How Is the MDS Patient Experience Measured?
5:15
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@dalievent5361
@dalievent5361 10 күн бұрын
Hello
@barbarasullivan749
@barbarasullivan749 17 күн бұрын
I need it in print! Videos are hard to share with patients
@In4mattke
@In4mattke Ай бұрын
I am breaking down ,I don't know where to start , leaving in a third world where most Doctors are not much familiar with PV, no energy, lost my job cause of low productivity,am down 😢😢😢😢😢😢😢
@ashokkarki6738
@ashokkarki6738 13 күн бұрын
Me too man. Just try your best.
@In4mattke
@In4mattke 13 күн бұрын
@ashokkarki6738 we can link tujiencourage
@ulfatunnaher
@ulfatunnaher Ай бұрын
Hi Friend, I hope you are well Your VIDEO SEO score only 0%. SEO is the most important of any KZbin Channel. You need to optimize your channel for better results. you can make your video reach the targeted audience. If the videos are full of SEO and update the videos then the views of the video and the channel subscribers will increase
@hijaeyu5890
@hijaeyu5890 3 ай бұрын
This host is an idiot
@varunas2565
@varunas2565 3 ай бұрын
Please save this world from AML, lots of adults and small children are suffering from this deadly disease
@AB2008.
@AB2008. 3 ай бұрын
Can you have VSG AFTER having Multiple Myeloma?
@El_pilou
@El_pilou 3 ай бұрын
thx Dr. Cortes you give me hope
@shubhamsoni9802
@shubhamsoni9802 4 ай бұрын
Is their anychance to stop medicine
@shubhamsoni9802
@shubhamsoni9802 4 ай бұрын
How cure cab be define
@clarkbennett2312
@clarkbennett2312 4 ай бұрын
I have AML and am 68. Will be going in next month for a clinical trial induction, and then the transplant. Wish me luck😊
@amira2736
@amira2736 4 ай бұрын
good luck!
@elenascopelliti1211
@elenascopelliti1211 5 ай бұрын
My experience with Pelabresib was terrible and I still have to deal with serious conseguencies. I was enrolled in MANIFEST-2 protocol in Rome. My life became miserable because I was always ill. I stopped after the virus herpes zoster was reactivated and I suffered a sever facial paralysis and horrible balance problems. After one year I still have a parcial paralysis and balance problems because the VII and VIII cranial nerves were severy injured. I accepted to be enrolled because the doctor told me that otherwise I was going to die for leukemia. That was not true! I didn't even have the intermediate-1 grade of myelofibrosis! I only had pre-myelofibrosis! Now I am well cured for pre-myelofibrosis in another roman hospital, only with oncocarbide, cardioaspirin and booldlettings when necessary, exactly as before I was enrolled in Manifest-2 sperimental protocol. I have never have anemia, sweeting or other sintoms, except a bit of fatigue. I've spent 10 thousand euros for the cures. Recently I've filed a lawsuit against the hospital. But the law in Italy is really slow and I'll wait 10 years to have justice. The bad news is that I am hughly and parcial disabled, the good news is that I'm not going to die soon as I was told by the doctor who enrolled me in MANIFEST-2!
@judithwhite1
@judithwhite1 5 ай бұрын
Thank you so much (drotsiherbalcure) for the difference you make in the lives of your patients! Your kindness, sincere caring, treatment and concern make everything better and you are a great encouragement to humanity. Keep saving lives Dr. thanks for curing my Herpes virus.....
@judithwhite1
@judithwhite1 5 ай бұрын
Thank you so much (drotsiherbalcure) for the difference you make in the lives of your patients! Your kindness, sincere caring, treatment and concern make everything better and you are a great encouragement to humanity. Keep saving lives Dr. thanks for curing my Herpes virus...
