It is hard to live with Parkinson’s, I know Rosie she is from my town, I have this after years of not knowing.
@macclift99562 жыл бұрын
How often do sufferers get to compare notes with other sufferers of pre-symptoms/diagnosis daily habits (supplements, oils, sleeping tablets, antibiotics, exercise regimes, etc.), one has to wonder.
@Zakariah19712 жыл бұрын
Zzzzzzzzzzzz
@claudiahillman60353 жыл бұрын
.visit DR.ADULE today on his KZbin channel for any type of virus or disease or infections he Is a great traditional doctor.infection like herpes fibroids hpv als.etc
@chaiyoatid79963 жыл бұрын
You can get your disease cure with a medicine that cure my herpes virus from Madidaherbalcenter on KZbin.
@channelsharon56213 жыл бұрын
ALS is not difficult to cure, it's nearly impossible to cure right now with the current herbal remedy.And on top of that, it's extremely expensive.dr Ehimare on KZbin reverse my father from ALS with in short period of time.you can reach out to Dr Ehimare on KZbin OR Whatsapp (+2349027349748). Facebook page:m.facebook.com/Dr-Ehimare-486420321924941.
@carolinekremer6543 жыл бұрын
I want to quickly say this here about this particular Dr called doctor Ehimare on KZbin he is a real traditional herbal remedy treatment doctor who reverse my Motor Neuron disease (ALS) after been diagnosed for years and my doctor here told us there was cure for it, and I'm totally cure now no more silava lost and also do my daily activities or any symptoms.God Bless you Dr Ehimare on KZbin and i will always continue to tell the world about you sir 🙏...
@carolinekremer6543 жыл бұрын
I want to quickly say this here about this particular Dr called doctor Ehimare on KZbin he is a real traditional herbal remedy treatment doctor who reverse my Motor Neuron disease (ALS) after been diagnosed for years and my doctor here told us there was cure for it, and I'm totally cure now no more silava lost and also do my daily activities or any symptoms.God Bless you Dr Ehimare on KZbin and i will always continue to tell the world about you sir 🙏
@slavavova64863 жыл бұрын
I must appreciate Dr Madida on KZbin because I know how Terrible this Lyme disease is and even my pulmonary fibrosis disease but with the aid of Dr madida herbal medicine I was cured
@slavavova64863 жыл бұрын
My health situation was worsen early this year and was under oxygen for months, I am very glad that today that I can breath freely now after using a herbal medicine prepared for me by Madida herbal center.
@thelmacandid85303 жыл бұрын
Hello i was once an ALS caregiver to my husband because my husband was also diagnosed with motor neuron disease(ALS) but all thank to doctor Ehimare on KZbin herbal remedy that help my family out. He is a great traditional Dr..
@stefanlehmann76993 жыл бұрын
Honestly speaking the only research that the ’scientists’ will always do involves the increase of big pharma profits. They will never cure any disease permanently for them to make more money by keeping people reliant on drugs, and they will do everything possible to discourage others from trying other medications like herbal medicine but I thank God for my friend who directed me to Dr. Sani.I am happy to inform you all that I am finally free and completely cured of ALS (amyotrophic lateral sclerosis) after using Dr. Sani herbal mixture, the formula works like magic .Always learn to follow your heart, refuse to be discouraged because there is no problem without a solution . I am back on my feet even stronger than before thanks a lot to Dr. Sani. You can also contact Dr.Sani to eradicate diseases like diabetes, high blood pressure, stroke, infertility, tuberculosis, skin disease, hepatitis, fibroid etc.You can reach him through his WhatsApp number on: +2348118184266 or via Email: [email protected]
@stefanlehmann76993 жыл бұрын
Honestly speaking the only research that the ’scientists’ will always do involves the increase of big pharma profits. They will never cure any disease permanently for them to make more money by keeping people reliant on drugs, and they will do everything possible to discourage others from trying other medications like herbal medicine but I thank God for my friend who directed me to Dr. Sani.I am happy to inform you all that I am finally free and completely cured of ALS (amyotrophic lateral sclerosis) after using Dr. Sani herbal mixture, the formula works like magic .Always learn to follow your heart, refuse to be discouraged because there is no problem without a solution . I am back on my feet even stronger than before thanks a lot to Dr. Sani. You can also contact Dr.Sani to eradicate diseases like diabetes, high blood pressure, stroke, infertility, tuberculosis, skin disease, hepatitis, fibroid etc.You can reach him through his WhatsApp number on: +2348118184266 or via Email: [email protected]
@dragonfox2.0583 жыл бұрын
I have segmental dystonia....it's tonic and it was pulling my bones apart until I got surgery in '97. Then, I had to invent my own phys-therapy cass nobody knew what to do here where I live. If I hadn't researched it on my own, it would have killed me. It's no way to live. Tonic is where you have one stuck posture, phasic is the trembling stuff
@JenniferGarcia-yy3sn3 жыл бұрын
