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Пікірлер
@LGRacing123
@LGRacing123 17 күн бұрын
Im from Srilanka .My son also suffering from DMD.now he's 8years old.still he is working slowly .please please help me if there is any possibility .thank tou .
@ChildrensHospPhila
@ChildrensHospPhila 16 күн бұрын
Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6050Y6icC for additional information.
@sid2984
@sid2984 25 күн бұрын
"Promo SM"
@faheemasale7
@faheemasale7 27 күн бұрын
Your explanation is too fast for non native speaker
@heidrunsold8543
@heidrunsold8543 Ай бұрын
Schade daß alles nur in englisch ist😢
@oldasdihrt5993
@oldasdihrt5993 Ай бұрын
Can't see what you're doing... no contrast
@djrisks
@djrisks Ай бұрын
Thanks for this video. I'm so glad I can do most of these exercises now after fracturing my ankle 5 months ago.
@EdrianDometita-zb7wm
@EdrianDometita-zb7wm Ай бұрын
Hi I'm edrian from Philippines my brother suffere DMD since 7yr.old please help my brother
@ChildrensHospPhila
@ChildrensHospPhila Ай бұрын
Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6050ctwEo for additional information.
@DavidCandy-iu7sr
@DavidCandy-iu7sr Ай бұрын
Successful Hope
@hayleyrichardson3343
@hayleyrichardson3343 Ай бұрын
I’m celiac disease but my husband buys gluten bread and cereal
@kathyjames735
@kathyjames735 Ай бұрын
❤😂😢😅so many emotional things going on in the Golden Hour. ❤
@theaberrantdon
@theaberrantdon Ай бұрын
What is the difference between a vertical and horizontal mattress suture?
@AKamnik70
@AKamnik70 Ай бұрын
It's easy to forget that every single day babies, parents, and families experience the highest care possible while we go about living our ordinary lives. Thank you for all that you do!
@julieverma1865
@julieverma1865 Ай бұрын
A baby's life is a god gift from heaven be glad that you make your children
@samaymeena5001
@samaymeena5001 Ай бұрын
Please help my son is suffering ducchne muscular dystrophy since 8 years please help 😭😭 I am from India
@ChildrensHospPhila
@ChildrensHospPhila Ай бұрын
Hello. Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6052cRRYm for additional information.
@yangweichen-rp9gx
@yangweichen-rp9gx 2 ай бұрын
I am from China. My son is DMD patient. He is 5 years old. Is it possible to cure? And how much would be the cost?❤
@ChildrensHospPhila
@ChildrensHospPhila 2 ай бұрын
Hello. Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6052cRRYm for additional information.
@yangweichen-rp9gx
@yangweichen-rp9gx 2 ай бұрын
@@ChildrensHospPhila Thanks for your feedback.I will check it out
@bgmi_Moses
@bgmi_Moses 2 ай бұрын
I'm from India am DMD patient I'm 21years old help me to cure 😢
@ChildrensHospPhila
@ChildrensHospPhila 2 ай бұрын
Hi! Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6052cRRYm for additional information.
@balwantrajput4264
@balwantrajput4264 Ай бұрын
Hello . Can I get your contact no.
@ChildrensHospPhila
@ChildrensHospPhila Ай бұрын
To explore treatment options at Children's Hospital of Philadelphia, please contact us at 1-800-879-2467 or visit our website ms.spr.ly/6054cmH3m.
@pickledbumblebeeviolinist
@pickledbumblebeeviolinist Ай бұрын
Our sons have Duchenne. They are 10 and 13. Any help or hope for them?
@ChildrensHospPhila
@ChildrensHospPhila Ай бұрын
Thank you for contacting us. To explore treatment options at Children's Hospital of Philadelphia, please contact us at 1-800-879-2467 or visit our website ms.spr.ly/6056cQTaa.
@romeo1288
@romeo1288 2 ай бұрын
Amazingly Educational video on a topic that is severely missing modern content.
@user-vx5np7qz7r
@user-vx5np7qz7r 2 ай бұрын
My son is ten year old with DMD I am from Mauritius .He stop walking since last year please help if there is any treatment let me know.
@ChildrensHospPhila
@ChildrensHospPhila 2 ай бұрын
Hello. Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6052cRRYm for additional information.
