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@youMatterItDoesGetBetter 2 күн бұрын
It’s the IDH type of GBM that is so important. If it’s a Wild Type GBM, you’re cooked.
@youtubereview8176 2 күн бұрын
Would IVF or related reproductive technologies help to reduce the genetic risk of passing on this mutation to your future children? (There is also some research about using whole-genome and targeted sequencing of sperm. )
@Ron-b7g 12 күн бұрын
IF YOU HAVE CANCER CK OUT JOE TIPPENS CANCER PROTOCOL FENBENDAZOLE, FENBENDAZOLE REDUCES AND KILLS CANCER CELLS WITH OUT ANY SIDE EFFECTS AND CAN BE USED AS A PROPHYLACTIC AGAINST CANCER. JESUS LOVES YOU ❤❤❤
@kevinjulien7919 13 күн бұрын
I fight this affliction for myself, my family and for others like us. Lemon size grade 4 removed May 2023. Mid December 2024 it came back, same place, same general size. I was given 1 to 3 months and put on hospice care. I am working on a plan of my own that shows promise and will beat this. If I’m still alive in a few months, who do I share this with? There must be someone we can trust to share the good news and have the ability to tweak my findings so it works for everyone without the financial burden!
@franlibasci8175 Ай бұрын
The background music is quite distracting.
@mariafps_mdway Ай бұрын
👏🏽👏🏽👏🏽👏🏽 amazing podcast
@ivycancerpodcast-mo9ee 2 ай бұрын
Powerful story . Keep doing what your doing and all the best with your future marriage. Wonderful podcast.
@kimberlyhill5809 3 ай бұрын
Thank you for this video. I am currently enrolled in this clinical trial and have been since March of 2024. This really helped me to understand exactly what this clinical trial is and how this trial can change the treatment of GBM's.
@robbar42 3 ай бұрын
mi dispiace per tua mamma, Paolo 🥺e se esiste un paradiso, lei è sicuramente lì
@IndigoRoses7 4 ай бұрын
What an incredible man and story. A dear friend of the family, Nancy, just passed away recently from a GBM. She was sick for a long time and was hesitant to go to the doctor and by the time they found out what was going on she was ready for hospice. So incredibly heartbreaking. I'm so happy to hear a GOOD story about a GBM survivor...there aren't very many good stories, many sad ones. Another inspirational young man is The Shape Game here on youtube! His name is William and I believe he is a 5+ year survivor that's had a great outlook and positive attitude throughout his journey Thank you David, I am so glad you are here ☀️
@markgriffith2473 5 ай бұрын
He a rare case ,hopefully one day all will have a chance to survive. My brother had glioblastoma he survive only a week granted never knew when it started , he had multiple seizure went to er ,got diagnosed via cat/ MRI scans. We were told he wouldn’t survive a biopsy ,stay a couple of days in hospital then sent home on hospice . Lost my brother 4 days later.
@CindyOReilly-gb9nv 5 ай бұрын
Such am interesting man and topic. I wish the interviewer wouldn't have cut him off so much, it was distracting. I look forward to reading his books.
@nikbarclay7282 7 ай бұрын
All talk. No evidence of new significant drugs to beat the current standard of care TMZ. GBM agile? Never heard of it.
@glioblastomaresearch 6 ай бұрын
GBM Agile is a trial currently being led by GCAR: Global Coalition of Adaptive Research. You can learn more by visiting www.gcaresearch.org/research/gbm-agile/
@kathyr1516 7 ай бұрын
Thank you and may the Lord bless you. 🙏🏼 I have recently been diagnosed with Grade IV unmethylated GBM at 67 years of age. Started Temozolomide and Radiotherapy this week. Trying to learn more about treatments. ❤️ 😰
@daisyrenee 19 күн бұрын
How are you today Kathy? My daughter just started her own journey with grade IV brain cancer. Hope you are doing well ❤
@catherinealexandrian9927 7 ай бұрын
such an intelligent and caring man
@ramonatuma6928 7 ай бұрын
Did you have covid
@lmk0799 7 ай бұрын
You better be your own advocate. Read your reports!!! I could write a book about crap ive been through with doctors who dont do their due diligence
@donnawvidrine3811 7 ай бұрын
SO AMAZING ❗️❗️❗️
@afitt3430 7 ай бұрын
Great interview David! Thank you David and the GBM Research Org. for doing such incredible work in the GBM community and research. Your story is very inspiring and it’s so awesome that it has reached so many people in need of hope, help and understanding. Really proud of you. ❤
@WendyHardy-wo6gl 7 ай бұрын
Lost my sister in 4 months 😢 she had double glio tumors
@goldieshawel8683 7 ай бұрын
Lost my sister about 6 months ago. She lived 2 1/2 yrs with it. So sorry for your loss. I definitely believe in alternative protocols which my sister didn't do. Terrible disease.
