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@jrrm7869
@jrrm7869 10 күн бұрын
Hey hope your doing ok. Prayers and hugs from Richmond VA!
@MorgansReviews
@MorgansReviews 10 күн бұрын
I'm two weeks into my 7 wk treatment, stage 3 throat c, 5xwk radiation for 7 wks, with chemo each tues after radiation for 7 wks. just found your channel, watching now, your video's are very helpfull, Thanks for this.
@Tazdingo01
@Tazdingo01 11 күн бұрын
Hi, Lee. How many days of radiation therapy did you get? I'm on Day 17 now. Supposed to get 35 days. 70 gray in total.
@knockstarstv5711
@knockstarstv5711 13 күн бұрын
just some advice im a ENT doc, and 4 of. my patience now. that have been diagnosed with throat cancer, water fasted 5 days with lemon and are 100% cancer free... Not my advice but their group doing it.. just wanted to share.
@davebenn4526
@davebenn4526 13 күн бұрын
P.s. face hair is coming back in most areas except where the cancer was
@user-mk9ef3ed5t
@user-mk9ef3ed5t 16 күн бұрын
Thank big help for hope the best for u I appreciate your insight and help about the peg tube...
@lisaanderson8054
@lisaanderson8054 19 күн бұрын
My husband is on his third week of chemo and radiation for neck cancer very close to where yours was. The side effects are much worse this third week than before and I suppose will only get worse. He doesn't have a feeding tube yet, and we are hoping and praying he can get enough nutrition in without going there. I just discovered your channel and will review more to give me some insight to what to expect. Hope you are still well and cancer free. All the best!
@davidbaker8607
@davidbaker8607 20 күн бұрын
Im here watching these videos becaus i have stage 4 tongue cancer. My first chemo is a week from today. Im hoping this info will help prepare me for whats coming. Thanks for sharing
@thomaspetalino5903
@thomaspetalino5903 20 күн бұрын
I’m 5 weeks post treatments for tongue cancer. 6 weeks chemo, 35 radiation treatments. The one thing that got me thru was mixing 4oz of high calorie boost and 4oz chocolate milk. 5-6 times a day. Around 1800 cal/day. At 5 weeks out my saliva has returned about 70% and taste about the same. Food still tastes off but I can deal with it. I notice very small improvements everyday. All the pain in swollowing is gone and can eat most solid food. You will adjust to the new normal. Not the same as before but better than death.
@john123wayne
@john123wayne 22 күн бұрын
Thank you for your kindness and generosity in creating and uploading videos. I am sure you know you are helping many, many, many people here in the States and world-wide. There is no better work than helping others (my 2 cents). Thank you very much once again.
@sharongraham3692
@sharongraham3692 23 күн бұрын
I think i have throat cancer cause my ears ache my throat hurts it hadd to breathe and its hard to swallow 😭😔
@user-oe8pd4rn4b
@user-oe8pd4rn4b 24 күн бұрын
What about leukoplakia
@user-oe8pd4rn4b
@user-oe8pd4rn4b 24 күн бұрын
Carnivore diet
@Robert-v1v
@Robert-v1v 24 күн бұрын
Hi all, I have also HPV Cancer in 3 areas around the base of the tongue, lymph node and tonsil, It started with ear ache 6 Months ago. I had the CT, MRIs and biopsy which found the Cancer. My mask was made and I began treatment just 2 weeks ago and is ongoing, 10 sessions of Radiotherapy down and 1 Chemo. Weekends off for good behaviour, already lost taste, and ability to swallow anything other than liquid, shakes are Ok but difficult with real food, I did batch cook lots of soups, I know there is worst times ahead, just want to be over, start session 11 tomorrow and next week my second 18hr Chemo, just hope we are able to get through that with not much pain, just wanted to share my thoughts and wish you all well.
26 күн бұрын
Had stage four back of the tongue cancer 2009. Treatment was chemo and then chemo and radiation together. After treatment carried the water bottle around for the first year or so. every night I use Colgate Gel Cam for about 5 to 10 minutes in trays before I go to bed. This will keep my mouth from being dry up for about 3 to 4 hours. Then I wake up with a dry mouth and take two or three swigs of water and chew mentos gum, keeping the gum in my mouth which helps keep my mouth closed and will last at least another couple hours. If I wake up again, I repeat with the gum and water. Before I left MD Anderson, the head dentist said do not let your mouth get dry or you’ll have cavities and if you have cavities, it may cause your jawbone to disintegrate. Scared the H out of me. They recommended to me the Gel Cam and I haven’t missed a night taking it in 15 years.
