрын
I had a breast mastectomy and reconstruction due to breast cancer. My last major surgery was a year ago and I still feel a lot of pressure and uncomfortness with every move I make. I had months of physical therapy and it did not help much. I'm taking vitamin E and it helps a little. What would be your suggestion doctor? It's really really bothering me. 🙏🙏 Do you think acupuncture would help? Thank you for your help!
@DiepCFoundation4 ай бұрын
I am not a doctor but the gentleman in the video interview is. If you'd like to reach out to him his information is in the credits at the end of the video.
@alenegonebad12594 ай бұрын
Teri, thank you so much for featuring Beth’s story and her work. Her artwork will speak to so many. I’m so proud to know both of you! Keep up the amazing work you’ve been doing! I will share widely!
@DiepCFoundation4 ай бұрын
Awhh. So good to hear from you Alene! Thank you for your kind words. What a delightful interview for me to showcase Beth's work. Terri
@RoseannTrautman4 ай бұрын
Teri, keep these videos coming, it’s such important information!
@DiepCFoundation4 ай бұрын
Thank you kindly. That's the plan. Let me know if there are topics you'd like to see covered that you cannot find on the channel. I love hearing from our viewers. 💖
@nancyfelstein31484 ай бұрын
I enjoyed the podcast very much however I was uncertain about if you were having a tissue transplant if you would use if you would use that grafting, I felt it was more about implants. Thank you.
@DiepCFoundation4 ай бұрын
Thank you for your comment Nancy. Fat grafting is used for both implant and tissue reconstruction. On the DiepCFoundation channel, using the search engine, type in the words, "fat grafting" or "phase two" and you will come up with a number of other videos that will discuss the benefits of fat grafting in both instances of breast reconstruction. Let me know if you need further help.
@cher74384 ай бұрын
What an incredible childhood story and how you got started. Thank you for sharing.
@DiepCFoundation4 ай бұрын
Thank you for your comment. Yes! She is pretty amazing. Proximie is a game changer for surgeons around the world.
@Nicole-wemadeit5 ай бұрын
Thank you! This was very informative and helpful. 🙏🏾
@DiepCFoundation5 ай бұрын
I'm very glad to hear that Nicole! Thank you for watching.
@user-gd2bd7gh5o5 ай бұрын
Tks so much for explaining in detail!!!
@DiepCFoundation5 ай бұрын
Absolutely. Thank you for watching.
@cher74385 ай бұрын
How much weight did you need to lose?
@DiepCFoundation5 ай бұрын
I am not sure how much this young nurse In interviewed had to lose. I am guessing it was under the supervision and suggestions of her surgeon and how I would handle it.
@mjurbina-riedel77535 ай бұрын
Cold capping was not offered by promedica health services.
@DiepCFoundation5 ай бұрын
Services for cold capping varies across the country for sure.
@sherriclark12905 ай бұрын
No way 😳 to not have pain meds . No way .
@sunshinesummer20245 ай бұрын
Can you start this procedure at the time of mastectomy? Thank you. This was very informative.
@RoseannTrautman5 ай бұрын
Amazing information! Thank you so much!
@DiepCFoundation5 ай бұрын
@@RoseannTrautman Very welcome.
@fionato46155 ай бұрын
Thank you so much for this helpful video. It was clear, detailed, and exactly what I needed!
@DiepCFoundation5 ай бұрын
@@fionato4615 You are most welcome.
@m.g.17926 ай бұрын
Great video
@DiepCFoundation6 ай бұрын
@@m.g.1792 Thank you. Dr. C presents well. ☺️
@sunshinesummer20246 ай бұрын
Do you ever do gradual and small amounts of fat grafting as the only means of reconstructing a breast? I know this would take time, but would avoid implants and scars from flap surgery. Thank you!
@DiepCFoundation6 ай бұрын
Hello, great question. The answer is yes, and you are correct, it takes time, sometimes more than one surgery for the fat grafting. There is a video you may want to watch addressing this. Hope this helps. Thanks for watching the channel! kzbin.info/www/bejne/fIDCZp96jpaihsk
@femalesurgeon74366 ай бұрын
Thanks so much. Very helpful for decision making process.
@DiepCFoundation6 ай бұрын
You are most welcome.
@JennyChuaviriya6 ай бұрын
Thank you for sharing your stories. I am a B-cup sized woman and plan to have a double mastectomy. I am 5'4", 148lbs. Is there a decent chance that I may get a mastectomy without a mastectomy revision surgery? Thank you.