@rajarani479
@rajarani479 2 ай бұрын
my son is 9 years old he is DMD patient (7 exon is deletion) in genetic report im in pakistan please help me 😢
@jaysimoes3705
@jaysimoes3705 2 ай бұрын
Yes great and all. I want to see results, of course I can find some results but I would like to see much more results and since what I have seen (have been shown?) are results within months we should be able to see these in more kids. Not just a few.
@natashaayudan5791
@natashaayudan5791 2 ай бұрын
I wish older children could get it I would give anything to stop my sons rate of progression I hate this disease so much
@sarveshkumarpathak
@sarveshkumarpathak 2 ай бұрын
kzbin.info/www/bejne/l2S7e3WiicpsiZY
@Ramonaelizabeth1992
@Ramonaelizabeth1992 3 ай бұрын
Æ😢😢😢😢😢😢😢😞😞😞😞😞😞😞😞😭😭😭😭
@81parthagarwal92
@81parthagarwal92 3 ай бұрын
Thank you. Really nice to the point explanation
@aliAzmeer
@aliAzmeer 3 ай бұрын
Hi. I have two years old daughter She is Juene Syndrome Patient She is dependent on oxygen concentrator She is in very very trouble But we have no source of income for her treatment and Pakistan Doctors told us that her treatment is not possible in Pakistan. Pls do something for us
@HanifKhan-ui7ht
@HanifKhan-ui7ht 3 ай бұрын
Iam from Guyana my grandson is 10 years old he have dmd he is not walking we need help for him
@Rashvanth2021
@Rashvanth2021 3 ай бұрын
My son 2years 11month old affect in DMD (14 exon is deletion or duplication) in gentic report. Please help me what is suitable treatment for my baby ( i am in India) please..... share me
@devikabai309
@devikabai309 3 ай бұрын
Hi madam for Duchenne Muscular Dystrophy and every type of Dystrophy can give treatment in Nimhans Hospital in Bangalore
@ChildrensHospPhila
@ChildrensHospPhila 3 ай бұрын
Please contact our Global Patient Services program to explore treatment options at Children’s Hospital of Philadelphia. You can call 1-267-426-6298 or visit ms.spr.ly/6052iFuJk for additional information.
@jaysimoes3705
@jaysimoes3705 2 ай бұрын
Exon 14 can be tricky, so inform yourself. I think 1-9 and 17 so 14 should in theory be fine but again ask your specialist.
@Rashvanth2021
@Rashvanth2021 2 ай бұрын
14 exons (Exon 30 -43) deletion or duplication in genetic report
@ramsita8198
@ramsita8198 4 ай бұрын
Wow good news
@user-mc4tq6eg5j
@user-mc4tq6eg5j 4 ай бұрын
Suggest any physical exercises which helps to overcome the low cardiac output and high pressure after fonton surgery
@josephnayo7587
@josephnayo7587 4 ай бұрын
Waw am very encouraged and happy to hear about this new therapy for sickle cell disease. I believe it will reach us soon.
@attached3245
@attached3245 5 ай бұрын
So u guys reading people's brain waves remotely
@mokx22
@mokx22 2 ай бұрын
Yup… this has been patented since 1974 (owned by a military contractor), and the university of Sussex mentioned a remote multi channel EEG in 2002.
@mumbilupupa7410
@mumbilupupa7410 5 ай бұрын
Hows this going?
@jessemulham81
@jessemulham81 5 ай бұрын
Does it matter which you start with?
