1/13/25 yes I have stage 3 & have lipedema nodules on back of my hands also
@MagentaVoodooQueen674 күн бұрын
💕🐈⬛❤️ watching from St Albans Park Geelong Victoria Australia
@judithduma70866 күн бұрын
Hi I am watching the replay from Maitland NSW AUSTRALIA
@DanaMeeker-fz9oz6 күн бұрын
My lymphedema leg got huge and red I went to hospital they did CT scan... said they seen infection fluid in pocket in my leg they took me to surgery put in put drain in then took out 2 days later .. .packed with string.but there not telling me if I can wrap the limb or not.. swelling still bad...I need help I need Dr that know s about lymphedema....I live in Alabama... United States...who can help me find a Dr please
@Steffy-xm7mc12 күн бұрын
M2 macrophages resolve inflammation are associated with the resolution of inflammation which is good. My question is why is there research saying the opposite for Lipedema in that there is a tendency for phenotype change from M1 to M2-like macrophages. Why would this be bad? Are m2 like macrophages different from M2 macrophages?
@dianedixon144215 күн бұрын
How does Guaifenesin help with Lipedema?
@stefanallard308419 күн бұрын
From my research its due to infection
@stefanallard308419 күн бұрын
I wonder how someone with chronic inflammation, both pain n lymph - can do bloodtest n show zero. Is the issue that we need intracellular testing? Wich is not done by mainstream
@stefanallard308414 күн бұрын
Now saw someone in the end asking about parasites, this is correct, that's the infection I'm talking about. Every animal close to humans deworm every 3-6 months otherwise they get chronic disease (dogs,cats,sheep,horses,cattle before slaughter)
@kyokisaru24 күн бұрын
Does this modality have any effect on someone with lipedema And lymphedema or would the lipedema impede the effectiveness?
@kyokisaru24 күн бұрын
ACEs....Puts a new meaning to having ACEs up my sleeve.
@kyokisaru24 күн бұрын
I'd be so excited for an ability to treat my sweetheart's troubles at home and without surgery. ❤
@kyokisaru24 күн бұрын
The info re: onset of symptoms vs diagnosis is heartbreaking. My sweetheart has been getting treatment based only on assumptions of lymphedema but I'm increasingly convinced that he had lipedema first and now it's just really progressed to a serious state.
@HotSeat17Ай бұрын
When I was 8 years old, I had to do a school physical. The doctor said, "Boy! For a skinny girl you sure have fat legs!" I will never forget what he cruelly said. No one helped with it my whole life. I was very active, and rode horses alot. I had to have special boots made with triple wide calves. 😭 I know about it. I have it. Everybody gives info on everything except how to treat it! Even my doctor is super demeaning and does not treat it! I am so frustrated! I can barely walk. I am 72 years old. They all say I'm just fat and need to lose weight, or do more exercise. My legs got super bad so quickly when I quit smoking, after losing 75 lbs. on Keto four years ago. Now my legs are blowing up and nothing I do helps! It's getting more and more difficult to walk the 2-5 miles I used to walk three x a week or more. I use a walker now for a bad back too. Old age is no excuse! Why is so little known about this disease, and why can't doctors help??? 😡
@evolveyourself9518Ай бұрын
There's never any videos or information about upper arm lipodema on a very thin woman. I'm 5'6", 120lbs, always have been. I've been thin my entire life and have had to hide my obese arms for decades. Imagine, 90% of the clothes out there is short sleeve or sleeveless ... and having to wear long sleeves in 95 degree, 98% humidity. My mother, too, always thin, 5'5", 125-135lbs, and she has the arms of a 300lb woman. I decided that I no longer want to suffer like my mother. I finally got assertive with my Primary, rolled up my long sleeves, and said, "I have lipodema, I've never been overweight ... I've had batwings and bubbly dents since puberty ..." Huge bat wings since I was a skinny 12-year old, huge dents and bubbles... The doctor said, "well, what can we do about that?" Six months later ... Still no referral.
