But I'm Strong LLC

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@lucilleverrille54 Ай бұрын

I remember saying the steak was tough. My husband and kids looked at me like "What?' I kept chewing and they said it was so tender. Another time, I had trouble swallowing a jelly bean. I laughed and said, I guess I shouldn't be eating jelly beans. Once my husband asked why I was drooling with my mouth closed. Also, I noticed my face was different in photographs. I blamed gravity. We just laughed these things off. When my fatigue kept growing, I said, Well, I am getting older, I am overweight and this is normal. When the breathing issues began, I paid attention, but that was all the doctor focused on. After a traumatic event, I could not breathe, I could not hold my head up and the double vision began. Then I was sent to a neurologist who did a blood test which gave me a diagnosis. All of the dots suddenly connected and I realized how long this was brewing. Accepting is key to finding a way to live with this disease.

@alenkaaknela2793 6 ай бұрын

❤

@suesturgis5821 6 ай бұрын

Thank you for sharing your story!

@e.shruthirami7360 11 ай бұрын

Hi my name is shruthi am suffering from mg from last 1 year after taking medication and treatment my doctors are now suggesting to take rituximab but am afraid of it will you suggest me for this am really scared of this and am 21f

@tawnylepri9088 11 ай бұрын

Hi, my name is Tawny, I was diagnosed with MG in 1984 at the age that of 9. My story is very similar to yours at the age of 15 I had a thymectomy and went into remission, until after the birth of my daughter at 27 years old. The MG was managed with medication Mestinon to be exact up until four years ago when I began to have difficulty swallowing and got into a myasthenia crisis. I went on immune suppressant for three years then tapered off and now I’m currently living a fairly normal life. I only take two 180 mg tablets of Mestinon daily. There are good days and bad days and can’t help but believe that God has a purpose for all of this, and He is being glorified through my journey. Thank you for sharing your story and God bless bless you.

@abdulawalkhokon3098 Жыл бұрын

I am MG patient my problem 10 years

@kc7339 Жыл бұрын

Hi. Thanks for your sharing. I'm undergoing tests, but from my view point the diagnosis I will get will be MG. Talk please about your treatment. Thank you

@sierrasexton539 Жыл бұрын

This is exactly like what I've been going through with no diagnosis but the neurologist suggested it and to go to the rhumetalogist

@camalebell Жыл бұрын

I can't lift or anything or brush my teeth or shower or bath 😢😢 ill keep praying I need to go back to church

@camalebell Жыл бұрын

I want to get healthy and healed fromyto myasthenia gravis condition I did over work out which cost myasthenia gravis but my house was over hot which cost me to not breath or chew or swallow

@themysticmuse Жыл бұрын

Girl, you're a warrior!! What a queen. 😘 I thought the Prednisone was supposed to improve symptoms?? Newly diagnosed. It's mainly in my arms. Ya got me in tears, girl.😭 You're absolutely beautiful. Such an inspiration. God bless you.🙏🔥😘

@Risingphoenixx66 Жыл бұрын

Hello from The Netherlands. I,m a 57 year old woman , was diagnosed in 1984, it took a while before they took me serious but i became so bad that i finally was diagnosed in the hospital. My case was so intense that i ende up with surgery, that was traumatic, nowadays they have lessen invasive methods. The time that i wasn,t able to eat,speak,drink was traumatic, i got an anxiety disorder from that and PTSD. I,m cured for 80% and when i,m tired,very emotional,stressed or sick than i have more symptoms. In my case, i ruïned my life . I stopped medicaton a few months after surgery, a thymectomie has saved my life, but i can,t get rid of the trauma, even had EMDR sessions but i remains. I met the love of my life ( was married for 23 years earlier) year ago, but i feel blocked, i feel embarressed for having MG, although nobory sees anything. It,s a cruel disease. Wish you the best!

@newnewpayne5112 2 жыл бұрын

Wow!! Your story is so similar to mine!! You look great! I had a thymectomy and afterwards I went into complete remission!! I was also even able to wean myself off of the mestinon! Keep pushing forward.. you’re blessed!!

