Just been diagnosed few days ago. Waiting for full body scan.......
@jordan79072 ай бұрын
Great information - thank-you!
@cindypilchard388610 ай бұрын
Thank you ❤.
@jessicaburke797511 ай бұрын
I just got diagnosed with Hodgkin's. Up until the lump in my neck they insisted I had Eczema 🫠 definately speak up if ypu experience any of these symptoms!!
@ArcherBright11 ай бұрын
Thwnks
@srconstruction81011 ай бұрын
Dona best thanks for everything
@charlesbarboza859111 ай бұрын
My youngest brother shared his diagnosis with us yesterday. Although he is keeping a positive attitude, I know he’s scared. Fortunately I believe the doctors found it early. His wife is nervous too, but it’s my job to help them stay strong and have Faith that he will be okay. What treatments did you go through, if you don’t mind me asking. I wish you well. Thanks for sharing.
@gdaygday120911 ай бұрын
Hope your doing well and appreciate you sharing your knowledge. ❤😊
@paulamegadya1451 Жыл бұрын
Would like to know how your doing today
@LymphomaAustralia11 ай бұрын
Kim is going really well! She even took part in our Legs Out for Lymphoma walks this year. Thanks for checking in and if you need some support yourself, please phone our nurse line 1800 953 081
@sharkbaitblu Жыл бұрын
What a courageous and generous man. Well done in your journey to health. Thank you for sharing your story.
@sheillahhernandez8 Жыл бұрын
Thanks for this video. I also got DLBCL and had finished 6 chemos but still have the mediastinal mass.. It is good to hear that there is still a cure, but sadly it is not available here in the philippines..
@אריפרקש-ה1ו Жыл бұрын
What recommendations do after treatment?
@davidhill6819 Жыл бұрын
Very clear and helpful presentation. Thank you very much.
@umejaliyanage1518 Жыл бұрын
Hats off to you courageous lady.Wish you to be fully recovered and life time happiness. ❤️
@RB-nr1um Жыл бұрын
Thank you.
@tiffanymccord4186 Жыл бұрын
thanks for sharing! I have 3 lymph nodes swollen, Alcohol pain after 1 sip I get this burn and pain, but not just a lymph nodes, it goes to my neck, abdomen and low back. I have itchy feet at night-restless leg ? My PCP keeps telling me it's ok. So it's hard to find someone who just has/had the lymph node only sx. Thanks for sharing
@kirtikars Жыл бұрын
Relapsed is a genuine problem trying to come,with right medicine is a challenge
@dennisboyce813 Жыл бұрын
Thanks for the video. It's taken two years to get a comment, so here goes. It should be pointed out that many patients go years without a correct diagnosis the most common being psoriasis or eczema. I didn't hear you mention methotrexate and was wondering if you used it with any of your patients.
@juliaharrison9439 Жыл бұрын
Such a clear, calm exposition of this illness. Excellent
@ttwilcox Жыл бұрын
Thanks this is very informative and helpful. I'll wait in hope for bispecific antibodies to become accessible in Australia!
@sergduchini7299 Жыл бұрын
Thank you. Clear and great insights.
@chrisj8764 Жыл бұрын
Nice clear exposition by the Prof - thank you! Would be good if there had been a recent update.
@chrisj8764 Жыл бұрын
I like your positive attitude, including that after a week of each chemo session things feel normal
@mmusico48 Жыл бұрын
Just started chemo myself … thank you for your story it helps us a lot
@janjohns4541 Жыл бұрын
But Pfiezer have admitted they never studied the vaccine for it's ability to stop transmission. It is not protective no matter how you slice it
@seanefrem9226 Жыл бұрын
So glad it worked. Did you have side affects while you were in the hospital for 10 days?
@DaveSolazzo Жыл бұрын
Exciting stuff! Any new updates?
@BeyondaThought2 жыл бұрын
Proud of you Mum.
@lordbyron36032 жыл бұрын
Wonderful journey for you ! I’m in the same situation. My first treatment EPOCH-R didn’t eradicate the cancer completely. So they’re going to put me on CART-T treatment in six weeks.
@LymphomaAustralia2 жыл бұрын
Wishing you all the very best for your CAR T treatment
@sousounina429511 ай бұрын
How are you now😢?
@lordbyron360311 ай бұрын
@@sousounina4295 Thank you for asking . The treatment has worked ,, the cancer is asleep ….. for now at least . Yup going on 12 months. But with DLBCL stage 4 triple hit cancer diagnosis ,, it can rear its monstrous head again anytime and anywhere. So I’m living with that fear constantly.
