Demystifying Access to Treatments
54:14
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@davemorse8511
@davemorse8511 4 күн бұрын
Thanks for that, very informative, I understand a lot of things now. 😊
@miguelinaburgos1969
@miguelinaburgos1969 5 күн бұрын
El abuelo de mis hijos,murió de parkinson,y la madre de él también,por eso ,me preocupa que mis hijos lo hereden
@donaldeidman6676
@donaldeidman6676 18 күн бұрын
Thank you DrDavid Shprecher you have been so great....
@donaldeidman6676
@donaldeidman6676 18 күн бұрын
So suspected PK without expected response to CL. We tried the myobi and it actually made her worse. She actually responded once to a cueing from a guitar tuner with a beat maker/ vibration one day at which time she had remarkable temporary gait. her > sxs is freezing of gait. Since then I have not been able to reproduce this. Often wonder if the CUE1 avaILavailable in the UK could benefit PSP? or even Dr peter Tass Gloves?.
@akqt1
@akqt1 19 күн бұрын
This is a very informative video. Thank you. My husband had DBS therapy April 2023 @ UCSF in California. It has definitely been a life changing experience for him. We are ever so grateful for this technology and to those who pursue, research and perform this amazing work.
@bobmorgan9304
@bobmorgan9304 21 күн бұрын
Thank you very much Dr. Shprecher. Your analysis of difficult diagnosis is very clear. A very challenging clinical diagnosis. Is is common in Atypical Parkinson's to have a tremor on one side with bradykinesia present on the contralateral side?
@angelessanchez4093
@angelessanchez4093 23 күн бұрын
Muchas gracias excelente tema. Debemos combinar los 4 tipos de ejercicios empezar con nivel principiante e ir avanzando según el desarrollo de la fuerza y masa muscular
@lavontolbert3864
@lavontolbert3864 Ай бұрын
Wishing he could use brand names instead of these numbers. I’m new on meds and trying Rytary.
@maryhatleymeyer
@maryhatleymeyer Ай бұрын
Our Movement Disorder Specialist seems to have lost interest in treating my husband as he has progressed into an advanced stage. He isn’t interested in trying to make him more comfortable, any therapy, trying to adjust meds. Our doctor just suggests there’s not much that can be done, refers us to palliative care, which was only interested in us filling out forms to not resuscitate or intubate. He has ended up hospitalized twice in two years for an extended period which was terrible. Hospital standards whether you’re a Parkinson’s patient or not , can give a Rx dosage one hour early or one hour late, which is horrible for a PD patient. My husband each time came in to ER as he went into a decline where he was deteriorating in his ability to walk, and having new onset of psychosis. The only help we got from our Movement Disorder Specialist, was to increase Sinemet intervals and introduce, then increase the antipsychotic Seroquel (Quetiapine), which is an antidopamine. Everything just got worse, no troubleshooting, just told this is late stage and there’s palliative care, which seriously turned out to be a bridge to hospice. Very disappointing. I wish there were more Movement Disorder Specialists available. They are in short supply, so it’s hard to even get in for an appointment, and since the pandemic, they really prefer video appointments which don’t feel adequate for evaluation. Sorry, had to rant. It’s so depressing as a caregiver. 😢
@deborahkn1114
@deborahkn1114 Ай бұрын
Well. Guess my part D insurance will dramatically increase! Only $7 per month now. Monthly scripts cost $0 at the pharmacy. HWP’s is pretty cheap too and monthly meds are low costs at the pharmacy. Wonder how much of a shock it will be?
@tiffmacf3816
@tiffmacf3816 Ай бұрын
Where can one get a genetic test for Parkinson's?
@AnnAndrews1990
@AnnAndrews1990 Ай бұрын
I am very interested in this and would like to see the mentioned KZbin video.
@chansonjoy
@chansonjoy Ай бұрын
so if you disclose your condition in DMV, and something happens, it's not your liability?