@nightowl5045
@nightowl5045 Ай бұрын
What type of radiation treatments did you have I been diagnosed with metastatic squamous cell carcinoma of neck with unknown primary radiation Dr wants to do radiation therapy IMRT ?
@carmenM-ey6qy
@carmenM-ey6qy Ай бұрын
Where are the comments?
@user-pb1uw8ku9e
@user-pb1uw8ku9e Ай бұрын
I too had throat cancer on my vocal cords. Thirty six radiation treatments and now I live in cancer free never give up be grateful and praise God good luck
@nikosalkis8296
@nikosalkis8296 Ай бұрын
''''The major finding of our study is that RGE had a novel therapeutic effect against even the most aggressive models of malignancy in mice only when injected. The treated mice did not display any adverse side-effect in terms of behavior and physical appearance from receiving daily injections of RGE. Necropsy also failed to find any abnormality in any organ and tissue of the treated mice either from the malignancies or from the injected RGE. One novel aspect of the injected RGE was its ability to cure the most aggressive mouse cancer models that cannot be cured by any conventional therapy ''' Since then NO CLINICAL TRIALS, despite a100 per cent cure ..... Want to know more ???? GOOGLE.... .''''A novel therapeutic anticancer property of raw garlic extract via injection but not ingestion'''
@thespicy0012
@thespicy0012 Ай бұрын
I am 16 years old and I found out I got neck cancer I don't know what to do im to scared to tell my parents
@ManoDaShark
@ManoDaShark 27 күн бұрын
You got diagnosed by a doctor? Or are you assuming
@19th-Nervous-Breakdown
@19th-Nervous-Breakdown Ай бұрын
I was diagnosed with breast cancer 32 years ago. I chose to be treated at an excellent cancer hospital and I did what the doctors told me to do. Now, I'm 32 years cancer free and considered cured. I hope that you can say the same some day. 👍👍👍
@DonYoussef_
@DonYoussef_ Ай бұрын
Did you suffer from shortness of breath at the beginning of the disease?
@DonYoussef_
@DonYoussef_ Ай бұрын
Did you suffer from shortness of breath at the beginning of the disease?
@mosesdejesus6928
@mosesdejesus6928 Ай бұрын
Thanks so much for that information, can't wait to be able to taste food again
@HarvyAndy33
@HarvyAndy33 Ай бұрын
Thank you so much Dr Obaz for all you do for so many during their unexpected hsv outbreak. I know at least three other women who were patients of yours, and all felt deeply cared for. I am grateful for the gentleness and care you’ve shown me too🔋..
@marywilliams9858
@marywilliams9858 Ай бұрын
Hey buddy. I had cervical.cancer many years ago. I am 76 and work as a police volunteer and psychic. God please cure this dear soul.
@thomaspetalino5903
@thomaspetalino5903 Ай бұрын
I’m 2 weeks post treatments. 7 chemo, 35 radiation. One thing that really helped me was exercising throat, tongue, neck everyday from week 1. I never needed a feeding tube although it would of been nice at times. I would mix boost with chocolate milk. 4oz each 6 times a day. Still lost 25lbs but it got me thru . I’m 10 days post treatments now and can eat soft foods already. Can’t taste much but it’s getting better every day. Pain in my throat has reduced by 50% and thick saliva is starting to go away. Listen to your speech therapist. The suggestion they give may seem like there doing nothing but it makes a huge difference at the end.
@hwy6163
@hwy6163 Ай бұрын
I’ve lost my hearing, and my ability to talk. I am taking weekly infusion treatments to try to extend my life. I’m terminal.
@janenebrooks7205
@janenebrooks7205 Ай бұрын
Ivermectin!!