@elenascopelliti1211
@elenascopelliti1211 5 ай бұрын
My experience with Pelabresib was terrible and I still have to deal with serious conseguencies. I was enrolled in MANIFEST-2 protocol in Rome. My life became miserable because I was always ill. I stopped after the virus herpes zoster was reactivated and I suffered a sever facial paralysis and horrible balance problems. After a year I already have a parcial paralysis and balance problems because the VII and VIII cranial nerves were severy injured. I accepted to be enrolled because the doctor told me that otherwise I was going to die for leukemia. That was not true! I didn't even have the intermediate-1 grade of myelofibrosis! I only had pre-myelofibrosis! Now I am well cured for pre-myelofibrosis in another roman hospital, only with oncocarbide and booldlettings when necessary, exactly as before I was enrolled in Manifest-2 sperimental protocol. I have never have anemia, sweeting or other sintoms, except a bit of fatigue. I've spent 10 thousand euros for the cures. Recently I've filed a lawsuit against the hospital. But the law in Italy is really slow and I'll wait 10 years to have justice. The bad news is that I am hughly and parcial disabled, the good news is that I'm not going to die soon as I was told by the doctor who enrolled me in MANIFEST-2!
@ulfatunnaher
@ulfatunnaher 5 ай бұрын
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@ulfatunnaher
@ulfatunnaher 6 ай бұрын
Dear I see you have uploaded videos today too but your video views are getting very low, there are some problems in your channel if you fix them you will get good views, can we talk?
@747rld
@747rld 6 ай бұрын
My wife has PV and is only 30 yrs old. Her condition is worsening. We are in northern CA with limited medical resources. The doctors at UC Davis prescribed her blood thinners but that’s it. They won’t take her on, they say her case is too severe. She now has an enormous spleen that has induced a large hernia. And she’s on extreme amounts of pain every day… they won’t fix the hernia because of the other issues related to the PV. Can someone from the east coast please help my wife before it’s too late
@rlove3222
@rlove3222 6 ай бұрын
David is a pv patient in North Carolina
@rlove3222
@rlove3222 6 ай бұрын
David Wallace is the website owner and a pv patient
@rlove3222
@rlove3222 6 ай бұрын
Pv. Reporter. Com.
@rlove3222
@rlove3222 6 ай бұрын
Pv
@rlove3222
@rlove3222 6 ай бұрын
Reporter
@MediMediMary
@MediMediMary 6 ай бұрын
Nobody can hear anything in this video. Get a better mic or a videographer who knows what they're doing. This is absolute nonsense.
@didierlason6453
@didierlason6453 6 ай бұрын
This doctor has no business treating rare non-cancerous blood diseases like aplastic anemia that she is not an expert in. Peace.
@georgewood5634
@georgewood5634 6 ай бұрын
Promo>SM 💞
@TheBeatlesGuiseDuo
@TheBeatlesGuiseDuo 6 ай бұрын
Dr Wang, your passion to successfully treat MCL is so apparent and so appreciated. After listening to several of your broadcasts I am wondering if your Ibrutinib Plus Venetoclax treatment is or can be used for patients who are not young, are older than 70? I'm only extrapolating after listening to hearing an emphasis on young patients mentioned particularly. I know someone just getting chemo for MCL and not reacting well to it. Would like to help them.
@SixOhFive
@SixOhFive 7 ай бұрын
Respect for your accomplishments in academia, but the cancer industry is truly rampant with profiteering and dangerous therapies which harm the patient more than help them. I think back to the little girl who was cured of brain cancer through radiation treatment, so she beat the cancer, but she also died a few months later because her brain literally fell apart due to the damage from the radiation. Medicine is supposed to be a risk vs reward system, not a system of capitalism and torture. It is morally wrong to prolong somebody's life just so you can experiment on them or make a profit from them. It is reprehensible.
@chief270202
@chief270202 7 ай бұрын
Mark, do you promote taking Iodine? It's a large reason so many people have cancer, and thyroid issues, because you Doctors promote drugs instead of therapy that actually gets rid of the cancer naturally
@orscrub3161
@orscrub3161 8 ай бұрын
Sadly, it did not work for my husband. As a matter of fact, in less than 6 months his MM progressed to PCL.
@JesusSanchez-xu2is
@JesusSanchez-xu2is 6 ай бұрын
How old was your husband? Also did he receive a ASCT prior to this?
