Been using Methotrexate for over 30 years. Occasionally my PsA goes into remission and when it returns, it does so with a vengeance. When it flares I always assume it's "something else" and then one day it dawns on me that my PsA is back. It usually takes me a month to get it to start to be under control. After 40 years with it, my best advice, exercise - a lot and hard. Nothing really makes mine better like hard exercise. Don't ask me why, but after decades of following that strategy , it works. Slow easy exercise has no affect. Hard workouts on a regular schedule, make a huge impact.
@Jbutler633 ай бұрын
I also was diagnosed with PSA, I'm sorry your having to go through these rough times with PSA.
@einnockate Жыл бұрын
Please do a follow up video
@SwampGypsy-u4k Жыл бұрын
I also have both and got them at the same time at 50 years old! I’ve done so much research after seeing 15 Doctors. I have not found much relief at all I’ve been taking 8 pills of methotrexate a week and was getting regicide infusions but now I am getting simpering asria infusion. Joints have been so severe and crazy how it all came on at the same time. Scalp is so severely painful everyday. Best of luck
@SwampGypsy-u4k Жыл бұрын
I also have both and got them at the same time at 50 years old! I’ve done so much research after seeing 15 Doctors. I have not found much relief at all I’ve been taking 8 pills of methotrexate a week and was getting regicide infusions but now I am getting simpering asria infusion. Joints have been so severe and crazy how it all came on at the same time. Scalp is so severely painful everyday. Best of luck
@SwampGypsy-u4k Жыл бұрын
I have it very severe
@lisa_and_christian Жыл бұрын
Thanks for sharing your journey. I know you posted this video 5 years ago, but I hope it started to work for you.💝
@markr8762 Жыл бұрын
Hi. Thanks for your video I too have been diagnosed with Psoriatic Arthritis. I’m due to start Methoxytrate also and I’m very worried. Did it get better or did you stop using it please
@Joshgengland Жыл бұрын
Thanks for sharing! I'm on week 4 and already anxious about the next dose because of the the horrible side effects.
@mandyswart3846 Жыл бұрын
Thank you for sharing your story. I also have psoriasis and psoriatic arthritis. It’s not easy to deal with. I appreciate your video and bravery! ❤
@patriciadicharry6064 Жыл бұрын
Iness Advanced Daily Biotic Lactobacillus Rhamnosus along with a low carb diet has cleared my psoriasis on my skin 98 percent and eased my psoriatic arthritis, pain was 8 now 1. It was a slow process, but it worked for me over the last year. I drink lemon water to maintain low carb for the long haul. Everyone has candida used in digestion but when good gut bacteria is destroyed it is not contained, carbs turn to sugar and feed the candida fungus. I eat meats, green vegetables, cauliflower mash potatoes, eggs, berries, cheese, nuts, olives, make crackers with almond flour.
@thistooshallpass5425 Жыл бұрын
hello folks - LDN, low dose naltrexone is a good medication for many with autoimmune disease. You can look into it on the LDN research trust - there are plenty videos too with people discussing their conditions and improvements with LDN, this drug has little to no side effects. I wish you all well.
@hannahscopelliti781 Жыл бұрын
Hi! I relate so much to you. I’m week 5 methotrexate. The brain fog and moodiness is real! I know this is an old video but thank you for sharing your experience.
@rowenareinertsen4749 Жыл бұрын
You are correct. They are only a few of us with both psoriasis and PsA. The psoriasis started in 2009. It started behind both ears. Then the top of my head. It was maddening how itchy it was. I finally went to my dr who called it eczema. Then, the next few years, I had patchy areas on my knees and even down to my shins. Also they were on my elbows and my back. The dr referred me to a dermatologist who did a punch biopsy and sent it off to the lab and that’s when I was diagnosed with psoriasis. He ordered creams and solutions for my scalp. Neither worked. A few years later, PsA started with very painful back, knees, my toes would become red and so painful.At times I could barely walk. I just thought it was old age as I was in my 30’s. Then sausage fingers started. That was finally the time my dr realized it was PsA. He referred me to a rheumatologist. He did some blood work. Started me on methotrexate which I’m still on. I had several trials of biologics that didn’t work. Finally, he started me on Humira and that was a miracle drug for me. It took care of the psoriasis and the PsA. So I was on that for a great 5-6 years with no flare ups. Until 1 day 3 years ago it stopped working. So He stopped humira and started me on various other biologics all have failed. I am currently on Cosentyx injections and I have hopes. I am finding relief from this. He just increased my dose and I can say that it is helping. If I have flare up that the injection doesn’t help, I can take prednisone but I can’t take this for too long because it raises my blood sugar as I’m diabetic. It’s always good to hear that we are not alone in this.