@ohblimey21
@ohblimey21 Ай бұрын
Good try by this doctor but I think he’s way off the mark. I sense it’s much more to do with the fact that our mitochondrial function is severely compromised. These are the generators of energy and if they can’t rid themselves of waste then they can’t generate energy. Fasting is probably the solution as well as exercise.
@mariamontesinos5319
@mariamontesinos5319 Ай бұрын
Gracias ! Ayuda mucho con mi Párkinson!
@roscoro
@roscoro Ай бұрын
Gracias a PMD Alliance y a Clemie por traer esta información tan importante para todos.
@lavontolbert3864
@lavontolbert3864 2 ай бұрын
Did he say sinemet is the worse levodopa?
@juansandino3472
@juansandino3472 2 ай бұрын
Excelente
@juansandino3472
@juansandino3472 2 ай бұрын
Cuanto cuesta la operacion
@carlliano6295
@carlliano6295 2 ай бұрын
I’m a drummer, over the last 2 years I noticed my left arm was losing coordination speed and velocity. I was recently diagnosed with Parkinson’s. This explains what’s been happening with my left hand/arm and why I can barley play a drum role like I used to.
@suecurious2293
@suecurious2293 2 ай бұрын
Excellent video, thanks. Could please post links to those in this series?
@JimmyLuckwood
@JimmyLuckwood 2 ай бұрын
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on KZbin cured my Parkinson Disease with their PD treatment protocol🌱🌱🌱..
@duncanmcmillan3424
@duncanmcmillan3424 2 ай бұрын
Very well explained / clarified in overlap vs cardinal features of the various Parkinsonisms
@rn5992
@rn5992 3 ай бұрын
I hv a cyst in pitutary gland, a bunch of symptoms from yrs togethr. Inappropriate sinus tachycardia with pots, probable autonomic dysfunction wid suspected case of autonomic neuropathy. Hv a bunch of symptoms the most terrifying being eye imbalance, vision issues, gait issues, severe bone pain n much more. Rhomberg is positive. Neurologist says its vestibular dysfunction. Have hypertension from two years now. Cant take beta blockers as its giving chest heaviness n breathlessness. More of postural hypertension. Hv been advised pet ct scan to rule out paraneoplastic lesion. How much is pet ct helpful in movement disorders??bp kind of shoots all of a sudden
@deniseanzaldi5316
@deniseanzaldi5316 3 ай бұрын
This was an amazing lecture.. I’m an OT and this was a very educational breakdown of how to document what is happening to our patients
@AFAblacksheepAFA
@AFAblacksheepAFA 3 ай бұрын
this is so promising for People with pd. Thank you all for saving our lives.
@AndreRusso-s2z
@AndreRusso-s2z 3 ай бұрын
So, the botulism toxin, one of the most toxic elements known to man, itself induces 'movement disorders' like Tardive Dyskinesia, yet - as a treatment - more botulism toxin is suggested. Americans who would fall for this, have to be some of the stupidest people to walk the earth in 6,000 years of human history.
@GumriRN
@GumriRN 3 ай бұрын
Okay, where is I’ll “Drop a link to his book”?
@shaynadavidovhansonrealtor
@shaynadavidovhansonrealtor 3 ай бұрын
Need help finding a “Dopamine Agonist” that doesn’t have the side effects like C/L. What else is out there to stimulate Dopamine - without the mania, constipation and nightmares? Mucuna and B1 ( maybe not taking enough) don’t seem to be doing enough and the C/L causes other awful, debilitating ( nightmares, etc) side effects in my HWP.. But w/o the Dopamine Agonist, they aren’t as active and not wanting to do as much.. Anyone have experience w / Selegiline? Doing Mucuna, L-Dopa, L- Theanine and B1- but not making a dent yet. Am I not giving right iteration or dosage? Thanks in advance🙏🏽
@rosaalbarracin9799
@rosaalbarracin9799 3 ай бұрын
👍👍👍👍
@franciscojavierguzmannunez1535
@franciscojavierguzmannunez1535 3 ай бұрын
Hola. Padre tiene Parkinson y cadabes que almuerza le baja la presión 95/55 ejemplo. El es hipertenso y toma 1/2 pastilla en la mañana y en la noche. ¿es parte de la enfermedad ?
