This man needs to lose his job and his career tarnished for the atrocities he has committed

my simple focal's are pretty similar to this. I've been showing colleagues this video to help them understand what it feels like.

This is so accurate.

thank you.

I hate my epilepsy

grr sooo frustrating. all i can do is pick it back up (if there's no more twitching/jerking), shake my head, and hope i don't have a grandmal.

He did my brain surgery! Amazing person!

Hi my twin brother Mark died of epilepsy on the 22nd of Dec 2016, we miss him lots.

He was my doctor,he did the surgery! He changed my life! I will be grateful all my life!

I like how they had the man carry the glass bowl to her in the morning.. that's our reality! We're restricted to plastic in the morning, or having someone else carry glass objects for us :')

very informative program

I'm getting major ASMR from his voice.

I'm about to be referred for possible JME. I've lost count of the times I've hit myself or knocked my head without warning -usually on something like a corner. Myoclonic jerks/ seizures are a nightmare but my friends prefer to say I'm possessed!

Epilepsy is so understudied

i went a year with out a seizure and started having them agen wich was strang for me

i have epilepsy my self it coust me to have learning difficalty . Iv had epilepsy sins i was 9 months old and naw i am 18 years old

i have epileps , iv had it sins i was 9 months old

i have epilepsy my self . iv had it sins i was 9 months old , it calst me to have learning difficaltis . i have to write evrythink doun . i am now 18 years old

Thank you so much for making this. It is a great way to show people what I experience and it is so precise! Most think there is only one type and this is a brilliant way to educate. Thank you so much for all you do. God bless you <3

What a great inspirational video, thank you :)

At first i was getting what felt like slight pulling on my left side which i thought was just muscle spasm ,happened a few times a couple of days after that my left arm started shaking ,couldn't talk or shout to get someone or grab my left arm with right .i put it down to spasms or a nerve ,then it happened again next day and i knew this was something wrong this was sat & sun,mon had another two of this shakes another 3 ,i went rigid and left leg lifted also(i'm in a wheelchair and i'm a paraplegic) this was late afternoon on the tues called my surgery but they were about too close so called NHS24 got a doc out within 40 mins ,had another slight pause in the body i knew doc was there but couldn't respond back ,got admitted to hosp ,ambulance was here within 5 -10 mins or so ,i'm about 2 mile from their depot.after the docs in hosp asked all my symptoms ,was told it was a form of epilepsy ,had CT & MRI both clear,they call it focal seizures with occasional generalisation symptomatic focal epilepsy.i'm on Lamotrigine twice a day have been for 15 months now had no more seizures,had to give up driving tho 29 years to 0 was a kick in the teeth ,gladly i now have my licence back and due too be driving again in Sept once i get my car ,Sorry for the rabble .

Very moving story. I'll be sharing this on y clients page facebook.com/AlertItCareAlarms/ this week. Thank you for doing a Case Study like this, it creates a strong genuine connection within our epilepsy community.

I like this vedio and multilingual version, I which if there was an Arabic version.

i have left frontal lobe epilepsy and to say the least, these are ultra annoying and tend to show up at the most inopportune time.

this video is very informative video !!!!..I am an Occupational therapy student.I had quite difficulty in understanding the types.of seizures..,this video explained it very well..Thank you !!

Thanks for making videos like this- and to the participants for sharing your experiences. Speaking as newly diagnosed - it really helps to listen to people speak about it and to see that it can doesn't have to define our lives- maybe just alter a few expectations. Keep up the good work Epilepsy Society!

💜 this is wonderful!

All about... very good style of explanation in hindi.

Really helpful im also thank you for ur important time

Good job my relatives have epilepsy I will send this video to him

Tonic clonic ones, how common is it to have these for more than 20 minutes? The longest one I've had AFAIK was near an hour.

