Thank You a lot. They gave my sleeve to put on for lymphedema on my right arm after bc mastectomy. I was trying to figure it out on my own because it only would get to cover 3/4 of my arm. Your video came up first to help me and i Just got my sleeve up to my shoulder! Yay! No more breaking a sweat, thanks to you! 😊😊😊
@JlLevy Жыл бұрын
Thank you-this is so helpful!
@lizsanchez8628 Жыл бұрын
Thank you, I thought I wasn't going to be able to get it on. God Bless you .
@cancermom9845 Жыл бұрын
Glad I could help
@desmondehoppie4758 Жыл бұрын
Great Instructions. Thank You for taking the time to make this video.
@lindaliddle63962 жыл бұрын
Great video well explained
@monicaa782 жыл бұрын
I know this was from 3 years ago but I am so glad to find this video. I have had lymphedema in my right leg for years but recently developed it in my right arm and need info on how to care for it. Thank you!
@JillRhoads2 жыл бұрын
Really cool design! This demonstration was absolutely wonderful.
@cancermom9845 Жыл бұрын
Glad you liked it!
@frankhinkle57723 жыл бұрын
Thanks, that was really helpful.
@cancermom9845 Жыл бұрын
Glad it was helpful!
@karenrussell60953 жыл бұрын
Thank you for this great demonstration. Just got measured for my sleeve yesterday. Hope to get a couple cute ones once I know what my specs are.
@ellejayrose59443 жыл бұрын
thank you !
@jenniferd68324 жыл бұрын
This was helpful, thank you! I kept trying to pull my sleeve over my shoulder and was wondering why it wouldn't stay!
@ada30134 жыл бұрын
Does fluid move into the back of your palm and fingers? Does your back swell?
@cancermom9845 Жыл бұрын
Yes and sorry I took 3 years to respond. Make sure you have a glove to use with your sleeve. I also highly recommend lymphatic messages.
@massachusettsprepper5 жыл бұрын
A very nice demonstration and stormy weather. Thanks for sharing.
@jillbettini26685 жыл бұрын
It's good to know that there are still good and thorough doctors. It's amazing to me ER doctors didn't check into this further. Scary!! Being young can be a disadvantage when it comes to serious medical conditions.I feel sometimes you can quickly be labeled as a hypochondriac,because young folks aren't as likely to have these types of diseases.Thank God for your sharp doctor. Good luck to you!!
@mandielou6 жыл бұрын
This is one of the best videos I've watched about cancer. Even though it was short it was very thorough and I definitely appreciate it I think I'm going to do what you did and demand testing. I have swollen lymph nodes in my neck the back of my head both of my armpits and several in both sides of my groin. 😧 I've been really sick nauseous I already have to take anti-nausea medication prescribed by my doctor. my white blood cell count is high. I've been tested for all types of bacteria and that's negative, I don't have any viruses. so.. what's left you know? I'm waiting on a referral to get a biopsy but they did that a week and a half ago and I haven't heard anything and the lymph nodes are growing, confirmed by my gynecologist on Friday. And she is pretty persistent about me getting more done. She's telling me it's not a Gynecological problem like my primary tried to say. I mean unless I have some massive type of infection which would normally make the lymph nodes hurt, Squishy and red. I mean who has lymph nodes that are swollen in three different areas of their body that they can actually feel and see visibly?? I've had someone pass away older in age from leukemia so why they're not doing more a little faster is beyond me... I really don't know what to do? I am getting a mammogram this week with an ultrasound of my breast and my armpits. so that might help with pushing some type of testing when they see the lymph node swollen there. I already have one lymph node in my neck confirmed on an ultrasound and then the other ones are just confirmed by feeling them at the doctor's visit. My lymph nodes are hard and don't move in my groin and the one don't move in my head or neck they don't hurt the ones in my armpits are movable though. I do get pains in some of the areas and sometimes it gets pretty bad but it's not the actual lymph node that hurts it's the surrounding area... I've been in the hospital with super high heart rate and chest pains and I have chest pains a lot! Grr this is making me so sad, I have five children! like what are the doctors thinking ? I feel like this is a no-brainer I really do. I even have night sweats where I soak my clothes and my pillow I had a colonoscopy and an endoscope done not too long ago and they said everything looks good. This may sound a little crazy and paranoid but I have Medicaid and it kind of makes me wonder if that's why my care is the way it is right now..? I haven't watched any are other videos but I'm going to search I would really like to see how you got through... God bless ❤️
@bonzstyle28455 жыл бұрын
Jesus My Comforter For Eternity hi it’s been a while but would really be interested to know what happened in the end since i’m going through the same thing... Hope you’re ok?!
@cancermom9845 Жыл бұрын
I would love an update if you can give one.
