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@jenniferkillam98992 күн бұрын
Fantastic! So helpful to those of us with cancer!
@IWMFVideosКүн бұрын
Jennifer, we're so glad you find it helpful. Keep up the great job taking care of yourself!
@carlosanjust639313 күн бұрын
My exams are all perfect...just igm at 900...but I feel bad...but there s no reason for treating..apparently! I'm very discouraged cause daily dizzyness !
@garyfoster501414 күн бұрын
Anyone hear of WM with elevated IGG, but normal IGM? After treatment for classic WM and six years in remission, mine came back mutated.
@judyduersch694521 күн бұрын
❤your Yoga!
@IWMFVideos19 күн бұрын
Yay! So glad to hear it.
@AllisonLuxNuovo26 күн бұрын
So relaxing and feel the vibrations!
@IWMFVideos23 күн бұрын
That's excellent to hear! Thanks for letting us know.
@kenbaird706729 күн бұрын
As a WM patient, I found your video very informative. I am now going to review my diet, which is pretty good, thanks to my very supportive wife.
@IWMFVideos26 күн бұрын
Thanks, Ken! I'm glad you have a supportive caregiver to help you with this important piece of the wellness equation.
@carlosanjust6393Ай бұрын
Forse...unAngelo Salvatore...
@larainimagine1Ай бұрын
I'm tough and this has been a nightmare. Obtaining healthcare is the worst part. Doctors do not and don't document your symptoms or put the wrong thing or recently totally fabricated a diagnostic which was provenly impossible. They get paid anyway.
@carlosanjust6393Ай бұрын
❤...
@wmpopperАй бұрын
Much appreciation for the informative, encouraging panel discussion.
@garyfoster5014Ай бұрын
I can't find much info on WM with normal IgM but elevated IgG. Any suggestions?
@garyfoster5014Ай бұрын
Is treatment any different for WM with elevated IGGs?
@juliewillard1367Ай бұрын
My husband just got diagnosed with WM.
@lorrainepatterson63002 ай бұрын
Very few doctors know even about non-hodgkins lymphoma. I have to advocate for everything. I'm waiting months for iron infusion because I'm not absorbing it. It's too much to have to advocate while battling it ...the fatigue, bone pain. constant respiratory issues. Even when my daughter goes with me, questions about a plan of treatment and failure to document symptoms leaves you abandoned. I can not get through to the cancer place and end up having to go in person to refill doxycycline. Still can't find out about iron infusion status because no one answers the phone. It's no wonder you die of cancer in America.
@CharlesProoth2 ай бұрын
Dr. Ansell recommends asking questions but he fails to realize that, after receiving the bombshell of the diagnosis, you have no idea what questions to ask or even who to ask. Four years later, I am still asking questions and have come to the conclusion that some hematologists don't have good answers.
@dwfindley2 ай бұрын
I’ve read that sugar feeds cancer. Can diet and lifestyle changes starve the cancer cells and kill it?
@dwfindley2 ай бұрын
Is bloating a symptom of WM?
@shapingwaisome2 ай бұрын
Glad to see you Sharon, I was a bit worried when I saw no evidence of activity on your channel.
@bottleoturkey3 ай бұрын
Thank you for posting this very helpful video, and thank you so much for your important work!
@stephanieczekanski31753 ай бұрын
I needed to hear this today ❤ I'm 32 and just had a good long cry because I'm in the throws of getting diagnosed. Now I'm gonna gather myself together and get a battle plan in place.
@carlh24503 ай бұрын
Thank you to both doctors for taking the time to answer all the questions we didn't get to during the Ask The Doctor session. Excellent answers. It was incredibly kind of you to take your own time to these important questions. We are so lucky to have caring doctors like you to help WM patients everywhere!
@colorcrazi40163 ай бұрын
This makes feel better. I really don't want to leave the peacefulness
@IWMFVideos3 ай бұрын
I'm so glad you're feeling better. Keep up the good work taking great care of yourself!
@user-en4nw8xv7s4 ай бұрын
Thank you so much Ann Grace. I really needed this today.
@IWMFVideos4 ай бұрын
You are so welcome! Thanks for taking care of yourself.
@debweiss4704 ай бұрын
None of the slides the doctors are speaking about are visible in this recording.
@CharlesProoth5 ай бұрын
I can relate and could even add some more bizarre symptoms. Thank you, Dr. Ansell!
@user-im1nu1fn4t5 ай бұрын
If you are going to use a Zoom background you should have a green screen behind you.
@katiehultin57555 ай бұрын
wow so empowering
@1AVB11305 ай бұрын
Thank you! Im sending those videos to my grandmother and she loves it so much 😍
@IWMFVideos5 ай бұрын
We're so glad you're sharing the classes with your loved ones!
@lawrencef7836 ай бұрын
So glad to be able to watch this on KZbin. Thank you for
@IWMFVideos5 ай бұрын
We are so grateful to have volunteers like Sharon donating their time and expertise to the IWMF, and glad you're enjoying the video! We're hearing from other WM-ers that they're doing the video twice a week and feeling stronger as a result. Keep up the great work!
@russellhopson16586 ай бұрын
I have been living with this disease for 3 years going in 4. As well as lung cancer. Had my lower left lobe of my left lung removed three year's ago. And it came back just did a very low amount of radiation. And i find out this month if it's gone. I have lived a wonderful life. So no complaints there.
@garyfoster50146 ай бұрын
I had WM treated with chemo in 2016. It came back about seven years later in mutated form featuring elevated (5600) IGG but only slightly elevated IGM levels. FYI
@user-im1nu1fn4t6 ай бұрын
With very little effort the audio disturbance could have been removed from the audio track.
@IWMFVideos6 ай бұрын
We are so thankful our instructor was available to teach a class on Christmas Day, and apologize that the time required to re-edit the video was not feasible for her. In the future we look forward to upgrading the audio experience in our free videos.
@juliadanison98756 ай бұрын
Amazing
@user-fo7kc6vj6j6 ай бұрын
Wow, lots of background noise.
@IWMFVideos6 ай бұрын
Yes, I'm really so sorry about that, Barry. There was nothing I could do about the lawn crew right outside my window, but rest assured - I am moving and my new home is in the woods and very very quiet. Thank you for your patience with Zoom life. :)
@CharlesProoth7 ай бұрын
I found this "debate" most informative and I don't really mind the light-hearted presentation. Thank you, Dr. Mateus and also D. Ansell.
@carlosanjust63937 ай бұрын
Thank you□□□
@garyfoster50147 ай бұрын
Is it unusual to be in remission with regular WM for 7 years, then have it come back with normal IgMs, but IgGs of 5600?
@carlh24507 ай бұрын
What an incredible conference! And such a valuable research for Waldenstrom's macroglobulinemia (WM) patients globally. Although WM is a rate disease, with the IWMF, no one is ever alone.
@rustyjames69718 ай бұрын
really childish format. i lost some respect for the participants. waldenstrom is not a joke.