@secretlover2281
@secretlover2281 Ай бұрын
God bless you
@theregularguy141
@theregularguy141 Ай бұрын
Thank you! 3 years on and STILL CLEAR!! Lee
@paulquinonespq
@paulquinonespq Ай бұрын
Start chemo(cisplatin) and radiation June 10th, I have a trach and peg. What should I look for and I can’t talk, with the mass I On my tongue. How can I reach out to you
@theregularguy141
@theregularguy141 Ай бұрын
Hey Paul, 1. Make sure you keep your PEG tube and the entry clean as possible. 2. Use the PEG. Keep your calorie count up even when you are not hungry. 3. Continue to exercise even if it is a short walk. Lee
@paulquinonespq
@paulquinonespq Ай бұрын
Should I do to bottles of the liquid, or stick to one
@theregularguy141
@theregularguy141 Ай бұрын
@@paulquinonespq - Thats really based on the size and calorie. Mine were 400 Cal / bottle and my nutritionist recommended 2400 cals / day. So, 6 bottles / day. You can also get the drink in powder form and mix it yourself and add protein or other supplement powders as recommended by your nutritionist or MD. I added a protein powder to mine as my muscle mass was degrading as quickly as my fat was. I was using something called "Vital Proteins Collagen Peptides", which I still use today. I use the unflavored as I can add it to juice coffee etc and it doesn't change the taste. www.amazon.com/Vital-Proteins-Collagen-Peptides-Unflavored/dp/B09QV3XG8B/ref=asc_df_B09QV3XG8B/?tag=hyprod-20&linkCode=df0&hvadid=693498621011&hvpos=&hvnetw=g&hvrand=14894952293148560397&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9011005&hvtargid=pla-1744340764274&psc=1&mcid=6066cdda9ecf33fdb11712cd25fd64d9&gad_source=1
@AmberMichealsCholeNicole-cj7sy
@AmberMichealsCholeNicole-cj7sy Ай бұрын
Did you have leukoplakia
@theregularguy141
@theregularguy141 Ай бұрын
Hi Amber, I did not. I had no physical symptoms until I had the sore throat and earache 3 months before actual diagnosis. Lee
@AmberMichealsCholeNicole-cj7sy
@AmberMichealsCholeNicole-cj7sy Ай бұрын
Did you have leukoplakia
@theregularguy141
@theregularguy141 Ай бұрын
Hi Amber, No I did not. Lee
@AmberMichealsCholeNicole-cj7sy
@AmberMichealsCholeNicole-cj7sy Ай бұрын
@@theregularguy141 did you catch it early? What was the survival rate they gave you? I just subscribed to you and this is the first video I seen from you
@corvettesbme
@corvettesbme Ай бұрын
I have been through the treatments and I came out great. The only problem I had was that they pulled all teeth before treatments and so limited on foods. But good news is that you will get better!
@theregularguy141
@theregularguy141 Ай бұрын
Oh wow! Are you going to get dentures? (I would hope so) Lee
@corvettesbme
@corvettesbme Ай бұрын
@theregularguy141 I was refused at first because of limited bone structure left. But a year later, I got uppers. It made me feel better. As time went on and with the covid, I wear masks and quit wearing them for vanity reasons. I still do not have any gums to eat. It is with tongue and roof of mouth to eat. But guess what? I already loved oatmeal and pastas etc. Soft foods and get creative! 😉😁
@ZeeBooNow
@ZeeBooNow 2 ай бұрын
Thank you and your video is so accurate going through these same symptoms with my mom after all these radiation treatments.
@theregularguy141
@theregularguy141 Ай бұрын
Thank you so much! Good luck to you and your mom! Lee
@Danit.Talkscentswithme
@Danit.Talkscentswithme 2 ай бұрын
My husband had throat cancer , In 2017.. he’s got permanent side effects from it. Paralyzed vocal cords. He was stage 4. I would fix a pot of beans for him quite often for the protein and he put hot sauce and pico in it . He was on a feeding tube for a year, the only thing he liked was my pot of beans. You are doing very well, it seems. My husband’s damage is significant but he’s grateful to be alive. The treatments though have also caused permanent side effects, such as ED. It’s extremely hard for us both but he’s terrified to take any meds for it.
@AmberMichealsCholeNicole-cj7sy
@AmberMichealsCholeNicole-cj7sy Ай бұрын
Did he have leukoplakia
@conquest7563
@conquest7563 2 ай бұрын
Ice cream??? Cancer feeds on sugar.
@theregularguy141
@theregularguy141 Ай бұрын
Hmmm, while I agree that in normal circumstances a reduction in sugar (empty calories) is a good thing. At this point soothing the burn in your throat and using ice cream to serve as a delivery vehicle for vitamins and nutrition might be a good option. www.mdanderson.org/cancerwise/sugar-and-cancer-treatment--4-things-patients-should-know-.h00-159144456.html#:~:text=Absolutely%20not.,the%20sugar%20to%20those%20cells.
