two weeks and we will be here <3

Thank you for this. Just what I needed to see. We have booked for 2024 in the adapted version of the exclusive style, near to where you were, number 855. It seems to have an extra twin room with accessible bathroom etc tagged on downstairs beyond the games room, but everything else on the floor plan matches your pictures.

I had my first episode of SVT at age 5 i I was playing with barbie dolls and never played with them again. I was diagnosed with WPW when I was pregnant with my oldest daughter. I’ve been in and out of hospital all my childhood and adulthood , I would cry and think i was stupid for going to the hospital every time because they never could catch it.

2 of my siblings have it and I have been having the symptoms a lot!! Recently the only one I don’t have is fainting but I have an appointment on the 26 to figure out what is going on hopefully its not wpw but knowing that 2 of my siblings have it is worrying

Lovely vlog, you really captured the magic. Hope you can make it back again someday

Thanks for sharing. I was 11-12 when my episodes first started. In the beginning they only lasted for 10-15 minutes, but my last episode lasted 2 hours and went up to 298 bpm. I had lost a lot of weight over the course of time waiting to see if surgery was going to be needed. By the end the doctors knew things were going to get worse for my body and brain (due to improper oxygen intake) if something wasn’t done. So, 1992 was the year for my open heart surgery here in Canada. 8 hours long and 3 days in ICU, at 12 years old. I get “fluttering” still from time to time, they have told me no more coffee about 7 years ago, although I have just been able to quite drinking it just recently. The other issue that I developed, due to mainly the surgery, was Tietz Syndrome. This they believe is from my chest bone being put in two to get to my heart. TS is SOOOO painful. But if you don’t have to undergo full blown open heart now, TS will most likely not be a big possibility to get.

Thanks for sharing, I'm just newly diagnosed with WPW at 42,I'm in south Africa, waiting on my procedure.

I was diagnosed with WPW in 1990 when I was 19 and in the US Navy. I passed out while marching with my company back to our barracks after our first day of training. While testing my heart, it happened again and I passed out on the operating table. The doctors said my heart was going 215bpm when I passed out. I was told that this condition was corrected by open heart surgery at that time, but I was given the option to be a guinea pig for civilian doctors at UCSD for an a then experimental procedure (ablation). I had it done twice at that time. The procedures corrected the problem enough that the WPW it wasn't life threatening and enough that I could stay in the Navy... but I still had it.. Now, here I am today... 50 years old... and about to have another heart ablation this Friday. #KeepingMyFingersCrossed Laura, thank you for sharing your story.

I had it when I was born I didn’t have a good chance of surviving but I did my highest heart rate was so close to the highest in history the highest in history was 370 mine was 340 I got surgery a few years ago so I’m ok now!

When I was a child I had the same experience as you described in the video. At the time, I knew it wasn’t quite right however I never really felt scared for my life for some reason. Like you said, you kinda get used to it..it kinda became my normal. Doctors at that couldn’t find what was wrong. Several years later as a adult I became a paramedic and did a EKG on myself and saw WPW and took it to my doctor to confirm and sure enough I had it. Explained all the episodes I had as a child. It’s been nearly 10 years now since my last episode. I’m more active now that I ever was and still no symptoms. Doctors currently for me didn’t recommend any ablation as of right now however proceed with it if I started to have symptoms again.

thank you for making this video! i was diagnosed with wpw november just gone and this has really put my mind at ease

I’m going in august and you have made me so exited for my trip love this!

I was diagnosed with this at 18 (This year), even though I had been experiencing these symptoms for at least 5 years at that point, shortness of breath, dizziness, palpitations, near fainting episodes, chest pain, and during the episodes my heartbeat was often over 250 bpm, usually lasting 5-7 minutes, with my longest episode being 15 minutes. During all of these, my heartbeat was so strong that my friends could physically see my chest moving because of it. I never tried to get it diagnosed until last year (though diagnosis got delayed by a year due to Covid) because I just thought I had bad stamina 😅. Anyhow, they were able to diagnose it fairly quickly as WPW Syndrome and scheduled me EP studies and ablation for this summer. However, during the operation, they realised that they could not go through with the ablation due to the location of my accessory pathway. Every time they would try to, it would start affecting my AV node, something that if damaged would lead to me needing a pacemaker for the rest of my life. They tried to ablate it with both the heating catheter, and then with the freezing catheter, but neither worked so they ultimately made the decision not to risk it. The catheter ablation is successful in 85%-95% of cases, however unfortunately I was one of the few where it was not successful. Currently, and for my foreseeable future, I am on beta-blockers. I still get one of episodes once in a while, especially if I do anything strenuous that would cause my heart to beat faster, but otherwise, I am doing ok. Though no alcohol, cigarettes, caffeine, or any recreational drugs for me for the rest of my life. The only other issue I could have is if I were to get pregnant I would have to go off my medication. But the point of me sharing my story here is to help people who feel unsafe going through with the ablation, or to those whos was unsuccessful like mine, that it does not mean you are alone. Of course, everyone's situation is different so don't decide to go through with the operation just because it didn't work for one person. And if you're worried about how painful it might be, I can assure you that it really isn't. For me, there were only a few incisions on the side of my groin, and they healed up pretty quickly. For the operation itself, well I spent most of it asleep due to the painkillers, and only felt mildly uncomfortable at times, but that was honestly expected with something poking around in my heart 😂. So to any of you who have been recently diagnosed with WPW, all I can say is don't let it stress you out too much and just do what is best for you.