To live is more important than to die. Even with less hope or fortune. For a living dog is better than a dead lion. My name is Jennifer Garcia, I am 69 years old. It all started toward the end of the year 2018 when I was diagnosed with amyotrophic lateral sclerosis [ALS]. I became a little child who does nothing but to depend on others for everything. I barely move my feet and hands myself. My son of blessed memory Anthony who passed on last year tried all he could to see me back on my feet but all his effort seemed impossible. The doctor said I will have to live like that for the few months I will spend on earth. The pastor gave me hope and prayers but it got to a time that I lost my faith as my health deteriorated. I began to await death by installment but on a fateful day when I went out for my normal therapy at the clinic, my very first boyfriend Stanley saw me in a wheelchair as my daughter pushed me in and he came with so much expression of disappointment on his face. He promised to go on a research on the internet to find if there is an alternative cure. He stopped at nothing until he discovered a post in google page by Darren Kent testifying how he got cured from ALS by Dr. Sani natural herbal remedies. We contacted him through his Email and WhatsApp. He told me that he has herbal healing remedies to cure not only ALS but also other incurable but management diseases. I believed or trusted him because I was left with no choice. I sent him money and He prepared his herbal mixture tonic, herbal cream and healing oil and sent them across to me. He gave me instructions which my daughter took seriously. After two weeks of treatment, I began to notice some great changes like I was able to talk clearly, eat, drink and move my hands and legs gradually. The third and fourth week I got cured. THE KEY POINT IS THAT I CAN DO THINGS NOW WITHOUT NEEDING SUPPORT OR BUGGING ANYBODY. Dr. Sani never asked me to advertise him but I think it’s what I should do to make our world a favorable and disease free one. Sharing is Caring. You can contact him today by E-mail: [email protected] or call his tel; +2348118184266. I so much love this Dr. Sani Hassan for I owe my life to him. He is so kind and polite. Thanks for viewing.
@fourshore5023 жыл бұрын
Wow hes got it for 6 years but you cant tell at all. I guess hes one of the "lucky" ones.
@stefanlehmann76993 жыл бұрын
Honestly speaking the only research that the ’scientists’ will always do involves the increase of big pharma profits. They will never cure any disease permanently for them to make more money by keeping people reliant on drugs, and they will do everything possible to discourage others from trying other medications like herbal medicine but I thank God for my friend who directed me to Dr. Sani.I am happy to inform you all that I am finally free and completely cured of ALS (amyotrophic lateral sclerosis) after using Dr. Sani herbal mixture, the formula works like magic .Always learn to follow your heart, refuse to be discouraged because there is no problem without a solution . I am back on my feet even stronger than before thanks a lot to Dr. Sani. You can also contact Dr.Sani to eradicate diseases like diabetes, high blood pressure, stroke, infertility, tuberculosis, skin disease, hepatitis, fibroid etc.You can reach him through his WhatsApp number on: +2348118184266 or via Email: [email protected]
@robertnatiello20254 жыл бұрын
Hello everyone my dad was diagnosed with motor nurion disease Als and the told us there's no cure for it. But i want appreciate dr ehimare who reverse my dad Als with his herbs medicine treatment and i will continue to testify about your treatment and God will bless you more. And you can also reach Dr via WhatsApp +23490 2734 9748 or email [email protected]
@tomcunningham19734 жыл бұрын
Well done guys for video Check out "Dr anthony sims on you tube he seems to have some very interesting "sensory tricks " amazing if its true something to do with "orthotics tweeking ;& tricking the sensory s could be where to look muscle has memory so say musicions best of luck "outside the box ........
@tomcunningham19734 жыл бұрын
Well done guys .Ive been looking up distonia for a collegue & found u tube videos by ""Joequen farias who .looks to have a diffirent approach looks interesting ,he has a digital book on amazon hope this helps Im wary about medjcal orthordoxy as i have suceeded in for the most part fixed my brother s lifelong anxiety through "The walsh institute " My first medical lesson was if theres no money in it we wont have heard of it "but dosent mean it wlnt work "outside the box is where ive learned to look '' hope this helps best of luck
@Catajbr7 жыл бұрын
I have cervical dystonia. I wear a neck collar everyday. Usually I use collars that are narrower than a regular wide collar as I find this gets uncomfortable after awhile. But on really bad days I have to use the wider collar as it give more support and lessens the pain somewhat. Sounds a little contradictory but so is dystonia. If I didn't use a neck collar, I would not be able to keep the spasms under any control and the pain would be much worse. Also I do stretching of the neck muscles everyday. Lately things seem much worse (I've had CD for 20 years) and am supposed to have an MRI. But I had a severe claustrophobic reaction to the MRI 18 years ago and am very nervous about doing it now so I might not get it done.
@rogerioaguilar8 жыл бұрын
Hi, my name is Rogério. I hope you are better. I would like to know if you have found something that helped lessen the symptoms. Thanks.
