Houston Cholangiocarcinoma Symposium
6:01:11
19 сағат бұрын
Mentorship Turned Friendship
3:31
Cholangiocarcinoma 101, Part 2
5:03
Cholangiocarcinoma 101, Part 3
5:41
Cholangiocarcinoma 101, Part 1
5:18
Пікірлер
@exevil2056
@exevil2056 Күн бұрын
Where is contact information?
@lorenacairo6079
@lorenacairo6079 3 күн бұрын
Are you still with us?
@meawesome1651
@meawesome1651 4 күн бұрын
You are so lucky, sir ❤ my dad has inside 😢 he got yellow yet no help but palliative 😢
@laurab9867
@laurab9867 7 күн бұрын
Great information.. less intimidating. Thank you so much! ❤
@JazzyGirlAcrylics
@JazzyGirlAcrylics Ай бұрын
Dr Goldschlack was an outstanding primary care physician! He gives an exceptional perspective on his experience.
@wanwiparbobkowski3571
@wanwiparbobkowski3571 Ай бұрын
My husband got diagnosed with this Cholangiocarcinoma. Please give me more information how to treat this kind of monster. Thank you!
@magdastoian7004
@magdastoian7004 Ай бұрын
Hi,do you know who whould do such studies in Eastern Europe ?I'm located in Bucharest, do you have collaborators in RO who do the experimental immumotherapy ?thank you !
@простоЛена-л3и
@простоЛена-л3и Ай бұрын
Где так лечат?
@74MaverickMan
@74MaverickMan Ай бұрын
That's a very nice video. My wife and I just watched it. She was diagnosed around my birthday in August of this year. She is tolerating chemo well and feels better since treatment. Keeping blood counts up is the biggest challenge right now, but she has had positive response and tumors have shrunk in her liver. We have a great set of nurses and doctors here on Maui and she is treated very well at our Kaiser Clinic. We are off grid jungle builder folks, she built the cabin we live in and we still continue to try and improve our place and our lives throughout all this. I'm am so happy to be her caregiver as she makes my life complete and happiness is and essential part of our day every day
@anastasiar89987
@anastasiar89987 Ай бұрын
I'm praying for your wife! My father was also diagnosed in August. Had whipple in October and is starting chemo next week. Happy Thanksgiving to you and your wife! Great video, thank you for sharing the success stories! We need more of this ❣️
@74MaverickMan
@74MaverickMan Ай бұрын
@anastasiar89987 Happy Thanksgiving, we wish you all the best .
@railwaychristina3192
@railwaychristina3192 Ай бұрын
Chromosome 3 ...MLH1 repairs cell damage. Mops up irregularity before they turn bad. Lack of it is also linked to Lynch Syndrome. So glad this brave man is ok.
@margierodriguez9352
@margierodriguez9352 2 ай бұрын
This is very exiting!
@cindythomas9965
@cindythomas9965 2 ай бұрын
Fred and Vincent inspire us all! Thank you for sharing your stories with us💚
@drewapple9681
@drewapple9681 2 ай бұрын
My dad flew in nam too. He just had a third of his lung and the doc told him it was from agent orange he was exposed too in the army.
@TinaGoldberg
@TinaGoldberg 2 ай бұрын
Are there spots available in this trial for foreign citizens? I'm Danish. Intrahepatic CCA on Tibsovo but otherwise normal stats.
@CholangiocarcinomaFoundation
@CholangiocarcinomaFoundation 2 ай бұрын
International patients can apply and you can check with Johns Hopkins directly about getting started.
@74MaverickMan
@74MaverickMan 2 ай бұрын
Aloha, I was working as I watched this, so I apologize if I missed it. But is this available remotely? We live in Maui and aren't in a situation where travel is easy, mostly because of how much I am working to keep us going and the amount of animals we have. My wife has the FGFR2 mutations. If this isn't available remotely do you have an idea when it would be more widely available like through Kaiser Permanente Hawaii?
@CholangiocarcinomaFoundation
@CholangiocarcinomaFoundation 2 ай бұрын
This isn't available remotely but please reach out to Johns Hopkins directly to see what options might be available.
@74MaverickMan
@74MaverickMan 2 ай бұрын
@@CholangiocarcinomaFoundation Thank you very much. Our oncologist Thomas DeLeon is pretty up on thing so I'm excited to talk to him about it. Mahalo!
@74MaverickMan
@74MaverickMan 2 ай бұрын
Exciting. My wife is on her 3rd month of treatment. She is feeling a lot better since she started Gem-Cis and Pembro. Super hopeful for any research coming down the line.
@TinaGoldberg
@TinaGoldberg 2 ай бұрын
Are there any plans to launch clinical trials with cf33 in Europe? I am a Danish 60-year-old woman with three intrahepatic inoperable metastases but otherwise with normal stats. I am currently on 2nd line with Tibsovo and experiencing stable disease. I would love to take part in this trial.
