Not so good. Stage 4 metastatic breast cancer in all my bones.

Please get Canadian oncologists on board! They don't recommend BCI here in Vancouver BC at BC Cancer Agency - I was told I don't need it as there is no additional information that it would give and that it's based on the same analysis that they already have done for me, which seems at odds with your videos. Feel free to contact me for details and I am willing to share my file notes made by my oncologist on this topic with you so you can see exactly what they advised me about BCI.

Yes no rubber agreed

The BC Cancer Agency (Vancouver, BC Canada) does not have this information. I was told that there would be no benefit to BCI testing for me at the end of my 5 years on endocrine therapy and that it would not change the oncologist's recommendation to discontinue aromatase inhibitors. Please try to reach out to them because I tried to share the videos from your website but was still advised that BCI is not helpful. That was in July of 2023.

Thank you❤❤

To help with my side effects, I do yoga, strength training and balance exercises as well as walk. I take turmeric/black pepper/and olive oil, fish oil/omega 3, garlic and I have been working on eating a healthy diet…. No sugar, no processed foods and staying away from white bleached flour. I feel pretty good and my symptoms have subsided so far. I also take calcium and D3. Best wishes to you.

Women are estrogen. 50 year from now they will realize how silly these theropies were. Making a women an non sexual by cutting her estrogen just ruins her life. It doesn't save her from cancer. It might be time they take some of all that money they bringin and spendonsalaries, and actually do some new research. We haven't hadanything new for 75 years.

joint pain, fatigue, nerve pain (carpal tunnel, neuropathy, and sciatica), night sweats, hot flashes, headaches, hair loss, irregularity. a catalog of miseries. Hard to look at the statistics and decline the meds tho. My GP recommended a daily course of meloxicam (NSAID) which has its own downsides, but the joint pain was cut in half. Instead of feeling 90 I feel 80. 🙂

My oncologist was really upset with me because I did not want to do anti-estrogen therapy in 2020. I got covid and it gave me an acute pulmonary embolism in my right lung with blood clots all over my body and I had to stop chemo for a month. The pulmonary doctor said if I was on an anti-estrogen pill I wouldn't have survived.

I am 89 and am about to srart taking Letrozole. I have already long term arthritis and severe stenosis of the spine and am on low dose cortisone permanently. I live alone and could not cope with mastectomy after care, for which there is little help on our British NHS. I have just been diagnosed with invasive breast cancer in LBreast. I have the alternative of Tamoxifen, if Letrozole does not suit me. I think there could be more diet advice given.

None of this mentions the daily life style or diet of any of these people, which could make a great difference I would think?

I did discuss with my dr but he seems to think it’s some sort of trail

I was only on it for a few months and my hair was falling out fast. The pain was excruciating and I felt like I was 150 years old. I said this isn’t worth living, so I just stopped it didn’t tell the doctor. I am enjoying life again to the fullest I am through with that disgusting drug and the doctor.

Oncologists tend to gloss over the side effects. I had chronic pain before the AI treatment. But it got a lot worse during my 5 years on it, and I didn’t recover when it was over. Now I’m looking at taking it again “for the rest of your life”, as my doctor said. A new cancer was found. I’ll do my best, because I have a lot to stick around for. But I am decrepit, there;s no denying that.

Stay positive, that’s all we can do and continue taking the daily pill in hopes of stopping or slowing the progression of the disease.

Can you identify the studies that reveal 150m/week of moderate cardio is the equivalent of Tamoxifen? Minute 13:15 in above video. Thank you!

I am so hapoy to see this video: What can be taken instead of anti estrogen pills please?

It is with utmost gratitude that I express my thanks to Dr. Kanayo Peterson, whose cure for the 14daysnegative has restored me to full health one hundred percent, their service is incredibly fast, and they have fantastic reviews online.

Can patients with HER2+ , ER+ bc benefit from this test? I read that 2/3rds if HER2+ patients need AI for 10+ years.

I’m supposed to start this on 4/1. Went off HRT when my breast cancer was diagnosed. I’ve been having hot flashes every 2 hours, day and night. It starts as nausea, then becomes shortness of breath, rapid heart beat and muscle tense up. Then the flash and the sweating. I can’t add more to this. I’m 59 and still working.

How it affects me, bones ache, skin hair awful. Tiredness BUT because this is the best kind of tablet in the group. I choose to stick with it. Have hot flushes, never had before after menopause. I hate it but stick with it for now. Itchy bits too.Only toilet 1 in every 5 to 7 days .

I am experiencing terrible side effects from my AI treatment and am trying to get a requisition from my oncologist in Vancouver BC Canada for this test. I am so disabled by the AI joint and tendon pain and by intense and frequent night sweats that I can only work part time, yet I don't feel safe stopping the AI without knowing that my recurrence likelihood is at a low enough percentage. The calculator used in Vancouver does NOT take into effect my tumours' unique makeup and I don't trust it. I'm happy to pay for the test. Hopefully BC Cancer Agency will agree to order it for me. If not, I may have to drive to the US to hire a US oncologist to requisition it.

I've heard too many horror stories about the side effects including constant pain that makes it impossible to stay in any position for 20 minutes. This goes on for 10 years. I'm 67. Hormone therapy would make me miserable for the rest of my life. No thanks.

At BC Cancer in Vancouver the patient monograph for AIs does not sufficiently describe what happens to many women, especially the degree of joint and tendon pain that can occur, and the sexual dysfunction, which I believe is indicative of a double standard - if this were a drug men took, they would clearly describe the sexual side effects. This negatively affects women who don't know how to research because they think it's all in their heads.