@orscrub3161
@orscrub3161 6 ай бұрын
@@JesusSanchez-xu2is ….52 when dx and 66 when he passed. He had an auto SCT at the very beginning. And a SCT from his sister in the end
@marshiathomas8804
@marshiathomas8804 8 ай бұрын
What is considered high risk and short remissions?? Please, my son has MM and I am TERRIFIED!! Marshia in Charlotte NC
@serferten
@serferten 8 ай бұрын
It would help to clarify what specific stages or levels of response would work with say less therapy. I've responded very well it seems and less might work well for me.
@rohitchauhan-nj1oh
@rohitchauhan-nj1oh 9 ай бұрын
Hindi
@sampathsam2610
@sampathsam2610 9 ай бұрын
Mrd negative means it cured
@Ourania.b
@Ourania.b 9 ай бұрын
If you had an AML patient with mutations IDH2, SF3B1, ASXL1, NPM1 and a history of heart disease would you choose low intensity chemo with a menin inhibitor or high intensity chemo with a menin inhibitor?
@MirzaYasir-ww6tn
@MirzaYasir-ww6tn 10 ай бұрын
Rite
@Denise-ux4xd
@Denise-ux4xd 10 ай бұрын
Aiders & Abetters of W@r Crimes are equally guilty.
@jrobson382
@jrobson382 10 ай бұрын
timely , finally
@hunnybadger442
@hunnybadger442 10 ай бұрын
It's already too late for me
@MicaCardillo
@MicaCardillo 10 ай бұрын
I'm hoping we can find a better proxy than the current MRD testing. For one, it seems cost prohibitive. We need to be able to do something like monthly testing to really understand the response, and my naive instinct is that MRD is more than just ratio of abnormal Bs. I suspect that if we could cost effectively survey the immune system on a monthly basis, like a flow panel that gives us more information about subsets, especially t subsets, there is probably a signal that deep learning could uncover. Plus, t cell exhaustion is something I'd like to better understand. How do we treat that problem? Maybe by being more selective, or attinuating dosage based on t cell exhaustion?
@MicaCardillo
@MicaCardillo 10 ай бұрын
Much appreciated update. Thank you!
@rodro7620
@rodro7620 11 ай бұрын
Fantastic discussion 👏😁👏👏👏👏
@pauldodd2120
@pauldodd2120 11 ай бұрын
Strange not to mention the drug and type of drug in an introduction...
@Homeuse-m7f
@Homeuse-m7f 11 ай бұрын
If my mrd is negative.Still I need transplant?
@JesusSanchez-xu2is
@JesusSanchez-xu2is Жыл бұрын
I've never been overweight. I've worked out my entire life. I was muscular. I have MM.
@JesusSanchez-xu2is
@JesusSanchez-xu2is Жыл бұрын
Why not do CAR-T first line for everyone? It's safer and more effective than BMT and doesn't require maintenance.
@JesusSanchez-xu2is
@JesusSanchez-xu2is Жыл бұрын
Will this be available first line instead of ASCT.
@Lakridza67
@Lakridza67 Жыл бұрын
She really is brilliant. Dr Maryann helped with my transplant for AML and I’m still here! Absolute treasure of a Doctor👏👏💯
@mdrahamatullahmd4574
@mdrahamatullahmd4574 Жыл бұрын
I am a c l l blood cancer patient. I am battling with this disease since one year. I am consuming tablet ibrutinib daily. Every thing is going on well but my bodyweight is gradually decreasing. Please give suggestion how can i live well.
@bekincai
@bekincai Жыл бұрын
so why is Curis trading below cash?
@may_laytrucker3127
@may_laytrucker3127 Жыл бұрын
Dr Richard is excellent Dr ,she treat my wife leukemia ,and she's cured also in 13 year's remission.!
@ardengoglia8034
@ardengoglia8034 Жыл бұрын
😚 "Promo SM"
@Marie.Helms3
@Marie.Helms3 Жыл бұрын
Hey Dr. Usmani. You are missed in Charlotte, NC.
@susantasaha
@susantasaha Жыл бұрын
Congratulations 💐
@marcweill4387
@marcweill4387 Жыл бұрын
He is detailed and precise in ways that are required to understand Round up harming everyone.