@chukwudiobinna3079
@chukwudiobinna3079 6 ай бұрын
Great hope. Well done breakthrough makers
@petersampson5202
@petersampson5202 6 ай бұрын
DEAR CASH & EVERYONE AT CHILDREN'S HOSPITAL OF PHILADELPHIA, GOD BLESS YOU MY FRIENDS. I AM VERY PROUD OF YOU AND VERY HAPPY FOR YOU. I HOPE ALL OF YOUR DREAMS COME TRUE. 🙏 I LOVE YOU SO VERY MUCH. 🙏 GOD BLESS YOU SO VERY MUCH CASH. 🙏 I LOVE CHILDREN'S HOSPITAL OF PHILADELPHIA SO VERY MUCH. 🙏 SINCERELY PETER
@elmehdiamine9103
@elmehdiamine9103 2 ай бұрын
My son 6 years was the same hospital with the same doctor he hase dmd too I hope God help all the kids and parent too
@petersampson5202
@petersampson5202 2 ай бұрын
@@elmehdiamine9103 GOD BLESS YOUR SON. GOD BLESS ALL OF THE BEAUTIFUL DOCTORS. GOD BLESS ALL OF THE BEAUTIFUL PARENTS. GOD BLESS EVERYONE AT CHILDREN'S HOSPITAL OF PHILADELPHIA. I LOVE THE CHILDREN'S HOSPITAL OF PHILADELPHIA SO VERY MUCH. I WILL PRAY FOR EVERYONE. 🙏
@petersampson5202
@petersampson5202 6 ай бұрын
DEAR DR. COHEN, DR. MINTURN, DR. PERMAN, DR. PIPAN & EVERYONE AT THE CHILDREN'S HOSPITAL OF PHILADELPHIA, GOD BLESS YOU MY FRIENDS. I AM VERY PROUD OF YOU AND VERY HAPPY FOR YOU. I HOPE ALL OF YOUR DREAMS COME TRUE. 🙏 I LOVE YOU SO VERY MUCH. 🙏 CONGRATULATIONS DR. MINTURN. WOW! WOW! WOW! IT IS ABSOLUTELY BEAUTIFUL AND ABSOLUTELY INCREDIBLE. 🙏 I LOVE THE CHILDREN'S HOSPITAL OF PHILADELPHIA SO VERY MUCH. 🙏 SINCERELY PETER
@user-vg1jq1xe9c
@user-vg1jq1xe9c 6 ай бұрын
Great presentation
@johnathanabrams8434
@johnathanabrams8434 7 ай бұрын
Two years later ...... nothing has changed
@rawlivingwithdisabilities
@rawlivingwithdisabilities 7 ай бұрын
Hydrocephalus Epilepsy Occipital Neuralgia Chronic migraines General Dystonia .... yes
@vimleshkumarmaurya4883
@vimleshkumarmaurya4883 7 ай бұрын
हाईटेक सर हिंदी बोल कर बताओ
@zerocool1ist
@zerocool1ist 7 ай бұрын
Scary that an exposure to Cipro can lead to an onset of Mitochondrial DNA depletion.
@Rhiorrha
@Rhiorrha 7 ай бұрын
Everyone's doing studies based on diet, but is anyone doing studies on what mother's AREN'T eating? Doctors already say that diets rich in omega-3 foods from animal and plant sources can prevent children with food allergies. Has anyone compared the diets of the mothers with kids with allergies to see what they have in common? Could it be possible that this is being caused by veganism? I ask this because I'm black, grew up in black-only areas. We don't HAVE this food allergy stuff, as far as I know, and if we DO it's extremely rare. Quite possibly because black women for the most part don't engage in fad dieting, unlike their caucasian counterparts. You eat what's available. We generally don't engage in some fantasy of saving the world by eating like a prey animal. EVERY kid I ever met that had a food allergy was caucasian. I only went to school with them so I have no idea about their home life, but I'm betting there's more of a commonality with their mothers than just race. If your kids aren't exposed to certain proteins in the womb, studies show they will have an allergy to them after birth. Vegans exclude a LOT of healthy proteins from their diets. Have any doctors or dieticians examined this potential?
@erlinavicente7411
@erlinavicente7411 7 ай бұрын
What can be done prenatal to support or in efforts to prevent this?
@petersampson5202
@petersampson5202 7 ай бұрын
DEAR EVERYONE AT THE CHILDREN'S HOSPITAL OF PHILADELPHIA, GOD BLESS YOU MY FRIENDS. I AM VERY PROUD OF YOU AND VERY HAPPY FOR YOU. I HOPE ALL OF YOUR DREAMS COME TRUE. 🙏 I LOVE YOU SO VERY MUCH. 🙏 I LOVE THE CHILDREN'S HOSPITAL OF PHILADELPHIA SO VERY MUCH. 🙏 SINCERELY PETER
@smackdaddy1ful
@smackdaddy1ful 8 ай бұрын
all fishermen know how to tie a square knot...lmfao!!!!!!!!!!
@jeremiahbaker6396
@jeremiahbaker6396 8 ай бұрын
👏🏿
@RAYTHYuen
@RAYTHYuen 8 ай бұрын
Shit video
@diy_nailsby_heidi_r3889
@diy_nailsby_heidi_r3889 9 ай бұрын
The suture thread is very hard to see against the background color.