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Пікірлер
@MarkSouthee 6 ай бұрын
Awesome!
@thewreathmeshine 6 ай бұрын
Thank you for stating this. I say the same thing on my video. Prayers for strength and healing.
@vanessabeentjes 7 ай бұрын
Thank you for sharing this, I feel you, I hope you can manage it and enjoy life in between those flushes. I have carcinoid syndrome as well. Stay strong.
@CharleneTaylor-kz8lz 7 ай бұрын
That not good
@rebekahcarton 7 ай бұрын
Surely you need to take your pack off to put a waterproof on anyway?
@sheenponte1470 7 ай бұрын
Do you have a video sharing the symptoms leading up to your diagnosis?
@carver3052 7 ай бұрын
Honey...im facing this dx. Ive been flushing for 2 yrs . I just want to rip my skin off. Its just horrible.Stay srong
@jaysee4447 7 ай бұрын
I have a question as I've flushed off and on for 2 weeks. Drs are saying I have extreme anxiety which I do. But does the sunburnt feeling stay after a flush? Bc I can stay reddish and stingy for quite a while after. There's so little info on this
@gracebottrell8945 4 ай бұрын
@@jaysee4447 I’m dealing with the same thing, severe anxiety at all. I’m so scared
@brantley7831 8 ай бұрын
☹️ Promo`SM
@fleurleslie9893 9 ай бұрын
Thank you, it was such a good run and that sunrise was amazing
@EmmadeHaas-o8c 9 ай бұрын
I feel you. I too have carcinoid syndrome. I refer to the flushing and hormonal lurching as my ninjas misbehaving. We have very little control. It’s shot but we battle on. Much love to you xx
@dawn6954 11 ай бұрын
Omg you explain it to a tee! The heart palpitations the throbbing in the neck and necessity to rest! I really really hope youre better! ❤
@nicoleh7165 11 ай бұрын
Hi! How long did each one of your flushing episodes last?
@carroinferno62 11 ай бұрын
Good afternoon, my language is Portuguese. How are you at the moment, are you ok without pain? I'm sorry for not understanding you, I hope you are better
@jcbslytherin269 11 ай бұрын
Bless you. Sounds like you live near me from your accent. I have surgery on Tuesday.
@jaysee4447 7 ай бұрын
I have a question as I've flushed off and on for 2 weeks. Drs are saying I have extreme anxiety which I do. But does the sunburnt feeling stay after a flush? Bc I can stay reddish and stingy for quite a while after. There's so little info on this. How did your surgery go?
@erinnorwood6124 Жыл бұрын
Thanks for sharing
@deborahbutcher624 Жыл бұрын
Thanks for uploading, this is so helpful. Wishing you all the best and hope you feel better very soon.
@CreativeLittleHearts Жыл бұрын
I want to thank you so much for creating Couch to 5k the fun way and sharing it on Spotify. Changed my life, loved your positive attitude, encouragement, and funny dialogue. Now I'm A RUNNER and loving going for runs 3-4 times a week. Ran my first 5k, and never thought it'd be possible. Now I'm training for a 10k. I tell everyone I can about your series. Thank you!
@jessielemke465 Жыл бұрын
P R O M O S M
@woganjones2012 Жыл бұрын
Ardderchog Huw😊
@Runningcolin Жыл бұрын
Hope the dentist goes well I keep putting mine off lol😂
@nikkiboza4237 Жыл бұрын
Im so glad u are doing okay i came across A american cancer society Exercise video Hope you are doing well
@markahobbs1967 Жыл бұрын
I may be about to embark on the same journey - this series of videos is a great comfort in seeing your attitude and how you deal with it!
@MarkSouthee Жыл бұрын
🤣🤣🤣
@sportpicturescymru Жыл бұрын
Da iawn Huw ;o)
@runner1984 Жыл бұрын
Endurance running..nothing better.
@Loftydsm 2 жыл бұрын
Sorry you're going through this. Feel better!
