Thanks for the support!!!!

it was fun to try!

@coeja73 oh wow! Sending you positive energy. Mine went away after a few weeks.

We don't know the effects yet, but due to the radiation I am higher risk for future complications. I get routine screenings regularly to see if anything new is happening.

Yes! I do too! It's so beautiful

I am not! The goal for lupron was to create menopause temporarily. So I feel okay now.

@@boundlessintrepiddiscovery7242 would you mind answering when it reversed? I got only one shot of lupron during my transplant and it has been a year and half, I am still menopausal.

@@boundlessintrepiddiscovery7242Hi there, sorry to bother you with this topic. I am curious to know if I can recover menopause. Would you mind telling when you got your menstrual cycle back after BMT?

@@Blenduu kzbin.info/www/bejne/jJ_PpXivgNJ7qa8si=5WMX8-khx0-VcSEX here is the link!

@@jennybennett2214 thanks

why you gotta be creepy

@Violence_626 retrospectively it was difficult being in bed so long but at the time it didn't seem so bad actually

@jaxx9204 oh wow! My skin used to look that way in the cold sometimes but never as bad as this instance

It was a lovely time!

I traveled with only my backpack, so I just carried it around!

How are you feeling now?

Thank you 😋

Thanks for the kind words. And yes, I'm always anxious about relapsing. What medicine /treatment did the Dr's give you for the relapse?

Thanks for the nice comment!

Yes! They're a great snack!

@@boundlessintrepiddiscovery7242 👍

Thank you for the kind words. They mean a lot! Good luck on your journey! Sending you positivity!

Oh thats cool that you'll be at HUP! I'm glad that you'll be at a good hospital. Part of the reason I moved and stayed in Philly is to be with UPenn. & thank you for the kind words, sending you lots of positivity for your journey. <3

Yes! Before my transplant I made an Amazon gift registry for friends/family to buy from for transplant items. It helped them feel involved. Upenn suggested I bring NEW pretty much everything to avoid any germs. So I had on the list things like hats, pants, walking shoes, stuffed animal, colored pencils, shower shoes etc etc

Upenn sent out a list of required and suggested items before transplant though, so that was helpful.

@@boundlessintrepiddiscovery7242 thanks so much! Getting everything new is a big downer. But, if I must…

@Peggybk yeah! The upenn paperwork suggested it for me, but I was reading online that other people at other hospitals didn't go that far & just washed things beforehand. I think new shoes were standard across the board so you're not bringing in sidewall dirt etc. But I was also super nervous, so I wanted to do everything I could beforehand to reduce germs.

@@boundlessintrepiddiscovery7242 I understand. You’ve had a really long a difficult journey with so many things happening to you. I’m much older than you and only have to deal with the bone marrow cancer. I hope I can just wash everything. I mean, things are out in the open in stores. They can pick up germs that way, too. I can understand the shoe part, though. Thanks for replying and I hope your good health continues.

Hi! Yes, it's been almost 2 years now with Evans Syndrome, but I've been lucky and haven't had that many relapses. I haven't needed blood in over a year!

@@boundlessintrepiddiscovery7242 that's so amazing to hear! When did you know you finally needed blood? Any tips/recommendations for someone newly diagnosed?

I think it was about 1-2 weeks

Hmm it's been about a year since I had my surgery. I remember that it was a lot less painful and itchy than I thought it would be, but I think I also had a good amount of pain killers, so I wouldn't have felt much anyways. Sorry I can't be of more help!

@@boundlessintrepiddiscovery7242 No, its a big help. How about now? Do you still feel bit itchy on the area where they removed the ear pit?

@ralphmilnerrr yes, I do actually. Not very often. I'm not sure if it's a reason for concern or if it's like a ghost feeling because I'm so used to feeling liquid in it. But I also wonder sometimes

@@boundlessintrepiddiscovery7242 Yeah I can feel it now that I’m on almost my second week of post op, luckily its not worst as before and not often, there is a jolt pain for a second and it will be gone and I hope its just part of healing. Yeah and I’m used to hear a liquid like on the area and still hearing it. Btw thanks for your reply it helps a lot tbh. I cant go back to work rn yet so its kinda depressing but on the bright side when I go back to work I wont have to deal with the infection like I’m a new person again hehe.

@@ralphmilnerrr yeah! It was great to finally have the infection gone. The infection I had just wouldn't go away.

Yes, thank you!!!!

Hi, I don't 100% remember but I think it was 125

They originally wanted it higher but I reminded them that I had bone marrow failure previously so within 2 minutes after saying that the Dr was like oh well we can do lower, it's all more of an estimate anyways. Which kind of threw me off how nonchalant the Dr was about changing the amount. But I did feel more comfortable with lower

@@boundlessintrepiddiscovery7242 Thanks for your response. I hope you are doing well now. Can you tell me how many lymph nodes were involved in your case ?

Thank you. !

Thanks for the kind words! No infections since, no related complications. So far seems good and it's been just about a year now!

@@gaylenemartin4494 thanks for the kindness

Yeah! I definitely miss the prices in east Texas. So much cheaper than the north east

♡♡♡

Wonderful to have you be a part of it!

Thanks!