My name Ayan am living egypt i have MRKH syndrome please help me i scape my country descarminaion i enter egypt i need to make surgery please help me i don't have money
@saida42923 ай бұрын
❤ i love you
@liza.chowdhury4 ай бұрын
Truly inspirational! It is very brave of you to share your story. Thanks to you, more women, particularly from the Black and South Asian communities, will have the courage to come forward, share their journey, and get the support they need. Keep doing the amazing work you're doing, Aysha!
@ayshakhawaja6454 ай бұрын
Aww thank you so much for your heart-felt comment. It lit my face up with smile! 😊Yes 💯 % we need to hear from different cultures and support each other. No one should go through this journey alone! ❤
@ayshaa6318 Жыл бұрын
I just found out my daughter is diagnosed as mrkh and it’s a bit difficult to accept it..this video is helpful but i have tones of more questions to ask 😔
@mrkhconnect6170 Жыл бұрын
Thank you for your message please reach out to us and we would be very happy to help answer or direct you to more information
@person6768 Жыл бұрын
Its clearly not genetic my mom has six siblings 3 of which are woman and three men. All of my cousins are normal. My dad has two sisters and all my cousins by both of them have normal children. I cant prove it but I believe either my mom smoking Marlboros, eating McDonald's everyday, or the government is steralizing. It never even crossed my mind as genetic because its not present in anyone but me and I have a huge family. All of my mammals sisters all have kids and there kids have kids too. I am utterly alone in this.
@mrkhconnect6170 Жыл бұрын
Thanks for your comment, the genes are affected which is what leads to MRKH in 1 in 5000 (approx cases) meaning it would be more unusual if it was present in other members of your family. It certainly isn't related to diet or smoking based on medical papers written about MRKH. Happy to share some links if you want to learn more :)
@jupiteruzayl859 Жыл бұрын
As a Muslim girl, I watch this video with my tear. Sometimes it is really hard to deal with but as a Muslim i know that this world is just for test and it is for a really really short time. I pray so much for strength and patience. Also girls you are just amazing! You can't guess how much helpful you are. In this night(miraj) i will pray for all of us but especially for you. Allah bless you. I have so much things to say i will right here later inshAllah. i hope so :')
@mrkhconnect6170 Жыл бұрын
Thank you so much for your reply and your lovely comments. We are so happy that this touched you and that you find our posts helpful! xx
@oscarcolon9160 Жыл бұрын
Área una chica muy Linda que asó no te afecte
@小泉孝-p4r2 жыл бұрын
Charlie❣️Do you know who I am? I'm Takashi, who sometimes talks with you on Instagram DM ^ ^ I was surprised that the number of subscribers to your channel is still small ^ ^❣️I was frantically enlarging your small image to see it ^ ^ Your long hair is lovely ^^Do you still wish to have children from the man you love? I've given up on marriage, so I don't think I want children. I believe that people with MRKH, Tanner Syndrome, and other DSDs are deeply concerned and distressed about their physical condition. Will you talk to me on Instagram again? See you later!❤❤❤❤❤❤❤❤❤❤❤
@小泉孝-p4r2 жыл бұрын
Charlie❣️I saw and heard your video and voice for the first time! do you know who i am My name is Takashi. I occasionally write comments for you on Instagram. I think all MRKH women have a delicate beauty ^^ You shine even without the organs that a woman should have ♪ I want to talk to you once ^^❤❤❤❤❤😊😊
@laura93462 жыл бұрын
So true and so emotional...to put words on many silence words is surly a blessing!!
@小泉孝-p4r2 жыл бұрын
After a long time I will comment. I made a grave mistake. I thought MRKH women had no uterus at all, but I learned from a tweet on Twitter that I was wrong. It was written that the growth is incomplete but the uterus is there. I apologize profusely.
@andyford43342 жыл бұрын
p̴r̴o̴m̴o̴s̴m̴ 😴
@chinmayv.deshpande98852 жыл бұрын
Emily, I have not observed Morphine yet. Are you in Lichfield, UK? Your facial look has changed now. Invent and learn more. All the best !