I had an SVT heart ablation November 2021 (last month) to cue my Wolff Parkinson white syndrome! I had my ablation at the John Radcliffe hospital and the doctors there were incredible with me as I was very nervous. The symptoms are awful, I had the worst palpitations but my ablation had worked wonders. Amazing what they can do now! I had two incisions in my groin and you can barely see the scars. I stayed one night in hospital as I was the last surgery of the day however people who were earlier on in the day went home the same day! I felt sore and had chest pain for a few days after but the recovery was so fast!

My daughter had 2 EKGs say short PR interval. Dr said WPW syndrome can be the reason for it. She has to see cardiologist. We don’t know what to expect next. She goes tomorrow. I don’t know what they will do at first visit ! Really scary because this is something dry confusing looking it up and all I can see is that it might cause bad problems and need for pacemaker later in life and possibly dealth. So it sucks that’s all I can understand about this. Any info that could help me understand or prepare us for what’s next will be awesome. Thanks

Hi i am wpw patient plz help me

I was diagnosed when I was 10. I remember having some tachycardia episodes before that, but for some reason I didn't tell my parents..I guess I was scared. Until the day I fainted for a few seconds during one of the palpitations, and my mom took me to a hospital. I used medications for some years before the ablation with 16. I'm 28 now, and haven't had any symptoms since then, even when I exercise. For anyone who was just diagnosed, know that everything will be fine! You can have a very normal life.

Thank you for sharing 😊

I had the same thing! I also had an ablation when I was 9/10 at Birmingham's children's hospital I was born 1985 and my consultant was Dr giavanni.

My ablation after that 11 week ago but still have little fluttering or skipping? Doctor tell ablation full sucsessfull will this problems change pls reply? This is heart healing process ? Reply

Hello, do you know where the disease can be located in the patient's DNA code?

i have this but not that bad but im having a presidure to fix it

Thanks for sharing. Got diagnosed WPW when I was 15/16yo after feeling sick during a flight lesson. 2 unsuccessful exploration surgery because too close. Surgeon said that we can live like any other with this but it finished my dream of being a fighter pilot. I had really short episode of tachycardia, less than 15 seconds. Today I still fly, not as a fighter/airline pilot but for my passion ! Take care

Thanks for posting your story, I jut got diagnosed with wpw yesterday so it was quite a shocker

No idea how I just found this video lol. But I was Diagnosed with this at age 18! I had symptoms growing up, : Shortness of breathe, really fast heart beat, dizzy, sick feeling. My mom made a appointment with our primary, this was when I was in Junior High. My primary said she thought this was just asthma, I wish my primary would've looked more into this.. so I had an inhaler for years, brought it with me everywhere during my sporting events. I was playing every sport growing up. One time, during a volleyball game, my mom had to take me home because my heart was beating so fast (I could see my shirt moving), I felt so dizzy, short of breathe. I tried using my inhaler. didn't seem to help. But eventually, while I was at home I got my heart rate to go down and felt better... fast forward to college years... (All in between the years this happened on and off) I was playing dodge ball one night on campus and of course it was very extensive running and playing. My heart couldn't stop racing, felt short of breathe, dizzy felt like I could pass out, I did walk with my friends back to the dorm. I drank water. I was in my dorm room by myself that night, the symptoms didn't get better, actually worse. Luckily, no idea how, I was able to walk down the dorm to a friends room and tell them I can't breathe, I was crying, sweating. By the grace of God their was an ambulance already on campus for another call!!! so she got them to come upstairs to my dorm and I kept fainting in and out, the paramedics knew i couldn't breathe and knew my heart rate was high, so I taken on ambulance to hospital. Mind you, I was alone! my parents, sisters all lived 2 hours away :(. I'll always remember this entire ordeal. So many doctors, nurses, techs doing ekgs labs, etc. One nurse, in particular held my hand the entire time because I was crying in tears because my heart beat wouldn't go down and i couldn't breathe (they put medicine through my veins and everything) 250 beats per minute at age 18, (I think that was my age?) . But hours went by they got it down and the next morning a cardiologist came in to talk to me about WPW. 1st ablation in the hospital was so scary, I was in surgery for 8 hours. They had to use the defibrillator during operation, my heart wasn't strong. My family did get to come to see me that morning before the procedure, since the college was able to contact them with what happened. In that year I had to have 3 heart ablations because my rhythm wouldn't go down. It was the scariest thing in my life! :/. Didn't know this was a thing. BUT years later, 30 now, doing good! :) 3 kids, married. I try to watch my caffeine intake because that can make my heart rate go up and I don't want that happening again! More people need to be aware of this because it's so scary!

