She is now the longest living Glioblastoma survivor! This she celebrated 20 years!

@@NFCR excellent, thanks.

let me also add that in 2015 as I was having vision problems in my right eye I kept seeing eye doctors until I was sent to an eye doctor at Cole eye institute at Cleveland Clinic. Eventually that eye doctor ordered an MRI for me to eliminate unusual possibilities (he said don't worry about it it's unlikely). Well, unfortunately (or fortunately) they found a large tumor on my brain stem basically inoperable. It took them a while to determine what kind of cancer I had. I had a spinal tap but those results didn't reveal anything. They were talking about doing a brain bioposy (which is risky) but my eye doctor talked the other doctors in doing a vitrectomy (removing the fluid in my right eye). That was done (who likes having someone doing a procedure with a needle on your eye while awake (in twilight sedation). The fluid had the lymphoma cancer cells in it and that was how they identified it. I am very grateful for my eye doctor and the excellent call he made. I think the other doctors there respect this eye doctor which was an impression I got. So I'm just adding this to say it's a process to figure out what's wrong with you and then determining a best path forward.

And to add another piece of information on my specific circumstances, I have a family history of autoimmune diseases. My only sibling (brother) died in 2004 at age 52 from complications from Type 1 diabetes he got when he was 5 years old. My father died from complications from having severe Rheumatoid Arthritis to the point he was completely bed bound towards the end. And then I got Crohn's disease as previously mentioned around the year 2000. So just to add a little history here.

Another thing as I recall I was having cloudy vision problems in my right eye and when I closed my eyes I saw an odd pattern like tendrils going to a center point. It was odd. I had this vision situation for I think like 2 years prior to my diagnosis and I felt increasing drawn and listened to the Christian radio network called "family radio". I liked listening to the stories although I'm not particularly religious it still gave me comfort. Maybe my body was telling me something or maybe something else I can't explain was calling me. They say there are no atheists in a fox hole. I have to agree with that and I can hope everyone has a strong social support network. But in the end it's just you and your maker. I have not felt this "closeness" for the last few years and it kind of feels a little like a "loss" but occasionally I remember and tune in the radio/internet in those times to get that comfort.

One thing I would also mention were some early symptoms I had and how quickly they came. I had mentioned the hazy vision in my right eye that was my initial symptom and I had that for quite some period of time. So in late January of 2015 I gave a 20 minute presentation of my technical work at a professional conference. Up to that point I had no cognitive problems except odd episodes of confusion if drank too much of a liquor I had been given as a gift and later decided I liked it. And I was a little bothered by it but chalked it up to alcohol. But by mid February or early March I was suddenly having more difficult problems. I started having trouble getting to work as I nearly got lost over the following weeks(s) or so. I believe there were some other lapses and symptoms too that I don't specifically recall. I also had the eye doctor appointment at the Cleveland Clinic Coel eye institute and I seem to recall that the vision in my right eye had gotten worse. I had previously seen this doctor and he was giving me eyedrops for possible UVeitis. On that visit after my technical presentation in Florida I saw the eye doctor again (regular follow-up appointment from the eyedrops). The doctor noted that the drops did not seem to be improving my condition. He then said "Lets eliminate unusual possibilities". He wanted me to take an MRI as a precaution but said don't worry about it because it was an unlikely possibility. Well, I had the MRI and was called to see the doctor about the results and to bring someone with me. That part I thought was odd but I got my brother-in-law to take me. That's when I met the eye doctor and another doctor he introduced and said they wanted to talk to me. The other doctor turned out to be my future oncologist. Well of course I was devastated by the news that the MRI showed a brain tumor. And while it was a tumor of some kind (and larger than average---fortunately there was already a lot of empty space up there to take up the growing tumor mass ;) ). After that everything was kind of a blur. They didn't know what kind of cancer it was. I think I mentioned this previously. It took several tests including a spinal tap that led up to the vitrectomy my eye doctor performed. This avoided the brain bioposy fortunately. The fluid they drew from my eyeball revealed the Primary Central Nervous Lymphoma. At this point it was a race to get a treatment protocol set up and the insurance to OK everything. The insurance delayed the OK (I didn't know that) and was pushing doctors to get things going ASAP. That's when an extremely tragic accident occurred and I lost my brother-in-law caregiver. I recall talking to the hospital about starting treatment which I did a couple of days after the tragic auto accident. Initially I was put on heavy steroids dexamethasone or something like that. Eventually I put on 60 lbs. and I still have most of it left on me. And I mentioned the treatment protocol previously of that being massive doses of Methotrexate and other drugs. OK, I just wanted to add a little color to the previous post.

And one last weird thing I want to mention. One of the odd symptoms that was also going on were things like losing the ability to write the number 7. Sounds simple unless you get a brain tumor. Writing letters and numbers got a lot more difficult yet I was able to still touch type (never all that good) without any problem. That was great as I was a technical writer of the computer work I preformed. So I was still able to work (largely for) the whole time I was under chemo either teleworking from my hospital bed or when I was between chemo cycles back at my workplace office. Just wanted to add that personal experience as everyone's experience will have its quirks along with the devastating experiences this disease can cause.

He was only 30 yrs old ! CANCER came out of the BLUE !

And heart blockage . I wish I had people for suport. God bless

Techno?

Stem cell transplant ki jaruri hai. Kitna successful hote hai

​@@somnathmukherjee8861aap bhi india se he

What where the symptoms

My niece...40. 3 children. Living in Germany and Italia...2019....tag bei tag....kinder.l2, 10, und 5.....so it is...