@kathryboАй бұрын
The immediate thing I noticed was significantly better exercise performance and a sense of calm. I dropped 6 lbs overnight (must be inflammation) from the first day of initial dosage. Oddly my measurements are no different.
@dennismayhem4894Ай бұрын
Auburn GA here!
@CF-kj4pmАй бұрын
Are there other food as medicine options other than KETO (which is what you recommended)?
@dianedixon1442Ай бұрын
Diane, Houston, Tx
@indigmommaАй бұрын
I was wondering the same thing about getting out of the pool. I’ve had that happen to me several times. So before getting out of the pool I massage my legs and it helps a bit. I haven’t been diagnosed with EDS but I’m now wondering if this can be part of my issue. Thank you so much for all your help and information!
@lynnelawson90412 ай бұрын
It is caused by emfs!
@raywood42232 ай бұрын
A crucial video
@judithduma70862 ай бұрын
Hi I am Judith and watching from Maitland NSW Australia.
@ruthmooney28552 ай бұрын
Thank you so much for all your videos, it’s new for me the past 2 weeks, I think inflammation is a factor from my experience- My quality of life dropped after Covid- I’m still going through a storm and extreme inflammation that I couldn’t control till this day, it really attacked me in every system of my body, i was diagnosed with lepodema 2 weeks ego and over extend of my knees. I’m scheduled for EDS diagnosis. I also have mommy cesarian belly apron that was small for 20 years and started to grow during the past 5 years since getting sick. I used to be fit, muscular and now I feel like I have muscle atrophy no matter how much I try to do sports and go to PT and the muscles always contract and the leg swells if I do sports.
@crispykmm96462 ай бұрын
So much great information . Suitable for medical professionals and also patients. I wish all doctors and nurses could learn about oedema management and compression.
@Oliviatheunicorn-pc4po2 ай бұрын
So when a woman has leaky gut, they are at risk for developing lipedema? I have IBS and have suspected that I have had some leaky gut aswell, and I've recently noticed a cellulite-y beady texture of my calves when I squeeze them, but I dont have pain, bruising, hypermobile joints, or disproportionate legs. Is it still likely that I have lipedema?
@Goldiboreas77Ай бұрын
Yes
@Goldiboreas77Ай бұрын
Yes
@crispykmm96462 ай бұрын
"jelly roll' cute- Juzo Soft compress roll padding
@margaretleinster51292 ай бұрын
In Bonnie Scotland 🏴🏴🏴🏴🏴🏴🏴🏴
@suzannestrong97482 ай бұрын
From Australia listening and hoping
@lisafreeman28103 ай бұрын
This is fascinating, thank you, Dr. Herbst! As it is sub-clinial, what inflammatory markers would you expect to see with this theory? You mentioned MCAS. What about sub-clinical eosinophilia? Sub-clinical monocytosis?
@triciarz73 ай бұрын
Mounjaro helps with the inflammation the BEST!!!! It was the best medication i have ever been given. Lilly should do a clinical study on how it treats and helps lipedema. It also lowered my cholesterol, blood pressure, lost 35lbs, and treated pcos. Unfortunately insurance will not cover it. That medication is a life saver and should be prescribed to all lipedema patients . Insurance won't cover zepbound either. I need help finding a dr that will fight along with me to get it covered. If your insurance covers it or you have the money to pay full price, get on it.! It gave me my life back...
@misslaura803 ай бұрын
I have worse(firmer) more painful nodularity in my abdomen. I can feel it over my ribs most easily. Very hard bumps. It’s actually a bit more distressing than my thighs, since the tissue seems softer there. I have never been obese. Bmi is 22. This disease is so frustrating.
@AnneAlready3 ай бұрын
Karen is so easy to listen to and this is great information. Thank you both!!
@olgapetrova78133 ай бұрын
Absolutely outstanding , priceless stream! Thank you so much!
@AnneAlready3 ай бұрын
This was exactly the information I was looking for! I'd been wondering if early trauma might have any correlation with the development of lipedema.