@WendyHardy-wo6gl 7 ай бұрын
@@goldieshawel8683 I'm sorry for your loss too Did alternative Did surgery She lost the ability to speak properly and write.
@goldieshawel8683 7 ай бұрын
@@WendyHardy-wo6gl just sucks
@candykane4271 6 ай бұрын
Loosing my daughter in law slowly 2.5 years since her surgery, hoping for more time even though she isn’t the girl she once was, blind and confused she has 2 little girls who love her dearly.
@kathya1956 7 ай бұрын
He is very rare.
@MrPaulSoscia 5 ай бұрын
Singular and term used too often a miracle
@peggyschram917 7 ай бұрын
Lynch syndrome is very frightening.
@ElanaMccullum 8 ай бұрын
LYNCH SYNDROME TOTALLY EXPLAINS IT...
@theresed2348 7 ай бұрын
Yes, it seems if his tumors are encapsulated then his situation is very different from most people with glioblastoma.
@toryisawesomeable 8 ай бұрын
How does he get credited as the "longest GBM survivor in the US" at 20 years from diagnosis? There's someone who works at the neurosurgery clinic here in Cincinnati that's over 30 years from dx, and there are a few 30+ year survivors I've talked to online - not sure if they're all in the US but at least one of them is. There are hundreds of 20+ year GBM survivors in the US. It's obviously not the norm, but it's a solid chunk of people.
@kathycummings691 7 ай бұрын
Longest living pediatric survivor of GBM. He had it twice. Not sure I’ve ever heard of hundreds of pediatric long term survivors.
@Dave-qn1gc 7 ай бұрын
That’s great to hear! Perhaps you can get some of these 30+ year survivors you know to connect with the Glioblastoma Research Organization and share their stories.
@briankress294 Ай бұрын
We need to know what these people did differently from everyone else!
@jolieesposito8620 8 ай бұрын
Wow ... unbelievable interview 👏👏thank you for sharing...Positive attitude.. positive thoughts.. positive outcome...Good luck to you David & your fiance...lots of love and happiness and cute babies...🙏❤️🍀🤞🍀😊
@sharpie510 8 ай бұрын
Wow, this is a great story. It is not all that surprising you had bad side effects from the chemo and radiation, but to then get radiation induced cancer? That is horrible. Have you looked into DCVax-L? Like you, Brad Silver is alive and well with NO RECURRENCE since 2003. Also, he had no adverse side effects from the DCVax-L cancer vaccine. No horrible rounds of poisons, radiation, or an optune cap you have to wear 24/7. I also think Jennifer Sugioka may be living (again, with no recurrence the last I heard) because of DCVax-L. Jennifer was diagnosed with gbm in 1999 or 2000. Apparently there are DOZENS more long term survivors of glioblastoma if you google for them. So David, you are part of that club.
@roxyvelez3483 8 ай бұрын
What a lovely interview ❤ thank you for this! David is so kind 🙏 I reached out to him back in the day one ofbmy best friends was diagnosed with GBM. I lived a little bit longer than what the doctors predicted but sadly Brazil health system had so much negligence, he was also fighting the system besides GBM. Staying around people who fought together with him, made his last months be filled with love and courage. He never allowed negativity in, even on his last hours.