I have to take Letrozole 2x a day for 5yrs. Since taking for 3mos I feel like my bones hurt all the time. And I feel weak all the time. Last chemo was November of 2023. I didn't feel like that then. Anything I can do? I am miserable.

I am ready to stop after 5 weeks! I feel majorly depressed

Everything I've heard from users indicates that the side effects for these treatments are so horrible that they can be completely debilitating and can include pain so severe that women can't stay in one position for 20 minutes.

I've started treatment recently for breast cancer and bi lateral massectomy... I am suffering with joint and bone pain , weight gain and hot flashes.. my oncologist isn't addressing my pain since my bone density is ok.. I'm 72 years old. It's not worth the side affects and I'm thinking about stopping it

As I understand it, some women's joints hurt so much they can't stay in one position for 20 minutes. I'm 67, so I don't care about the sex stuff. But why should I take meds that make me hurt all over for the rest of my life? What kind of life is that? I've also read that when women want to stop, doctors won't let them. They are put on some other med that is just as bad.

My finish will be to never begin. I've heard so many stories about bone and joint pain that people can't stay in any one position for 20 minutes. I am 67. If I take these meds and make myself miserable for 10 years, that will be the rest of my life. I'm not going to destroy my life to "save" my life.

I feel so bad for people who go through this. I'm 66. At my age, there isn't much point in going through chemo or AIs. I've had four heart attacks, and chemo is very hard on the heart. Why should I make myself miserable for months so I can die of a heart attack instead of cancer? But I don't have a family, and I'm an old woman. I would feel much differently if I had a family or if I were younger. I admire all of you who are fighting so bravely.

Who can get this test?

Tamoxifen almost crippled me. Weight gain and joint pain and leg issues been off it for 2 weeks and still painful to walk

Take passion flower !

thank you.. i am almost 4 years taking letrazol, and yes debilitating pain, and evrything else. yet doctors dont associate it with therapy and have no explanation..

I'm already 4year anastrozole and zoladex hate this :hot flashes, headache, nausea, depression, weight gain,dry vagina,skin,fatigue, stiff muscles but my stage 3 breast cancer push me to continue my miserable life for next 10 years even that I continue exercise, walk 3 miles but it's not easy ,very difficult back my weight.

Tried 3-4 ai's. All led to excruciating debilitating pain. Stopped taking all within 12 months. 5 years later have stage 4 metastatic breast cancer in bones. I had 5 years pain free. Not sure which is worse The pain or stage 4

Does this happen to every woman on aromatase inhibitors? These pills have been around for years; why haven’t the companies that made them worked on natural remedies to alleviate these symptoms? Also, we all have different weights, systems etc. why does everyone get the same dosage? Why not figure out a woman’s hormone panel and prescribe the right amount to keep the estrogen/progesterone low enough? As for vaginal issues, can a woman not use a moisturizer like RepaGyn before the issues even start? To avoid having the issues in the first place.

i appreciate people speaking the truth. im sick of fake people talking about how easy chemo was for them. LIES!

There are other things you can do to avoid estrogen dominance please watch dr eric berg on you tube on cancer & estrogene dominance. You do have some control like avoiding sugar, fitness, fasting etc... Look it up.

I started taking ai about a year ago. After being on anastrozole for 4 months I could hardly get out of bed, was in constant pain. I was then put on exemastan. To start with I felt a bit better, but after having taken it for 2 months the back pain and the pain in my knees got unbearable. I'm working from home, but I've been off and on from work as I can't sit for more than 20-30 minutes. Got a standing desk, but after standing for an hour my back gets sore. I know my employer tries to find a way to get rid of me. I can't sleep at night as I have to shift position many times during the night, reposition the pillows so that I can have some comfort. Not a day when my back or my knees are not extremely sore. Tried tamoxifen for 2 weeks, got severe menstrual pain and discharge. I'm back on exemastan again. I'm thinking of taking my chances with the cancer coming back. It's not worth living like this.

I really hate the idea of losing my sex life. I dont know the plan for me yet. I need to weigh the options.

Thank you for sharing your story, many people underestimate the aftermath after breast cancer. Medication can help in one way, but the side effects can be a bit much.

Thank you for sharing this…no one really understands how it’s feels being on these AI’s.While it helps with the estrogen, the side effects can be debilitating. I could barely go up the stairs when I was on Aromasin, Not to mention chronic nausea and no appetite. My oncologist switched me to Arimedex and thankfully it’s not so bad as the Aromasin. There is still the fatigue and shortness of breath going up the stairs. I have a better appetite at least.

Should talk to some bodybuilders. They go through all of this. Dr. Don't know they just prescribe and hope for the best. There's alot of bodybuilders that will tell you that estrogen is somewhat needed in the body for those different things you mentioned. And taking out estrogen completely makes you feel horrible in all the ways you mentioned. So they put in procedures so that you can take out a certain amount but have enough so all that all the pain and horrible side effects do not occur. It isn't easy but it's possible

Thanks Denise for sharing your experience. I'm 6 months into taking letrozole n apart from every joint aching, I developed excruciating lower back pain. And yes, the only exercise I can do is walk. Hoping it will ease up soon. Have to speak to my doctor

Going thru very bad side effects on the locker they changed it another one now I getsever migraines and nausea 2 and half years to go before 5 yearsareup but I think we have to take it for 10 years the hormone blocker