@ibriza68912 жыл бұрын
Hi Emily where is your black dress from as well as your duvet cover?
@ispeaknolies63322 жыл бұрын
Pinned me
@chinmayv.deshpande98852 жыл бұрын
This is rousing speech. Thanks god, you cured from such a painful surgery. I will make prayer for your good health.
@adonispaul19912 жыл бұрын
I'm serious person I'm not looking for a perfect girl, I WANT to care and love her so much
@trooperchick36102 жыл бұрын
shame .. stop drooling
@adonispaul19912 жыл бұрын
@@trooperchick3610 OKAY baby I love you. Don't get mad at me. I'm doing good
@chinmayv.deshpande98852 жыл бұрын
In short I will tell you, this world is very huge. We are on Earth but distance is very large. I am in India.
@trooperchick36102 жыл бұрын
lol stop
@小泉孝-p4r2 жыл бұрын
I can't translate English so I'm using a translator to write text to you ^ _ ^ I've written text to you in the past. I have so many DSDs that I don't understand them all ^ _ ^ But looking at your gentle face I thought you weren't destined to have no children. Uterus transplantation is now possible with the ovaries. You should not despair and hunt yourself down! I also have a male reproductive disorder and can't have my own child, but you shouldn't despair. From Takashi.
@chinmayv.deshpande98852 жыл бұрын
Lemon juice mix with water, salt & sugar will help to re-create your tissue. Do you not feel like, you did mistake by making this video? Is it your thrilling experience? They give injection to you.
@小泉孝-p4r3 жыл бұрын
Charlie! Nice to meet you! I am Japanese and live in Japan. I use a translator to write a message to you. I'm a man ☺️ You seem to have chosen a childless life with a boyfriend ☺️ I can't translate English very well so I'm sorry if I'm wrong. I know a little about DSDs. MRKH is in that state too ☺️ I'm 62 years old and single, so I'd be happy if my beloved woman was by my side! I wish you happiness ☺️ Takashi.
@lindalardner37453 жыл бұрын
Well said Claire
@cbdbutterfly48413 жыл бұрын
Thank you for this.
@TherapyToThePoint3 жыл бұрын
Meditation is so important so we can become more aware of our thoughts and feelings. Thank you for raising mental health awareness!
@小泉孝-p4r3 жыл бұрын
Tracey! I think all your childhood photos are cute and charming! I know your physical condition as Lokitansky Syndrome. I use a translator, so please forgive me for small spelling mistakes! I've never been married at the age of 61, so I don't have any children, so I don't mind if I don't have Tracey's womb and can't have children! There are many people in the world who are similar to me, so don't despair and be proactive with the man you love! Takashi.
@mrkhconnect61703 жыл бұрын
Hi there! Thank you for your comment. Tracey doesn't have a womb she also has MRKH (or Rokitansky syndrome) she is sharing her experiences to help those newly diagnosed as we all know how hard that can be.
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 Thank you for your reply ❤️ Tell Tracey! That you are a good woman without a womb! And that your kindness will eventually be aimed at the baby you are in! Takashi.
@dariyatradingandconstructi75113 жыл бұрын
Wooohhh I like this video, it's really helpful 🙏 thanks for sharing
@isobelclarke23043 жыл бұрын
u nailed it lauren
@mrkhconnect61703 жыл бұрын
Didn't she! xx
@mrkh1in50003 жыл бұрын
Wow just admire you. You did amazing, I'm so proud of you Sis xx. 😍😍
@mrkhconnect61703 жыл бұрын
It is wonderful isn't it!
@ayshakhawaja6453 жыл бұрын
Aww your kind words made me smile! Thank you so much! Sending you love dear sister! <3!
@小泉孝-p4r3 жыл бұрын
Nice to meet you! I know a little about disability rather than your illness. I don't think you have a uterus or cervix! I'm not good at listening to English and I can't hear it. I'm sorry if I made a mistake ☀️ Don't blame yourself as you are a woman no matter who you look at!
