*scaffolding

What a lovely woman advocating for those with word finding aphasia. I had a severe brain injury 20 yrs ago. I ❤ the way you're explaing everything.

Primary progressive aphasia is typically in absence of any stroke or trauma It is degenerative and progressive in nature whereas aphasia post stroke has better prognosis with speech rehabilitation comparatively primary progressive aphasia.

Scafolding.. was the word.

What are the early symptoms of PPA ?

Thank you for your very helpful video

What a pleasant lady. Nice people are the best people.

S C A F F O L D I N G ❤️

I have moments where I speak to someone and they really don't pay attention to what I say its annoying because I know I'm making sense in my mind but when I say it out loud people just stare at me like I'm stupid. I once heard a friend say " what's he saying he sounds like someones pushing a button and sound just comes out". I felt really bad because all I was trying to say was " I need a break from work it's been really stressful" . I stopped talking to them because I realized they dint think of me as a normal person.

My heart breaks for this woman, you can see the sadness in her eyes at how her life has changed. I wish her the best.

This is me!!! Mine is the same and I feel the same. Frustrated but still doing my best 🌺

scaffolding is a hard word to remember I agree. I can't even spell it lol

I experience this with MS!

God I just want to give her a hug

Beautiful lady

One question, why is the patient able to understand the last part of the conversation and his response is appropriate?

My grandpa had a bad stroke when I was 6 and I helped him talked to others till he passed 6 years later then my dad had a type of stroke but no one could diagnose it. I help him now. It’s all about being patient and I find it fun to help because you have to enjoy the little things in life and well at least I get to spend more time with my dad now. That’s my bright side.

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I'm only 59 but am beginning to forget words. I teach so it can be quite inconvenient. Weirdly, one word is amnesia (I shit you not) and another is discrete or discretion. There are others. Does anyone think I should seek a diagnosis? ps I struggled to remember discrete!

The brain is fascinating. When parts of it break it has strange effects. Hopefully one day they'll figure out what causes my autism.

shes so engaging when she speaks. its an awful thing. wish I could just click my fingers and get rid of these little things that make life so much harder.

this explains alot. this is why my mother says she can't read anymore or answer certain questions I have

Her mistakes are interesting... _vigar_ for _vicar,_ _worth_ for _word._ Phonetically similar sounds that in many languages aren't distinguished. Sounds like she'd have better luck being aphasic as a Finnish person.

Scaffolding was the word, and I got that from you straight away. If you are trying to say something and are clear in your head what it is you are trying to say but just can’t, is it possible to write the word down or is that ability blocked as well ?

My bet is "scaffolding"

This is a terrible affliction this woman said she a priest

1:33 Scaffolding! That is a tough one anyway.

I thank her so much for her honesty. It's important to hear.

I dunno.. she seems to be stringing sentences together quite well / normally..

Me too. It can be so depressing and irritating.

I understand everything she says am I aphasia today twice?

Is she trying to say scaffolding? Awww, I feel for her.

Had a seizure and had phasia effects after. It is the absolutely worst feeling in the world. Everything in your brain feels normal, but when you speak it’s Jiberesh

You are so lovely, great attitude. I wish you a wonderful life filled with love and happiness

I wonder if she'd be able to say "scaffolding" if someone were to say it to her. Like, could she repeat it just by rote?

What a lovely woman she seems. I hope she got support.

"Scaffolding" is the word, right?

This was somewhat similar to what happened to me,, but not nearly as bad. I never had a stroke. I don’t have dementia or anything like that. I contracted a disease called autoimmune encephalitis. I could write a book about my medical problems, but the short version is that I started to suffer an enormous number of seizures and I guess if I want to talk a little bit about the autoimmune part…basically the antibodies in my body that went to my brain to kill the encephalitis got confused and stayed in my brain and started to attack healthy brain cells once the encephalitis was gone, so basically my own body was causing brain damage to a point. So after I was discharged from the hospital, I had some memory problems and physical limitations. Like I couldn’t really remember how to use a computer for example, even though right up to the point where I dropped and had my first tonic clonic (Grand Mal) seizure I used a computer every day. It was an essential part of my job. I forgot many very basic like trivia type things such as stuff about my favorite movies, music, etc. I could have conversations with people but then out of nowhere I would suddenly not be able to find the words for what I was trying to say. Like I might have been wanting a chair for some reason but I couldn’t remember the word for chair so I would have to describe it. I’d say something like “Ya know that thing. It has four legs and you sit on it.” and somebody would say “Do you mean a chair?” and I’d say “Yeah that’s it.” It was extremely frustrating for me and I’m sure for those around me. I initially had my first seizure on September 27th 2017 and ended up at the Mayo Clinic in Rochester, MN and was discharged on January 1st 2018, but I believe I had to go back a couple times due to some relapses, but once my neurologist finally found a cocktail of drugs that worked for me, I’ve been basically fine for I think over 3 years. I have a few epileptic blips every now and then but as long as I take my medication I’m 95% fine and for the most part my memory problems have been cured, although I still wouldn’t say I’m the same person I was before all this happened to me. I’m just in a MUCH better place than I was in say 2018.

Im 41 and this feels like me..im scard..my son is 5 and i dont understand his storry books..i loss words and really stuggle to follow or remmember conversations

I had a massive stroke and was diagnosed with aphasia. I never knew there were different types. This video is relatable because I experience all of this. Because I don’t have any paralysis and I can speak clearly after therapy, I have a hard time helping people understand the delays, forgetting words at random times, mixing words within sentences, having trouble reading, having trouble retaining information and thoughts, slurred speech after about an hour of speaking is so hard to explain. Thank you for this video. I will now use it as my resource to help people understand feeling as I am stuck in a body I can’t control. Thank you so much.

God bless you!

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I had been to many doctors and no body knew what it was. I've just figured it out by myself after 7 years of misleading. I could not continue my PhD course because my work was not accepted due to delay. My supervisors were asked me to finish the work on time and I gave them promises but when I went back home and started to write I found no words in the brain to write, so the work had never been done. It took me 1 week to write 200 words. I realized later this is inhibited and run in the family. We all were misslead and had been told it was just the start of Alzheimer.

Thanks for sharing your experience. It is very much appreciated and I feel privileged to have the chance to listen

Thank you for sharing, you are a wonderful person I can tell, like somebody I'd like to be related to.

Thank you for sharing this personal account so we all can understand. It is very helpful. All the best with the condition.

Thank you for posting this, it was extremely informative and helpful.

Hi my wife Gill, who is 52, has Progressive non fluent Aphasia. Is there any part of the course which deals with language issues?