Managing MS Over Time
31:43
2 ай бұрын
Pathways to Cures Roadmap Update
1:20
Curing MS Takes a Global Effort
0:54
Understanding Your MS Journey
22:57
Пікірлер
@ALRR13
@ALRR13 11 сағат бұрын
❤❤❤❤❤
@BunZen
@BunZen 17 сағат бұрын
My mood become unstable during school times, thats school is not very good to be honest, also classmates are too different from me so i cant make friends with them and almost dont talk to them. But when theres no school theres almost no mood swings, but some strange bad things still remain for some reason
@1dilligaf
@1dilligaf 2 күн бұрын
I thought MS was just a crippling disease. My wife got it now that it’s too late. I have researched and understood a lot about it. I thought She was just miserable and miserable and moody and after she ended up leaving, I started researching MS and found out how wrongit cost me everything. I wish I had been smart enough to research it in the beginning before she left.
@beldiaz4761
@beldiaz4761 3 күн бұрын
En Argentina ya salio este procedimiento? Esta bueno. Yo tengo esclerosis múltiple hace 10 años y lo llevo bien gracias a dios, pero estoy cansada de tomar medicación.
@DM12128
@DM12128 4 күн бұрын
Reminder that in the US, this is a schedule 1 drug. What a ridiculous categorization.
@heidirexin5141
@heidirexin5141 4 күн бұрын
Most unhelpful video ever. She didn't answer the question.
@cbrisalchemist6887
@cbrisalchemist6887 4 күн бұрын
😮 if this is the natl ms society nonanswer I’m concerned.
@Artichokeme90
@Artichokeme90 4 күн бұрын
🧡 Diagnosed in 2011. My daughters and close friends walked with me last year among so many other fighters. #curems
@yselanavarrette3010
@yselanavarrette3010 4 күн бұрын
I wish they mentioned blindness and vision loss. No one ever talks about that.
@victoriadiazmateo8863
@victoriadiazmateo8863 6 күн бұрын
Muchas gracias y que debo hacer si tengo esclerosis múltiple
@cristianvilugronmontero3515
@cristianvilugronmontero3515 9 күн бұрын
Tiene que ver con el tdah en sentido de la enfermedad En relación a la dopamina serotonina?
@esty6374
@esty6374 9 күн бұрын
I’m so sick of identity this that and the other. We all have it who cares what color we are.
@gracesilpe6039
@gracesilpe6039 10 күн бұрын
Can this be watched online?
@_jmeg_3436
@_jmeg_3436 11 күн бұрын
"Very hard to treat." Yeah, no kidding.
@baronghede2365
@baronghede2365 11 күн бұрын
Look into lion's mane mushroom as well.
@baronghede2365
@baronghede2365 11 күн бұрын
Try the Mediterranean diet, use Herb's like turmeric, ginger and Asian ginseng and speak to a chiropractor.
@Shane7787-b7w
@Shane7787-b7w 12 күн бұрын
I'm crippled hand pain feet pain burning sensation my hands feet buzz cramping sharp feeling so tired all time don't know what's up with me I'm waiting on my results from a brain and spine MRI could mine possibly be ms from the symptoms I have ?
@grifter_alert
@grifter_alert 17 күн бұрын
🃏
@lynneheal-xc2qg
@lynneheal-xc2qg 19 күн бұрын
A cure will never happen because the pharmas make too much money .Please watch Living proof with George Ebers and Matt Embry MS truths.
@killa_kam3992
@killa_kam3992 19 күн бұрын
Brain surgery???? Wow that’s so good you’re def giving me confidence again!!! This is my second time learning to walk again. I want to share my story ❤️
@Vicky-j6t9s
@Vicky-j6t9s 22 күн бұрын
The donation drive and money raised is never enough. A patient cured is a customer lost!!!
@Vicky-j6t9s
@Vicky-j6t9s 22 күн бұрын
A patient cured is a customer lost!!!
@imkrw
@imkrw 22 күн бұрын
Sorry that was not very helpful…. Dizzy is the usual explanation, whether vertigo or not. MS causes dizziness. Why make it questionable. An MS er would use “dizzy”. Very understandable for an MS patient!
@malfano64
@malfano64 27 күн бұрын
Going on 20 years in 2025, I'm a fighter and will never give up.
@meshiabean2865
@meshiabean2865 4 күн бұрын
Same 20yrs for me also🧡🧡🧡
@ruthranilla1553
@ruthranilla1553 29 күн бұрын
La Esclerosis múltiple se hereda???
@josephinej2826
@josephinej2826 29 күн бұрын
Wow! This is so phenomenal to hear all of this progress through the wins!! I've had MS since 2009, so I was just joining high school. MS has been very very tough for me in my life, both physically and emotionally. You go, Tara!! <3
@ctjmaughs
@ctjmaughs Ай бұрын
Would like better care from neurologists
@zinouzin1951
@zinouzin1951 Ай бұрын
مرحبا اني مريض بل ms وقدمي الايسر اصبح ثقيل ولا استطيع المشي هل تنصحيني بدواء يمكن أن يعد لي القدرة علي المشي
@Vicky-j6t9s
@Vicky-j6t9s 14 күн бұрын
There words are empty like fluffy clouds with no rain. Don’t expect a reply unless they asking for your money and donation and it related to that.
@ctjmaughs
@ctjmaughs Ай бұрын
I sleep the entire weekend
@bizzybee3762
@bizzybee3762 Ай бұрын
Dr. Terry Wahls MD she cured herself of our mess. Yes it’s Possible. Read her book the Wahls protocol.
