My former partner passed from MND. He had been a Special Forces squaddie and a real outdoors man. We would do survival holidays etc. Within 8-9 months he simply faded away until he could have been lifted up, caught by a gust of wind. The reason why it became so difficult to obtain these medications was because they were used by the gallon in the "Land of the free" to murder innocent people based on evidence obtained using "The Reid Technique" and lie detector tests (which are horribly flawed and totally inadmissible in courts almost everywhere else
@sheikhhzaidd28 күн бұрын
So is this drug available in the market. Hope you reply.
@mndassoc28 күн бұрын
Hello, this drug is not currently available via the NHS. It is currently being assessed by the National Institute for Health and Care Excellence (NICE).
@lynnelliott-e2p28 күн бұрын
Not one MND sufferer on this a
@Ulleskelf28 күн бұрын
You may want to look back at the dozens on videos on this channel, the majority of which are about people with MND: www.youtube.com/@mndassoc/videos
@lynnelliott-e2p7 күн бұрын
But not one person with MND on this
@fabriziofinetti9364Ай бұрын
DIVINO !!!!!!!!!!!
@TinyMenace10Ай бұрын
RIP Dad 🕊️❤
@jeffclarke3191Ай бұрын
It should be important to emphasise that not all MND's are life shortening. In my case of PLS (Primary lateral Scelerosis) where lifespan is not shortened, just more difficult to negociate each year. PLS is very rare, and and still only a very small proportion of MND cases, and because of its rarity few healthcare professional have even heard of it.
@kesterhoward5942Ай бұрын
G’day from Australia, you have both done a fabulous job 👏
@amaritineenthusiast2 ай бұрын
My uncle, Norman, had Motor Neurones Disease, diagnosed in 1974 I think. He went from an active man, a mechanic, someone who valued his ability to complete practical tasks above all in his business, a best friend and a good father to just... nothing. It was about 3 years before they had to tie his head to chairs because he couldn't hold it up on his own anymore, and a matter of months until, on the 8th November 1977, he died due to the complications.
@amalouburtonpye55764 ай бұрын
Thanks so much for uploading this ep Peter and Daniel r a joy 2 watch together and they were incredible on corrie in this storyine will miss Paul and billy were best corrie couple😊😊☹️❤️❤️🧡💙🧡💙
@barbarawalker89574 ай бұрын
Thanks for this upload. These are 2 brilliant actors especially Peter ash. They have played out the story in a realistic and believable manner. Well done to them both!
@milesp72104 ай бұрын
Thank you so much for doing this campaign. It is so important that there is more awareness of MND amongst the general public. Great work.
@suedevaney64194 ай бұрын
Amazing campaign 😭💔lost my mum to MND
@JillTodd-e4i4 ай бұрын
So sad 😢😢
@juniselourens13094 ай бұрын
my brother was diagnosed in July 2024
@olivedog18804 ай бұрын
She seems like such a sweetheart, I hope she is still doing well, although the prognosis is very poor.
@elza1485 ай бұрын
Absolutely brilliant, even Heads of State globally got involved, raising awareness is key to diagnosis. Project Mind such a brilliant research project 👍
@charlottepegrum94655 ай бұрын
What an incredible man. Sam, you've already won at life to have the outlook and strength you already have. Sending all my love to you 💕
@elizabethpatrice43135 ай бұрын
Great advise to others Nicky, stay positive, my thoughts are with you & your family. Lovely horses too x
@jimbothejetset19825 ай бұрын
Amazing story, such a brave lady.
@joannad91425 ай бұрын
I really appreciate this video as I have just been diagnosed last week and it is really scary. I can only deal with each day, as it comes.
@俽4 ай бұрын
God bless you
@He_Roblox15 күн бұрын
Are you okay? Just wondering.
@Carla-fd9nc6 ай бұрын
How do you think you got it? I got mnd swear i gotta it through a infection
@BalletShoes-c1k5 ай бұрын
Pfizer Covid vaccine …..