@SparkingLife111 2 жыл бұрын

How r u today? What is your treatment plan? What is life like?

@dannyjamesbrooks115 2 жыл бұрын

#driyaremoses herbal healing

@dannyjamesbrooks115 2 жыл бұрын

Herbal medicine cured me completely from ansomia permanently prepared by Dr iyaremoses on KZbin

@lucillejoestraub3336 2 жыл бұрын

Thank you so much your video has been very helpful regarding the rituxan. My neurologist is stopping the ivig to see if I am in remission also I am on cellcept which she just stopped also she is concerned because my white blood count has dropped.

@nealchange8085 2 жыл бұрын

What is your situation now?

@kosovareqarolli7346 24 күн бұрын

How are you doing now with mg? Did you had a tymectomy?

@SM-xg6ee 3 жыл бұрын

I am just diagnosed with MG and don't know what to do. The neurologist doesn't communicate well. I just started taking medications but it weans of easily if I make some movements easily and then I take gets back. Please help me what should be my next step.

@crazylane5314 3 жыл бұрын

I have just found your channel. I have refractory Myasthenia Gravis. The neurologist treating me is fantastic, probably the best in South Africa, she also does thorough tests every time. I have been on most medications, Prednisone, Azathioprine, Mestinon, had Plasmapheresis, IVIG, then Cellcept. Some only worked for a short while, some made me very sick, Cellcept caused me to go into crisis. IVIG works amazingly, but is extremely expensive. I had my first Rituximab infusion two four days ago, we are praying that it will work, as I don't have the energy to deal with medication not working once again. Thank you for your honesty on your channel. Please give us an update if you started with Rituximab, and how things are going for you.

@mercy3219 3 жыл бұрын

Thank you for sharing this info -- quite helpful!

@MrsXx 3 жыл бұрын

I know this is a old video and in hope you're well now, thank you for doing this. I'm suspecting this, with this video I'm believing I have this. Our stories are similar but I didn't have hospital care regarding these symptoms, I was told I was imagining it & I must be mentally ill. I have other rare illnesses too that they didn't understand. I finished my qualifications from bed with help from my assessor but never made it to uni. I've lived life in bed or odd days with hours I can be in wheelchair or back then crutches.. I'm hoping I can now receive the tests & get the right care.

@teetime3421 3 жыл бұрын

My doctor has me on cellcept because I could not tolerate the Prednisone, it keeps me stable. I hope you’re still doing well.

@newmen7843 4 жыл бұрын

I’ve been diagnosed with MG since the ages of twenty twenty-one, I’m now forty-six and feeling true effects of the illness. Thank heavens for informative people like you. Six years later.

@pdrohrtdo9756 2 жыл бұрын

What do you mean by “true effects of the illness”? I just got diagnosed thsnks

@christinagerrard1812 4 жыл бұрын

May I ask have you. Tried the Rhutuxamid ? I was wanting to try

@alielsharkawy4033 4 жыл бұрын

بينيششسذحيحيذذخظطيuusru

@alielsharkawy4033 4 жыл бұрын

Jssjsfeuesjrrbxhswososk EWA jkskشبكيشسعسسيسس

@alielsharkawy4033 4 жыл бұрын

Hkizjakajdz

@MrRckylee 4 жыл бұрын

I was just diagnosed with MG and had a lot of meds This is a good idea for myself to sort my daily tablets a night before.

@MrRckylee 4 жыл бұрын

Hello Ms But I’m Strong i was just diagnosed with MG today along with the news that i need a surgery because of Thymoma. From the start I feel weakness of both arms followed by weakness of legs then double vision and sometimes difficulty in swallowing solid foods. Now am on steroids and waiting for my surgery.

@TheGraceornell90 4 жыл бұрын

Did you have a thymectomy? If yes, how did it go.