@kathycummings691 8 ай бұрын
Awesome interview and fabulous organization 👏🏼👏🏼👏🏼
@laurievillotta7935 8 ай бұрын
I am 52 and childhoood cancer survivor. I was diagnosed with Wilm’s tumor in 1977 at age of 6. I had a left nephrectomy with 2 years of chemotherapy and cobalt radiation. Lucky for me I had an 85% cure rate. I did great until 1997 I was discharged with Papillary thyroid cancer and had a total Thyroidectomy. It was a rough few years, but life became more normal. At this time I had been Oncology nurse for 3 years. In 2012 I relapsed with Thyroid cancer. I had a butterfly mass on my layreangeal nerve. I had 2 amazing surgeons. Life moves on and I was diagnosed with a Leomyosarcoma of the abdomen. My mass was near renal artery and was about 4x4 mass with clear margins. That was the most difficult Surgery I have had to go through. All my surgeons agree that Cobalt radiation had a lot to do with all my cancers. I am a slow healer to the abdomen. I have also been a nurse for 30 years. Being on both sides has humbled me. I thank God everyday for life I have been given. I am thinking about starting a podcast for long term pediatric patients that have survived and are looking for support as there have been many more challenges that we all have faced. I absolutely loved listening to this interview. I am writing a similar story. I would have no idea on how to start a podcast, but if you could reach out I would love that.
@darlenepietzak9847 8 ай бұрын
Has anyone ever told you that Cobalt Radiation can cause other cancer years later? I had Cobalt Radiation when I was a toddler for tumors in my trachea. Twenty five years later I had a thyroidectomy due to 4 precancerous tumors on my thyroid. I was told it was probably caused by the Cobalt Radiation. Three years ago I was treated for breast cancer and I was very nervous to have radiation again. It can be frightening.
@laurievillotta7935 8 ай бұрын
My Thyroid and Leimyosarcoma are result from Cobalt radiation.
@Gillyber 7 ай бұрын
@@darlenepietzak9847my spouse had childhood cancer and has developed cancer again 14 years later the oncologists are 99% sure it was from radiation she received as a child it’s devastating.,
@pointpleasantranch 8 ай бұрын
There is no sound after the introduction, any suggestions?
@luisvaldes7663 8 ай бұрын
Great episode 👏🏻
@Zinnaerris 8 ай бұрын
My dad was just diagnosed with Butterfly Glioblastoma. They removed a lot of it however it's all throughout his frontal lobe as well as some in the back of his brain. He thinks he's 95% himself but he's not. It's been a month since his craniotomy. He thinks with chemo and radiation he will be able to live a year even though the oncologist said 16 weeks with treatment. I don't know how to help him understand.
@amiratosic9701 8 ай бұрын
🙏🙏🙏🙏❤❤❤
@amiratosic9701 8 ай бұрын
Amber, I still watch you you and support doing great job. Love you so much just because you doing what you’re doing. My husband is still fighting it not easy. Your mom knows what I am going through. Keep doing, love you❤❤❤😂
@amiratosic9701 8 ай бұрын
Thank you for sharing your story ❤❤❤😢😢😢
@amiratosic9701 8 ай бұрын
My heart is with you beautiful, my husband has glioblastoma, 10 months, still doing ok. He is now on lomustine. Recurrent glioblastoma last 2 MRI . Wish you the best.
@julielockman631 8 ай бұрын
I loved this, Jordy is such an inspiration and I’m so happy you have these podcasts, thank you!you two are both amazing, strong women and doing so much for so many❤️❤️❤👏🏻👏🏻👏🏻
@khuram72 9 ай бұрын
I'm so excited to hear that you are doing another series, Amber. Keep up the amazing work you are doing to highlight awareness around brain cancer.