@yourintrouble6296 2 жыл бұрын
Love you Hugh. I’m on week 6 run 2 and your Pod has helped me hugely. Your a real inspiration mate go easy on the shortbread x
@SatumainenOlento 2 жыл бұрын
Thank you so much for uploading! This can save people's lives!!! Extremely useful information! Sending many hugs ❤❤❤
@thebasiclife4319 2 жыл бұрын
3 heart valves replacement bro??, so u got 3 mechanical valves
@josedondero6428 3 жыл бұрын
it's really fit to body? sttech like a fisrt layer or more like a Hoodie (2° layer)? 185 cm, 46 chest and 100 kg jeje
@MarkSouthee 3 жыл бұрын
Sending lots of hugs Huw c
@toniwright9163 3 жыл бұрын
Sticky ball weed too for stings and bites
@toniwright9163 3 жыл бұрын
And wounds oops. (Cleavers)
@realand1985 3 жыл бұрын
tomorrows a new day Hugh, just take every day as it comes, as long as you fight you'l be ok, just stay positive, for yourself, wife and kids, your doing great and still upbeat with your humour, stay strong , keep the faith up, keep doing what your doing :) all will be well, you take care.
@lizziebeggimbo 3 жыл бұрын
That flush looks awful, it's very similar to what I get. When I get the flush my heart pounds and I get bad anxiety. I have terrible heat intolerance now too. Used to love sunning myself and now I hate it haha.
@guidotheguru 3 жыл бұрын
Huw I'm only 5.9, I'll get lost in that grass.😂😂
@GetUpAndRunPodcast 3 жыл бұрын
🤣🤣🤣🤣🤣
@realand1985 3 жыл бұрын
iawn huw, i love your videos, me and my family love the llyn peninsula, although im from anglesey i always take my fam to Pwllheli, Aberdaron, Llanbedrog and Nefyn, we camp and glamp in Llwyndyrys a few times a year ( until basdud covid :( )bloody lovely places, were so bloody lucky to be born in north wales, i work in pwllheli 2 times a week, if you ever hear a beep and see a grey van with a bloke waving, thats me saying hiya, keep up the videos, all the best to you and your family
@GetUpAndRunPodcast 3 жыл бұрын
Iawn Ricky. Brilliant thanks very much, Anglesey is fantastic. Yes very lucky and a great distraction,will do 🕺🏻🕺🏻🕺🏻🕺🏻
@lizziebeggimbo 3 жыл бұрын
Why don't you get long acting octreotide?
@GetUpAndRunPodcast 3 жыл бұрын
Hiya.im on the monthly Lanreotide injection and was only requiring a 100mg subcut up until I was in A&E with sickness and vomiting due to a virus but brought on very bad carciniod crisis. The NET nurse advised the 200mg 3 times a day since then. I’m there a week tomorrow for a tumour marker scan and bloods so I’ll ask about the long acting octreotide. Is that what you take? And thanks for the reply
@lizziebeggimbo 3 жыл бұрын
@@GetUpAndRunPodcast ahhh okay, I wondered why. Sounds like you've had a terrible time. Would you be up for doing a short video on how you were diagnosed? No I'm still at diagnosis stage, lesion found in liver and high chromogranin A along with the symptoms. Waiting on a PET 68 dotatate. I'm in Scotland so it's taking time. Best wishes.
@GetUpAndRunPodcast 3 жыл бұрын
@@lizziebeggimbo yes of course. I’ll put one together this week. Are you in a NETs centre of excellence? Early stage I asked for second opinions. The Ronny Allen FB page is very good with fact based topics.
@lizziebeggimbo 3 жыл бұрын
@@GetUpAndRunPodcast aw thank you. I found you via Peter Riley's videos. I wasn't initially as we don't have one where I am so I had been referred to Glasgow on second opinion too. They are a centre of excellence thankfully. :)
@lizziebeggimbo 3 жыл бұрын
You do not sound dramatic at all, you are a walking miracle! 👏👏 bless you
@CraigWilliamsUltra 3 жыл бұрын
God bless ya Huw. I know you’re not doing these for sympathy but bloody hell me you’ve been through the wringer and I really feel for you buddy. Incredible that you can talk so openly about all this. 🙏🙏
@lizziebeggimbo 3 жыл бұрын
It's Emla isn't it! Emla was a friend of mine years ago 😅 then I ended up in hospital so much that I'm so used to it.
