Never in my life did I expect i'd ever see a surgery hype/thirst trap edit

I love this my son has the same syndrome great job Owen

Where you have been diagnosed.and what was the cost for the treatment. My son also suffering from congental orthogrophys AMC. With bruck syndrome 2. Is there any possibility of recovery.we are from India.

"My son has arthrogryposis. How can I get treatment for him with you?"

مساء الخير رجاءا سيدي كيف يمكنني الحصول على هذا الدواء ابنتي تعاني التقزم وانا من الجزائر وهذا الدواء غير متوفر عندنا رجاءا ساعدني

Thanks for this video .

❤

My brother is larsen syndrome disease also .but he cant work like that because of financial problem..im here in the Philippines

Very good Bravo ❤️❤️

By this video i get much hope for my son thank you so much doctor, will you please make more video on "how many problems are related to these patients like respiratory problem, speech or hearing?

My baby head size is 35 weeks and hl fl is 31 weeks , dictor said its skeletal dysplasia, is it too short hand and legs? How much short it is

❤❤❤❤❤❤❤❤❤

Does anyone know how you know if you have this problem

Great job! I’m new here. My nephew was born yesterday with this condition and it looks pretty severe. Your content has helped ease my worries for him. I know we’ll face some challenges ahead, but it’s going to be ok. Thanks for sharing your journey! 🫶🏾💐

Thank you, Dr. Feldman! The O.I. community appreciates the work you do! #OILife

What a beautiful little one my grandson was born with the same thing he's eight now with know more plaster paris or splints and runs everywhere god bless ❤❤❤

Hi, I am now a mom of 4 homemaker homeschooler homesteader and I also have AMC I am reminded. Of my little sky watching her!! Be encouraged mom, she can do more then most think, let her try anything and everything she'll learn how to do things in a different way God bless you both

Can you help me please, I’m from Paraguay God bless you

You got it girl. 👍🏽

Voxzogo adult height increase can possible

Doctor feldman you are an angel and god messanger

I am from very poor family

Hallow i am from Pakistan i have achondroplasia please help me

can u share latest video..how z she now

I'm an AMC patient and I walk just like her but a little more stable in walking...

your awesome!

Will this ever be to be able to be given like a epi pen ?

I miss Jeff ngl. He was the best

Thank you for this❤My daughter was diagnosed with Amyoplasia congenita disruptive sequence, She is very stiff on her shoulders down to her fingers 😢the is no movement but also has clubfeet accompanied by a dislocated hip but she is moving her lower limbs.

That's awesome, she has come along way. I'm so happy for Aubrey.

My baby just 2years old..amc patient.please explain this treatment

My son is believed to have arthrogryposis in his left shoulder only. He has 50% less muscle in his left shoulder /bicep / tricep than his right side. It was believed until yesterday that he actually had a LOBPI. I don’t even know where to begin with this??? He has no contractures and his shoulder is loose but no movement. Emg & mri / ultrasound of the plexus shows no injury

Hola q operación tiene en la mano?

Dr. Feldman great video! I do not know if you remember me but you did a couple of my VEPTR surgeries back in the early 2000 with Dr. Van Bosse, hope all is well!

Hey man, do you also see adults? I'm 23 and affected in arms and hands.

Really appreciated 🙏🏻🙏🏻 please guide me same issues has my son😢😢multiple congenital problems sir please we need your help🙏🏻

Can you please help me or suggest what kind of treatment we can do

i have arthrogryposis so dont feel alone ive gone through that before

My nephew was born with this and my sister was a a single mom so they lived with us.. we were fortunate to have access to Boston hospital and specialists from around the world to come there and work with him but he’s 26 now and social media didn’t exist when he was born and very few people that they could refer us to for support so I can’t tell you how great these videos are and so important for parents and children with it so they don’t feel so alone … ty!!!

Thank you for helping me I really appreciate it if you’re wondering who am I’m James Clemons

Is there something you can do for people who are born with arthrogryposis

How old was she when the surgery began?

👍👍👍👍👍👍👍

6 months old baby ultrasound normal.x ray shows little bit shallow..they advised brace..will it correct by brace

Hello From Philippines my son have ACHONDROPLASIA

The Price of this medicament please???

Doctor . Can Apifix work for Scoliosis S?

Eradicating dwarfism?

And I appreciate your last sentence, to the parents. It's important parents invest in the healing and treatment so that life can become better for the child.. I wish my parents would put more effort on physiotherapy etc.. I can barely move my feet/toes but this gives me encouragement that maybe I can still improve my situation at this age too..

Hi there thanks for your informative information. My unborn daughter has just been diagnosed with Achondroplasia. I will be fighting tooth and nail for her to receive this treatment, hopefully from age 2 onwards. I am in the UK near London. Is there any further information as to when this may be available here? Me and my partner are even willing to move abroad to gain this treatment. But are hopeful that it will be available here before 2024 when she is 2. Thanks.