@lenimbery70382 жыл бұрын
I'm starting on this stuff in a couple of days and boy, I'm sure if I have any of these side effects, I'm dropping it immediately....It's bad enough that I've had to quit my usual couple of drinks a day!
@TheCissero2 жыл бұрын
Thanks for your testimony. I had same things rigger after delivery. My thyroid adrenals and hormones never recovered.
@ValenceFlux2 жыл бұрын
I loved being outdoors and working outdoors. I would walk everywhere all the time, I would climb ladders and stairs all day at work. I also get psoriasis over my lower back and it still affects my ability to walk. I remember waking up with numb or tingling legs a few times. When it spread near my eyes my vision started getting blurry and the ocular lights started happening. My vision went crazy for a bit. Methotrexate has helped make it manageable but you have to be careful with what effects the liver. Even my fingers are slower with video games and guitar playing let alone working with hand tools like I did for years.
@anaestrada63722 жыл бұрын
I was just diagnosed with psoriasis and Psosiartic arthritis I am going to start treatments makese nervous and scare keep us posted how you doing on or if made difference or change to injecting all of this is 🥵🥵 hope everything goes well for you
@caseyparkin14912 жыл бұрын
Thank you for sharing, I'm trying to find a diagnosis. I think I might have posriatic arthritis, waiting for my doctor to confirm. I'm 37 and I started having terrible joint pain after pregnancy at 35. I'm hoping to find answers.
@abdulmatin72942 жыл бұрын
Peace be with you sister I hope this message finds you in the best of health and faith, God willing.
@tapashaldarnala91972 жыл бұрын
Hi
@samanthaharris23423 жыл бұрын
Thank you for this video sweetheart... I'm a 32 year old female who also Suffers from this and idk anyone else with it 🙏💕
@rosegrennan74073 жыл бұрын
I have it two and i have bad pain in my feet and fingers and my spine I'm 60 have posarioes all my life .i was on treatment for it but had to stop it .because i keep getting infection in my bladder .how do you cope when you have a flare-up i stay in bed .
@ianwilkinson33153 жыл бұрын
Hi On same dose as you. Try taking half the tablets after food in morning then half after food later in the day. It eased my sickly feeling. Just had a steroid injection in my buttock....wow what an improvement. Almost instant. Came off methotrexate when covid started but now back on as have had both jabs and pain unbearable in feet and hand. It does take a while to take effect. Docs increased dose to 25mg ..... on 15mg at minute. Hope things improve soon for your. I understand about side effects, I couldn't eat for two days after taking it but fine now. I also had a side effect of constant yawning the next day. It has gone now since taking half the tablets right after food twice during the day. Stay safe.
@_spamh_3 жыл бұрын
I've taken my first dose of methotrexate today, and this video is really helpful to help keep me grounded and not expect results too quickly which would no doubt leave me disheartened. Just thought I'd say thanks for sharing!
@kimberlyvitalbrasil40493 жыл бұрын
Stay strong... I was diagnosed with PsA in June and am still learning.
@jnoloc6223 жыл бұрын
Thank you for sharing !! You are surely not alone ..
@jonathanviant66573 жыл бұрын
I was diagnosed with psoriatic arthritis earlier this year. I find your videos helpful as its good to hear what other people are going through. My consultant asked me to choose between methotrexate and sulfasalazine and am due to start taking one in the new year.