I was diagnosed with this , all of this started like a year ago at 2 in the morning I woke up feeling my heart beating so fast , never had this happen to me , it lasted for about 15 minutes,. I ignored it ,. Went back to sleep , than the following days I been feeling light headed and dizzyness like I was gonna faint at work , but than in 2 different separate days my heart beated fast but it didn't go on for 15 minutes, it was more like 2 to 3 minutes, the third time around it's when I went to the hospital, I found out than I had wpws

Thank you, random lady on KZbin 😁👍 we've just booked one of these for next year and wanted a good look at it.

I know this video is old, but I have recently started getting ridiculously dizzy, my body goes tingly and I can’t see well, and I also feel my heart beating so strong in my body, I fainted the other day and hit my head…. It truly felt like a heart attack. How can I ask my doctor to look for this?

My youngest child was diagnosed with WPW at 6 months of age. We had to wait until a reasonable age for him to have surgery. We are sitting in recovery as I speak and everything has went well this far. He just tuned 5 last month. Definitely scary as a parent, I couldn't imagine how scary it is for the patient.

The ablation is a terrifying experience because you are awake and they flood the body with something that replicates the tachycardia episodes - you see, hear, and feel everything! After my procedure I was cocky, thought I was done with the condition. Unfortunately after about a year the symptoms have returned with worse episodes than before and I am undergoing more tests. (It’s not always a “happily ever after and god bless the NHS” story.)

I was diagnosed with wpw in 2019 had surgery because my heart rate would reach 162 just from laughing and I tried to join the merchant seaman this year but couldn’t because my symptoms was returning

Coming here after lamarcus Aldridge retired

Fine story. Thank you for sharing your experience.

2:22

i’ve beaten wpw and everyone in the comments who have this you’ll get thru!

I was diagnosed with wpw at 16, 4 years ago, but had symptoms starting as young as 6. They went away and when I turned 16 I started getting them again. I had the procedure done and I’ve been all good since.

as someone who first encountered this in 2009, as a patient, the astounding amount of consumer friendly info available now is astounding and fantastic!

I was diagnosed with this syndrome and I don't expect because I always live a normal life until I got a stress for not sleeping well and got caffeine and I got the palpitations episode and shortness of breath.

Hi. I’m 23 yo. I just got diagnosed WPW actually this month. Always feel palpitations and recently I experienced chest pain. Thankyouu for sharing your experienced in WPW. I hope I will survive this too. 🙏🏻

Did you have an issue with exercise afterwards? My daughter is being monitored at the moment for a possible Delta Wave.

I have WPW I hate it and I’m so young I pray things get better and I can have kids 💔💔

Thanks for sharing your story Laura. I almost died at 2 weeks old in 1973, was incredibly lucky to get pioneering surgery. I have had ablation twice as an adult but still have symptoms. At 47, with two wonderful teenage kids, I'm just glad to be alive and enjoying life.

I also have it. It’s getting diagnosed right now

Growing up it was really difficult to talk to people about how I felt cause I would get heart palpitations so often I thought and was told I had nothing even in moments when I felt so scared that I was grabbing my chest out of fear. Then one day in my sophomore year, I had to go to the hospital cause my heart rate spiked and I was turning pale. I had the procedure done and it was unsuccessful cause I was the un-lucky 10% and that’s when I found out I have WPW and PVC besides my SVT and since then I’ve taken medication but the fear and panic attacks linger so I’m posting this to hope that there is anyone who shares my story.

Do you think it can affect your hair texture ?

I'm 15 with wpw and had 2 oblations when I was 11 and 13 but it hasn't gone away seems to be getting worse If you have a child or baby that has wpw try cheese 😅 that's what my mom gave me when I was little and woul have episodes

Thanks for posting this video. It’s delightful to hear from someone who has/had WPW. I was diagnosed 2 years ago through a random ECG. After follow up tests (stress test, Holter test), the electrophysiologist said I was asymptomatic.

Thank you so much! I just started a Facebook group Wolff-Parkinson-White Syndrome (WPW). Hopefully we can share stories. This is so rare, its hard to find people. Anyway thank you. Excellent video.

Is WPW bad for corona virus if you had the ablation?

Thanks for sharing! I'm going to have an ablation procedure soon and I can't wait to be done with SVT and WPW