Извинете не разбирам много английски,може ли някой да ми обясни,калвонвсъщноат се случва с това момче,има синдром на орел или гласофарингеална невралгия,не разжрах а ми е много важно

I really appreciate you sharing your journey. I turned my CT scans into 3D images and discovered that I have calcified styloid ligaments on both sides. (At the time of the CT, the only symptom I had was vertigo.. no facial neuralgia stuff like I have now). This is crazy though.. I cant imagine going years like this. I now have progressed to have all the symptoms you have described... just on one side. Trouble swallowing, burning and stinging sensation, constant pressure in my neck and jaw, now cramping in my neck and shoulder. Esophogeal spasms.)

All the way from south africa, I've had this symptoms for 4yrs now been up and down trying to find solutions doctor told me it (eagle syndrome) painkillers are not working just tired of everything

Sincerest THANKS for sharing your symptoms and journey. Really appreciated it!!

Who did your surgery for eagles syndrome I heard there’s only one surgeon is in LA with dr Osborne

I have the same prsince 10years

Hi

I pretty sure I have this tooo

That calcified bone is a torn ligament that ligament is connected to your hyoid bone and is trauma related. Check your neck C2 and C3.

How are you now?

Ian como estas ahora. Estoy realmente preocupada. Paso por los mismos sintomas que tu

What’s causing the depression? Is it the pain?

Hola quisiera hablar contigo. Y saber como estas ahora. Encontraste algun medicamento que te ayudada. O tuvo cirugia. Ojala pueda ayudarme. Estoy asustada

Chicos alguien encontro cura al dolor.? Que tomaban para el dolor. Justo estoy pasando por esto

Tooth analogy was perfect way to explain it.

I’ve been diagnosed with Eagles Syndrome. My jugular vein is compressed. The only symptom I’m aware of having is ringing in the brain 🧠. All thoughts and comments welcome

What the hell is this? I do not see the vessel which is compress the nerve !

Hey man can you reach out to me please, got some stuff to ask you on this

I can't help myself but wonder if this is my problem. My symptoms include throat pain, or a dry and irritating (sometimes burning) feeling, which grows especially when I use, and after I use, my voice, for almost 3 years. In the beginning also some hard difficulties swallowing (that's better now, but I still have problems with some things, like beer and soda, feels kinda like swallowing glass). Tho what struck me is that people with this diagnosis only have pain on any specific side? I don't have that. And also my "pain", or whatever it is, is constant in general, not in "attacks". Would that mean I don't have it and shouldn't even bother?

God bless you brother!!

Brother!! I want to talk to you about this, can you find me on Instagram and or Facebook? So we can talk, thank you.

thanks for posting this. i was recently diagnosed with glossopharyngeal neuralgia. it's been brutal bro. how did your surgery go? have you been pain free since the MVD surgery? is there a reason why you had to get the bone taken out too for eagle's syndrome?

You have no pain now?

Wondering how much eagle syndrome surgery cost you in the US as I’m Canadian and would have to pay out-of-pocket also the MVD surgery if you don’t mind sharing the cost on that thanks Dahlia

You are a warrior..i admire your strength and courage. Thanks for sharing your story.

kzbin.info/www/bejne/eqioYWeForWinpo

What testinf did u have

What testinf did u have

Ian, brother I am soo sorry you had to go through this, our medical system is beyond broken!! Your experience was exactly prove. I want to talk to you, add my Instagram or Facebook.

Did the surgery work? are you pain-free?

Any updates?

Is there a video of all the symptoms you’ve had?

You may have had chronic pain from the eagle syndrome which cause mind body syndrome and then after the operation the pain persisted despite the issue being repaired. www.bch.org/documents/Intro-to-Neural-Pain-Pathways.pdf

Yesterday (4th oct 2019) I got my elongated stylohyoid process surgeried. Dr. Shahoun did it from back of my ear instead of the inside of my mouth cause mine was broken and moved toward my neck in fact an other doctor has broken when he was trying to touch it with his finger from inside of my mouth. Its second day after surgery and my left eyelid n left lips are numb n dont move. Will they get healed? Im really afraid

I’m going through the same thing no doctor wants to mess with it

Thank you so much for this video! I think this is what I'm going through. Same symptoms and same exact story... feels like I'm going around in circles. I can't believe you dealt with this for 8 years :'-(

I think I have this. I got these symptoms two days after my daughter got the flu. I was thinking I had cancer but I got a scope and they found nothing. Does drinking alcohol make the pain worse?