@TammyGrosso7 жыл бұрын
Sorry I didn't mean to press send. Anyway as I was saying I get my infusions every other week and have to stay there for many hours on that day. Like chemo there are many side effects so I have to take a lot of pre meds and I get a pre-med of Benadryl before my actual infusion that day. They say that this type of immunotherapy which I'm taking called opdivo is more toxic than chemo. However I don't think my body knows that yet. With my last chemo I was in the hospital more than I was out because of the side effects and how bad I felt and it's effect on my blood counts. With Tivo I do get sick and I'm very tired have joint and bone pain lots of different types of problems with my blood and like from day 3 to 7 after treatment I'm basically at home feeling like I have the flu, dealing with nausea and many of the same symptoms of chemotherapy. However I've only needed to go to the hospital twice in the past year due to my side effects. And just like chemotherapy this immunotherapy does give you "chemo brain". I think this is what you are actually dealing with when you are discussing it in the beginning of this video about you not being able to remember words or say things and stutter when you're trying to connect your words with your sentences. Last November mine got so bad that while I was out to eat at a local pizza place with my kids the waitress who I have known for many years called my ex-husband to tell her she thought that I was having a stroke or something because I couldn't talk right. They ended up calling the police and they came in and had me go outside to test to see if I was drunk or on some type of drugs. They called my ex-husband and told him to come get the kids and told me to go home and get rest. I tried to explain what chemo brain was but me talking and not remembering the words made me seem worse than I actually was and never got the point across to them. So chemo brain is very serious! And they have been able to prove it to. It is basically a brain injury that can be permanent but you can train your brain to overcome it on many occasions once you stop treatment for your cancer. Anyway here I am a year after my read diagnosis with metastatic mediastinal melanoma (no skin involvement) definitely over 3 to 6 months later. My largest tumor has shrunk so that it is more manageable and so have a few of my other tumors. As I said before I still have the fracture in my sternum but I also still have other tumors and a few more have grown since then. But for me the Opdivo is the only thing that has done anything with the exception of the other medicine that I took with it in the beginning of my treatment which I've had my Max limit of and I can't remember the name. Darn chemo brain! I am worried though because I've just recently started to experience another side effect which is showing that my body may not be able to take anymore of this medicine either. But thank God that this medicine is known for many people to continue to work many years after treatment. So hopefully I will be okay and my body will be able to manage it more because I am totally not ready to go and leave my three kids behind. And just like you you went through this with some very small children which is really difficult for both you and them. When I went through my breast cancer treatment my three kids were ages 4, 6 and 10. And my four-year-old daughter basically responded to my hair loss just like yours did. Now they are 11, 13 and almost 16. And I wonder sometimes if this time is actually harder for them because they're older and understand a lot about death now. Anyway I also wanted to let you know that I am like you very upset that it took so much for both of us to get a diagnosis with r current Medical field/insurance in America. You would think that being a society like this we wouldn't have that problem. But we do! And we all have to be our own Advocates and fight for the proper tests and treatment. Because if we don't no one else will and there will be many more people being diagnosed with cancer at very young ages because their doctor said things like you're too young to get breast cancer or that's not a cancer type of symptom. Both were told to me while I was trying to be diagnosed for both cancers. I'm very happy and thank the Lord that I am here today but I'm also happy that you have made it through to the other side. I also know because I went through it already that just because you're finished with active treatment doesn't mean that your fight is over and everything is back to normal. For me and many others, it was not till after treatment that we were able to finally think about our experience and become emotional about it. It is a time where we need more people to support us. however most people see the hair growing back and think that we are all better. That we should move on, and put cancer behind you. That we can't put it behind us because it is still part of our daily life in our memories and in the way our body is feeling and handling the effects of the treatment and how we are having to still pay financially for the time that we lost or all of our medical bills and of course for things like chemo brain neuropathy from treatment and other medical issues that are not visible to most people. I will keep you and your family in my prayers and hope that somehow we can stay in touch if you would like. I know that I need as much support that I can get and I'm sure you might too. Good luck and God bless!
