Girllllll I love you and I see you. I HAVE MRKH (MULLERIAN AGENEISIS) also. It took me awhile to be comfortable speaking on it as well. Our journeys to discovery are slightly different I have the upper canal just slightly shorter ovaries nothing else. Dilators worked for me but I see that struggle I know your pain same, same but different. Your video resignated and your strength is great. I'm able and comfortable with it now, and able to achieve the O but there is a lot of misconstrued opinions like it's not hard enough and it effects me daily. I didn't seek therapy but should've. Your strong and beautiful and I wish you the best

Do you have your overies and fallopian tubes?

Thank you for being open with your diagnosis. I was “diagnosed” with it at a young age as well. I def understand that exclusion feeling and it sucks especially when everyone around are starting to have littles. The dr. Didn’t say much after saying I have no uterus…I just found out I have uterine fibroids a day ago. You can only get them when you have one…How idk, but I’ll be finding out soon. Go keep getting tested because mines didn’t show and for some reason it has…

Thanks - this video is really encouraging <3 I'm 16 years old right now and found a few years back that I have MRKH type 2. I'm barely at the start of this journey and I know it's going to be a rough one, but looking at videos like this gives me hope that in 10 years I could be making videos online too about my experiences!

hey i just got diagnosed with it yesterday (im 16) and i have no idea like what to do going forward, like physical thearpy and surgery or anything, do you have any advice going forward.

هج❤❤❤❤❤❤❤❤❤❤❤حتق❤نما😂😂🎉😢😮😮❤😅😊😊

Your mom is so strong 😭❤️

Be happy you dont have the cycle.

Pour celles souffrant de MRKH, ce n'est pas une fatalité. Grâce à la science elle peuvent devenir maman soit à travers une greffe d'utérus, soit la GPA. Moi par exemple, ma fille est née grâce à la mère porteuse du groupe de reproduction humaine de Feskov. J'étais très inquiète, je pensais même qu'elle ne me ressemblerait pas, mais quand je l'ai vue, j'ai réalisé que c'était le plus beau cadeau que la vie m'avait fait.

First off, you are glowing friend! Beautiful inside and out. You deserve all good and peaceful vibrations coming your way. Now the dating advice, as an adult, I've only been in 2 semi solid but long relationships and the first one either of us had kids or any significant health issues that we knew about. But over time we had a child, I developed serious health conditions that he didn't understand or could comprehend. He wasn't really interested in past my physical state for a span of 6 years. Fast forward, single and dating men with and without kids, very concerned about who would want me as a single mom with now major health conditions. Stumbled upon a man who was attracted to my physical but also my mental and spiritual being, I was completely honest about my past and present, within just the dating phase because I choose to just put it out on the table, let's not waist each other's time lol I had no issue with relatability with being a single parent because he was one. He had no pre existing or current health issues but his mother did and was in the Healthcare field. I had to educate him on my condition and he had to witness it for him to semi understand what I was going through and we weren't even on 1 year yet lol anyone who you seriously wants to be with you has to be interested in All of you, the good and the bad, sickness and in health, children or not. Take your time, we find love sometimes when it finds us but that selfcare glow you currently have is from you! When someone gives you that same glow you will know it's time to share your most vulnerable information💜

You are so beautiful💕 Happy you are back!

Man I should have gone with you😊

Live friend!

Good to see you back

You are one of the strongest, beautiful, worthy, determined WOMAN I know friend. Love you whole heartedly. Thank you for sharing.

I wish I could talk about this and people not look at me crazy 😔

Ft

Sad

No kids

mrhk

Hi dear sister im also MRKH i have sad story' too hope u always get happiness in this world

Is there a way I could talk to you privately about this? I have the same condition and I would like to ask questions.

Hi everyone, I read all the comments below and so touching that Im not alone in this situation. Im also a woman who had a MRKH syndrome. When I was in my teenage,Ive noticed that I don't have a menstruation. I came from a poor family, so my parents didn't bring me to the doctor for check up. It was a very hard journey in my life also because Im very shy to let other know about my situation. I can relate on your story. I keep it as a secret. Until when I got a job then I have some money, I went to see the doctor. Then the doctor told me that I don't have a uterus also. At that time, I was like im floating in the air. Everything is not clear to me why this all happen to me. My situation affects my character, i become secretive, I struggle a lot in my emotion that no one can understand me, no other people support me except that Im holding on to God. And then later on, God by His grace helps me understand why its happen. Then I thanked God my situation becuase I become closer to Him. And I believed God has a purpose. To my fellow women who has this MRKH syndrome, we are beautifully and wonderfully made by God. If God allows it to happen to us,so that we can be a testimony of His goodness, mercy and grace. We all loved by our CREATOR.

how long did you have to stay in hosipal and also how long were you hooked up to everything?