@sycamore2789
@sycamore2789 2 ай бұрын
If this is true why isn’t it plastered all over the news?
@theregularguy141
@theregularguy141 Ай бұрын
Like this? nypost.com/2023/08/02/new-cancer-hope-as-pill-kills-tumors-thanks-to-little-girl/ news.sky.com/story/cancer-killing-pill-that-appears-to-annihilate-solid-tumours-is-now-being-tested-on-humans-12932133 Lee
@RandomPerson-yc4vm
@RandomPerson-yc4vm 2 ай бұрын
Keep fighting. Don't give up. Stay determined. Do whatever it takes
@theregularguy141
@theregularguy141 Ай бұрын
I absolutely kept fighting, did not give up and I am still cancer free 3 years after treatment! Lee
@sadikikobe7674
@sadikikobe7674 2 ай бұрын
Thank al lot m from Limpopo,m starting m radiation soon,m soo scared
@theregularguy141
@theregularguy141 Ай бұрын
Take a deep breath. Stay positive. Do not let the fear overcome you. Keep your nutritin up, stay somewhat active (as you can). You have got this in the bag. You are stronger than you think. You can beat it. Lee
@peterbethge3174
@peterbethge3174 2 ай бұрын
Thanks for a wonderful run through of what you have gone through. I can tell everybody that you haven't sugar coated it and yes, everybody's symptons and treatment will be different. I was lucky in one way because although I was told that I would not be able to swallow and that I would lose my speech for a time....well, I didn't lose my swallowing power totally so I thank god for that because it has made it a lot easier on getting back to normal. I had 30 sessions of radiotherapy only over six weeks on my neck and tonsil area where the cancer had got into the nodes.....but a lot of what happened to you did happen to me. I am 3 weeks post therapy at moment....the soreness and ulcers in mouth are gradually going away but the lack of saliva and dry mouth are still with me which makes eating difficult at times and so I do resort to using the feeding tube in my stomach and the special bottles of food which have been supplied to me by the hospital. Your description of the mask is spot on...I am not claustrophobic but I hated it and especially when I felt the last click of the buttons which held you down firm for then that was the time I wanted to swallow the most.... so when the radiotherapy machine started doing its business I used to count the number of whirring noises it made and then I knew how far I was from being released again from the mask. Thank you and good luck to you for making the video and to everybody else who is going through a similar experience...YOU WILL COME OUT THE OTHER SIDE OK...BUT IT MAY TAKE A FEW MONTHS.
@theregularguy141
@theregularguy141 Ай бұрын
Thanks for the kind words and the endorsement Peter!! You are correct, you will come out the other side! Lee
@Johnnylight828
@Johnnylight828 2 ай бұрын
Thanks for sharing gives me hope.
@theregularguy141
@theregularguy141 Ай бұрын
You are so welcome Johnny! Good luck going forward!! Lee
@Johnnylight828
@Johnnylight828 2 ай бұрын
Thanks for sharing, going into my second week and i not doing too well, the cisplatin is causing me issues, eating and constipation. lost 8 pounds and they weren't too happy about it, i need to watch your video of the tube, trying my best to avoid getting it, we shall see.
@theregularguy141
@theregularguy141 Ай бұрын
I have really hope you don't wait to long on the tube. The longer you wait, the harder it is to put it in. You need the nutrients! Let me know what happens Lee
@kopitegs
@kopitegs 2 ай бұрын
One of the most frustrating things i hear is people claiming they have a cure for cancer but just won't release it. Such nonsense, Cancer cost the economy , Pharm making money doesn't help the country. If the was a cure someone would of licensed it and made possible trillion. Even you or i would pay privately £5-10,,-20k to live. Having a cure doesn't mean the wouldn't be cancer . We have antibiotics , that get used by everyone
@GsiyTuha
@GsiyTuha 2 ай бұрын
I CAN'T STOP THANKING MY WONDERFUL HERBAL Dr Kuriama FOR WHAT HE HAS DONE FOR ME . I want to appreciate dr kuriama, it more than few months now since I last felt herpes virus on my body. I still can't believe I am totally cured of the infectious disease, all thanks to Dr Kuriama for his natural herbal medicine. the doctor cures the following infection or disease such as HSV, HVP, Diabetes, Cancer, Hepatitis and others STDs. reach him on his KZbin handle Dr Kuriama .....