@thistooshallpass5425 Жыл бұрын
May I ask how you’re doing now - and want medication your on? Hope you’re doing well
@stevekumar20173 жыл бұрын
Hi Amy from Birmingham... i know its been 3years . Im at the stage of been offered metatrexate. I wonder if you have a video after this as your 3 years ahead of me. Any advice appreciated 🙏
@p.a.andrews77724 жыл бұрын
Hi i have the same thing ,now I'm 63 yrs old, and live in the US at Bismarck, Ar.
@purplepassion84674 жыл бұрын
I have both also😔
@purplepassion84674 жыл бұрын
@Mary Austin is Thank you for reply and i am so happy for you,i hope you will be healthy forever.Big hug🤗.
@wicklum4204 жыл бұрын
I just made a video on my channel about my treatment that is working very well. thanks for sharing.
@stuartoneill26634 жыл бұрын
Oh, try anti dandruff shampoo on your Psoriasis, just try a small area, mine went, I used Asdas own brand anti dandruff shampoo .....hope it works for you too.
@lisa_and_christian Жыл бұрын
You used dandruff shampoo on your psoriasis? Did it work, and if so, for how long?
@stuartoneill26634 жыл бұрын
My doctor says it takes 6 months before Methotroxate starts to work
@amykimball58114 жыл бұрын
Hi Amy!!! I’m also Amy. I’m thrilled to find a channel on this subject! Sending love and blessings to you.
@lesg52604 жыл бұрын
Research Paleolithic ketogenic diet, Zsofia Clemens and Paleomedicina Hungary. Very promising.
@SophieCheDiary4 жыл бұрын
Hi dear, thanks for sharing your video. Im thinking to vlog also my skin disorder severe psoriasis. We have the same kind of story but when i learned to accepted it and embraced this illness i learned to managed without taking any medicines. It only triggered when im stressed and now the weather changed .
@2424jhg5 жыл бұрын
Have any of y’all tried changing your diet along with the medication?
@Lorcrono4 жыл бұрын
I changed my diet first time round in this and it cleared up for me. That was in 2018 now in 2020 my Psoriasis has flared up again and now I'm suffering with this Psoriatic arthritis. Been put on Methotrexate now again.
@mysnellvilleblog5 жыл бұрын
How do you feel now? I’m on week 3 and very sleepy & foggy brained. I take 4 pills on Mondays & found that I do better if I take 2 in the morning & the other 2 a couple hours later. According to John’s Hopkins University video, the day after taking it is a foggy brain day.
@mysnellvilleblog5 жыл бұрын
My main complaint was a headache
@brendah46895 жыл бұрын
I have it also! Thanks for sharing.
@chellomoreno824 жыл бұрын
Hi @Brenda H. Are u from California?
@kerryborthacyre77265 жыл бұрын
This disease is horrible. I have it too, I just started Humira I hope this helps. Methotrexate was awful I will never take that again. You are so young, take care of yourself!
@eugeniebreida15835 жыл бұрын
I agree, Kerry. It seems cruel and unusual that the establishment starts patients w/MTX, though it's known that PsA is not RA, and mtx is by far less likely to work. It's the insurers who don't want to fork out, in order that we go straight to testing various biologics. BTW have you found one that works for you yet? I have yet to find success, have tried emb, coxyn, and humir. (abbreviated for some sort of privacy out here in the world of alphabet. Right-o. I am 60 and live in the nw, for some reason thought you might be closer to my age/onset than the sweet young mother who created the video. (I too have no acquaintances with whom I can share this experience, thus wouldn't mind a phone conversation someday with a 'late onset' type such as myself (only 2+years in, and the progression is fairly significant. Are you/anyone really working with diet as well? I have been, but the result is a lot of lost weight (much too much) as low inflamm foods are pretty low caloric density. Any ideas, anyone? -gene (eugienie etc is pseudo name) I would be very happy to share directly/connect with older (over 40?) onset folks, where the PsA is much worse than the skin issues, as is my case. Thanks, and best to all here.
