All talk. No evidence of new significant drugs to beat the current standard of care TMZ. GBM agile? Never heard of it.

Thank you and may the Lord bless you. 🙏🏼 I have recently been diagnosed with Grade IV unmethylated GBM at 67 years of age. Started Temozolomide and Radiotherapy this week. Trying to learn more about treatments. ❤️ 😰

What's with the headphones while sitting next to each other

such an intelligent and caring man

Did you have covid

You better be your own advocate. Read your reports!!! I could write a book about crap ive been through with doctors who dont do their due diligence

SO AMAZING ❗️❗️❗️

Great interview David! Thank you David and the GBM Research Org. for doing such incredible work in the GBM community and research. Your story is very inspiring and it’s so awesome that it has reached so many people in need of hope, help and understanding. Really proud of you. ❤

Lost my sister in 4 months 😢 she had double glio tumors

He is very rare.

Lynch syndrome is very frightening.

LYNCH SYNDROME TOTALLY EXPLAINS IT...

How does he get credited as the "longest GBM survivor in the US" at 20 years from diagnosis? There's someone who works at the neurosurgery clinic here in Cincinnati that's over 30 years from dx, and there are a few 30+ year survivors I've talked to online - not sure if they're all in the US but at least one of them is. There are hundreds of 20+ year GBM survivors in the US. It's obviously not the norm, but it's a solid chunk of people.

Wow ... unbelievable interview 👏👏thank you for sharing...Positive attitude.. positive thoughts.. positive outcome...Good luck to you David & your fiance...lots of love and happiness and cute babies...🙏❤️🍀🤞🍀😊

Wow, this is a great story. It is not all that surprising you had bad side effects from the chemo and radiation, but to then get radiation induced cancer? That is horrible. Have you looked into DCVax-L? Like you, Brad Silver is alive and well with NO RECURRENCE since 2003. Also, he had no adverse side effects from the DCVax-L cancer vaccine. No horrible rounds of poisons, radiation, or an optune cap you have to wear 24/7. I also think Jennifer Sugioka may be living (again, with no recurrence the last I heard) because of DCVax-L. Jennifer was diagnosed with gbm in 1999 or 2000. Apparently there are DOZENS more long term survivors of glioblastoma if you google for them. So David, you are part of that club.

What a lovely interview ❤ thank you for this! David is so kind 🙏 I reached out to him back in the day one ofbmy best friends was diagnosed with GBM. I lived a little bit longer than what the doctors predicted but sadly Brazil health system had so much negligence, he was also fighting the system besides GBM. Staying around people who fought together with him, made his last months be filled with love and courage. He never allowed negativity in, even on his last hours.

Awesome interview and fabulous organization 👏🏼👏🏼👏🏼

I am 52 and childhoood cancer survivor. I was diagnosed with Wilm’s tumor in 1977 at age of 6. I had a left nephrectomy with 2 years of chemotherapy and cobalt radiation. Lucky for me I had an 85% cure rate. I did great until 1997 I was discharged with Papillary thyroid cancer and had a total Thyroidectomy. It was a rough few years, but life became more normal. At this time I had been Oncology nurse for 3 years. In 2012 I relapsed with Thyroid cancer. I had a butterfly mass on my layreangeal nerve. I had 2 amazing surgeons. Life moves on and I was diagnosed with a Leomyosarcoma of the abdomen. My mass was near renal artery and was about 4x4 mass with clear margins. That was the most difficult Surgery I have had to go through. All my surgeons agree that Cobalt radiation had a lot to do with all my cancers. I am a slow healer to the abdomen. I have also been a nurse for 30 years. Being on both sides has humbled me. I thank God everyday for life I have been given. I am thinking about starting a podcast for long term pediatric patients that have survived and are looking for support as there have been many more challenges that we all have faced. I absolutely loved listening to this interview. I am writing a similar story. I would have no idea on how to start a podcast, but if you could reach out I would love that.

There is no sound after the introduction, any suggestions?

Great episode 👏🏻

My dad was just diagnosed with Butterfly Glioblastoma. They removed a lot of it however it's all throughout his frontal lobe as well as some in the back of his brain. He thinks he's 95% himself but he's not. It's been a month since his craniotomy. He thinks with chemo and radiation he will be able to live a year even though the oncologist said 16 weeks with treatment. I don't know how to help him understand.

🙏🙏🙏🙏❤❤❤

Amber, I still watch you you and support doing great job. Love you so much just because you doing what you’re doing. My husband is still fighting it not easy. Your mom knows what I am going through. Keep doing, love you❤❤❤😂

Thank you for sharing your story ❤❤❤😢😢😢

My heart is with you beautiful, my husband has glioblastoma, 10 months, still doing ok. He is now on lomustine. Recurrent glioblastoma last 2 MRI . Wish you the best.