@BaronVince
@BaronVince 2 ай бұрын
Hi Lee! I think you missed a class of medication that this drug (probably) falls into: small molecules/TKI's. These are already widely used as a form of cancer treatment and they (mostly) target proteins, often quite specific to cancer cells. Examples include CDK4/6 inhibitors for breast cancer, ALK inhibitors for lung cancer, PARP inhibitors for BRCA mutated cancers, etc. The side effects can differ widely between the class of medication!
@theregularguy141
@theregularguy141 2 ай бұрын
Thanks BaronVince! Something to look into! Lee
@karlj711
@karlj711 2 ай бұрын
I have stage 4 tonsil cancer. I go for the mask fitting in the morning & start 35 sessions of radiotherapy in 2 weeks. I will also be having a session of chemo at the beginning & another one in the middle of the radiotherapy. So far the procedures I have had are, right tonsil out, feeding peg fitted & several teeth out.
@theregularguy141
@theregularguy141 2 ай бұрын
Hi KarlJ, My big advice is to follow medical instructions, keep an upbeat and positive attitude, USE THE PEG TUBE (my personal BIG fail), nap during chemo and or take a book, Journal your experiences. I found journaling and writing to be kind of therapeutic. Keep us updated, we are all here to help! Lee
@rice1401
@rice1401 2 ай бұрын
Hi Great video ! I had base of tongue cancer caused by HPV ! I had 6 weeks a radio and the pain after was indescribable ! I never left the bedroom for 3 months ! I lost nearly 3 stone ! I did have a PEG and that saved my life as no way could I eat for months ! I was on morphine every 4 hrs which helped a bit but not that much to be honest ! 1 year on and I still have no taste but I have put weight on ! the journey has been very very tough you cant sugar coat it the pain was horrific ! I have appts every 6-8 weeks where I have the camera to check all is clear and up to now it is but if I am unlucky and it does return I could not go through that again no way ! I was told I have a 90% chance of survival as it was HPV so my chances are really good !
@theregularguy141
@theregularguy141 2 ай бұрын
Hi Rice, For some reason it seems that HPV related throat cancer seems to be more treatable, I wonder why that is? Some thing to look into for sure. I sense another video! Lee
@the._.bohemian3096
@the._.bohemian3096 2 ай бұрын
Hello. Stage 3 HPV positve SCC at the base of tongue. I finished my last treatment a month ago. 70 grey over 35 sessions and 6 chemo sessions of cisplatin. Had my first CT this past week. Results were encouraging. My problem is eating and drinking. I can somewhat taste the food or drink, i just cant bring myself to swallow. Im lucky if i get 30 oz. of water a day snd i haven't eaten a meal in a couple of weeks! This has left me week, dizzy and lethargic to say the least. The meal replacements make me sick to my stomach. Do you have any advice? Thanks!
@theregularguy141
@theregularguy141 2 ай бұрын
Hi Bohemian, Hmm, that is a quandary. Have you tried the various kinds of replacements? I'm pretty sure there are dairy, non-dairy etc. It could be something easy to fix like that. You may also get a referral to a dietician and explain what is happening. That person may have some more insight. Are you eating through a PEG tube? The swallowing will come.You are only 4 weeks out of treatment. My first sip of water (attempted) was at 4 weeks and I thought I was going to choke to death. You NEED to get calories in as soon as possible. Your body needs that. Definitely discuss this with your doctor as well. Lee
@gerij777
@gerij777 2 ай бұрын
I am in the beginning of diagnosis. Went to ENT, had 1 CT scan, and Endoscopy. Left tonsil assymetrical and enlarged lymph gland next to it. Going for another CT scan in two weeks and then back to doctor. Lee, did they remove your tonsil before treatment? I don't know if I am up to all this.
@theregularguy141
@theregularguy141 2 ай бұрын
Hi GeriJ, You are very much up for all of this. It is difficult, it is painful, and it is bothersome. HOWEVER, it is doable. You can do it by keeping a solid positive attitude, by leaning on friends and or family, by finding and enlisting the help of support groups, and following medical advice and instructions. (The following advice was hard for me, I'm hard headed...) In answer to your question, they did not take my tonsils out. If I remember correctly due to the margins required for surgical resection of the tonsil and tonsil mass, it would have caused a lot more physical damage. Now, that being said, they have made some spectacular advances with TORS surgery in regards to head and neck cancers. Keep us updated with you progress. Lee
@gerij777
@gerij777 2 ай бұрын
@@theregularguy141 Thank you Lee!