@mandingcelticstrings
@mandingcelticstrings 4 ай бұрын
I am musician and this description of this problematic/s synthoms with my right hand is/are 100% precise... I have antiphospholipid syndrome and seems bradykinesia is a symthom of my desease. They diagnosed me focal dystonya but I always feel it was not that.
@keitymarley733
@keitymarley733 4 ай бұрын
My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌..
@amandatyler3485
@amandatyler3485 5 ай бұрын
I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements.😊
@Jake_Plissken
@Jake_Plissken 5 ай бұрын
Muscle Fatigue (extreme exercise intolerance type) Treatment? Try NMN (Nicotinamide Mononucleotide)!
@Jake_Plissken
@Jake_Plissken 5 ай бұрын
Muscle Fatigue (extreme exercise intolerance type) Treatment? Try NMN (Nicotinamide Mononucleotide)!
@susancrumb5654
@susancrumb5654 5 ай бұрын
Does Levodopa stay in the brain of a person with cervical Dystonia Vs a person with PD ?
@mikekelly6005
@mikekelly6005 5 ай бұрын
I have just recently been diagnosed with PD. Mild symptoms but nonetheless annoying. Thank you for all this great information! It makes me a lot less depressed for sure!
@hawigebretenesaye2257
@hawigebretenesaye2257 5 ай бұрын
I am from Ethiopia.I have functional movment disorder.Wold you say something about this
@adrianasilva702
@adrianasilva702 5 ай бұрын
Es tan importante tener estos conocimientos, mismos que nunca había oido de un médico a sus pacientes, los felicito, Dr. Dr. Michael Alosilla Neurólogo, Es un gusto escucharlo , su explicación es muy clara y profesional
@keitymarley733
@keitymarley733 5 ай бұрын
Parkinson disease is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms completely💯…My Dad is well again.’’
@mariablanco2100
@mariablanco2100 5 ай бұрын
buenas tardes 🇻🇪. Xr está hora sufro muchos dolores en las piernas.el levodopa cardidopa. no me hace nada..ssufro. no se si aguanto..
@keitymarley733
@keitymarley733 5 ай бұрын
Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain😊”..
@keitymarley733
@keitymarley733 5 ай бұрын
Parkinson disease 🦠 🦠🦠is a very terrible illness, my Dad suffered from it for 19 years until we finally got a help and a medicine from Dr Madida that truly works that helped treat, cure and reversed all his symptoms…”My Dad is well a gain😊”..
@laurencekimberley2791
@laurencekimberley2791 5 ай бұрын
I have a watch that measures body battery and my fatigue correlates with my fatigue and could be used to diagnose and treat
@fupaca
@fupaca 5 ай бұрын
muy interesante y muchas ideas de como mejorar la voz y el cuidado de la misma. Gracias lo comparto en la pagina de la fundación
@annb5610
@annb5610 5 ай бұрын
In San Diego I have seen no African Americans at All in my appointment or nurse or therapy or anything. Plus no one discusses women with menopause.....
@AlejandroCamacho-q6k
@AlejandroCamacho-q6k 5 ай бұрын
😄😄 exelente informacion, gracias
@AlejandroCamacho-q6k
@AlejandroCamacho-q6k 5 ай бұрын
Tengo parkinson fui operado el pasado noviembre del 2023. solo me implantaron un electrodo para estimular el lado izquierdo. aun esta pendiente otra operacion. gracias.
@SanjivaniThakare-v3w
@SanjivaniThakare-v3w 5 ай бұрын
Bullshit