@mrkhconnect61703 жыл бұрын
MRKH isn''t a disability or illness it is a condition we are born with. Thank you for all your comments on our posts we have some brave and courageous people in our community ! :)
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 I was fortunate to be born to a healthy man. However, I want to support you as I see your gentle and intelligent eyes and facial expressions while having your special conditions. Cheers to your rich motherhood 🍸️
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 I don't think there is any relationship between how the body works and motherhood ☺️ I don't think the absence of a uterus has any effect on motherhood 😃
@小泉孝-p4r3 жыл бұрын
It's really sad that this channel has only 18 subscribers.
@mrkhconnect61703 жыл бұрын
It will grow we only just started it :)
@小泉孝-p4r3 жыл бұрын
There are many people who describe you in words, but definitely you are a woman ☀️
@小泉孝-p4r3 жыл бұрын
Does MRKH mean Lokitansky Syndrome? Is it a disorder that has no uterus or no cervix? I can't understand English without using a translator, so I'd appreciate it if you could add Japanese subtitles.
@mrkhconnect61703 жыл бұрын
Thank you for your comment. MRKH is also known as Rokitansky syndrome yes and you are right this does lead to the absence of a uterus (or an underdeveloped uterus) and no cervix. It is hard for us to provide translations in different languages I am afraid but please don't hesitate to reach out to us and we can help provide any more information for you. Thank you for following us x
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 I didn't know anything until I was followed by my DSDs account on Twitter. I also learned about Turner Syndrome, AIS women and hypospadias! You all have a wonderful female heart 😃 I don't think it's Androgain or chromosomes to determine gender ☺️ If you love a man you just don't have a womb and you have to be loved by the other person Please don't think ☺️ Takashi.
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 Not all men want their marriage partners to have their own children ☺️ I feel happy just to have a woman who loves me 😄
@小泉孝-p4r3 жыл бұрын
@@mrkhconnect6170 I don't know because I have never had a physical relationship with a woman, but why can't I have sex without a cervix? I use a translator so the translation may not be correct, but please forgive me 😃
@laura93463 жыл бұрын
If someone is interest in doing video calls to get to know each other and talk about more intimate things like how do you struggle with sexuality, religion and masturbations for example, solitude, meeting people ,, etc lm really interesting in those topics... but I’m 43 and the syndrome was a secret in my family nobody’s ever spoke to me about nothing. ... I hadn’t have the surgery so ... 🤷♀️I’m from Argentina 🇦🇷 so ... just let Melanie and let’s talk about happens when we turn the camera off. You’re super brave to share your story sis ! Hope to get to know you better and help each other 🥰🥰🥰🥰
@mrkhconnect61703 жыл бұрын
We also run regular online zoom chats as well, Do look out for our announcements on our website and social media. The next one is 25th April :). We love to help connect people.
@zarakhan51703 жыл бұрын
I love this thankyiu so much
@britishmuslim7863 жыл бұрын
Very inspirational and I love the confidence and openness about topics that aren't talked about much in our communities! We need more people to raise awareness! Love what you guys are doing! Keep it up!
@ayshakhawaja6453 жыл бұрын
Aww thank you so much dear sister Amal! Thank you so much for your love, support and duas always! I really appreciate it immensely! Jazakullah Khrian dear sister! <3
@meenah10103 жыл бұрын
SubhanAllah sis I really admire your strength and your courage Masha'Allah. May Allah bless you and make it easy for you ameen xxx
@ayshakhawaja6453 жыл бұрын
Aww you honestly say the sweetest things sister! Jazakullah khrian and Ameen to your lovely dua and remarks❤🤲🏻.
@flameflake86613 жыл бұрын
I liked this so much. I have been trying to look for a vid like yours that really informs the stuff in this vid! 👍 👌Your breakdown actually is similar to the channel of Dr. Ethan. Ethan's demonstrations are helpful and I learned a lot for my studies. He is an educational medical student in Europe and he talks about diseases and wellness! Go check out his page out and give the med student a like here! 👉 #DrEthanOnKZbin