@AnneAlready3 ай бұрын
Is chronically elevated cortisol pre puberty a possible pre-disposing factor? Any correlation between ACE scores and Lipedema, the way there is with fibromyalgia?
@alison4547-o8t3 ай бұрын
Good question and I didn't know there was evidence about ACE and fybromyalgia,I would like to know more. I have both.
@AnneAlready3 ай бұрын
@@alison4547-o8t Hi Alison, about 7 - 8 years ago I Iistened to a yt interview with Dr Robert Scaer a neurologist and trauma therapist who had made some observations while he was in charge of a pain center in Colorado. He mentioned how people who developed fibromyalgia always had a high ACE score. This would be in line with Gabor Mate and others observations I think. Dr Scaer has written a few books on early trauma and chronic illness. I just had a quick look and I found an article "The association between adverse childhood experiences, self-silencing behaviours and symptoms in women with fibromyalgia." So it is being studied. I'm sorry you have both conditions - same here. x
@lorrainenicoletti62323 ай бұрын
Thank you !So much information and explained so well. Grateful for Doctors and professionals like you both.
@neceyparker36404 ай бұрын
I been having sleep deprivation since i was teenage. Don't know why this been happening to me for so long. I cannot even tell if i been to sleep or not every night. As a result many i paying for it in health .
@sylviamanring99754 ай бұрын
My husband has lyphedma in his abdomal and both legs. He also has no gallbladder we started him on bile salts to help with fat to help with weight gain. Also started him on b- complex vitamin to rid the fluid. Also hes doing 12 hr fasting. . Hes lost 26 lbs The dr wants him to take jardiance ? He is not a diebatic ? He also is in afib . They say that is the link to have the lyph Is the heart issue ??
@sylviamanring99754 ай бұрын
We also stopped all high frutosce corn syrup No carbs at all. Veg& lean meats.& fruit. Apples. Peaches, watermelon.
@sylviamanring99754 ай бұрын
He also has compression machine and a vibratetion machine . The vibration is easier on his legs and sleeps good.after he uses it.
@ANAT3754 ай бұрын
Hola pregunta el lipodematoesclerosis es lo mismo que lipodemato? Gracias
@Thewritingisonthewallforusall4 ай бұрын
Leg elevation definitely does not help
@ernestpilgrim79184 ай бұрын
I was thinking the MTHFR could be part of this if not the cause.
@andreahultman82723 ай бұрын
My sister has lipedema and I think 1 copy of the MTHFR mutation.
@kaybloomfield16004 ай бұрын
Excellent presentation.thank you for sharing uour knowledge.Ill pass it it as many as I can in NZ
@AMS-m2h4 ай бұрын
I can't wrap my head around the fact that they still can't tell women whether they should fast or for how long. This is one of the most basic questions patients want answered.
@genevabeaty41274 ай бұрын
Check out Fast Like a Girl from Dr Mindy Pelz
@ClareBoyd-f8c4 ай бұрын
Wilson Matthew Clark Eric Brown Thomas
@joankeckstein42464 ай бұрын
My doctor recommends going to lymphedema clinic. Unfortunately the Toledo area is short on certified therapists. There is a 2 to 3 month wait to see a therapist. In the meantime I am trying to find ways to help myself.
@annierichards73675 ай бұрын
You asked about MRT? I had a MRT test which is a blood test for food allergies. It exposes the white blood cells to food and looks for a reaction. Helped me, I'm allergic to Cow milk protein and beef protein also beans severely and was given a epi-pin, Doctors thought my breathing problems was mental illness for 40 years. I have not been to the ER for breathing problems for 10 years now. I also had been diagnosed 70 times for ring worm, but no ring worm for 10 years since being off Cow & Beans.
@Thewritingisonthewallforusall5 ай бұрын
It’s nice to know why but I would like solutions.
@The_RealNarrative5 ай бұрын
I wonder if there are many female divers who regularly wear a wetsuit with lipedema?
@Doktracy5 ай бұрын
Is there any connection to anticardiolipin/antiphospholipid antibodies?