@MrNaveen7326 ай бұрын
My mother is going through this phase. May God provide peace and strength to the ones and their families who are going through it.
@garyroe29297 ай бұрын
God bless them all , hopefully there’s some light on the horizon xx
@KarmaFranklin7 ай бұрын
its the saddest thing ever.. to watch helplessly as someone you love dies slowly... its devastating.. my mum got diagnosed today
@Delboy27277 ай бұрын
Just found out my 32 year old brother has just been diagnosed with MND this morning. Just seems so unfair
@Tayyab-hr1gp4 ай бұрын
When his symptoms start of MND
@lindencross9337 ай бұрын
Such a horrible disease ,why can't we just all get old and go to sleep, who created all these cancers and diseases, can we blame God as he created us
@Millennial_Mike7 ай бұрын
It's the most unfair, cruel , hideous disease.
@SFKgames77 ай бұрын
brixton bully slide with the botty man leave 2 in your hoodie
@lindymcdonald89457 ай бұрын
Did you take the vaccine ,as there is a link between the vaccine and MND and other neurological conditions
@BalletShoes-c1k5 ай бұрын
OMG, first comment I’ve seen mentioning Covid vaccine 😳. My brother was diagnosed at 82 - yes. I’m convinced there’s a vaccine connection. He was over enthusiastic, had too many jabs & boosters.
@gmont288 ай бұрын
MND is the worst illness of all
@emilyeverson25678 ай бұрын
I lost my dad to this 16 years ago.
@gmont288 ай бұрын
The worst illness of all
@skygazer68988 ай бұрын
Cruel disease but having Sam's attitude is the way to deal with it. Wishing this lovely guy all the very best
@gmont289 ай бұрын
Its so unfair how anyone goes through this
@isabelamphlett19939 ай бұрын
My naned izzy, I'm 20 years old and my dad was diagnosed with mnd two weeks ago. This is probably just a shout into the void but im looking go feel less alone?
@AnonAnon-x3w29 күн бұрын
I m so Sorry you’re going through this with your dad, how is he? I think my mum is showing signs of it. Her speech is slurred.
@AyurvedicDoctor-y6q9 ай бұрын
This information is amazing .....Yogendra ras from Planet ayurveda are very good results on Motor neurone disease.
@khushdevsinghsonker76229 ай бұрын
Don't Trust Any Doctors they are Scammers, make your disease more worsen, they're taking advantage of incurable ALS, Official it can be stopped or slowed to 15 years, when regular exercise, healthy and rich diet is preferred NOTE:- Any type of Vaccination can cause Rapid Progression and death, preferred not to take any vaccination
@andymcgovern661510 ай бұрын
I wish you well Sam. I am the longest living survivor in the world at the moment 47 years since I was diagnosed in St Vincent's Hospital, Dublin. With motor neuron disease. It was hell. The first few years. Then I started to accept my condition. I still got some abilities that I treasure. I wish you the same life expectancy. Andy McGovern.
@Deerky239 ай бұрын
Truly remarkable Andy. My dad was diagnosed only 2 weeks ago, i hope only the same for him. Best wishes to you
@skygazer68988 ай бұрын
Well done, Andy. Wishing you all the very best
@MelonVidsYT7 ай бұрын
No, Stephen Hawking is the longest survivor for 55 years he got it in 1963
@Deerky237 ай бұрын
@@MelonVidsYT yes but Stephen Hawking is not alive. Andy said “longest living”
@MelonVidsYT7 ай бұрын
@@Deerky23oh I don’t think that’s true it’s very rare to have that chance
@martinb361910 ай бұрын
A basic and common error in this video unfortunately. The DST is a decision support tool not a decision making tool. It must not be used prescriptively or mechanistically to decide eligibility by scoring. The decision is made by the MDT using their professional judgement after they have used the DST as a structured evidence gathering tool. The domain weightings are a guide only and not having a high enough score does not necessarily mean you are not eligible. Paragraph 161 of the 2022 Framework and Coughlan case law test (in annex B) explain this principle.