How are you doing today?

❤

1992.11.15

I have generalized Dystonia i can't speak I'm more spastic less tremor..😢

This is not dystonia

God bless you my friend just watching you I feel so for you I've been diagnosed with General dystonia and it is very difficult when I go through the storms you have to rely on your faith in Jesus

thank you for making his video

I have had this for 22years Now . I have Tried to Kill myself 4 Times Because I can't Handle the Pain and Depression . I'm Like Paddy , get No Help what - so - ever . I Can't even get a Wheelchair .

Try to contact Dr Farias in Canada. He's got some success in treating dystonia of all sorts. Met him personally on workshops, great man.

My baby boy has dystonia and doctors can't tell me if he'll ever walk or talk or do anything for himself. If he turns out anywhere near as brilliant as you I'll be so proud ❤

Thanks for sharing mate good luck to you i have Dystonia but no where near as bad as yourself.

Do you have to wear diapers

So not the poacher then.

Dogs are always there with us in our good and bad times

😢😢😢😢Paddy Doyle so sorry to hear ur story😢😢

is it the left foot is not functioning at a[[

Hi Paddy. Hope all's going well.

hey Paddy, do you have the complete video?

ive had this. in my entire body. Getting doctors to understand or take my complaints serious is hard. it started happening after eating gluten or dairy. So cut it out obviously. it does happen only a milder scale when im tired or stressed but those two foods seem to make it worse and it takes awhile.. weeks even months to calm down after consuming these things.

Just checking to see if this channel is still running

Typically the way to deal with Orphans in Ireland in the early to mid 20th Century (maybe in loads of countries) was just to treat them as criminals and lock them away from Society. Given what the head Nun in his Industrial School (an evil sounding bitch called Mother Paul) said to Doyle's Uncle, there was this thing believed that Children were "resilient" and would forget everything after a length of time, as though Children were not really People, or at least "not People yet"... and I think that it was seen as the excuse the Catholic Hierarchy used to ignore the abuse of Orphans and Kids in Industrial Schools, thinking it'd be all forgotten in time and it was easy for the hierarchy then to get the Government to cover it up. Sounds pathetic I know but I think it makes sense.

Hi, was just diagnosed with Generalized Dystonia too. Your video looks so much like me trying to get around. I'm not glad you have it, but I am glad to see somebody else who understands what what's it like. Hang in there my new friend.

thx for sharing. i have distonia also, so i know the pain your going threw. best wishes and a lot of love.

no parese distonia

Hello Paddy, Jacques here who again checked you video this afternoon. Always very moving! Regards, JJ

Thank you for your very personalized video Paddy, very, very moving! Best regards, JJ

Hi there Paddy! Hope you're well my friend, well as well as you can be or even better, if your health iproved. Please write to me in my inbox I will feel more free to talk to you. Best regards and big hug my friend! Yours always, JJ

Youre an inspiration sending you message to everyone! Stay strong

Will you also read up on the Haut de la Garenne and Staffordshire Pindown abuse as well, because it is all related, Catholic church involvement in that as well Father Hudson Society, and other Catholic groups. Thanks

Thank you so much for writing about your experience in "care". What a sick joke that four letter word is, that should mean the exact opposite of what it really was. I am one of the Staffordshire Pindown child abuse survivors, Stafford Police have colluded with the local authorities and government to try to hide the Allan Levy QC/Barbara Kehen report from the victims of the abuse, and persecute them to make it look like they were "no angels" - that they deserved to be abused.

ths is bloody hellish, im reading the book and to see you here in such a state makes me sad. All the very best to you. Thanks for writing the book.

Please view my KZbin videos. Life before and after DBS. You will be amazed. Just click on my name Brandy Edmonds and it should pull up all my videos.i have generalized dystonia and had my DBS done in Oct 08. Please let me try to help you. If you have any questions let me know.

Try DBS Dystonia on the search engine. You'll be amazed.

DBS is widely used for parkinons patients but find it beneficial for generalized dystonia. I had my left side done May 7th 2012 wwith the battery pack alreay turned on now i can grip a pen and write normal aand i can also ut my foot steady on the accelerator and drrive normal. Just got through my second surgery for my right side July 11th 2012. They turn on my battery pack Aug 21st. 2012. I'm at 40% right now hope to be at 80-90% come Aug 21 Try you tube DBS you'll be amazed with this procedure.

I have generalized dystonia Seen several Neurologist supposed to be best in their field. One diagnosed me with Sydenhams Chorea put me on all kinds of Meds but symptoms kept progressing. Went on the internet researched movemment disorder saw dystonia and said to myelf I hink that's what I have. Went to Mayo Clinic in Jax FL and he told me I had Dystonia. Came back home saw a movement disorder specialist. Put me on meds was not helping and finally last resort surgery DBS (Deep Brain Stimulation).

I have a friend who has helped dozens of people with dystonia. I suggest you Google "Steve Zarren" and check him out.

I know how you feel. I'm 18, about to turn 19, and there's not an entirely good chance I'll be able to make it to my party. I always shake, though it's gotten worse lately especially if i try to pick up a small object. From time to time I'll throw something on accident, no matter how odd that sounds, because I'm shaking so much. I fall quite a bit, and when I do i don't have the strength to pull myself up, either.

Dear Paddy, I am a final year medical student. I watched your video several months ago whilst on my neurology rotation, as I wasn't sure how it would manifest i.e. which movements the person would exhibit. Last week I had my final medical exam & I was brought to a patient with dystonia. I was one of the few students who identified the problem correctly. Without your courage & inspiration I would possibly not be qualifying as a Doctor in a month. Thank you Paddy!

8:22 :)

I am a social care student and in passing I have heard of you. Reading your book is a different story. You are an amazing man. So brave and an inspiration to those whose lives have also been destroyed by the Catholic Church in Ireland.

You are such an honourable, empathic, generous, intelligent, beautiful humane being...... and yer strength is an inspiration. A gift to those with the heart to feel.

ive just found out ive got this and its been confirmed at kings college london.

An important video. Many thanks Paddy. I read your book in 1984 and have never forgotten what a powerful read it was. Masterfully written, no self-pity. It just floored me. I believe it affected me more than any other book I've ever read. I admire you and your dignity, given your ill-treatment at the hands of those who should've cared for you.

I sympathize with your struggle. Best wishes to you.

I love your adorable dog! :3

Dear Paddy, thank you for sharing your ordeal with us the general public who care. May I ask since how long you're suffering from GD? About the eamail, you should know that everyone can use the personal email integratade in this website up in the right corner under our name or pseudonymn. I would like to exchange emails in that system because it more personalysed and private. I wish you well Paddy and again thank you for sharing your ordeal with us we sure do ampathise with you my dear friend.

Are you able to take any meds for this? MY left shoulder started twitching three days ago and I cant figure out why...the only thing that helps it is valium, but after two hours of taking my meds it comes back :( How can u tell if its dystonia? The er doc said it was a focal movement disorder of unknown cause. I also have Lupus so we are trying to rule out a Lupus related movement disorder...I hope u feel better soon

i wonder how he got the camera so perfectly praportiand to him....

hope you're doing okay Paddy :-)

I have generalized dystonia in my whole left side and right side of my neck. That Cheerleader Girl vid made me soooo angry. And I never get upset, because stress can cause an incident. I wrote that news station went off something epic. I would never wish my condition on anyone, but she was so blatantly faking it, it was disgusting. It's also very difficult to diagnose, and with very painful tests (EMG etc.) My heart goes out to everyone with this.