@DiepCFoundation6 ай бұрын
I believe that is possible but there is always a chance revision surgery is possible with any breast surgery. If you are planning on aesthetic flat closure without reconstruction it is hopeful you can have one surgery. Express these wishes to your surgeon.
@butler1406 ай бұрын
After radiation I had breast reduction so that I was symetrical again. No one mentioned the amount of shrinking there'd be from radiation. 9 years later I developed RIAS. I had a mastectomy and an expander was placed, not by my choice. Later a 2nd surgery was needed to remove that and put in the implant, while doing another reduction so that both sides were exactly the same. That didn't happen either. There was nothing about them that were symetrical. One year later I had a recurrence. I had done my research and had opted for AFC and found a surgeon on Not Putting on a Shirt. My surgeon was awesome and I'm totally happy with the results. No emotional turmoil as I had with the other surgeries. I am totally happy with my AFC, but will always wear a shirt (too much tummy)!
@DiepCFoundation6 ай бұрын
NPOAS has great resources for AFC surgeons. I am glad you connected with this organization and very pleased to hear your AFC surgery went well and things are moving forward for you!
@RoseannTrautman7 ай бұрын
Thank you Terri. Keep these wonderful videos coming! They’re so important!
@DiepCFoundation7 ай бұрын
You are most welcome and I appreciate your kind words. I am fortunate to collaborate with these skilled microsurgeons across the globe. ❤
@alisaaslanyan5677 ай бұрын
I have a bulging after diep flap. What are my options to get rid of it? I go to gym and work out very hard 5 days a week, I don’t see any improvement. I also have some cramps that sometimes they are very strong and sometimes I can control them. Please tell me if I have any options to get rid of the bulge? I’ve been thinking of getting a 2nd option. Thank you ❤
@DiepCFoundation6 ай бұрын
If you believe you have a hernia or bulge this video may help you understand more. The information to locate these two surgeons to schedule a consult can be found in the credits at the end of the video. Here you go and I do wish you all the best: kzbin.info/www/bejne/o4DQaqmMo7aSrdk
@samanthadavis18628 ай бұрын
Can I have symmetry surgery if I have a pacemaker
@DiepCFoundation8 ай бұрын
Samantha, this is a medical question that needs to be addressed with a microsurgeon who performs surgery for breast reconstruction.
@samanthadavis18628 ай бұрын
Can a person with a pacemaker have breast symmetry surgery
@DiepCFoundation7 ай бұрын
This is a conversation to have with your medical team.
@samanthadavis18628 ай бұрын
I have a pacemaker can I get symmetry surgery
@ybigirl8 ай бұрын
Glad to see this. I don't think many patients consider the stress of a 10 hour surgery on their body and brain when making a decision about Diep Flap. Fat grafting is a great alternative for those not wanting to be put under anesthetic for various reasons (like the likelihood of Alzheimers and permanent neurological damage for those with poor DNA detox profiles which may have been a contributing factor to the cancer diagnosis).
@melissadd75978 ай бұрын
Absolutely agree
@KathleenHelenLisson8 ай бұрын
Thanks!
@DiepCFoundation5 ай бұрын
Of course, Kathleen. Thanks for following us!
@KathleenHelenLisson8 ай бұрын
Thanks so much!
@DiepCFoundation8 ай бұрын
The Foundation always appreciates hearing from you Kathleen. Thank you.
@JaneBurney8 ай бұрын
great prensatation! 0:44 0:46
@DiepCFoundation8 ай бұрын
Thank you Jane.
@terrynashhartmann84198 ай бұрын
Thank you! Very informative. Info that I didn't find anywhere else.
@DiepCFoundation8 ай бұрын
I’m very pleased to hear this Terry.
@jeanettedodds97748 ай бұрын
Lots of cancer in my family. I had genetic testing done and found out that I have the PALB2 mutation. Four months ago, I had my ovaries removed and last month I had the first of my cancer prevention breast surgeries. I’m having the DIEP flap surgery done July 9.
@DiepCFoundation8 ай бұрын
Hi Jeanette. Please let us know if the Foundation can be of any support. We do have a private Facebook group if you are interested in joining. DiepCJourney: Breast Reconstruction after Mastectomy. You are making strides in your future given your genetic mutation. I know it's not easy and we applaud you. ♥
@Love-rx2se8 ай бұрын
So very much informative . Excellent education. Thank you very very much!
@DiepCFoundation8 ай бұрын
I'm am happy to hear this. Thank you for your kind words.