@frederickcarr6416 9 ай бұрын
I know what Kelly Kelly is going through. I lost my Dad 31 yrs. Ago and I lost my Mom 11 yrs. Ago both from Cancer. Its still hard for me especially around Birthdays and Holidays. I will never forget about them and I'm always always always thinking about them. Love You Alot Always Princess ( Kelly Kelly) B.T.W LOVE LOVE LOVE YOUR LONG LONG AMAZING PHENOMENAL HEALTHY THICK SEXY SEXY SHINY HAIR HAIRSTYLE AND THE COLOR ❤ ❤ ❤ ❤ ❤ YOUR HAIR IS DEFINITELY ABSOLUTELY ❤ 💯% HEALTHY FULL OF BODY AND BOUNCE AND DEFINITELY SHINES LIKE SILK ❤ ❤ ❤ ❤ ❤ ABSOLUTELY 💯% AMAZING PHENOMENAL GORGEOUS STUNNING HEALTHY THICK SUPER SOFT SUPER SILKY SUPER SUPER SEXY AND DEFINITELY ABSOLUTELY 💯% 💯% SUPER SUPER SHINY HAIR THAT ALWAYS ALWAYS ALWAYS LOOKS NICE IN YOUR VIDEOS AND PHOTOS 📸 📷 🖼 🤳 ❤ 💖 YOU'RE SO SO PRETTY BEAUTIFUL GORGEOUS STUNNING ELEGANT CLASSY ADORABLE AND YOU'RE A SWEETHEART ❤ ❤ ❤ ❤ ❤ YOU'RE DEFINITELY ABSOLUTELY ❤ 💯% A PRINCESS AND A GODDESS AND DEFINITELY ABSOLUTELY 💯% A PERFECT 10 ❤ ❤ ❤ ❤ ❤ 😂 ❤ 😂 ❤ 😂 PLEASE!! PLEASE!! STAY SAFE AND STAY HEALTHY 🙏 ❤ 💙 💓 💕 TAKE CARE AND GOD BLESS 🙏 ❤ 💙 💓 💕 LOVE LOVE LOVE YOU SO SO MUCH PRINCESS ALWAYS 🙏 ❤ 💙 💓 💕 👸 LOTS OF HUGS AND KISSES ALWAYS 🙏 ❤ 💙 💓 💕 💋
@amiratosic9701 9 ай бұрын
Love you beatiful, doinggood job. My family move from Croatia to Canada 1998. My husbend 2023 in August was diagnosted with Glioblastoma. It is April 2024. HE IS STILL DOING GOOD ❤❤❤❤
@amiratosic9701 9 ай бұрын
So sad, 😢😢😢, my husbend has glioblastoma, life is not gonna be easy,stay strong. Love from Canada ❤❤❤
@FLEXONYOU2 11 ай бұрын
So all my girls in the club say oooooooo
@annieparev9929 11 ай бұрын
Please checkout Ketogenic Diet + Intermittent Fasting! God Bless
@Karla-yi5ld Жыл бұрын
My husband had glioblastoma multiform. His first symptoms were headaches.
@Manjul54 Жыл бұрын
My husband was diagnosed with Glioblastoma grade IV. He’s had surgery for removal of the tumour but before we could start radiation the tumour has already grown. We start radiation soon but what’s the path after that ..can anyone help.
@sissysmith9156 Жыл бұрын
Also everyone who is searching for the path to health, I’m hoping that your hear truth and do the best you can to cope. I am so thankful to be learning! I’m going to look for a trial to help me get to back to my dream! My dream is playing lots of golf with the Amazing BMWGA golfing ladies and the leoladies came to take me to lunch. I feel very Thankful!
@sissysmith9156 Жыл бұрын
Thank y’all for sharing your path and what you learned! I had surgery for glio 12/07/2023. I am in process of choosing my path. I feel very lucky to be in this process. God Bless!!!
@nickkarasch Жыл бұрын
I have GBM as well, age of 36. Mine was originally diagnosed as AA3 in 2016 but it's not doing so hot lately.
@marieargentieri7989 Жыл бұрын
Sorry to hear you are not doing so well currently. Are you working with a neuro oncogist?
@humairaijazkhan1077 Жыл бұрын
Amani's mom is a real gem...such a patient & humble soul...I wish I could be befriend her!
@felix_hartmann Жыл бұрын
So insightful as usual 🙏