I loved this, Jordy is such an inspiration and I’m so happy you have these podcasts, thank you!you two are both amazing, strong women and doing so much for so many❤️❤️❤👏🏻👏🏻👏🏻

I'm so excited to hear that you are doing another series, Amber. Keep up the amazing work you are doing to highlight awareness around brain cancer.

I know what Kelly Kelly is going through. I lost my Dad 31 yrs. Ago and I lost my Mom 11 yrs. Ago both from Cancer. Its still hard for me especially around Birthdays and Holidays. I will never forget about them and I'm always always always thinking about them. Love You Alot Always Princess ( Kelly Kelly) B.T.W LOVE LOVE LOVE YOUR LONG LONG AMAZING PHENOMENAL HEALTHY THICK SEXY SEXY SHINY HAIR HAIRSTYLE AND THE COLOR ❤ ❤ ❤ ❤ ❤ YOUR HAIR IS DEFINITELY ABSOLUTELY ❤ 💯% HEALTHY FULL OF BODY AND BOUNCE AND DEFINITELY SHINES LIKE SILK ❤ ❤ ❤ ❤ ❤ ABSOLUTELY 💯% AMAZING PHENOMENAL GORGEOUS STUNNING HEALTHY THICK SUPER SOFT SUPER SILKY SUPER SUPER SEXY AND DEFINITELY ABSOLUTELY 💯% 💯% SUPER SUPER SHINY HAIR THAT ALWAYS ALWAYS ALWAYS LOOKS NICE IN YOUR VIDEOS AND PHOTOS 📸 📷 🖼 🤳 ❤ 💖 YOU'RE SO SO PRETTY BEAUTIFUL GORGEOUS STUNNING ELEGANT CLASSY ADORABLE AND YOU'RE A SWEETHEART ❤ ❤ ❤ ❤ ❤ YOU'RE DEFINITELY ABSOLUTELY ❤ 💯% A PRINCESS AND A GODDESS AND DEFINITELY ABSOLUTELY 💯% A PERFECT 10 ❤ ❤ ❤ ❤ ❤ 😂 ❤ 😂 ❤ 😂 PLEASE!! PLEASE!! STAY SAFE AND STAY HEALTHY 🙏 ❤ 💙 💓 💕 TAKE CARE AND GOD BLESS 🙏 ❤ 💙 💓 💕 LOVE LOVE LOVE YOU SO SO MUCH PRINCESS ALWAYS 🙏 ❤ 💙 💓 💕 👸 LOTS OF HUGS AND KISSES ALWAYS 🙏 ❤ 💙 💓 💕 💋

Love you beatiful, doinggood job. My family move from Croatia to Canada 1998. My husbend 2023 in August was diagnosted with Glioblastoma. It is April 2024. HE IS STILL DOING GOOD ❤❤❤❤

So sad, 😢😢😢, my husbend has glioblastoma, life is not gonna be easy,stay strong. Love from Canada ❤❤❤

So all my girls in the club say oooooooo

Please checkout Ketogenic Diet + Intermittent Fasting! God Bless

My husband had glioblastoma multiform. His first symptoms were headaches.

My husband was diagnosed with Glioblastoma grade IV. He’s had surgery for removal of the tumour but before we could start radiation the tumour has already grown. We start radiation soon but what’s the path after that ..can anyone help.

Also everyone who is searching for the path to health, I’m hoping that your hear truth and do the best you can to cope. I am so thankful to be learning! I’m going to look for a trial to help me get to back to my dream! My dream is playing lots of golf with the Amazing BMWGA golfing ladies and the leoladies came to take me to lunch. I feel very Thankful!

Thank y’all for sharing your path and what you learned! I had surgery for glio 12/07/2023. I am in process of choosing my path. I feel very lucky to be in this process. God Bless!!!

I have GBM as well, age of 36. Mine was originally diagnosed as AA3 in 2016 but it's not doing so hot lately.

Amani's mom is a real gem...such a patient & humble soul...I wish I could be befriend her!

So insightful as usual 🙏

we love u Barbie ❤

Thanks so much. I have been treatment for 2 weeks. Thank you so much for the inspiration. Thanks for the podcast. John (Australia)

I love what your doing! I feel so bad sometimes, to look at my wife with her brave face, doing everything, while all I want to do is sleep. I think its harder on the carer than the patient.

Do you just have to be a GBM survivor or can you also be a survivor of a different glioma to chat?

Hi, can you please post a link ? I'm a 4 year gbm4 patient, and curious to chat to various people, thanks

Hi5 somo kind of wonderful

The Wiggles too too cugga cugga big red car Javier

My sister was diagnosed in June 2023 and is going through treatment after surgery. I’m trying to learn everything I can about the journey.

Good messages for me right now thanks

Great stuff. Love getting an update from the duke docs. With love from a Aussie with an oligodenglioma. Keep up the great work

My girl had brain cancer.