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@StevenNess
@StevenNess 28 күн бұрын
cool
@SteffaniRedinger
@SteffaniRedinger Ай бұрын
The event was absolutely lovely and meeting everyone in person was such a comforting connection! We are so thankful!
@drroopadeevihosamani6195
@drroopadeevihosamani6195 Ай бұрын
Email address for communication plz
@vincenzoschettini5031
@vincenzoschettini5031 8 ай бұрын
'promosm' 🌈
@nannukk
@nannukk 9 ай бұрын
You rock guys!!!! I've made a new fundraiser with about +/- 1500$!!! Hope it helps... :)
@nannukk
@nannukk 9 ай бұрын
Huge news, huge thanks for everything!!! We hope that we could find a treatment asap... :)
@nannukk
@nannukk 9 ай бұрын
Thanks Laura and Amanda for the amazing work, these informations are so relevant!!! I wish I could do more... And I will try to! ;)
@reneebeverly1151
@reneebeverly1151 10 ай бұрын
I wish you wasn’t talking so fast
@kaiaiony9099
@kaiaiony9099 9 ай бұрын
Change the speed
@maisacarqueija82
@maisacarqueija82 Жыл бұрын
Sou do Brasil 🇧🇷 , meu filho foi diaguinosticado com essa síndrome 😢, hoje ele tem 11 anos , gostaria de saber mais , ele faz acompanhamento no hospital das clinicas com neuro geneticista...
@arrefoundation
@arrefoundation Жыл бұрын
Please email us at [email protected] and we can connect you to some additional information!
@morrisdonald8795
@morrisdonald8795 Жыл бұрын
All thanks to #DrObahistoricalherbsvy on KZbin who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on KZbin
@morrisdonald8795
@morrisdonald8795 Жыл бұрын
All thanks to #DrObahistoricalherbsvy on KZbin who cure me from epilepsy virus to I'm free thank you once again Dr you are the best on KZbin
@anniewilson6737
@anniewilson6737 3 жыл бұрын
Thank you so much for the much needed information....
@EstranieroEstranio
@EstranieroEstranio 3 жыл бұрын
Thank you!