@GetUpAndRunPodcast 3 жыл бұрын
Yes! I had a toothpaste size tube on me yesterday. I do wish they used it at the start of the diagnosis as the student nurses used me as a dart board which made me develop a phobia of needles. Best cream ever
@lizziebeggimbo 3 жыл бұрын
Just came across your page from Peter Rileys. Sorry to hear you have been having a hard time. I am under investigation for this and something was found in my liver recently. Waiting on a pet 68 dotatate scan. What you said about the mask wearing struck a chord with me as I get the exact same. Do you ever find you have panic or anxiety symptoms with your carcinoid attacks?
@markahobbs1967 Жыл бұрын
How did it go as I am being looked at now for same thing
@lizziebeggimbo Жыл бұрын
@@markahobbs1967 Hi Mark, so I had various mri's and CTs and now have what they are calling focal nodular hyperplasia. I have 6 hypervascular lesions in the liver. Part of me is still a bit skeptical as I've been so symptomatic and differential for hypervasuclar liver tumours is carcinoid. But my biochemical results are all normal so they aren't worried. It did get picked up I have sleep apnea and also inflammatory arthritis in my neck with some cord compression so this explains a lot of the flushing, heart issues and problems with bowels. I really hope you get to the bottom of your troubles and I hope that it isn't a neuroendocrine tumour but if it is then get in with a centre of excellence for the best care. Best wishes.
@markahobbs1967 Жыл бұрын
@@lizziebeggimbo wow that sounds like a mouthful! I had to look it up and I see what you mean about being skeptical. Have to trust the doctors! My main issue is feeling unwell with all the classic carcinoid symptoms and doctors on a go slow, they look at obvious first but have not found anything obvious! The flushing is really what woke me up as the abdominal pain I have had before, just not as long or protracted. MRI, pet scan, bloods, colonoscopy all clear. But the more I read about NETs the more I scare myself that they are hard to find. Will try to get more answers this week. I hope all is good for you and I also hope Huw is doing well too
@GetUpAndRunPodcast 8 ай бұрын
@@markahobbs1967 sorry for the delay! How are you mark? I’m on fb if that’s easier
@markahobbs1967 8 ай бұрын
@@GetUpAndRunPodcast no worries….i am still in a place of no diagnosis. Face red almost 100% of the day and gets worse after eating…stomach aches too but tests have not shown anything. Love your channel and podcast and the way you are dealing with it hence reaching out. Still no ideas for me which is pretty stressful as not knowing can almost be worse IMO. How are you doing now?
@tvo2563 3 жыл бұрын
a thumbs up seems to be a really trite comment on your struggles Huw. Dal Dy Dir!
@rachaelpatricia9865 3 жыл бұрын
Thanks for sharing these Huw xx you are the most positive motivated person I know even when you don’t want to be you find a way xx
@CraigWilliamsUltra 3 жыл бұрын
Pate, chicken soup.. no thanks... got any Octride 😂😂😂😂
@CraigWilliamsUltra 3 жыл бұрын
Very humbling watching your struggles Huw. Good effort dragging yourself out for a walk on such a rough day.
@GetUpAndRunPodcast 3 жыл бұрын
Test
@Soraremaxwell3500 3 жыл бұрын
Chwarae teg! Wedi rhoi ysbrydoliaeth i mi fynd i rhedeg a neud y mwyaf o’r awyr agored! Dal ati!
@GetUpAndRunPodcast 3 жыл бұрын
Diolch Rhys
@europa1387 3 жыл бұрын
Nice mate. Just wondered what size you got? and what height you are? I'm 5'11 and think I might go for the large. Cheers.
@GetUpAndRunPodcast 3 жыл бұрын
I’m 6 foot and medium frame. Went for the medium which fits well
@kruegs1fan322 3 жыл бұрын
Hey your video was great! My friend also makes running videos like this on KZbin. Check him out if you get the chance, JK Running Productions!
@cerys2434 3 жыл бұрын
😍
@cerys2434 3 жыл бұрын
I’m on week 1 day 2. This is great. Thanks for all the tips and sharing your journey Huw 😊