@rakhu1963 4 жыл бұрын

Any updates on your MG?

@ericwilliams2122 4 жыл бұрын

all credit to god and not the medics...

@atengjazznyo2871 4 жыл бұрын

Hello I was diagnosed also Myasthenia gravis since 2017 until now and now confined again in a hospital because my hands can’t move and my eyes falling down close but now I’m ok 🙂 in Japan hospital I am a Filipino not good English I have so many share with my experiences about MG but my English is very poor I can only say be careful MG sicked because it’s suddenly came the hurts 😌

@paisleyprice8319 4 жыл бұрын

Omg... I am being referred to neurology and I tried to do all these things in the video and its so difficult. I didnt realize how bad this was.

@sharonbaker3969 4 жыл бұрын

I just discovered your video. It really touched me emotionally and psychologically. I was reminded of my own journey with pre and post diagnosis of MG. Your video is a great information piece, and made me feel so proud to see your strength and perserverance. I was diagnosed in 1975. I went into remission in 1976 but I still have vestigages of muscle weakness from time to time. You have inspired me to share my journey of 35 years. You are absolutely correct, your faith in God or a higher being, by what ever name you call him/her, is what will make the difference in your life.

@TheGraceornell90 4 жыл бұрын

Wow you inspire me. That’s a long time with that disease. I believe most of us were not born yet. I was diagnosed in 2015.

@naasira9ali 4 жыл бұрын

❤️

@watzaprawwwr6356 4 жыл бұрын

I hope u can send me help because im suffering too of myasthenia gravis and i can't speak anymore 😢 thank u

@LiveReality19 4 жыл бұрын

What did you think when you heard about Static/Major ?

@syazawazir4057 5 жыл бұрын

Hey jesse, i have a lot of questions to ask you about refractory myasthenia. I was diagnosed last march and i am still unstable as for now.

@jonnikaye7384 5 жыл бұрын

This such a great video about mg and the strange symptoms. Thank you for making this and sharing your story. This inspires me To share my own mg journey! ❤️

@TurkiBooNyc 5 жыл бұрын

Girl I understand everything I'm struggling with this now. 2 years waiting to be diagnosed and finally I know. Praying for your body to be strong and send me some prayers for my Thymectomy next week 😘😘😘🙏

@TheGraceornell90 4 жыл бұрын

How did it go with your thymectomy? I was diagnosed in 2015, but my CT scan and chest xrays never showed a thymoma until last week. I am doing a Pet scan next week to find out more about it. I am just nervous to go through any surgery.

@TurkiBooNyc38 4 жыл бұрын

Went amazing one year after my Thymectomy. Healing was a breeze. No huge incisions or anything. But for me my energy levels, emotional levels, and just drive to have the life that I used to have has slowly faded from me. Its hard for me to leave my home. Taking the stairs to come home 3 flights only winds me si badly I must sit before entering my own house or pass out. I sleep and can sleep for 18 plus hours or more if I'm let alone. I am grateful and very thankful to be alive and living but it's so hard lately im not going to lie. I need an IVIG infusion and im too scared to go to my hospital from COVID im in New York. We were the epicenter of this shit storm. 10 hours ago we beat the record of dead in one day today like do I really want to go get an infusion and possible never come home? Or get home and kill my hole family with covid? I dont know. But thank you for asking! Feels good to talk about it. It's a great surgery but in My opinion and circumstances its changed my emotions drastically. So I dont know but sending love and hugs prayers and hope. Chrissi🥰

@TurkiBooNyc38 4 жыл бұрын

@@TheGraceornell90 if your worried about pain dont the hospital knows it's a painful procedure. Purely by the location of the thymus gland. But I PROMISE they will not allow you to be in any discomfort. So dont you worry. Just listen to your surgeon. Do exactly what he askes of you so you heal properly and quickly, but most importantly painlessly so be direct like Doc IM DIEIN HERE GIMME A SHOT OF MY PAINMMEDS JESUS lol only had to do that one time lol when I was waking up but I wasn't hurting I was high and sleepy lol just running at the mouth lol. Enjoy ok. Its gonna get much better I promise. 🤩#MGStrong Boo!