@TammyGrosso7 жыл бұрын
Our stories are so similar it's not funny. You however have gone through this before me, seeing that this was filmed on March 8th 2016, which was the day my doctor told me to go into the emergency room because they saw a very large tumor on my mediastinum that was affecting my heart and lungs. I already had breast cancer so I thought that lot of my symptoms were me recovering from treatment that was back in 2010 through 2012. In 2015 I decided I needed to stop my full-time job running a dental office so that I could figure out what was going on with me and treat it. After test and lots of trips to the ER and Misdiagnosis, for almost all of 2015, I finally was able to convince my doctor to give me a CAT scan which showed the large tumor and a few other ones in my sternum and my lungs. When I went into the hospital I ended up staying for almost 2 months and at first, they thought I had breast cancer again then, lymphoma and then they settled on some form of metastatic or stage for carcinoma which they immediately started me on chemo. For. But after almost a month of being in and out of the hospital because of the very strong chemo, my doctor decided to send my labs to a genetic expert to see if they can run the test backwards to find out exactly which cancer I had. When the test came back he said that he did not think the test had the right answer. He explained to me that it was as though he sent an apple to them (my pathology) expecting them to come back with the test saying that it was some form of an apple like a Granny Smith or green apple. But for some unknown reason it didn't come back an Apple at all it didn't even come back up he's a fruit. It came back and elephant which is just impossible. Basically he was trying to use this as in an allergy to say that they sent what they thought was the pathology of a carcinoma to them, instead of a type of carcinoma coming back as the answer it came back a melanoma which they had already ruled out long ago especially since I had absolutely no skin involvement at all. He told me that he would give me another pet scan to see if the treatment was working that I had already been on. But if it came back that my cancer had didn't stop growing, they would take that as a sign to try the immunotherapy that are seeming to treat melanoma. Well it turned out that my cancer had spread like wildfire during that time on that chemo. I now had an extremely large tumor in my mediastinum with the measurements of 10 x 7 x 13 and another small tumor in my mediastinum that was growing into my heart which caused me to have two blood clots in my arm and not able to breathe or lay down without feeling like I was being suffocated. They also found many other smaller tumors throughout both of my lungs and tumors on my sternum and just like you a fracture in my sternum due to the tumors growing right through them. And trust me I understand that pain that you were going through when you said that your cancer had broken your sternum. It's extremely painful! And a year-and-a-half later I still have the fracture and deal with the pain. Anyway they also found some other smaller tumors and one in the back of my skull at the bottom of my brain. This was in July 2016 and that very next week they started me on immunotherapy infusions to treat metastatic melanoma with no skin involvement. I'd many other things to go on with me at the time and they actually called my family in to say their goodbyes at one point and gave me 3 to 6 months to live. They really didn't think that the immunotherapy would actually work but thank God it did! Many people are not familiar with immunotherapy's. It is very similar to chemotherapy. I have my infusions every other week which takes a few hours at a time mine I got the infusion which took a few hours each time, every other week.
@roseweber227 жыл бұрын
praying hard for you!!
@chocolatcats8 жыл бұрын
dam shameful Dr who said NO...........shameful.. I'm so sorry..I hope you're well..
@amg84978 жыл бұрын
Your story just makes me so angry!! ... I live in Canada and we too have those ignorant doctors who do limited testing and if nothing shows they just send you home ... Any tests Ive had done for me and my daughter have been done ONLY because I have pushed ... But either way we are still having major health concerns and no answers ... My daughter has symptoms related to lymphoma and I am scared to death for her ... She has enlarged lymph nodes in her abdomen and severe stomach pain she has had a abdominal CT and a chest X-ray and is going for a colonoscopy in 1 month ... They too have ruled out pretty much anything else so I don't know why they drag their heels so much when they KNOW this is potentially life threatening!! .... I don't know if you have looked up any alternative therapies at all but I will give you the chrisbeatcancer.com site ... He cured himself through juicing and a healthy lifestyle ... He interviews many others who have when the same with all types of cancer ... Everyone has to choose their own path when it comes to treatment ... There is no right or wrong method but it's good to have all the information you can get either way ... I wish you all the best in your recovery ... Actually I didn't look at the date of this video lol ... I always assume that the videos are current ... So hope you are doing well ... Whatever path you've chosen 😉
@cancermom98457 жыл бұрын
angela gouldsborough ... How is your daughter? yes I know the website. I need to do an updated video to give all my current info. it's been a journey to say the least.
@AmyLouiseYT5 жыл бұрын
angela gouldsborough your story is horrible and I hope your daughter is ok. I, too, am Canadian and have had horrible, and increasing symptoms of something. My GP has outrighted stated she thinks "blood cancer" 2 months back. I'm still waiting on referrals and tests. Although I go for an abdominal ultrasound finally, tomorrow. I have most of the classic signs of leukaemia as I don't have any noticeably swollen lymph nodes. Then again, my friend had lymphoma and she felt completely fine with no swelling at all. Hers was found during a routine Pap test. Last Friday I found out through my GP clinic (the social worker who's acting as a liaison for me) that my doctor hadn't made referrals yet because "it slipped her mind". WTH? How does this happen when we are suppose to have such a good health care system? Another doctor referred me to Sunnybrook here in Toronto and apparently I "live outside their zone for accepting outpatients" again I say, WTH? Clearly we do have a good medical system and are lucky here in Canada, but something is definitely happening within the system that needs to change! I booked an appoint with my GP last week and it isn't until NEXT week. 2 week wait! I'm now looking for a new family practitioner.
@kellyindeedpositive91978 жыл бұрын
great video,,,hope you are doing well!!
@massachusettsprepper8 жыл бұрын
I think you have had that haircut a few times in your life Stormy Weather.
@mdelucia678 жыл бұрын
Great positive attitude, ,I'm quite sure You will be an inspiration to many,,Good luck. Kick it's Ass
@massachusettsprepper8 жыл бұрын
+Mike DeLucia Thanks for stopping by and showing support brother.
@massachusettsprepper8 жыл бұрын
Stormy Weather, I think this will be a very helpful topic to so many people out there. And your positive thoughts through out this journey will surly help those who are having a had time. And I'm sure there are many people who have gone through this before you who will step up and be a great support to you as well. Your aunt and I will keep you in our thoughts and prayers and you know where we are if you need us.