@pakistanzindabaad52524 жыл бұрын
Methotrexate kills i took it 2 times for 3 months straight.
@eugeniebreida15834 жыл бұрын
@Mary Austin is Hi there, this sounds 'too good to be true'. Thank you for your response, but are you saying a TOPICAL application 'cured' this autoimmune issue of yours? For me it is mostly PsA, but affects exterior areas as well. So, could you give example of types of herbs this fellow had you INGESTING, that you think were helpful? Just one or two please, you don't need to divulge his whole treatment to me, I understand. Thanks! Magic cures are always interesting. Personally I am hoping that autoimmune disease is FINALLY addressed by the medical community in a very big way as COVID lands so many citizens around the world in the sad condition of auto-immunity. A nasty state of affairs to head to the grave with . ...
@darraghkane18 Жыл бұрын
I hated methotrexate. Hated every minute of it. On my 3rd med and it’s still not working. Never thought I would be on meds. I hate it so much. I would probably accept it but I am taking them and still in pain. Mobility is awful and I work on my feet all day!
@barbaravyse6605 жыл бұрын
I just started mexotrexate on Friday and an injection called Cimzia. No side effects so far. But still in a lot of pain. Just checking to see if you can give another update. Thank you.
@debrasalinas28315 жыл бұрын
Thanks 🙏🏼 in a flare now
@tb48325 жыл бұрын
My doctor gave me that garbage, it's worse than the disease, I eliminated gluten and milk from my diet and felt 80 percent better within days.
@SuperShakes105 жыл бұрын
I took my first dose on Tue 26th
@aneroc126 жыл бұрын
Just started Methothrexate 4 days going through same thing. I had a free sample shot of Enbrel before Methothrexate and it took away 50% of pain and no brain fog, or grumpy ness, more energetic but it is $5,000 per month( I think) , insurance will help out after you failed Methothrexate after 3 months or absolutely had bad experience with the medication. You also can sign up with the company and get a discount card I still don‘t know if it is affordable yet looking into it. Next week I will talk to Enbrel company and find out the support card. It said it can be as little as $10.00 a month in there advertising. I‘m in th US . Oh, on pill form, 8 pills( 4 in evening, then 4 next morning) the doctor wants me to do 3 and 3 next week to see if I do better.
@___KIT__6 жыл бұрын
I’ve had psoriasis/eczema since I was born. 4 years ago, at age 16, I started having extreme pain in my hips, knees, and spine. Tests after tests were performed and bam...suddenly the diagnosis was psoriatic arthritis. I’m glad someone else had the same experience of young diagnosis.
@johnfelstead96836 жыл бұрын
I healed my psoriatic arthritis with Diet/lifestyle changes , i take out all that toxic foods and that helps big time, i am a lifer since birth with psoriasis 50 years now and psoriatic arthritis for near 16 years, its what we eat that can cause inflammation and make it worse , i could give a big list of petential bad foods, it would be long though,, I wish you all well :)
@bahawbahawtv4 жыл бұрын
Hi.. can send me ur list of food pls.. @john felstead
@zaradickinson4 жыл бұрын
Hi John, I wish it were that simple! I have managed my PsA with diet and lifestyle changes most of the last 15 years since diagnosis..... however I got a nasty flu end of September last year which triggered a flare and I have been in pain with one joint or another ever since. I suffer more with enthesitis, tendinitis and bursitis and its looking likely that I am going to have to try the nasty chemical route to get it back under control. I am unable to eat wheat, tomatoes, oranges or lemons due to allergy (non-anaphylactic) and I choose not to eat sweets/cakes processed sugary foods or the nightshades (except white potato). Cutting out all of these foods made a huge difference but it just takes a trigger and I have found that you can end up back at square one.
