❤❤❤

Thank you for sharing

This guy is one of the biggest minds in the NET community

Great info.

"3. What causes NETs to spread? Is there anything that is done to cause NET tumors to spread? " What about what causes them to begin with? I was told the main risk factors were smoking, heavy drinking, obesity and family history. 0/4 I had no symptoms until mid-Oct, diagnosed early Dec, told no liver surgery as they would have to remove most of the liver. Did a couple months chemo, going to start PRRT next week. Also, what do you think of embolization of the hepatic artery? had that in jan.

Great presentation... thank you all

I take rescue shots as needed along with my Octreotide monthly shot

I had two pheocromocytomas please keep me informed ❤

Thank you

Do you know anywhere else in the world where cabozantonib is available to NET patients?

Graham 2048

Thank you Lisa and to all the awesome doctors !

Wow!❤

I had difficult side effects after receiving octreotide injection: hallucinations, diarrhea, high blood pressure. What do I have to avoid in continued therapies?

“Now that being said”

Thank you for sharing this.

Thx for the video. Diagnosed in 2012 with small bowel net. Surgery removed two tumors but met to liver in 2016. Have had 5 liver ablations and one liver hepectpmy. But told last week that I will begin PRRT in April. Optimistic based on your feedback

I love hearing thjs

I’m going in today for a meet and greet . Peter MacCallum centre in Melbourne Australia. Thanks for sharing….

This is such a wonderful and helpful podcast! Thank you, Dr. Gangi and Lisa! This is so informative and well-done!

Hi diagnosed PNET March 2022 stage4 (metastasis to liver, 1 tumour in pancreas 3 tumours in liver) grade 3 18%. Receive 20mg octreotide every 28days

How are symptoms controled? My Oncologist, Gastro have found no relief for my severe chronic diarrhea in a year and a half. Pain flushing joint pain. Its stage 4 metastatic. My quality of life is zero! Im on Octeatide only due to my large weight loss, nutritional value is not good at all. I am aboit done!

Is there any clinical trials going on now ?

❤thanks a lot for this ppodcasts it was very informative how can I get in touch with this doctor to discuss my case

After 8 cycles of PRRT therapy doing dota scan but disease is no decrease what is further management for that pt

i was diagnosd 21/2 years ago with NET of the omentum. stage 4/ I have been on Somatuline monthly since then. I am due to have my first PRRT in early January. I am apprehenshive. Your testimony has helped me with my anxiety. I know that once the first treatment is done, I will feel much better. I have absolutely no symptoms so don't even know I have NET. So I am hopeful that the PRRT will just stop the tumor from growing. My life is full and I look forward to many more years. I am 79 years old.

Thank you. Very encouraging.

Wonderful news. Thank you for the passion and dedication of doctors/staff/patients who give to benefit others. God bless…

Very informative- I was diagnosed with over 2 years now with PNET.. Just finished 4 cycles of PRRT- it works. I still have to get my monthly injections of Octrotide but I feel great. Thank you Jesus. MSK is my new ministry. Praising and rejoicing in the goodness of the Lord.

Thank you for dedicated doctors who are passionate and care about patients.

Excellently explained.

Excellent info.

Thank you

Thank you for doctors that love their patients. Praise God.

I had a paraganglioma removed from my spinal cord at L3 in 2019. They had to leave a sliver behind because it was attached.

Just to add some info here on my experience. I just completed my third round of PRRT. The biggest difficulty for me as it could be for others is travel. I currenty am going to Epic Care in Hayward California which is 3 hours from where I live. They are a fantastic group in a much more comfortable setting than a Stanford or UCLA would be. My experience so far is very positive with some side effects but nothing that prevents me from normal function. I'm pretty late in the game with NET as I was diagnosed 6 years ago. I believe that earlier treatment would have been better and that is pretty much the only thing I would have done differently. Sending out love and hope to all you folks.

Por favor , he puesto lo subtítulos y no traduce al español, por favor podría alguien poner en español,lo que dice esta señora.

What a wondrous journey! I remember playing in her little garage rehearsal space in the day...all that hair! And what a gift! Such chops & enthusiasm.

Dr Chan is amazing!

I have neuroendocrine breast cancer stage 1 but grade 3 poorly differentiated. er+ pr+ her2-. After lumpectomy, they told me they remove all cancer, lymp nodes negative, margins very good. I'm 72 years old all scans (chest/bone/brain) no metastasis. Need to do 4 rounds strong chemo, then 12 weeks less strong chemo, afterwards 3 weeks radiation plus 1 week booster (radiation) and hormones therapy. Oncologist told me that if I don't do any treatments, i have 80% chance of recurrence. Do you think its worth it at my age with all side effects, do I have a chance for survival?

Been a zebra since i was 27 im 32 now and finally seeking treatment

Thank you for this video. Great information.

This will be my second round of PRRT

Does anyone kniw if someone with a NET , specifically a HGH secreating pituitary tumor, would make the risk higher to also have another NET of eithrr a para or pheo? My brother has acromegaly and he has teribly high BP, on 3-5 antihypertenives, and anxiety and agression

How do I get to be friends on Facebook with Dr Eric Liu

God bless you! Thanks for the encouraging remarks. I will be starting in about a month or so. I wasn't as anxious myself. My wife had concerns. I'm glad she was able to see your video. Now she is not as stressed, and that's a comfort to me. I know everyone is different, and results could vary. But you and other people's positive testimony have been encouraging.

Didn’t find out until my appendix ruptured but yes had flushing, diarrhea and severe cramps for 4 years that progressively got worse. Then had 3 more surgeries since. Very sad that the doctor left Vancouver & Canada but thanks for this episode.

I had PPRT at City of Hope. The people there are wonderful. The procedure was explained, and I did surprisingly well -no vomiting. It wasn’t until the fourth infusion that I felt weak. But it went well. I have stage IV metastatic to the liver, and it is suspected that it started in the pancreas. Took awhile for the fatigue to subside. A year out, I feel much better. Scans show improvement. Glad to be alive. Thanks for the videos, Lisa.