Hi Ian: thank you so very much for your informative vids. I am so happy you listened to your self. You intended them to be helping other people having Eagle Syndrome, what you don't know is that you have helped lots of medical students put a face to their books. Also, an educational moment for those unbelievers! Big time! Especially those doctors who nick named it "suicidal syndrome", I think they should take the option. One doesn't have to have gaping, bulging, bleeding, broken wounds to be believable. The body is such a precise and meticulous art that a tiny bit of abnormality causes havoc. I really really want to know how are you doing now; 6 years after it. please update. Also, how is your son doing?

Well at least there’s a smile on your face. I pray that it works for you. I’m searching for my 16 year old son who’s complaining of pain when he swallows water. He also has Chiari Malformation which I’ve seen on line that can cause this pain. I’m searching for answers too. He’s had a decompression surgery on his brain because his brain was sitting on his spine. I’m going to keep watching your progress. 🙏🏾

Hi Ian, Ive had 3 surgeries and it has not been successful. Ive had two MVDs and styloidectomy. If you get this do you have an email so I could get information from you. I think we're located pretty close to each other. email: [email protected]

Thanks for sharing. I'm still trying to get a diagnosis.

I know this video is old but did you ever recovered from Your symptoms and if you did what was the problem?

Bro Thanks for everything, we live so far but have so similar stories

i just cannot say how much thankful i am for your video, exactly same symptoms at the exact same location you described and i do exactly the same things that you do.... I am now 99.9999% sure i have eagles

Is your pain any better ?

thank you for sharing this ! I have been feeling the same thing for years ! I have gone to my doctor, ent and dentist multiple times and all they would say is its tmj. I literally knew in my heart it wasn't. I am going to go talk to a doctor about eagles syndrome soon.

Wow, I've been so happy to finally be diagnosed with the eagle I never thought I might have two separate issues but now realize I have both of these issues. I was just assuming my left side was affecting my cervical spine and the right side mostly affects my face, ear and throat. I have had most of my molars removed because of the throbbing. I do the same thing as you everyday...digging at my jaws! As far as I can pinpoint it, I have been suffering for 20+ years with this. Please make an updated video when you get a chance. I am lucky enough to live in Oklahoma and have been told the ENTs at the University of Oklahoma Health Sciences Center have experience with the eagle syndrome. I have an appt with the neuro the end of June. I have not had my CT scan yet, but got to finally see what has been plaguing me all this time on a radio pan-am at my new dentist office. It showed very clearly on that "scan" with the striations on the ligament and everything. I know there is a long road ahead, but at least I know I'm not crazy and there is hope!!!

I’ve had these symptoms for at least 2 years, but they weren’t too bad. The past year it’s been really painful & annoying. Kept palpating left side of my neck, under the ear, and rear floor of the mouth -- it’s sore, and really hurts when I turn my head, but no swollen glands or lymph. I’m seeing my dentist soon and will mention the styloid bone area. Thanks for this video, there isn’t much info out there.

I'm going through the same thing. Have been in so much pain for so long then all of sudden the pain increased ten fold. Went to various docs past 2 days and called but all refering me to others. Now waiting to see someone else that no one's knows if they can help while pain goes uncontrolled. Neuro just prescribed gabapentin tonight. Trying to remain hopeful but this is going to be a hassle. Thanks for the video though makes me feel like I'm not going crazy.

Hi Ian. My name is Racquel. I've been through all the pain you have gone through. I have been following your posts. I recently had glosso pharyngeal neuralgia surgery. Mvd.....unfortunately it didn't help my pain. Now we think its Eagle Syndrome. Do u know if its hard to find a surgeon who performs styloidectomy. Your right about getting rest in the hospital. It doesn't happen. I'm happy the Dr's figured it out. It sounds like it worked. If you don't have pain in your throat or ear then it worked. Thank you for all your posts. I know you have gone through so much bullshit. I've been suffering with this pain for 14 years. As you can imagine I just want it fixed & be happy & get my life back.