@eugeniebreida15834 жыл бұрын
@@zaradickinson So, really, you can eat white potatoes - and zero negative reaction? Do you eat the skins? And which ones have you find best/nonreactive: yukon (soft skins?) or russets, etc. (tough skins). Thanks much if you find this. I am afraid that I eat various nuts, and I think some of them cause me great harm. I need to be more scientific, take ALL out, and replace one by one over time. I find this difficult. Of course, no sugars, minimal high fructose fruits, I skip eggs/dairy (EXCEPT my little bit in coffee in AM's - and I wonder if the coffee AND/OR the half n half are my waterloo? - I give me the excuse 'it is so little' . . but I guess it takes almost nothing to get into the wrong places/cause inflamm.
@kingneptune89376 жыл бұрын
Great video. Over the last year I've refused the meds ypur on.instead I'm on an antiimphlamatry then I've went down the roads of natural remedies, I work full time in heavy industries doing 12hr shifts 6 days a week. I take lugos iodine first thing in morning in water, i waite 30mins and have a table spoon of organic oregano oil, after another 30 mins I have a bowl of porridge made with water banana blue berries and a kiwi, then I take a multi vit, vit D3 3000iu, Aavlabs 15 diffrent strain probiotic , vit C 1000mg, x 2 omega 3 2000mg , vit B complex, I also use mother of Apple cider vinegar in water and drink through out the day, approximetly 8hrs later I take another vit C and x2 omega 3. I use a lot of organic hemp seed oil on my food, for my psoriasis I use a company called skin salve there soap and moisturiser cream are amazing ...of course there's protocols to be followed when taking any of the above, diet is a big help, avoid sugars fast food ready meals, easier said than done as I like sweet things but I've slowly changed my life style and things are going well. I'm also using 100% gum turpentine spirit which has been a revelation for me..ive fonud that theres some rubbish below standard vits out there and i have done lots of research into them buy the best you can afford.. if any one wants to know more just go to u tube and type in what I've put down ..Dr John Bergman is a good start about autoimune and leaky gut and a doctor on you tube called DR Jennifer Daniels on how to take 100% natural gum turpentine..disclaimer this is what works for me I have no medical back ground and you must do many many hours of research into the above. Good luck from England.
@stevekumar20173 жыл бұрын
How is it going 2 years on. Ive been offered metatrexate but wanted to try the natural remedies route first. TiA
@kingneptune89373 жыл бұрын
@@stevekumar2017 Hi, I've had a few flair ups, I decided to go vegetarian a year ago, I've stopped all sugars and sweeteners, I drink organic green tea, approximately 1.5 litres a day, I'm on vir D3 x 6 a day at intervals , x3 vit C with rose hip 1500mg at intervals through the day, I make my own raw organic yoghurt with raw probiotics and vit D3 drops, omega 3 several times a day. Organic Unpasteurized milk to make the yoghurt, I've been on methotrexate but took my self off and up to now things seem ok, dont get me wrong if I'm suffering I'll go back on methotrexate. I also take milk thistle drops twice a day to detox the liver. Regular blood tests are essential..good luck
@stevekumar20173 жыл бұрын
Hi thanks for the update, i do Vitamin C and Omega 3 fish oil stopped all meat, bread and Diary. My breakfast is Lots of fruit Kiwi , Apples, Pomegranate, Black grapes and lunch Vegetables with whatever is cooking. Still get pain but managing also started Meditation Joe Dispenza on KZbin and plenty of Exercise. Ill keep you in the loop. Have s great Christmas
@kingneptune89373 жыл бұрын
@@stevekumar2017 meditation relaxation is essential to lower the stress hormone, I'm looking into open water swimming, I live in the north of the UK and I've been researching cold water swimming/bathing which is meant to boost the autoimmune system. Happy xmas.
@miguellopes94106 жыл бұрын
Thank you so much for this video... I could't cope with metotrexate, made me fell very depressed (even more than usual). I use cbd oil now, wich helps, but I can't pay the more concentrated version of the oil. Made some major changes in my diet, no bread, no sugar, no cakes... it's hard, many sacrifices for little gain, but that's the path. Be strong, you not alone. Kind regards
@sriranjanis5 жыл бұрын
Did the changes in diet help?
@braveguat65854 жыл бұрын
@@sriranjanis Yes, it can help fastway4you.com/how-can-diet-affect-psoriasis/