@adamfinch76082 жыл бұрын
What percentage of patients suffer bad side affects?
@LymphomaAustralia2 жыл бұрын
Please read more about CAR T - including possible side effects - here: www.lymphoma.org.au/lymphoma/treatments/chimeric-antigen-receptor-car-t-cell-therapy/
@adamfinch76082 жыл бұрын
Is there a T Cart for non- Hodgkin follicular lymphoma
@LymphomaAustralia2 жыл бұрын
Hi Adam - at this stage only if it is refractory and then transforms. Please give our nurse team a call for more information - 1800 953 081
@ivorwindybottom73642 жыл бұрын
I was diagnosed at the start of the pandemic. I had chemo around 18 months ago and it only left a few lumps in my stomach. I struggle with wrist and leg pains terribly. I'm only 46, was active but feel tired and fatigued. I see other people much older etc and they don't have the pain. They said I have Non Hodgkin follicular Lymphoma. Not curable but treatable. Does anybody else have/had these issues with the same diagnoses ? Or do you think I should be seeking a second opinion?
@taragillette2189 Жыл бұрын
I've got leg and arm and hand pain. Much less when I refrain from cheese and bad oils as well as fat and sugar combined. Good luck!
@janeto54482 жыл бұрын
Peripheral T is very aggressive at stage 3-4.
@boredalchemist2 жыл бұрын
I had lymphoma and many years later they did a blood test and found that my immune system was messed, I have to have immunoglobin therapy now. They never caught in many years of me getting sick all the time and always thought I had hiv because my white cells were low so always gave me like hiv tests which always came back negative but never tested to see what was actually wrong with my immune system till later to see if it was genetic but it isnt and it was caused by lymphoma and the treatment I believe I have BEACOPP treatment and I know have Hyper IGM syndrome.
@sampatk4948 Жыл бұрын
How did u find out it was lymphoma ?
@suemoriearty99952 жыл бұрын
Thanks….I am a 78 year old women DX’ed about three years ago with CTCL. I find the Australian perspective on many issues interesting…
@daniellar21652 жыл бұрын
Whoah! This was super informative! I start treatment July 1st and this is very helpful!
@LymphomaAustralia2 жыл бұрын
We are so pleased that this video has assisted you Daniella. All the very best - and please reach out if you need anything - 1800 953 081 or [email protected]
@daniellar21652 жыл бұрын
@@LymphomaAustralia Thank you! 😊🙏🏾
@DAVIDYOUNGBYRONBAYPHOTOGRAPHER2 жыл бұрын
Great webinar, lots of useful info , thanks Lymphoma Australia and Erica
@LymphomaAustralia2 жыл бұрын
Thank you for the feedback David, we are glad it could help
@andrewnicholls27172 жыл бұрын
Thanks for bringing this too us. Really appreciate the information.
@LymphomaAustralia2 жыл бұрын
Glad it was helpful! Please get in touch if you need more information or support Andrew
@patriciabarnes68412 жыл бұрын
I've been batteling Non Hodgkin's Lymphoma for 15 years. I've been through chemo and radiation,CHOP, Rotuxamin treatment and gammon globbing. This type of cancer never stays in remission long and it effects the lymphatic system of the body,making it inoperable. It's by the grace of God that I am here.
@LymphomaAustralia2 жыл бұрын
Thanks for your comment Patricia. You have certainly undergone many different treatments. We wish you continued health
@marksavastano83392 жыл бұрын
Thank you seem like the sharpest I've heard discuss this here rare diseases I'm hoping that I have arthritis n not this I've none that I have stolen lymph nodes in my area Pitts one one side of ribs my hematology Dr said it's normal becoss I had gotten bit from a horse and had blood poison so that's why they reacted then I did not get any aspirated well 7 years later I'm having troubles I go for cat scan 5 days from now pain I've had in my arms hands n shoulders for over a month gets worse at sundown chest is sore my bones wrist so sore I can hardly button my pants or tie my sneakers 👟 have to hope it's not and hope it's not too late fevers sets at night been having them for some time now the sweats the annoying pain and discomfort been around allmosta month now 🙏
@LymphomaAustralia2 жыл бұрын
Hi Mark - we suggest you see your GP to raise these concerns. If you need more help, please phone our nurses on 1800 953 081
@ZZ-rs5vv2 жыл бұрын
Thank you Dr Dickinson, you are very informative and explained everything perfectly. Helped me to understand DLBC so much better
@LymphomaAustralia2 жыл бұрын
Glad it was helpful!