@KorelKaraalp-d8z
@KorelKaraalp-d8z 2 ай бұрын
818 Alberta Cliff
@christinagambogi5826
@christinagambogi5826 2 ай бұрын
Vinnie and Fred! FAMOUS
@antoniocognato5023
@antoniocognato5023 2 ай бұрын
what do you consider high bilirubin? 1 point?
@ericgabay1580
@ericgabay1580 3 ай бұрын
how long itching after putting a stent in liver drain
@Zecoraaa
@Zecoraaa 3 ай бұрын
A dear friend whom she was a Dr., found out she had this cancer when they removed her gallbladder, she only lasted 2 months of life when first diagnosed. 2 months!!!
@babs1965
@babs1965 3 ай бұрын
Must read! pubmed.ncbi.nlm.nih.gov/34750030/
@babs1965
@babs1965 3 ай бұрын
Must read! pubmed.ncbi.nlm.nih.gov/34750030/
@DuncanAsa-q8x
@DuncanAsa-q8x 3 ай бұрын
Baron Underpass
@pitstoppete80
@pitstoppete80 3 ай бұрын
Hey Matt glad to see things got better for you. Can I ask please what stage was yours at ? My dad just got diagnosed with stage four last week 😢
@GaryLopez-x6h
@GaryLopez-x6h 3 ай бұрын
Mara Locks
@100nirosta
@100nirosta 3 ай бұрын
,.про антитела уничтожающие онкологию, балаболят уже не первый десяток лет. Когда наконец эти антитела начнут уничтожать раковые клетки, в онкологических центрах а не в интернете? ,
@mayuripatil2176
@mayuripatil2176 4 ай бұрын
Best Video . thanks for sharing
@74MaverickMan
@74MaverickMan 4 ай бұрын
Thankyou for focusing on Cholangiacarcinoma. My wife is newly diagnosed with a large mass that has FGFR2 mutations. She has aleeady fought stage 3 breast cancer, surviving 5 years cancef free. I hope you and your works will be able to make it possible to have better and better out comes. Mahalo and Aloha.
@ИринаРубцова-ц1ъ
@ИринаРубцова-ц1ъ 4 ай бұрын
Иксперементы. Побочки больше, чем от химии, быстрей убивает. 9 августа умерла моя девочка, кй было всего 21 год, эта терапия её убила.
@rodrigom1595
@rodrigom1595 4 ай бұрын
Is a external drain better than internal
@GoodnightJLH
@GoodnightJLH 4 ай бұрын
This is amazing. I may need it some day. And I had 2 family members who could have benefited. Thank you, Doctors!
@NWChickasaw
@NWChickasaw 4 ай бұрын
your treatment would haxe been good to share in your video
@ntang
@ntang 4 ай бұрын
I think the recording is broken, there seems to be no speaker audio on this video.
@saranshguptabhagetra4988
@saranshguptabhagetra4988 5 ай бұрын
You guys are doing a great job! keep it up!!
@ekinnard
@ekinnard 6 ай бұрын
how common is this mutation?
@ekinnard
@ekinnard 6 ай бұрын
I am going to Mayo. STAT
@ah7122
@ah7122 6 ай бұрын
I hope everything works out ok for you
@aleksandra_pas
@aleksandra_pas 6 ай бұрын
3 минуты - все по полкам и понятно) благодарю❤
@CoffeeAndPrayerWithJoyce-fc9wx
@CoffeeAndPrayerWithJoyce-fc9wx 6 ай бұрын
Can you find out if you have thyroid cancer by taking blood from the arm
@mrbatdance
@mrbatdance 6 ай бұрын
Hope you are feeling better today.
@SwarupDigitalMarketer
@SwarupDigitalMarketer 7 ай бұрын
Hi Cholangiocarcinoma Foundation, I watched your youtube videos & content is good but video SEO score is very low & that's the reason your video don't getting views. I saw that you are struggling with views & subscribers. I'm as a youtube expert & video seo specialist, I'm able to help you to fixed it. I've a Big Vision for your Channel growth. can we talk? let me know.
@JimmyPR14
@JimmyPR14 7 ай бұрын
¡Que grande eres, Angela! 💚🩵💙💜🤎
@austiekidprof
@austiekidprof 7 ай бұрын
Is biomarker testing the same as genetic testing?
@sselim
@sselim 7 ай бұрын
Thank you for bringing to our attention such valuable scientists . I am son of an orphan women who has orphan disease. She has a bile duct cancer but doctors can not identify her tumor type. Unfortunately geography is destiny here in Turkey.
@Stinkydinkiscool
@Stinkydinkiscool 7 ай бұрын
So great to hear a success story. I hope that you have continued response to this beast of a cancer
@xeniakennedy
@xeniakennedy 7 ай бұрын
3:07
@amsmarie14
@amsmarie14 7 ай бұрын
Thank you so much for the opportunity ❤