@flornovoagordillo2352
@flornovoagordillo2352 Ай бұрын
Una amiga tenia esta enfermedad y un medico cubano la curo aca en Colombia con: un pescado bocachico diario con escamas y agallas , bien lavado y cocinado en expres por 20 minutos, se licua y se cuela luego se cocina en un pocillo de agua una zanahorias, espinaca con tallo , avichuela y cilantron; el licuado se agrega a las verduras y a comer por 10 días y descansa 8, luego se repite
@nikki09918
@nikki09918 Ай бұрын
I am so glad I found this channel. So many questions I have as the parent of someone with MS.
@nationalmssociety
@nationalmssociety Ай бұрын
We're glad to have you! You may find some of our resources on Families Affected by MS helpful: www.nationalmssociety.org/es/managing-ms/living-with-ms/relationships/families-affected-by-ms
@brianonthewater
@brianonthewater Ай бұрын
Love this. We are creating a nonprofit to empower people with ms. Stories like this are what inspired me to create the foundation.
@Martina-gg6gc
@Martina-gg6gc Ай бұрын
Disappointed meat + dairy was not discussed. Please can they be spoken about next time. Thank you.
@enmsalah50
@enmsalah50 Ай бұрын
Hello! Nice to see you! I wanna ask about optic nuritis in MS. is it fully recovered? Thank you.
@EMES365
@EMES365 Ай бұрын
Mine has not fully recovered. Symptoms come back frequently. Mostly feels like somebody's ripping my eye out from the back, it's swollen a lot. Lately everything is kinda dim and if I looked Far left or right, I get these yellow Half Moons on the side of the eye I am looking away from. Photon brusing.
@luismanuelortega2794
@luismanuelortega2794 Ай бұрын
Mi esposa llevaba 30 anos con esclerosis multiple, me puse a estudiar de la enfermedad y haciento ciertos cambios en su estio de vida, lleva ya 3 ano libre de la enfermedad y sin tratamiento
@janecurrie6794
@janecurrie6794 Ай бұрын
A cure would mean i could say goodbye to the electric wheelchair. I could then attempt aspiring to previous lifestyle minus 10 years. I could travel and socialise. However, at my age, 70, there is little to no hope of this. I will try and adapt to my lot.
@PoliticaV
@PoliticaV Ай бұрын
😢
@Fatamus
@Fatamus Ай бұрын
That would be one less thing to worry about. After Seven major spinal surgeries, PMR and MS I’m still kicking back. Took me a month to put chains ⛓️ on the old motor grader and plow the driveway. I have to say the driveway looks good. I try to make videos of working on and running old equipment but that can get exhausting. Still moving (slowly) still sore (always) and still ☺️ loving life and I’m still just as hard headed as I used to be. 🤨 I don’t know how to think otherwise 🤔.
@christophergerard6433
@christophergerard6433 Ай бұрын
A cure to this disease would mean I would be able to walk again I would be able to do everything
@Lollol-um1ko
@Lollol-um1ko Ай бұрын
Arturo I’m 22 years old from New York I have RRMS been diagnosed since August but first feelings started on January not easy at all but after I started with my infusions (ocrevus) it help me alot with my balance problems
@therealctk700
@therealctk700 Ай бұрын
Tc speaks
@irgendwerausirgendwo851
@irgendwerausirgendwo851 Ай бұрын
"I've never been so grateful to be in pain again". Jesus Christ, this is such an awful sentence. I feel so bad for her.
@bradtaylor4765
@bradtaylor4765 Ай бұрын
So what supplements, bee-och. I’m in a lot of pain over here and ready for some damn help
@peterquennellnyc
@peterquennellnyc Ай бұрын
What do you have? If its nerve related try tiny doses (really tiny so you dont get the red flush) of plain niacin (not niacinamide or no-flush niacin) several times a day. Benfotiamide too relieves nerve pain. ADDED: Also serine.
@bradtaylor4765
@bradtaylor4765 Ай бұрын
@@peterquennellnyc They say it's neuropathy, but I'm not really that confident with doctors. My legs hurt constantly and my feet. I hurt my back decades ago, so there's that, too.
@peterquennellnyc
@peterquennellnyc Ай бұрын
@@bradtaylor4765 Yeah pain in that area often is neuropathy. I had it but fought it back. On the painkilling side I'd try some of the amino acid serine; there are online explanations of how it works. Next, as neuropathy means the nerves have lost their "sheaths" through pre diabetes, or cholesterol, or inflamed veins, depending on which of those, there are a whole of supplements (vitamins, herbs, minerals, especially aminos) you can rotate through to build it back. Alpha lipoic acid is a must regardless, also tiny amounts of silica and copper now and then, also daily lecithin and benfotiamine, a special kind of B1.
@peterquennellnyc
@peterquennellnyc Ай бұрын
@@bradtaylor4765 I wrote a few lines but its not showing. Anyway try serine for pain.
@peterquennellnyc
@peterquennellnyc Ай бұрын
@@bradtaylor4765 I tried serine for pain and it worked. With x other ingredients I am fixed. Twice I put a list here for you but they are no-show. Good ones online.
@aal6585
@aal6585 Ай бұрын
hi ive had rrms for 20 yrs keatscunois for 10 yrs done cornea implantin both eyes operation led to glacuma where i got optic neuritis first time im Semitic saudi Arabian flesh and blood ms is inherited im stuck with gilenya for yrs gratitude to Allah for every bless when i walk i always look down afraid i fall i cant climb stairs but im not hospitalised i have good in my table fulfilling breakfast and tasty cuppa every morn