Why isnt this being performed in humans yet

Thanks this will help me if my mum does it

:( iv been having this since I was little..I had a few back then like my arm movements, messing up my words which is effecting my talking and reading. I'm 19, :/ is there anything like what type of medicine you could name that can help me out with? I don't want to be on it my intire life

My whole life, I've had something I believe could be hallucinations. What makes me unsure of it is that they only appear at certain places. I had epilepsy as a kid while being somewhere under the age of 5, thought I had it no longer when being around 8-9 as I never had any more seizures, but figured out a little more than a year ago that I still had it. Nurses working with epilepsy says that through epilepsy they can appear anytime, and because of that, my hallucinations aren't created by the epilepsy. Then what are they created by? Are they hallucinations or could it be something else? Does anyone have some sort of the same problem? If anyone has an answer to this that might be of help I would really appreciate that. Thanks!

Last I heard I was diagnosed with Juvenile Myoclonic Epilepsy. From what I remember being told when I am having seizure I have staring spells and hand tremors. I was told I might not grow out of it. I was diagnosed at 12 or 13 and I am now 18. I don't know the cause.

How can you tell if you had one? One time I was painting a fence and I was bent over and my body jerked up and the waist and I hit my head. I have Tourette's but it wasn't like that at all

This is my type not good at all

thanks ...

While it may not be a most accurate portrayal, this video does mean something to me as someone with epilepsy. Many videos have been made to show people what a migraine aura is like from the sufferer's perspective. This video has helped me show people what going into and coming out a seizure is like from my perspective, at least visual. Thanks so much for this video!

Do focal seizures always have Visual effects?I've got to go for some tests but they think its focal epilepsy. Usually I know when I about to have one. I feel very spaced out (floting feeling) and a feeling of anxiety. I can usually go bk to normal within seconds however sometimes I'm unsure about what I,m doing e.g. I couldn't cross a road when going to work

Thank you for sharing......Gracias...♡♡

I agree with Sue's statement. Witnessed this type of scenario many many times from a family member. However I would like to point out (semantics or not) that people may have the misfortune to have epilepsy, i do not consider them to be epileptics- as this latter term is very negative indeed

To all those encountering someone in a seizure: Whilst they are actually fitting, they cannot hear you as he/she is unconscious. However, when they appear to be 'coming round' words of comfort are so very helpful so talk to them as much as is possible. At least that way they soon realise they're not alone. Just simple phrases such as"It's ok mate/lass, I'm here for you, no need to worry.""You'll soon be feeling a little better and I'll stay with you for as long as necessary". Keep repeating it and anything similar that comes to mind.Soothing phrases can be virtally anything, they may not respond, that doesn't matter, but eventually you'll 'reach' them and he/she will feel so much better as a result.Your time is the greatest gift you can give - not just to epileptics or those who are ill either - but to anyone throughout life. It's an immense gift that folk will treasure :-)Thanks so much, Sue

I went to a haunted house last night, I have been to this same haunted house for the past 5 years and I have never had a problem with strobe lights. Last night was the least scary the haunted house has ever been for me, except for the fact that every time we encountered a strobe, my legs went limp and my body just wanted to drop to the ground. I don't have any head nods, and my boyfriend was holding on to me so I never fell all the way down, but I was okay walking on my knees. It's the strangest feeling and I've never experienced it before. I am 18 and it blows my mind that somehow I developed this issue in less than a year. Is this a form of epilepsy or even atonic seizures? My knees seem to buckle and that's it so it doesn't seem to be quite like the videos I see.

Would any one come to know that they will have a seizure some time before a seizure????

Sir my friend has got her MRI, CT SCAN, EEG done but no epilepsy found. But when she gets an attack it resembles tonic clonic seizure. What is that then? Does she have one then? What can be its cure?

Our medical director Professor Ley Sander explains why sharing research is so important at the 31st International Epilepsy Congress in Istanbul.

Listen to our medical director Professor Ley Sander talk about SUDEP at the International Epilepsy Congress and about his hopes that research will one day close the chapter on sudden unexpected death in epilepsy. Find out more information bit.ly/1LRobba