Thank you sooo much for sharing! You have such a great support system!!

Hang in there sista. Thank you for sharing with the world. You honesty is moving. May you be happy, wishing you love and happiness.

I have mrkh and am looking at having the davydov surgery too.. I'm pretty nervous but waiting until i have a boyfriend. Thanks for filming after and including pain scale

Good job 😊

A very emotional video! Additionally, any desire to be with a man comes with the dreaded conversation about how different things are with body... than with most women. I know somebody who was diagnosed almost 20 years ago when doctors had very little information in the way of what to do. Now they grow vaginal tissue...and do all kinds of reconstruction. There are things like IVF and surrogacy. I believe all this helps to remain more optimistic..Wishing you all the very best ahead!

MRKH is such a demanding issue..I don't know how one can get through this on her own. Its so nice of you to share your condition with others. As this might be such an isolating path..People are hardly aware unless the issue affects their own life. I wanted to thank you for creating this video. Will definitely recommend it to a friend of mine who has MRKH type 2 and is currently undergoing surrogacy to have a child.You are very upfront and honest about this. May God bless you!

Thank you for sharing your story.. I've never known about MRKH before actually met a woman who's become a cloe friend of mine and who turned out to be MRKH sufferer too. Since then I started doing research on the point. And th every first thing I read was sth like 'Women who suffer from the condition either have an underdeveloped vagina and uterus or these structures are absent altogether. In the majority of cases, affected women do not have periods and a lack of menstruation by age 16 is often the first symptom of the condition. Women with MRKH syndrome do have normal, functioning ovaries and can still have children with the help of assisted reproduction..' The latter gives hope there MIGHT BE the solution for every case. My friend is currently looking onto surrogacy, since her dh wants genetically related kids. It's hard to understand the pains you're going through, MRKH ladies. May god help all of you.

At what point did you reach out to the surgeons? I want to do a consult but I don't know if I need to go through a normal OBGYN to get in contact with them.

Hi, I'm new to all of this. I ended up doing research on my own and came up with this conclusion. I have an appointment scheduled for this week to get it confirmed. I've also suffered from scoliosis (I have a severe case, had Harrington rods placed). I'm now 24 years old and I noticed that I didn't have a period, but I wasn't really concerned. I didn't start to worry until I attempted to have sex and I was told that there was a wall. Thank you for your video, I can't wait to learn more about the surgery options, how did it go for you?

Can we get another update 💛💛💛

can i have ur fb id please? wanna ask u something

I think we stayed in the same hotel different time but same hotel!

I'm happy for you....I kinda envy you for this, you're a strong woman, I recently just had a pelvic Altra sound and they couldn't find anything.....I go back Wednesday to get my true results but I truly believe I have this as well.....I'm scared even commenting lol but you let me know that I'm not alone and I had to let you know the same, I wish you the best 💜💜

miklos and moore are amazing. i have surgery next tuesday so watching your videos REALLY helped me!

Hey girl! I just came across your video & I loved it! I also have MRKH. I got emotional watching your video as it brought up so many memories & rough moments I forgot about. It’s not a bad thing, so I want to thank you! I went to go check out your channel & realized somebody gave you a shout out in one of the MRKH groups I’m in on Facebook! ❤️

Is there an update video?

Hey I would like to share my story with you

Awwww Ray, praying for you! You will get through it as you already stated; trust the process! God has you in his hands ❤️ love ya

You are an inspiration to not just women but everyone around the world. You are a fighter, keep fighting. I love you so much and am very proud of you for doing this. Love you big sis

I had my surgery as a teenager and I'm so happy my mom made that decision for me. Thank you for posting this video you are awesome. I will be praying for you.

I literally felt the same way when I found out, at the time I didn’t care or worry about the possibility of not carrying my own child. Now that I’m older it’s something I think about ever single day. Just know you’re not alone girl! I just filmed a video about my experience with MRKH too if you wanna check it out!!

“What I am is good enough if I would only be it openly.” - Carl R. Rogers You are doing great, sis! This is Viv on Instagram! xx

I am proud of you!!! The Fearless Female... God is Good and its your TIME and Season! I LOVE YOU

I’ve hidden it too 😞 still am tbh 😞

Hey , I watched till the end , it was so relatable 😭 , if you wanna talk I’m here !

You are not alone!!, Thank you for this video girl, you are amazing !!!!!!!