@suehenderson69496 жыл бұрын
Rogério de Paula Aguilar I have cervical dystonia too. It hurts so much. botox shots help, get a good neurologist. plus make sure you have complete medical insurance, shots very exspensive, Sue
@raajuraaju51563 жыл бұрын
@@suehenderson6949 where are you from I am from India who is suffering from cervical dystonia
@tylerpool54643 жыл бұрын
@@raajuraaju5156 benzos help
@raajuraaju51563 жыл бұрын
@@tylerpool5464 tell me
@tylerpool54643 жыл бұрын
@@raajuraaju5156 clonazepam or xanex. I had it really bad but both of these help. But they are addictive so find a doctor if you can.
@denisew67748 жыл бұрын
I have been diagnosed with Dystonia, as well. I can't hold my head still very well. This makes it very difficult to visit the dentist or to get a haircut. Pat's hair looks very nice. Pat, could you tell me how to be successful at getting a haircut? Thank you
@jasminali64903 жыл бұрын
Me too
@IAMGiftbearer8 жыл бұрын
That's really awful that your friends left because of this! Shame on them! One day sooner or later they will need support as none of us lives and stays healthy forever and they better hope that someone is there for them when their time comes. I believe that the way people treat each other determines the future global energy, and the more loyalty that individuals put out into the world the better it makes the earth as a whole. People take life and health for granted until illness knocks at their door. Then they no longer have the option to just walk away. I'm glad you have found deeper friends who understand what it means to be a true friend. You deserve love and acceptance. I think you are right to go for the DBS instead, as I wouldn't like Botox either. It sounds downright grisly to inject toxin into muscles that are already so vulnerable. I really hope that treatment is replaced with better options, as it just feels wrong on so many levels. I think some of the neuroplasticity methods show promise and would like to see more developed along those lines
@alloz67316 жыл бұрын
i have dystonia and parkinson's disease, and i got dbs surgery 3 years ago. and battery replacement surgery 1 week ago. i still terrible conditions. all my friends left me 2 years ago because they understood surgery not help me either. and now my wife and my children are mad at me all the times. i am really hopeless.
@ryners610 жыл бұрын
I have dystonia I'm 27 , I find in stressful situations it gets bad and my head begins to tremble .
@2496TheTrev11 жыл бұрын
my brother passed away from mnd, he lived 2 years and 8 months he was 55 when he passed. and made every day count. its a monster of a deases. every single day was a challange. i am very proud of my brother, and anyone who has been told they have this just try and remember you are not alone, just wish and pray for a cure........ xxxxx stay positive that is the only way to deal with this....
@vartatoosh11 жыл бұрын
Try to keep your mind busy by say watching movies or for example if yo are right handed try to use your left hand. I think it will help
@vartatoosh11 жыл бұрын
I tried akineton (biperidon) this is the best
@bettekelley979711 жыл бұрын
I live in the US, but listening and watching this lady is like looking in a mirror. Her movements, twists, her struggle with speech, her attempts to forcefully correct her posture and the description of her limited home and social life are so eerily familiar. She even appears to be quite thin and have the same issues with medications that I have experienced. As a fellow Dystonia patient, it helps to hear someone tell your story. Many thanks to for sharing. BJ Kelley
@bestdubsepmusic12 жыл бұрын
good job
@Niloy6313 жыл бұрын
I have a lot of respect for people like this woman. They are brave enough to sit in front of a camera and describe their disability so that medical students like myself can have a better understanding of the disease. I sincerely appreciate what they do, and wish that I could thank them for having the courage to describe something that has severed their quality of life. They deserve one hell of a round-of-applause.
@Meggles07286 жыл бұрын
I agree, much respect to this woman. But maybe this is what we should all be doing! I personally feel no shame for my diagnosis and am open to share my experience with dystonia. Anyone on afflicted with this disorder knows there needs to be LOTS more research and awareness. This is a step in the direction. The more of us that expose ourselves so candidly, I believe, the sooner we’ll see those advancements in understanding, identification, proper diagnosis and treatment.
@jde97116 жыл бұрын
I have been diagnosed with this. I have mild. I know what this lady is talking about... But I am no way as bad as this. This lady has made me understand a lot. NHS are very helpful here with me and thank God for this service and my nurse. My heart goes out to this woman and the students that are understanding this to learn to carry their understanding onto this terrible misunderstood disease.
@RialBaker13 жыл бұрын
I am so sorry that you have to live with this. I also have Spasmodic Torticollis Dystonia. I must get 9 hours of deep sleep each night. I find that sleep helps tremendously. I, like you, also take Klonipin, but I also take Valium and Soma as needed. This seems to help as well. However, Remeron (for sleep) has been amazing, and massage seems to help as well. The botox just froze my spasm in place, and it actually made it worse. I do get temporary relief when I get the sleep I need.