@tacohugs44382 жыл бұрын
Very helpful. Thank you 😊
@LymphomaAustralia2 жыл бұрын
You’re welcome 😊
@lindatullos94302 жыл бұрын
bone marrow biopsy of the spine is an outpatient procedure they use a TOM machine to make sure it's safely done. That's my experience. I was wide awake and many students were present to witness it and ask questions of me and the doctor doing it. They used a local for it. Afterwards you have to lay prone for two hours before they let you go home. Yes it was stage 4 diffuse large B cell lymphoma with a bone metastasis in the sacrum (5 cm- high grade) the tumor is the only reason i even went to the doctor as it was like sciatica but worse and getting worse by the day. It destroyed some of the bone and was eating it up before chemo stopped it.
@lindatullos94302 жыл бұрын
then radiation and bisphosphonates infusions , hopefully this next ct scan will be completely clean and I can get my port out after that.
@hudaali4554 Жыл бұрын
How are you now?
@abistat12 жыл бұрын
My mother received 6 cycles of R-CHOP chemotherapy. it was one sided (right side neck). The lymph nodes disappeared after 2-3 chemo cycles but it started coming back. after 4th-5th cycle it became visible and after 6th chemo it is highly aggressive (increasing day by day kind of). I am sharing her latest Biopsy report details here. Please suggest the best treatment. Will R-DHAP or R-GDP chemo followed by Bone Marrow Transplant will help? Thank you so much in advance. Diagnosis : GCB Type, Ki 80% RCHOP x 6 (June to Sept 2021) LYMPHOMA PANEL SPECIMEN Right cervical lymph node: DIAGNOSIS HIGH GRADE B CELL NHL. Suggest FISH studies to rule out double hit lymphoma. COMMENTS Section shows cores biopsies of lymph node showing diffuse effacement by sheets of lymphoid cells with hyperchromatic nuclei, prominent nucleoli and brisk mitotic activity. Immunohistochemistry shows the tumur cells are positive for CD79a, CD20, CD10, BCL6, MUM1 and are negative for bcl2, CD3,cyclin-D1, TdT. c-myc stains 80% of the cells. CD21 does not highlight dendritic cell meshwork. The Ki67 proliferation index is 95%. GROSS DESCRIPTION Received in formalin labelled with patient name, MR No. and "Right cervical lymph node" are six grey white tissue cores measuring from 0.7 to 1.3 cm in greatest dimension, submitted entirely in 1 cassette, HT/21/012777.
@LymphomaAustralia2 жыл бұрын
Hi Abinash - can you please contact us via email and we can then work through how best to support you. [email protected]
@belbir493 жыл бұрын
My Abdo MRI done this month Sept 2021 showed 3 large lymph nodes. The aortocaval measures 25 x 9mm axially and portohepatic one 17 x 13mm. Haematology numbers are all normal. Symptoms are loss of appetite only after I got to know this. Feeling tired and for the last 2 days feel slightly breathless upon staying standing up or walking for more than 15 minutes. I was told to contact the Westmeath hospital cancer clinic for appointment. The earliest I can get is in Jan 2022.. It might be too late. I am 58yrs old. I am still trying my best to get an urgent consultation with a haematologist/oncologist. Can someone help give me some direction. I always thought that this must be a priority consultation to get diagnosed and start treatment. You have to make your own arrangements. This being Australia, I thought that the GP's should be taking this responsibility to prioritise the appointment.
@martinjohnson20553 жыл бұрын
Absolutely brilliant, especially the question and answer session from about 1 hour in. Combines the reality of treating people with the science really well. He also talks about the business and political elements in geographical variations in standard of care.
@cameronduff8843 жыл бұрын
I hope it's not in bad taste, but this yank was just wondering what came first, the Kangaroo, or the peanut butter?,but seriously folks, I really enjoyed the trip down memory lane,I will say a prayer for Ken.
@nelbatuahan27823 жыл бұрын
very informative😀
@GloTieFlow13 жыл бұрын
Your story gives us all hope, Carol. Thank you for that. My mother has been diagnosed with non-Hodgkins Lymphoma 2 weeks ago and it was an extreme shock for me. I try not to show it, but it has struck me like lightning. I spend an hour on the phone with her every day and I'm planning on moving back with her as soon as she starts her treatment (probably next week) to support her and help her through this. I pray that she gets better and that the treatment won't be too harsh on her.
@emilyheaven56583 жыл бұрын
All thanks to Dr martins abul who helped me with a cure to get rid of my chronic leukemia, thank you sir for saving my life.