@sandradelgadillo2345 5 жыл бұрын

Are you able to share your medication treatment? God bless you. You are here bc God has a plan for you. Keep open to his messages. He has mysterious ways of communicating with us.

@TallT-oz1zo 5 жыл бұрын

Hello my name is ceon and I just want to say thank you for making this encouraging video because I've been struggling with this mg condition for about 8 and half years now I got diagnose with mg back in 2011 and I must say that my life has been hell trying to deal with this condition I hate this disease but I can definitely relate to what are going through with this mg but I'm sorry im just now viewing this video but I'm just now reaching out to people that has this disease so with that being said Im gonna see can I reach out to many people as I can that has this condition but thank u again for your sharing your mg story with us and your are a beautiful strong woman and God bless you and your family and stay positive

@TheGraceornell90 4 жыл бұрын

It looks like there is a lot of us.

@Hoho.326 5 жыл бұрын

I’ve gotten mg for 3 years now I’m able to live a normal life for the most part I just get tired very easy other that that I’m fine but for the first 3 o 4 months it was very hard

@evaserajkhan2482 5 жыл бұрын

So which type of medicine are u taking ?

@MsBbnora 5 жыл бұрын

I have been diagnosed yesterday. It kind of relief to me after they diagnosed me because I got an answer for my inusual body condition. And I am positively involved in the treatment and plan for my condition because I want to be back to be adventure and active.

@pristineparr7509 5 жыл бұрын

Had to leave this link from Dr. Bergman. Hope everyone gets a chance to check it out. Much love kzbin.info/www/bejne/f5W2lqSLjLN1r8U

@roberthorne5011 5 жыл бұрын

I am 50 yrs old and live in Roseburg Oregon USA. I was diagnosed positive for MG in 2012. It is really odd to hear someone explain exactly what I have been through. Thank you for sharing your story. Do you have pain in your weak eye as well? Mine feels like it's about to pop like a squished grape last couple of days... can't seem to get enough sleep... etc.

@TheGraceornell90 4 жыл бұрын

Mine started with eyes too. My right eye is weaker than the left one along with pain.

@thoughtitwasfriday 5 жыл бұрын

💪💪💪

@jaimes1572 5 жыл бұрын

Hi! I’m having the same issues. I went to the ER last night and they thought the same thing, polymyositis. But my CK was normal so they basically they said it that’s normal I didn’t need further testing. So they gave me pain med and sent me home. I spent 2 days unable to lift my head off the pillow. Any advice on getting help? Thank you! You are so sweet I’m sorry you have MG 😔

@iross8796 5 жыл бұрын

Thank you, your a beautiful gift from God!

@theatutorials23vlogs5 5 жыл бұрын

Right Dx. Tricolor dse or Adult Paraphlegia or M.S. Hypothenus case or Different Dx. is Myasthenia Heavies or Lethal injection. Pt. name is Miss Miller Bear. Female. Around 36 years old. Get well soon!

@theatutorials23vlogs5 5 жыл бұрын

Myasthenia Gravies is a disease of the Tricolor or called Lethal Injection. Hypothenus case of a Tricolor Dse of Miss Miller Bear. Must Refer to a Reference to a Physical Therapist for Early Dx. and Tx.

@mariaandrade5961 5 жыл бұрын

Hi, I’m 14 years old and I was diagnosed with Myasthenia Gravis when I was 13.

@segametsiabby4834 5 жыл бұрын

Hellos, my son has been diagnosed with MG. Am from Botswana, is he gonna be ok? he is 27 years old.

@blakeyhustle2082 4 жыл бұрын

Omg !!! 😔

@raqueltabingo7186 5 жыл бұрын

Hi...I have diagnos in 2016..but tnx God I'm so strong..I'm not give up of my MG..MG is ever sensetive...

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